Literature Review

In Oregon and around the world, volunteer crafters are ready to finish your loved one’s projects The Oregonian - Homes & Garden; by Janet Eastman; 12/20/24, updated 12/24/24 Sue Heagy touches the colorful yarn circles her late daughter, Angie Kimmel, crocheted to relieve her pain and fear of dying. Kimmel was 39 and working in Corvallis eight years ago when she made her last stitch. ... Over the years, Heagy would take the pieces out to appreciate her daughter’s fine handwork. Late last year, Heagy decided it was time for the “complicated and unusual work” to be completed. She contacted the nonprofit Loose Ends Project and was matched to Bobbie Wallace, a volunteer “finisher” who lives in Arizona near Heagy. ... Heagy, who received the completed throw blanket this summer, said, “It’s so touching, so intimate” how finishers like Wallace work. “To have the sensitivity to delve into the creativity” of someone they never met. The place where Kimmel’s final stitch continued under Wallace’s hands is marked with a tiny heart-shape red button. “When I saw that, I burst out crying,” said Heagy, who has draped the throw blanket across her favorite reading chair. “Angie’s blanket hugs me,” said Heagy, “and it was a real comfort to talk to Bobbie, who has such an open heart, about my daughter.”

Executive Personnel Changes - 12/27/24

The power of top 100 relationships in leadership success Forbes; by David Nour; 12/18/24 In today’s fast-paced, hyper-connected world, leadership success often hinges on one defining factor: the depth, health, and relevance of your most valuable relationships. Yet, many leaders mistakenly equate having an extensive network with having a meaningful or impactful one. ... However, authentic leadership thrives not in the breadth of relationships but in their depth, quality, and relevance. As leaders, we must embrace a critical shift: moving away from collecting contacts and toward cultivating authentic, intentional, and strategic relationships. These top-tier relationships—our Top 100—are not merely assets but the foundation of professional and personal success. This fundamental mindset shift must also cascade throughout our organizations ...

“I had no words”: The patient gifts doctors never forgetMedscape; by Sarah Yahr Tucker; 12/19/24[Three unforgettable gifts...]

CMS names first Hospice Special Focus Program Cohort, delays list of future candidates Hospice News; by Jim Parker; 12/23/24 Finalized in the 2024 home health payment rule, the program is designed to identify poor performing hospices, mandate quality improvement and in some cases impose additional penalties. However, stakeholders in the hospice space have contended that the agency’s methodology for selecting hospices for the program is deeply flawed. For this reason, they have argued that the list of operators should not be made public. Though CMS published the list, it delayed the release of a second that would point to future candidates for the program. “CMS has also generated a list of future SFP candidates. We are not publishing the candidate list at this time, but we are sharing the underlying data used to create both lists to allow for external review, thereby ensuring transparency in the process by which low-performing hospices are identified,” the agency indicated on its website. “We will continue to work with providers, patients and their families, and industry, to improve hospice care across the nation.” Stakeholders applauded the delay, including the National Alliance for Care at Home. [Click on the title's link to continue reading.]

For young adults, caregiving isn't just hard. It can shape you for life. National Public Radio - CAI - Local NPR for the Cape, Coast & Islands; by Kat McGown; 12/23/24 ... There are days when Jordyn Glick, 27, can't eat or drink at all. She gets so tired and weak she can barely stand up. She has gastroparesis, where food stalls out in her stomach and doesn't get digested. It comes with unpredictable bouts of nausea, periods of agony in her guts, and malnutrition. ... Dakota Heath, her 26-year-old boyfriend of four years, is her watchman, "always picking up on the small things," he says. He's on alert for her next flareup, the kind that can leave her bedridden for a week. ... Young caregivers have always been there, doing all the same things that adults do — ... About one-quarter of all family caregivers are between 18 and 36, according to the National Alliance for Caregiving. One survey suggests that almost half of them are men. They're more likely to be Latino or Black; a survey in 2018 found that only 17% were white. They've just been invisible. "They fall into every potential crack that exists," says Melinda Kavanaugh, a professor of social work at the University of Wisconsin Milwaukee who is one of the few researchers who study this population. In terms of resources, "Nothing is targeted for a 22-year-old. Nothing."

U.S. health care spending reaches $4.9 trillion Hospice News; by Jim Parker; 12/20/24 The nation’s total health expenditures rose 7.5% to $4.9 trillion in 2023, a new analysis by the U.S. Centers for Medicare & Medicaid Services (CMS) found. This growth took place at a faster pace in 2023 than prior years. In 2022, health care spending rose at a rate of 4.6%. Total Medicare hospice spending accounted for $25.7 billion last year, according to a separate report from the Medicare Payment Advisory Commission (MedPAC). ... About 21% of U.S. health care spending in 2023 was via Medicare, with private insurance representing a 30% share. Medicaid accounted for 21%, and the remaining 10% were out-of-pocket costs. “Hospital care, physician and clinical services, and nursing care facilities and continuing care retirement communities, which collectively accounted for 33% of all out-of-pocket spending in 2023, were the main contributors to the faster growth in 2023,” CMS indicated.

Physician union drives skyrocketed in 2023 and 2024, data show MDedge - Cardiology; by Randy Dotinga; 12/20/24 While fewer than 10% of US physicians are unionized, the number of official union drives among private-sector doctors have skyrocketed in the last 2 years, compared with 2 decades prior, according to a new study.  Researchers counted 21 union drives in 2023 and 12 in the first 5 months of 2024, compared with 0-6 drives each year between 2000 and 2022. If the 2023 and 2024 drives succeed, unions will represent 3523 new physicians — nearly equal to the 3541 doctors who sought unionization between 2000 and 2022. “We were able to document a significant uptick in union petitions and success in certification drives,” said corresponding author Hayden Rooke-Ley, JD, of the Center for Advancing Health Policy Through Research, Brown University School of Public Health, Providence, Rhode Island. “We were surprised to see such a marked shift in 2023.” ... The study authors launched their research to better understand trends in physician unionization in light of high-profile union drives, especially among residents. Rooke-Ley said: “We suspected that declining morale and increased corporate employment for physicians were leading them to consider unionization.”

Hospice sues Medicare over alleged recouped overpayment errors Bloomberg Law; by Ganny Belloni; 12/23/24 A hospice sued the Biden administration over allegations an agency unlawfully attempted to recoup millions in purported overpayments through inaccurate sampling and extrapolation methods. The complaint, filed in the US District Court for the Western District of Missouri, claims that a Centers for Medicare & Medicaid Services contractor had extrapolated the amount the Medicare program incorrectly paid to a handful of beneficiaries under the agency’s hospice benefit to the full “universe” of claims made to Kansas City-based Crossroads Hospice from Nov. 1, 2008, through Oct. 31, 2010.

Muslim community-engaged research highlights Muslim Americans' end-of-life-healthcare gaps and needs WisconsinMuslimJournal.org; by Sandra Whitehead; 12/20/24 Few Muslim Americans use hospice care, despite its posited benefits. A multi-sectoral team of academicians and community leaders in southeastern Wisconsin decided to find out why. ... Muslims are one of the fastest-growing religious communities in the United States, numbering between 3 to 5 million, with projections it will double by 2050. “With an aging Muslim population, there is a growing need for specialized healthcare services like hospice and palliative care,” the team’s research explains. ... Through a qualitative descriptive study with a Muslim patient and 10 family caregivers, the research team identified their perceptions of hospice care, ethical concerns and experiences. Among their varied perceptions, many saw it as useful only in the last hours of life. Participants also had ethical concerns about the use of sedative medication and with cessation of feeding terminally ill patients. Some had concerns about how hospice care might lead to unnecessary interventions or even hasten death. ...  The team is developing an informational resource, Islamic Bioethical Considerations for the End of Life: A Guide for Muslim Americans, to help Muslims who struggle when thinking about death and dying. 

'The Grief Lady:' NC woman uses mother's funeral flowers to create art, help others heal WRAL TV News, Raleigh, NC; by Heather Leah; 4/18/24 Grief is a journey--and you never know for sure where it'll take you. When Janet Willis' mom passed away from small cell lung cancer in her 70s, Willis said she felt like she lost more than a mother; she lost a piece of herself. The loss launched her on a 100 day journey, creating art with the dried flower petals saved from her mother's funeral and sharing her grief experience with her followers. Each day she created a new piece of art – and each day it's as much a surprise for her as it is for her viewers. 

Hospice gets huge response as it finds Tad a new home Beatrice Daily Sun; by Christina Lyons; 7/17/24 When the Cottonwood Hospice team wrote a Facebook post about a patient’s dog that needed to be rehomed, they were not expecting the overwhelming response they received. Owner Anni Paulmeyer said Katie Genrich, a hospice nurse, had come to her with concern for a patient who needed to rehome a dog because of declining health. ... Genrich said her patient had found the white Swiss shepherd when he was a year to 2 years of age. He named him Tad because he always said “the dog was a tad much when he was younger.” The patient cared for Tad for about nine years, but due to declining health and the need to move to a nursing facility, wanted to rehome Tad. Paulmeyer wrote a Facebook post and asked people to share the post. “A day or so later the post had been shared 2,800 times. ..." Editor's Note: We celebrate Tad's new home! For ongoing rehoming of hospice patients' pets, become familiar with the national "Pet Peace of Mind" program, click here for info, with a list of hospice organizations with whom they partner.

SPECIAL EDITION: December 24, 2024