Literature Review

Experiences of nursing students providing end of life care for children and young people: A focus group study Elsevier, by Clair Camara, Leah Rosengarten and Jane Callum; 2/27/24This study aims to help improve understanding of the lived experiences of children's nursing students who have cared for a patient at, during, or immediately following end-of-life. The study describes the emotions experienced by children's nursing students and explores the student nurses' perceptions of education and support needs around caring for [Children and Young People] CYP during end-of-life care.

The impact of early palliative care interventions on the utilization of medical care resources for end-of-life patientsResearch Square (not peer reviewed; under review by BMC Palliative Care), by Chia-Chia Lin, Tsing-Fen Ho, Chang-Hung Lin, Nu-Man Tsai Tsai, Yu-Hung Kuo, Ju-Huei Chien; 2/12/24(Taiwan) Patients at the end-of-life who received palliative care experienced a reduced incidence of aggressive medical interventions before death. These encompassed activities such as stays in the intensive care unit, cardiopulmonary resuscitation, endotracheal intubation, respiratory ventilator support, and blood transfusions.

Leadership core competencies in palliative care — Recommendations from the European Association for Palliative Care: Delphi StudyJournal of Palliative Medicine, by Olivia Parczyk, Gerrit Frerich, Martin Loučka, Raymond Voltz, Sheila Payne; 2/14/24The eight domains [of leadership: research, advocacy and media, communication, teamwork, project management, organizational learning and sustainability, leading change, and personal traits] provide evidence for teaching of leadership competencies in palliative care. We recommend that exploring, identifying, and integrating leadership competencies in palliative care are given more attention in educational curricula and in training interventions.

Racial differences in hospice care outcomes among patients with advanced heart failure: Systematic review and meta-analysisAm J Cardiol, by Diego Chambergo-Michilot, Victor G Becerra-Gonzales, Veraprapas Kittipibul, Rosario Colombo, Katia Bravo-Jaimes; 2/19/24There remains a paucity of investigational data about disparities in hospice services among people with non-cancer diagnoses, specifically in heart failure. Black patients with advanced heart failure have been disproportionally affected by health care services inequities but their outcomes after hospice enrollment are not well studied. We aimed to describe race-specific outcomes in patients with advanced heart failure who were enrolled in hospice services.

The role of bioethics services in paediatric intensive care units: A qualitative descriptive studyBMC Medical Ethics, by Denise Alexander, Mary Quirke, Jo Greene, Lorna Cassidy, Carol Hilliard, and Maria Brenner; 2/19/24Results: From 33 interviews, we identified four themes that described the functionality of bioethics services when a child requires technology to sustain life: striving for consensus; the importance of guidelines; a structure that facilitates a time-sensitive and relevant response; and strong leadership and teamwork.

Palliative care doctor: What dying feels like Mind Matters, by Denyse O'Leary; 2/15/24What does dying actually feel like? Most human beings have always believed that the essence of a human being survives the death of the body though the outcome is envisioned in a variety of ways. But, assuming that pain and distress are controlled, what does dying actually feel like? Can science tell us anything about that? 

Tier - Palliative Care: A population-based care delivery model to match evolving patient needs to palliative care services for community-based patients with heart failure or cancer [This link goes to the more detailed National Institutes of Health (NIH) description of this clinical trial.]Genomics & Genetics Daily, by a news reporter-staff news editor; 2/14/24Staff editors report on the newly launched clinical trial, NCT06228209, which has the following summary description: "TIER-PC is an adaptive model of delivering palliative care that provides the right level of care to the right patients at the right time. It represents an adaption of the Mount Sinai PALLIATIVE CARE AT HOME (PC@H) program, which delivers home-based palliative care. TIER-PC increases the number and intensity of disciplines added to the patient's care team as their symptoms worsen and function declines."

Large study ties OCD to greater risk of death from any causeJAMA, by Emily Harris; 2/7/24Previous research on the mortality risk of people with obsessive-compulsive disorder (OCD) has shown mixed results and hasn’t gone into specific causes of death. Now, results from a large cohort study published in The BMJ suggests they have an 82% higher risk of dying from all causes.

These sisters help families donate brains to scienceBrain&Life; 2/2/24Tish Hevel, 65, talks about the Brain Donor Project, a nonprofit group she and her sister, Annie McManis, 54, established after their father died of Lewy body dementia. ... "Our father was diagnosed with Lewy body dementia in 2014. In researching the disease, we kept reading about brain donation. Our father had always wanted to donate his body, so we knew he would want to donate his brain as well. And we knew scientists needed tissue. But the process of donating was complicated."

Timely dementia diagnosis, specialized long-term care limited for members of minority groups: studyMcKnights Senior Living, by Kimberly Bonvissuto; 2/1/24Researchers from University of California-Davis Health and Oregon Health & Science University said that members of minority groups fall victim to systemic oppression that leads to a higher risk of hospitalization and more aggressive life-sustaining treatment in end-of-life care. Their research, published in Alzheimer’s & Dementia: The Journal of the Alzheimer’s Association, analyzed 71 studies between 2000 and 2022 that examined healthcare access and quality for people living with dementia and their caregivers.

Breakthroughs in Alzheimer's research give cause for optimismKiplinger, by Elaine Silvestrini; 1/29/24... Finding a cure or even an effective treatment has been difficult. Now, after billions of dollars in research and more than 100 drug failures, advocates are celebrating breakthroughs, including drugs that for the first time treat the underlying causes of the disease. Experts are optimistic that we may be on the precipice of significant changes in how the disease is treated and potentially even prevented. 

Introducing the expanded JAMA Internal Medicine Editorial FellowshipJAMA Intern Med, by Michael A. Incze, MD, MSEd; Kenneth E. Covinsky, MD, MPH; Sharon K. Inouye, MD, MPH; 1/29/24We are pleased to announce the launch of our new Editorial Fellowship program at JAMA Internal Medicine. Educating clinicians and future leaders in internal medicine is a core part of JAMA Internal Medicine’s mission, and the journal has had a robust Fellowship program for medical trainees since 2015. This year, we will grow our Fellowship program, inviting early-career faculty to apply for an immersive 1-year program that provides longitudinal mentorship and hands-on experience in learning how to work as a member of the editorial team at a leading, widely read, high-impact internal medicine journal.