Literature Review

Rosalynn Carter advocated for caregivers before the term was widely used. I’m so grateful.By Mitul DesaiUSA TodayDecember 6, 2023It started with a story. When asked about her lifelong commitment to improving mental health services and support for caregivers, former first lady Rosalynn Carter would share her experience on the campaign trail: Exhausted caregivers urgently reaching to grab her hand. Families pleading for resources. Americans bravely sharing their stories of hurdles and heartache. From these anecdotes emerge a legacy marked by courage and compassion. A woman ahead of her time, fighting for caregivers before the term was even widely used. ... I fiscovered the Rosalynn Carter Institute for Caregivers as a vibrant resource in an otherwise desolate landscape of caregiver support. I participated in a series of workshops that RCI facilitated aimed at helping streamline the diverse experiences of caregiving into nine distinct stages. Our hope is that this new approach—which moves beyond diagnosis-driven categorization to focus instead on the types of support needed at each phase of the experience—will inform policy and practice for health practitioners, employers, policymakers and organizations serving caregiver needs.