Literature Review

How a CU biostatistician is helping improve palliative care research University of Colorado - Anschutz Medical Campus, by Tayler Shaw; 4/3/24 

2024 budget and paylines update: [$12.5 million for palliative care research]National Institute on Aging, by Kenneth Santora; 3/28/24The recently signed into law H.R. 2882, the Further Consolidated Appropriations Act, 2024,  includes full-year NIH funding through Sept. 30, 2024. ... The budget designates a $100 million increase for Alzheimer’s disease and related dementias (AD/ADRD) research, including $90 million for NIA and $10 million for the National Institute of Neurological Disorders and Stroke; as well as $12.5 million for palliative care research. 

Should we be using palliative care for scleroderma? The Medical Republic, by Karina Bray; 4/2/24Almost three-quarters of systemic sclerosis patients could benefit from specialist palliative care, according to Australian research. The first-of-a-kind study, published in Arthritis Care & Research, set out to examine and quantify the need for palliative care to address high symptom burden as an integrated part of systemic sclerosis management. ... “Almost 75% of SSc patients may benefit from specialist palliative care input to manage specific severe symptoms, and the overlapping nature of such symptoms highlights the complex symptom management needs of SSc patients,” the authors wrote. 

A pilot of a Telehealth-Hospice transition intervention for children and young adults with cancer Journal of Pain and Symptom Management; by Nicholas P DeGroote, Ebonee Harris, Anna Lange, Karen Wasilewski-Masker, James L Klosky, Joanne Wolfe, Dio Kavalieratos, Katharine E Brock; 3/31/24, online ahead of printConclusions: Participants found coordinated telehealth visits to be feasible, acceptable, and satisfactory. Telehealth may be utilized as an acceptable alternative to clinic visits and fosters hospital-hospice collaboration.

Integrating palliative care screening in the intensive care unit: A quality improvement projectCritical Care Nurse; by Traci N. Phillips, DNP, APRN, ACNP-BC, CCRN; Denise K. Gormley, PhD, RN; Sherry Donaworth, DNP, APRN, ACNP-BC, FNP-BC; 4/1/24Background: Patients admitted to the intensive care unit have complex medical problems and increased rates of mortality and recurrent hospitalization for the following 10 years ...  Delayed access to palliative care can result in untreated symptoms, lack of understanding of care preferences, and preventable admissions. Conclusion: The screening process can maximize the benefit of palliative care services with early patient identification, improved consultation efficiency, decreased critical care resource use, and reduced readmission rates.

Hospice & Palliative Care Handbook: Quality, Compliance, and Reimbursement, 4th Edition McGraw Hill - Access APN; textbook by Tina M. Marrelli and Jennifer Kennedy; 3/28/24 “Hospice & Palliative Care Handbook, Fourth Edition, is an invaluable resource for timely hospice regulatory and compliance information, documentation, care planning, and case management. It provides clear guidance for hospice managers, clinicians, and interdisciplinary group members. I have utilized Tina Marrelli’s home health and hospice handbooks to support training new clinical staff and students for decades and consider these resources to be the gold standard.” – Kimberly Skehan, MSN, RN, HCS-D, COS-C, Vice President of Accreditation - Community Health Accreditation Partner

The burden of getting medical care can exhaust older patients Navigating Aging, by Judith Graham; 3/27/24 [Ishani Ganguli] is the author of a new study showing that Medicare patients spend about three weeks a year having medical tests, visiting doctors, undergoing treatments or medical procedures, seeking care in emergency rooms, or spending time in the hospital or rehabilitation facilities. ... [Additionally,] more than 1 in 10 seniors, including those recovering from or managing serious illnesses, spent a much larger portion of their lives getting care — at least 50 days a year. ... When [treatment burden becomes overwhelming], people stop following medical advice and report having a poorer quality of life, the researchers found.

Palliative care improves quality of life for bone marrow transplant patients Duke Health News & Media, by Alexis Porter; 3/25/24 ... Researchers tested the effectiveness of an integrated palliative care intervention across diverse settings. They enrolled 360 adults undergoing bone marrow transplants at three academic medical centers, including Duke University Hospital, Massachusetts General Hospital and the Fred Hutch Cancer Center at the University of Washington. ... Patients receiving the palliative care intervention reported better quality of life, defined by the degree to which an individual is healthy, comfortable, and able to participate in life events. They also had lower depression, PTSD and fatigue symptoms compared to those receiving usual care. 

"A strong reason why I enjoy coming to work": Clinician acceptability of a palliative and supportive care intervention (PACT) for older adults with acute myeloid leukemia and their care partners Journal of Geriatric Oncology; by Ayomide Okanlawon Bankole, Natasha Renee Burse, Victoria Crowder, Ya-Ning Chan, Rachel Hirschey, Ahrang Jung, Kelly R Tan, Susan Coppola, Mackenzi Pergolotti, Daniel R Richardson, Ashley Leak Bryant; 3/20/24 Introduction: ... In this study, we examined clinician acceptability of a NIH-funded interdisciplinary PAlliative and Supportive Care inTervention (PACT) for older adults with acute myeloid leukemia (AML) and their care partners that transcends both inpatient and outpatient settings. Results: ... Five themes were identified in the thematic analysis: (1) Emotions and affect towards the intervention, (2) Intervention coherence and self-efficacy, (3) Barriers, burden, and opportunity costs of delivering the intervention, (4) Usefulness and effectiveness of the intervention, and (5) Recommendations to improve intervention delivery.

Music Therapy intervention to reduce symptom burden in hospice patients: A descriptive study American Journal of Hospice & Palliative Care; by Madison H Estell, Kevin J Whitford, Angela M Ulrich, Brianna E Larsen, Christina Wood, Maureen L Bigelow, Travis J Dockter, Kimberly L Schoonover, Amy J Stelpflug, Jacob J Strand, Monica P Walton, Maria I Lapid; 3/19/24 online ahead of printResults: Patients reported a reduction in symptom severity and emotional distress and an increase in QOL. All patients endorsed satisfaction with music therapy, describing it as particularly beneficial for stress relief, relaxation, spiritual support, emotional support, and well-being. Scores on overall QOL and stress were worse for caregivers. 

Legendary healthcare researcher John E. Wennberg, who shaped efforts to reform the nation’s healthcare system, dies at 89Dartmouth Geisel School of Medicine, by Susan Green; 3/18/24John E. (Jack) Wennberg, MD, MPH, founder and director emeritus of The Dartmouth Institute for Health Policy and Clinical Practice, the Peggy Y. Thomson Professor in the Evaluative Clinical Sciences Emeritus at the Geisel School of Medicine, and founding editor of the Dartmouth Atlas of Health Care, died March 10, 2024. He was 89 years old. “His work pioneered a field that has grown into an entirely new academic discipline in medicine,” Duane Compton, PhD, Geisel School of Medicine dean, says. ... Wennberg focused on improving decision quality by combining better clinical evidence with informed patient preferences. The introduction of shared decision-making between clinicians and patients to preserve warranted variation due to patient preferences is now embedded in health policies across the globe.

Sylvester researchers, collaborators call for greater investment in bereavement care NewsWise, by Sylvester Comprehensive Cancer Center; 3/15/24The public health toll from bereavement is well-documented in the medical literature, with bereaved persons at greater risk for many adverse outcomes, including mental health challenges, decreased quality of life, health care neglect, cancer, heart disease, suicide, and death.  ... Wendy G. Lichtenthal, PhD, FT, FAPOS, who is Founding Director of the new [Sylvester Comprehensive Cancer] Center and associate professor of public health sciences at the University of Miami Miller School of Medicine, noted, “We need a paradigm shift in how healthcare professionals, institutions, and systems view bereavement care. Sylvester is leading the way by investing in the establishment of this Center, which is the first to focus on bringing the transitional bereavement care model to life.”

Palliative care cuts costs for metastatic cancer