Literature Review

What adult children should know when discussing their parents’ end-of-life care StudyFinds; by StudyFindsStaff, reviewed by Christ Melore; 12/8/24 Talking about death can be difficult for anyone at any time. For adult children who need to know their parents’ final wishes, it can be excruciating. A new survey is revealing the stark disconnect between our beliefs and actions when it comes to end-of-life planning. While an overwhelming 90% of adults recognize the importance of these critical conversations, half have yet to take the first step with their closest loved ones. ... The numbers tell a revealing story. Twenty-six percent of respondents simply keep putting off the conversation, while 23% admit they don’t know how to approach the topic. Sixteen percent are outright scared to broach the subject, creating a wall of silence around a universal human experience. ... When people do open up, the conversations prove surprisingly rich and multifaceted.

The change leadership strategy that costs nothing Forbes; by Jane Sparrow; 12/5/24 ... [Often] the most successful strategies for change management are the easiest ones to implement. And one strategy, in particular, is in every leader’s gift. I’m talking, of course, about leading with kindness. I was speaking recently during my podcast to Andrew Moultrie, the CEO of BBC Studioworks, about the one thing he would advise leaders to focus on when going through change. There was no hesitation. Andrew said: “Underlined, kindness is the fundamental tenet of every emotional state that people can commit to. And if your actions are coming from a position of kindness, then your ability to manage change will be far more effective and fulfilling for those people you’re managing. ..."

Hospice Care of The Lowcountry rebrands as MiraSol Health Cision PRWeb; by Hospice Care of the Lowcountry; 12/9/24 Bluffton, SC: Hospice Care of the Lowcountry, a leading nonprofit provider of compassionate end-of-life care, palliative and grief care services in Beaufort, Jasper, Colleton, and Hampton counties, proudly announces its rebranding as MiraSol Health. This new name reflects the organization's growing range of services unified under one umbrella as it redefines its care delivery approach to support patients facing serious illness, terminal diagnosis, or grief, while also providing vital support to caregivers. ... Today, MiraSol Health serves over 3,200 community members annually and encompasses four distinct programs: Hospice Care of the Lowcountry, Lowcountry Palliative Care, Rays of Hope Behavioral Health and The Maggie Clark Volunteer Program. The organization is supported by a dedicated team of 55 physicians, nurses, employees, and counselors, along with more than 200 volunteers. This rebrand signals a renewed commitment to delivering compassionate, innovative, and comprehensive healthcare in the Lowcountry.

How hospice CNAs provide comfort in end-of-life care Intelligent Living; by Jennifer Barns; 12/8/24 End-of-life care is one of the most challenging yet meaningful services that healthcare professionals can offer. During such a delicate time, the role of a hospice CNA becomes essential. ... Table of Contents:

Life is a balance of holding on and letting go. ~ Rumi

VitalCaring’s PE backers considering appeal of Encompass, Enhabit lawsuit Hospice News; by Jim Parker; 12/6/24 Nautic Partners and The Vistria Group, the private equity backers of home health and hospice provider Vital Caring, are mulling a potential appeal of a federal court’s recent decision in a dispute with Encompass Health (NYSE: EHC) and Enhabit Inc. (NYSE: EHAB). A federal judge in Delaware on Monday ordered VitalCaring, Nautic and Vistria to share 43% of future profits Encompass Health and Enhabit Inc. The two companies allege that the founders of VitalCaring, including CEO April Anthony, used unethical practices to get the company off the ground, adversely affecting the two plaintiffs. Anthony previously served as CEO of Encompass Health’s home health and hospice segment. The two private equity firms, co-defendants in the lawsuit, are now considering their legal options.

HomeCare & Hospice seeking blanket donations to comfort hospice patients The Batavian, Batavia, NY; 12/5/24 HomeCare & Hospice is inviting the community to help bring warmth and solace to individuals in their final stages of life by donating new lap blankets. As the colder months approach, these blankets not only provide physical warmth but also deliver emotional comfort, offering a small but meaningful way for the community to support those in need. ... Blankets can be newly handmade or purchased from retail stores, offering flexibility for those who wish to contribute. Both options are deeply appreciated, as they provide comfort and care to hospice patients who need it most. Editor's note: This simple, practical request can be replicated easily, with meaningful outcomes. 

Dr. James O’Connell on caring for the homeless in Boston Simmons University, Boston, MA; by Simmons University; 12/6/24 “A mile from here, people are experiencing the same health disparities as they have in Third World countries,” said Dr. James O’Connell, founder and president of Boston Health Care for the Homeless Program (BHCHP) and Assistant Professor of Medicine at Harvard Medical School. ... In 1985, O’Connell was the founding physician of a program to support the people experiencing homelessness in Boston. The program received funding through a four-year grant from the Robert Wood Johnson Foundation and the Pew Charitable Trust. ... [Story about getting a homeless man into hospice care at a nursing home.] When [O'Connell] questioned him about hospice, Santo shared his perspective. “He told me, ‘I appreciate all you’ve done, but I didn’t know anyone there. I don’t want to die there. I want to die with my friends.’” After that, they arranged end of life care for Santo at the shelter. “I had never thought to ask him what he wanted,” said O’Connell. “I have since learned that I have to listen to what people want.” 

Living and growing: Spiritual care at end of life Juenaeu Empire; by Claire Richardson; 12/7/24My favorite Gold Creek trail was damaged in one of the 2024 storms that swept through Juneau and altered the creek with a deluge of boulders, rocks and uprooted trees. You could only walk about 100 yards before the alders blocked the route. I didn’t venture there again until recently. Imagine my surprise when the dogs disappeared down the trail and this time, with wind blowing leaves to the ground, I could see clearly that the trail had been restored. Someone had cut off branches that impeded travel and without leaves to blur the way, I could easily find the new route. I felt a delightful sense of discovery, for here was an old, familiar trail now accessible on a frosty fall morning. Even though I knew where I was going, the newness of the path energized me. I moved forward with a smile. Spiritual care offered through hospice can be a lot like finding an old soul trail, but with new twists and turns. ...  Think of your hospice chaplain as a fellow hiker. While we can’t make the journey for you, we can listen carefully to your story of traveling through life. We can walk with you at your pace, perhaps pointing out a few game trails you could explore, but always following your lead.

The most significant palliative care research trends in 2024 Hospice News; by Holly Vossel; 12/6/24 Palliative care has been at the forefront of several research efforts in 2024, with findings increasingly pointing to the value proposition of these services when it comes to cost savings and quality. Data has become a crucial component of understanding both unmet patient needs and where to fuel resources that address them, Empath Health President and CEO Jonathan Fleece said during the Hospice News Palliative Care Executive webinar. ... Several studies have examined the impacts of palliative care delivery across various health care settings, including hospitals, oncology clinics and in the home. When provided with these services, research has found links to improved mental health support, particularly among patients with serious illnesses. ... Data on improved patient outcomes and cost savings associated with palliative care treatments can be helpful for providers when it comes to navigating reimbursement pathways in the value-based arena, according to Susan Ponder-Stansel, president and CEO of Florida-based Alivia Care.

Holiday joy for children in hospice: Inside the North Pole ‘Fantasy Flight' at Dulles NBC Washington News4; by Joseph Olmo; 12/7/24 Early on Saturday morning, the crowd of almost 100 kids was buzzing with excitement as they waited to board their "North Pole"-bound flight out of Dulles International Airport. Some of the kids wore masks. Others were in wheelchairs, walked with crutches, or had lost their hair. Many are patients with Alexandria nonprofit Children's Hospice International (CHI) -- and all, though they may not know it, were celebrating what could be their last holiday with their families. It's a sobering fact that seems at odds with the joy and enthusiasm aboard the Boeing 777 airplane. But as United Airlines said in the press release, that's exactly the point of the flight. "Come join us as we fly some magic into the lives of children who need it most this holiday season," United said. And magic was provided. Flight attendants and pilots took their job very seriously as they guided passengers to their seats for the flight to NTP: North Pole International, of course. "Did we already write our letters to Santa?" asked one flight attendant, as she walked a family through the tinsel-decorated tunnel to the plane. "Yes," a tiny voice replied. The flight, begun at Dulles 34 years ago in 1990, is an annual event for children battling life-threatening illnesses, and their families. [Click on the title's link to continue reading this story.]

AI can’t worry about patients, and a clinical ethicist says that mattersJAMA; Yulin Hswen, ScD, MPH; Jennifer Abbasi; 11/24This conversation is part of a series of interviews in which JAMA Network editors and expert guests explore issues surrounding the rapidly evolving intersection of artificial intelligence (AI) and medicine. Today, Hull is an associate professor and serves as associate director of the biomedical ethics program at Yale, where her clinical practice focuses on echocardiography and cardiac care of patients with cancer. She spoke about ethical boundaries for using AI in the clinic in a recent conversation with Yulin Hswen, ScD, MPH, an associate editor at JAMA and the newly launched JAMA+ AI and an assistant professor of epidemiology and biostatistics at the University of California, San Francisco. Medicine is, they remind the reader, “as much art as science, as much a moral endeavor as a technical one.”