Literature Review

Music as medicine: Jenny Chen, Tyler Jorgensen, & Theresa AllisonGeriPal podcast; by Eric Widera, Alex Smith; 5/22/25As you know, dear listeners, I love music. We start each podcast with a song in part to shift the frame, taking people out of their academic selves and into a more informal conversation. Well, today’s guests love music at least as much if not more than me, and they each make a strong case for music as medicine. Jenny Chen is a palliative care fellow at Yale who regularly sings for her seriously ill patients... Tyler Jorgensen not only plays music for his patients, starting out with just pulling up a tune on his iPhone, he and others at UT Austin and Dell med now wheel a record player into patients rooms and play vinyl, taking patients back to the sounds and routines – think taking the record out of the sleeve, placing the needle in the groove – of younger days... And Theresa Allison is a geriatrician and ethnomusicologist who studies the role of music for people with dementia.

Inaugural walk raises awareness for pancreatic cancer Columbus Jewish News, Beachwood, OH; by Becky Raspe; 5/21/25 On April 30, Wexner Heritage Village held its inaugural Zusman Hospice & Pancreatic Cancer Walkathon fundraiser. Held at Bexley’s Schneider Park, the event was held in memory of Rob Cohen, brother of Wexner Heritage Village and Zusman Hospice’s volunteer coordinator Judi Koval. Cohen died three years ago from pancreatic cancer ... under the care of Wexner Heritage Village’s Zusman Hospice “at the end of his days.” Organizing the walk to honor her brother, the event date also would’ve been her brother’s birthday, she said. 

Case of brain-dead pregnant woman kept on life support in Georgia raises tricky questions AP - The Associate Press, Atlanta, GA; by Kate Brumback, Sudhin Thanawala and Geoff Mulvihill; 5/16/25 The case of a pregnant woman in Georgia who was declared brain dead and has been kept on life support for three months has given rise to complicated questions about abortion law and whether a fetus is a person. Adriana Smith, a 30-year-old nurse and mother, was about two months pregnant on Feb. 19 when she was declared brain dead, according to an online fundraising page started by her mother. Doctors said Georgia's strict anti-abortion law requires that she remain on life support until the fetus has developed enough to be delivered, her mother wrote.

‘Wake-up call’: Aggressive cancer care common at end of life, supportive care lackingHealio; by Josh Friedman; 5/22/25Nearly half of people with advanced cancer receive aggressive care at the end of life, a rate little changed from a decade ago. At the same time, use of palliative or supportive care remains rare, despite increasing evidence that they are a key component of high-quality, patient-centered care. ... Meanwhile, two other studies showed oncologists’ individual practice patterns and institutional resources can play a significant role in determining which patients receive systemic therapy or early palliative care at the end of life.

Securing philanthropic support for palliative care Hospice News; by Markisan Naso; 5/21/25 Fundraising has long been a necessity for many nonprofit organizations to provide palliative care programs. Currently, Medicare payment for palliative care only covers physician or licensed independent practitioner services and does not support the full range of interdisciplinary care, involving nurses, chaplains, aides and social workers. This shortage of funds has made community-based palliative care into a loss leader for many organizations. Palliative care is among the most “underfunded” services in the health care continuum, according to Deborah Johnson, chief philanthropy officer at Empath Health, a large non-profit post-acute care organization in Florida.

Longtime Delaware Hospice CEO Susan Lloyd to retire Delaware Business Times, Milford, DE; by Jennifer Antonik; 5/21/25 Susan Lloyd says the team at Delaware Hospice took a chance on her 38 years ago when the young nursing administrator became its newest CEO. Now, she’s gearing up for a new challenge – retirement. Delaware Hospice first began offering services in the First State just five years before Lloyd took the role over after several organizational changeovers in that short amount of time. “There was a lot of nervousness about, ‘Is this CEO going to stay?’ I think I added some stability and home health care knowledge which I knew about from a previous position. This was a brand-new concept here and Delaware Hospice was just getting started. It was just a tremendous opportunity to grow hospice services throughout the state,” Lloyd recalled. ... Over the course of those 38 years of stability, the nonprofit she grew to love and cherish grew along with her, now boasting around 400 volunteers, more than 300 employees and programs going far beyond home-based hospice care to include a standalone hospice facility in Milford, as well as cardiac care, palliative care, dementia care, advance care planning and grief support.Editor's note: Susan, we thank you for your immeasurable contributions to the evolution and growth of hospice and palliative care. As you move into this new life-chapter, may we continue to learn from you and the excellence you ensured through Delaware Hospice.

“A different way of looking at how you can age in America” AJMC; by Maggie L. Shaw; 5/21/25

White coats, heavy hearts: What to expect as a med student after your first patient death Medscape; by David Brzostowicki; 5/21/25 The first death of a patient represents a profound emotional turning point that reverberates throughout one’s career as a physician. In that critical moment, the shield of clinical detachment gives way to inevitable self-reflection. Daryl Eber, MD, recalls a jarring case of an intubated patient who extubated himself and quickly died after coding. The incident occurred in 2005 while Eber was doing rounds as a medical student at Shands Jacksonville Medical Center (renamed UF Health Jacksonville) in Jacksonville, Florida. Although the patient was not in his direct care, the swiftness with which death took the man has lingered with Eber for two decades. 

Q&A: Addressing palliative care in dialysis settings Physician's Weekly; interview with Jane O. Schell, MD; 5/20/25 Jane O. Schell, MD, discusses factors that impact use of palliative care in dialysis settings for patients in the United States, as well as potential solutions. 

Alliance, Aetna & MissionCare collective unite to strengthen direct care workforce HomeCare, Alexandria, VA and Washington, DC; Press Release; 5/19/25 The National Alliance for Care at Home (The Alliance), Aetna Medicaid, a CVS Health company, and MissionCare Collective have begun a collaborative effort to increase access to home health care for older adults and those with disabilities, and increase supports for direct care workers in Illinois, Louisiana and North Carolina. Initially launching in Illinois, Louisiana and North Carolina, the pilot program is funded by Aetna and brings together two national providers committed to transforming care delivery at home. The Alliance represents providers across homecare, home health, hospice and palliative services, serving as an advocate for care delivered where people live. MissionCare Collective, a workforce innovation provider, offers a suite of solutions designed to build, retain and support the care workforce at scale.

Hospice nurse fired after granddaughter shares video of alleged misconduct NBC WJAR-10, Providence, RI; by Leanna Faulk; 5/16/25 A hospice nurse has been fired after a Facebook video posted by the granddaughter of a terminally ill man allegedly caught the nurse verbally abusing him inside HopeHealth Hospice & Palliative Care on Main Street in Providence. Aryanna Pecoraro said she was visiting her 69-year-old grandfather, John Carney, during the early morning hours of May 3 when she overheard a nurse speaking aggressively to him through the closed door of his room. Carney had been admitted to the hospice center on April 30 and was in the late stages of emphysema. “I hear her say to my grandfather, ‘I’m not coming back into this room. I don’t care if you fall out of the bed onto the floor. I’m tired of your BS," Pecoraro said in an interview with NBC 10. “She also mocked him while he groaned in pain. I couldn’t believe someone could be that cruel to a person who couldn’t defend himself.” ... HopeHealth issued the following statement in response to the video and allegations: ...

Navigating the Future: HOPE, Wage Index, and CMS Quality Measures Teleios Collaborative Network (TCN; podcast by Chris Comeaux with Annette Kiser and Judi Lund Person; 5/21/25 What happens when ancient philosophical questions about "the good life" collide with modern healthcare regulations?  In this compelling episode of TCNtalks, host Chris Comeaux welcomes Hospice leaders Annette Kiser, Chief Compliance Officer with Teleios, and Judi Lund Person, Principal, Lund Person & Associates LLC,  for a deep dive into the regulatory crossroads facing hospice providers. In this episode,  we discuss the FY 2026 Proposed Rule, which focused on implementing the HOPE initiative, and two RFIs (Requests for Information) that were part of it.