Literature Review

How good are we at reporting the socioeconomic position, ethnicity, race, religion and main language of research participants? A review of the quality of reporting in palliative care intervention studiesPalliative Medicine, by Keerthika Selvakumaran, Katherine E Sleeman, Joanna M Davies; 2/24[UK] In 2018, a review of 18 clinical trials on the integration of palliative care into oncology, found that one-third did not report the race or ethnicity of participants, and a further one-third provided only broad categorisations such as ‘white’ versus ‘other’. The aim of this pragmatic review is to describe the quality of reporting in palliative and end-of-life care intervention studies, for social characteristics including socioeconomic position, ethnicity or race, religion and the main language of participants.

Advance planning values and end-of-life care among patients on dialysisdocwirenews, by Victoria Socha; 2/12/24... Patients treated with dialysis are also more likely to die in the hospital and less likely to receive hospice care. [Researchers] conducted a survey designed to examine the association between patients’ health care values and engagement in advance care planning and end-of-life care. Analyses of survey responses were reported in JAMA Internal Medicine.

Delivering effective messages in the patient-clinician encounter JAMA, by Joseph N. Cappella, PhD and Richard L. Street Jr, PhD; 2/1/24Effective communication between patient and clinician is a core function of the medical encounter.In a survey of cancer survivors, communication breakdowns most often identified by respondents were failures of information exchange, both in information provided by the clinician (eg, too complex, not enough) and in missing information from the patient or failing to elicit it. ... [A] table provides specific examples of what clinicians can (and should not) do to accomplish [effective communication] goals.

Odds for dementia nearly triple in the year after a strokeHealth Day, by Ernie Mundell; 2/1/24A person's odds for a dementia diagnosis nearly triple in the first year after a stroke, new research shows. This post-stroke spike in dementia risk does subside with time, but it never returns to pre-stroke levels, the same report found. "Our findings reinforce the importance of monitoring people with stroke for cognitive decline," said lead researcher Dr. Raed Joundi. 

The healing power of remembering and recordingLocalTownPages - Franklin; 1/30/24Every person on this earth holds space in the lives of those around them. We fill that space with our voices, talents, wisdom, laughter, touch, beliefs, innovations, style, and even occasionally with our struggles. Each human experience is unique and varied, complex and beautiful.

Effectiveness of an Advance Care Planning intervention in adults receiving dialysis and their families: A cluster randomized clinical trialJAMA Network, by Mi-Kyung Song, PhD, RN; Amita Manatunga, PhD; Laura Plantinga, PhD; 1/29/24In this randomized clinical trial, the [Advanced Care Planning] ACP intervention implemented by health care workers at dialysis centers improved preparation for EOL decision-making but showed mixed effectiveness on bereavement outcomes. The ACP intervention implemented in dialysis centers may be an effective strategy to the dyad preparation for end-of-life care as opposed to the current focus on advance directives.

Introducing the expanded JAMA Internal Medicine Editorial FellowshipJAMA Intern Med, by Michael A. Incze, MD, MSEd; Kenneth E. Covinsky, MD, MPH; Sharon K. Inouye, MD, MPH; 1/29/24We are pleased to announce the launch of our new Editorial Fellowship program at JAMA Internal Medicine. Educating clinicians and future leaders in internal medicine is a core part of JAMA Internal Medicine’s mission, and the journal has had a robust Fellowship program for medical trainees since 2015. This year, we will grow our Fellowship program, inviting early-career faculty to apply for an immersive 1-year program that provides longitudinal mentorship and hands-on experience in learning how to work as a member of the editorial team at a leading, widely read, high-impact internal medicine journal.

Sojourns Scholar grant funds Doyon’s project to improve refugee palliative care Boise State News; 1/26/24Assistant Professor Katherine (Kate) Doyon was recently announced as one of the Cambia Health Foundation’s 2023 Sojourns Scholars. ... Doyon’s project will create an online curriculum for community health workers who work with seriously-ill resettled refugees in Idaho. The curriculum will integrate palliative care principles into their training. Grounding her work in cultural humility, Doyon’s goal is to collaboratively develop, assess and distribute the curriculum by partnering with resettled refugees, clinicians who care for refugees and resettlement agencies. 

Defining key elements of a clinical experience in hospice and palliative medicine for medical residents in the United StatesJ Med Educ Curric Dev, by Carolyn E. Kezar and Andrew J. Lawton; 1/23/24The ACGME [Accreditation Council for Graduate Medical Education] has ... recognized the importance of HPM [hospice and palliative medicine] training for medical residents, establishing in its 2022 Common Program Requirements for Internal Medicine a new expectation that all residents have a clinical experience in HPM. ... However, internal residencies vary significantly. ... In this perspective, we draw from the available literature and our experience as educators to propose 5 core elements for creating an optimal HPM experience for medical residents.Editor's Note: Does your hospice support nearby medical schools? Rich opportunities abound.

Timing of prognostic discussions in people with advanced cancer: a systematic reviewSupport Care Cancer, by Sharon H Nahm, Shalini Subramaniam, Martin R Stockler, Belinda E Kiely; 1/23/24Conclusions: Prognostic discussions with people with advanced cancer need to be individualised, and there are several key timepoints when doctors should attempt to initiate these conversations. These recommended timepoints can inform clinical trial design and communication training for doctors to help improve prognostic understanding.

Myotonic dystrophy type 1: palliative care guidelinesBMJ Supportive & Palliative Care, by Derek Willis, Tracey Willis, Claire Bassie, Gail Eglon, Emma-Jayne Ashley, and Chris Turner; 1/22/24Palliative care for adults with neuromuscular conditions is an emerging field. Previous guidelines regarding myotonic dystrophy and palliative care have only mentioned end-of-life care and little else. The following guidelines have been written using national experts as a description of best practice as part of the Dystrophia Myotonica National Care Guidelines Consortium.Requires subscription or purchase

Race, ethnicity, and cancer type influence which patients access hospice careOncology Nurse Advisor, by Jennifer Larson; 1/19/24... [A] researcher from a comprehensive cancer center in North Carolina conducted a clinical literature review to investigate research outcomes of hospice use in the United States. ... A total of 17 quantitative studies, published between 2017 and 2023, was included in this review. Notable differences by cancer type were found. ... The analysis also showed disparities in hospice use by race and ethnicity.

The psychological experience of grandparents: proposal of a qualitative clinical assessment tool in pediatric palliative careClin Pract, by Alexandra Jóni Nogueira and Maria Teresa Ribeiro; 1/4/24Compared to parental caregivers and healthy siblings, grandparents are underexplored in the literature and clinical practice. The aim of the present study is to propose a psychological experience assessment tool of grandparents in this context.