Literature Review

NPHI execs: quality is hospices’ differentiator Hospice News; by Jim Parker; 4/28/26 True quality care transcends government-required metrics and is key to shaping the future of hospice care. This is according to Tom Koutsoumpas, founder and CEO of the National Partnership for Healthcare & Hospice Innovation (NPHI), and Carole Fisher, the organization’s president. While factors like regulatory compliance are crucial to quality, they don’t tell the whole story, Koutsoumpas and Fisher told Hospice News at NPHI’s Annual Summit in Chicago. “Quality is our differentiator. In addition to all the scores, certainly patient and family satisfaction is a huge part of it, making sure that we continue to put the patient and family in the center. ...” Koutsoumpas said. “Do we create an atmosphere of trust? That’s a quality issue."

End-of-life nurse's top things terminal patients wish they knew earlier: pearls of wisdom from people in their final days have been revealed Wales Online; by Samantha Leathers; 4/17/26 End-of-life care specialists at Marie Curie have revealed the most precious wisdom shared by dying patients in their final months, weeks and days, urging others to focus on what genuinely matters. Living in the moment, letting go of grudges and embracing life without fear were among their top recommendations. Multiple nurses and care assistants also revealed that among the most common regrets voiced was missing family gatherings due to work obligations. This ranks alongside worrying excessively about money, with numerous patients advising their loved ones to invest in memorable moments instead of saving for potential emergencies.

How a pickleball injury highlights fraud in California's hospice industry ArcaMax; by Richard Winton; 4/21/26 Lynn Ianni didn't learn she was apparently dying in a Los Angeles County hospice care facility until her Medicare claim for a pickleball injury was rejected. "At first we laughed because it was an obvious clerical error," the Seattle-based psychotherapist recalled before a congressional committee Tuesday, where she was providing testimony about her months-long experience in 2024 with fraud in the hospice industry. "It wasn't just frustrating, it was terrifying." Ianni appeared before the House Ways and Means Committee on Capitol Hill at a hearing that revealed details about fake claims and stolen doctors' identities. She was a victim of California hospice scammers. Editor's Note: Download Lynn Ianni's testimonry to the House Ways and Means Committee, 4/21/26.

Leonardtown Run For Hospice raises $125k in 29th annual event My Town, Leonardtown, MD; by Nicholaus Wiberg; 4/16/26 Runners, walkers and pets gathered Saturday morning in Leonardtown (4/11) for the 29th annual Run and Fun Walk for Hospice of St. Mary’s, continuing a long-standing community tradition supporting hospice and bereavement services for local families. The event featured a 10K and 5K runs and a fun walk, beginning at the St. Mary’s County Governmental Center and winding through historic Leonardtown and surrounding rural roads. ... More than 1,100 participants from across the region registered for the St. Mary’s County event; ... the main event raised more than $125,000 ...

Build a real workplace violence committee. Not just a checkbox. Download 9 ready-to-use templates to launch your program.pomsafe - Compliance Resource; by pomsafe; 4/15/26 Built for the filed, not the facility. Most WPV resources are designed for hospitals, buildings, and fixed locations. This kit was built from the ground up for organizations whose staff work in homes, communities, and the field, where the risk environment looks completely different. Built for teams in home health and hospice; ... any organization sending caregivers into patient homes or the community.

Hospice Fraud Briefing: one page summaryLund Person & Associates Hospice Consulting; by Judi Lund Person; 4/16/26 Download this one-page, detailed summary of Top Cases, Total Losses, and Dominant Schemes from April 2025-2026.

Hospice Fraud Briefing: one page summaryLund Person & Associates Hospice Consulting; by Judi Lund Person; 4/16/26 Download this one-page, detailed summary of Top Cases, Total Losses, and Dominant Schemes from April 2025-2026.

Music in the last hours: finding humanity in the ICUAmerican Journal of Hospice and Palliative Medicine, from Piura, Peru; Carlos F. Ugas-Charcape, MD, PhD and Cristopher A. Tarazona Chapilliquen; 3/27/26Objective: To describe the use of personalized music as a comfort measure during the final hours of life in the ICU and reflect on its impact on the patient, family, and care environment. ...Conclusions: Personalized music represents a simple, patient-centered adjunct that may enhance comfort and dignity in the final hours of life.Editor's Note: For more detailed research, case studies and therapeutic guidance for using music in the "last hours" with hospice and palliative patients and families, I invite you to explore "The Final Cadence," a chapter in my book Music of the Soul - Composing Life Out of Life. 

Executive Personnel Changes - 4/10/26

[Global] Compassionate communities in action: global stories of care, loss and connection Taylor & Francis Group, London, UK; edited by Emma Hodges and Manjula Patel; ebook published 1/1/26 Compassionate Communities in Action: Global Stories of Care, Loss and Connection brings together practical examples of compassionate cities and communities from around the world. Together they provide a practical road map, highlighting what has worked and what has been challenging, alongside reflections from the communities profiled. ... Demonstrating public health palliative care in practice, this guide is an essential read for people working in the field of palliative and end‑of‑life care, as well as academics, students, and policymakers with an interest in the area. ... The Open Access version of this book, available at https://www.taylorfrancis.com, has been made available under a Creative Commons Attribution-Non-Commercial-No Derivative Licence CC-BY-NC-ND. Editor's Note: This 334 page book is available for free download via the links above.

Racial disparities in non-stigmatized supportive care medication use in pancreatic cancerJournal of Pain & Symptom Management; by Olga Monika Trejos Kweyete, Chardaé Whitner, David L. Deremer, Yi Guo, Jiang Bian, Lisa Scarton, Sherise C. Rogers, Diana J. Wilkie, Xiwei Lou, John M. Allen; 3/26Pancreatic cancer (PC) is associated with a high symptom burden that contributes to reduced health-related quality of life (HRQoL) and adverse clinical outcomes. This study examined racial and ethnic differences in the use of non-stigmatized SCMs [supportive care medications] during end-of-life care among patients with PC. SCM use was defined as at least one outpatient prescription claim for antiemetics, appetite stimulants, cognitive aids, headache aids, or sleep aids. Racial and ethnic disparities persist in the use of non-stigmatized SCMs among patients with PC at the end of life. These findings extend prior evidence on inequities in cancer symptom management and underscore the need for interventions that promote equitable access to supportive care medications across diverse populations.

State associations urge CMS to forgo potential national hospice enrollment moratorium Hospice News; by Holly Vossel; 4/10/26 A group of state hospice associations have expressed mounting concerns that a rumored national moratorium prohibiting new provider enrollments could adversely affect access. A letter to the U.S. Centers for Medicare & Medicaid Services (CMS) was recently penned by the Florida Hospice & Palliative Care Association (FHPCA), the Association for Home & Hospice Care of North Carolina (AHHC of NC) and the South Carolina Home Care & Hospice Association (SCHCHA). A national moratorium, if enacted, would impact the ability for legitimate hospices to provide quality care during a time of rising demand, said FHPCA President and CEO Paul Ledford and Tim Rogers, president and CEO of SCHCHA and AHHC of NC.