Literature Review

The evolution of hospice care The Journal; by Dr. Sarah Phillips, Medical Director, Hospice of the Panhandle; 5/18/25 Historians believe that the first hospices originated in Malta around 1065, dedicated to caring for the ill and dying enroute to and from the Holy Land. The term “hospice” referred to places of shelter for travelers, particularly in medieval Europe. The moder hospice movement began to gain momentum in the 1960’s with Dame Cicely Saunders’s establishment of St. Christopher’s Hospice in London, which emphasized comfort and quality of life for patients and their families. This idea of specialized care for the dying was first introduced to the United States during a lecture at Yale University in 1963. In the early 1970’s the first national hearings on the subject of death with dignity were conducted by the U.S. Senate Special Committee on Aging. In 1978, the National Hospice Organization was established and the U.S. Department of Health, Education, and Welfare task force reports that “the hospice movement … is a viable concept and one which holds out a means of providing more humane care for Americans dying of terminal illness while possibly reducing costs. As such, it is the proper subject of federal support.” [Continue reading ...]

SERIOUS ILLNESS: 10 ways to embrace Mother’s Day with a seriously ill mother Roze Room Hospice, Culver City, CA; Website; retrieved from the internet 5/8/2025Spending Mother’s Day with a seriously ill mother can be emotional, but it’s also an opportunity to create meaningful and loving memories. Here are 10 ways to embrace Mother’s Day with a seriously ill mother:

“I’m as mad as hell and I’m not going to take this anymore!”JAMA Neurology; by David N. Korones; 4/25So shouted news broadcaster Howard Beale in the iconic 1976 film “Network” as he decried pollution, unemployment, inflation, crime, and all that was wrong in the world back then. And so shouted I, as I slammed down the phone after yet another denial from an insurance company—this time denial of treatment for an 8-year-old little girl with a brain tumor.Every day the phone, email, and text messages mount: an antinausea medication is not approved, oral chemotherapy is denied to a child because it is in liquid form, and only tablets are approved, brain surgery is denied because the patient has the misfortune of not living in the same state as the neurosurgeon who has the unique skill set to remove it, an insurance company that had previously approved an essential therapy for one of my patients now, for inexplicable reasons, denies refills half way through her prescribed course of treatment. Perhaps the more we push back, send them bills for our time, follow that up with bill collectors, call our congressional representatives, and summon our hospital leadership, we can gather a chorus of physicians, patients, hospital leaders, and politicians who all open their windows and, following Howard Beale’s lead, scream in unison that they, too, are mad as hell, and it is long past time to change this unjust system of care. To paraphrase Howard Beale, “our children, our patients are human beings, goddammit, their lives have value!”

Dementia patient discharged from hospice over Medicare requirement. Here’s why it happened WKMG-6, Deltona, FL; by Erika Briguglio and Louis Bolden; 5/14/25A Volusia County family is left scrambling after their loved one is abruptly dropped from hospice care. To qualify for hospice, patients must have a life expectancy of six months or less. However, for dementia patients, the prognosis can be unpredictable. Hospice care can be extended as long as the patient continues to meet Medicare requirements. Unfortunately, these requirements are why Amy Yates lost coverage for her 91-year-old grandmother. ... “I think it’s she hasn’t died fast enough, and it’s costing them money that they don’t want to spend,” Yates told News 6. ... What Yates’ family is dealing with is what Medicare calls live discharge, and they are not alone. The Hospice Foundation of America reports that 17% of people in 2022 who were admitted to hospice care were discharged; about 6% of the total caseload was discharged because they no longer met Medicare requirements for care under the hospice benefit.Editor's note: What are your hospice's stats for live discharges? This factor--with the face-to-face recertification requirement--is crucial. Unfortunately, too many hospices misused President Jimmy Carter's extraordinarily long Length of Stay (LOS) with misleading information about hospice care. These hospices--whether intentional or not--chose to significantly water down end-of-life care and to never mention anything about a basic recertification process. Engaging, user-friendly language can be used with integrity, authenticity, and patient/caregiver empowerment. What messaging does your hospice voice? Do you present a mature, balanced voice, for the sake of the seriously ill person and their family? Or do you ignore the patient/family's timing and choice for the sake of your bottom line, while using up the person's ultimate Medicare days allowed for hospice care? Dig deeply into your data. Dare to examine your organization's motives and outcomes.

DOJ reportedly rejects Amedisys’ divestiture plan as part of UnitedHealth Group deal McKnights Home Care; by Adam Healy; 5/12/25 The Department of Justice reportedly has rejected Amedisys’ plan to divest more than 100 locations in its plan to be acquired by UnitedHealth Group subsidiary Optum, according to CTFN, which tracks mergers and acquisitions. The DOJ decision could spell trouble for the future of Amedisys’ deal with Optum. The Department of Justice reportedly has rejected Amedisys’ plan to divest more than 100 locations in its plan to be acquired by UnitedHealth Group subsidiary Optum, according to CTFN, which tracks mergers and acquisitions. The DOJ decision could spell trouble for the future of Amedisys’ deal with Optum.

National Alliance: Medicaid cuts would adversely impact home-, community-based services Hospice News; by Jim Parker; 5/12/25 A tax bill currently before Congress could lead to Medicaid cuts that would inhibit access to home- and community-based services (HCBS). The bill, which promises sweeping tax and spending cuts, currently is undergoing a reconciliation process. The amount of tax cuts could reach $4.5 trillion, with spending cuts in the area of $4.5 billion, with a significant portion coming from Medicaid. However, the bill remains a work in progress for now with some resistance to the proposed cuts from both Democrats and a contingent of Republicans. The National Alliance for Care at Home released a statement Monday opposing the Medicaid reductions.

Dying ‘Beautifully’ in the Rio Grande Valley: Rivera-Burciaga embeds end-of-life nursing into UTRGV curriculum: National Nurses Week is May 6-12 UTRGV, The University of Texas Rio Grande Valley - The Newsroom, Rio Grande Valley, TX; by Karen Villarreal; 5/9/25 Death, for the most part, makes people uncomfortable. But not UTRGV’s Dr. Andrya Rivera-Burciaga.  After a personal loss early in her nursing career drove her to seek advanced certification in hospice and palliative care, she has made it her life’s work to normalize conversations about death and dying.   ... While Rivera-Burciaga’s efforts successfully have woven palliative care into the UTRGV nursing curriculum, her Ph.D. research on the unique cultural perspective of death and dying among Mexican Americans aims to further tailor the care that nurses provide to end-of-life patients in South Texas.  ... Through clinical interviews, Rivera-Burciaga found that many individuals of the Mexican American culture are afraid to die – despite engaging in Día de los Muertos, a celebration of death every November. “We've built a compassionate community for the dying, yet we don't say it by name. Many Mexican Americans in the United States believe that to talk about death invites it. Or, that we don't have time to be depressed, or that even in mourning men don't cry,” she said.

AI tool uses face photos to estimate biological age and predict cancer outcomes Mass General Brigham - Technology & Innovation - Research; by Hugo Alerts, Ray Mak, Dennis Bontempi, Osbert Zalay, Danielle S. Bitterman, Fridolin Haugg, Jack M. Qian, Hannah Roberts, Subha Perni, Vasco Prudente, Suraj Pai, Christian Guthier, Tracy Balboni, Laura Warren, Monica Krishan, and Benjamin H. Kann; 5/8/25 Mass General Brigham findings suggest FaceAge tool could provide objective data to help inform treatment decisions in cancer care and other chronic diseases. Eyes may be the window to the soul, but a person’s biological age could be reflected in their facial characteristics. Investigators from Mass General Brigham developed a deep learning algorithm called FaceAge that uses a photo of a person’s face to predict biological age and survival outcomes for patients with cancer. They found that patients with cancer, on average, had a higher FaceAge than those without and appeared about five years older than their chronological age. Older FaceAge predictions were associated with worse overall survival outcomes across multiple cancer types. They also found that FaceAge outperformed clinicians in predicting short-term life expectancies of patients receiving palliative radiotherapy. Their results are published in The Lancet Digital Health.Editor's note: This summary article is published by the main source, Mass General Brigham. Various articles are being written about this new use of AI.

DOJ reportedly rejects Amedisys’ divestiture plan as part of UnitedHealth Group deal McKnights Home Care; by Adam Healy; 5/12/25 The Department of Justice reportedly has rejected Amedisys’ plan to divest more than 100 locations in its plan to be acquired by UnitedHealth Group subsidiary Optum, according to CTFN, which tracks mergers and acquisitions. The DOJ decision could spell trouble for the future of Amedisys’ deal with Optum. The Department of Justice reportedly has rejected Amedisys’ plan to divest more than 100 locations in its plan to be acquired by UnitedHealth Group subsidiary Optum, according to CTFN, which tracks mergers and acquisitions. The DOJ decision could spell trouble for the future of Amedisys’ deal with Optum.

National Alliance for Care at Home unveils new website to enhance member experience The National Alliance for Care at Home, Washington, DC; Press Release; 5/5/25 The National Alliance for Care at Home (the Alliance), the leading advocate and educator for the care at home community, is proud to announce the launch of its newly redesigned website, AllianceForCareAtHome.org. The new site reflects the Alliance’s commitment to innovation, accessibility, and delivering enhanced value to member organizations and all care at home stakeholders. ... “We’re excited to introduce our new website as a digital reflection of who we are and where the Alliance is headed,” said CEO Dr. Steve Landers. ... Key features of the new website include:

Haven Hospice's [FL] E.T. York Hospice Care Center implements "Christmas Room"Haven Hospice press release; by Hailey Reidy; 4/3/25Haven Hospice's E.T. York Hospice Care Center in Gainesville has created a Christmas Room to allow their pediatric patients to celebrate with their families. The room came to be at the wish of these patients wanting to celebrate Christmas one last time which their care team and other member of Haven's team supported. The Haven Women of Philanthropy group also supported the room, covering the cost and gathering supplies.Article posted in Florida Hospice & Palliative Care Association's newsletter The Hospice Professional.

The Big Bend Hospice linen drive brings comfort to patients in rural communities: Addressing a critical need in underserved areas ABC WTXL-TV 27, Tallahassee/Monticello, FL; by Lentheus Chaney; 4/30/25 In Jefferson County, kindness sometimes comes in the form of cotton. Big Bend Hospice is collecting linens here to help patients face their final days with dignity. Big Bend Hospice just launched a linen drive. It's asking neighbors to donate new Twin XL-sized bed sheets. They'll be used for patients across Jefferson, Madison, and Taylor counties. The drive's goal is to ensure no one spends their final days without the comfort of clean sheets—something most of us take for granted. The  need is especially great in rural areas. According to state data, hospice use in parts of North Florida lags behind the statewide average—just 57%. That's compared to nearly 66% across Florida. That gap means fewer resources in the places that need them most.Editor's note: Typically, we don't post donor-related articles until after completion. However, this unique community outreach by Big Bend Hospice raises our awareness of practical, simple, meaningful outreach in underserved rural areas. What practical, affordable, meaningful outreach does this spark for your hospice's rural--or other underserved--patients?