Literature Review

Trump Administration Executive Order TrackerMcDermott+Consulting; by McDermott+; 5/19/25 [This article] is a tracker of healthcare-related executive orders (EOs) issued by the Trump administration, including overviews of each EO and the date each EO was signed. We will regularly update this tracker as additional EOs are published. It is important to note that EOs, on their own, do not effectuate policies. Rather, in most cases, they put forth policy goals and call on federal agencies to examine old or institute new policies that align with those goals. ...

The best leaders ask the right questions Harvard Business Review On Leadership, Episode 110; podcast by Arnaud Chevallier; 5/14/25 Few leaders have been trained to ask great questions. That might explain why they tend to be good at certain kinds of questions, and less effective at other kinds. Unfortunately, that hurts their ability to pursue strategic priorities. Arnaud Chevallier, strategy professor at IMD Business School, explains how leaders can break out of that rut and systematically ask five kinds of questions: investigative, speculative, productive, interpretive, and subjective. He shares real-life examples of how asking the right sort of question at a key time can unlock value and propel your organization. With his IMD colleagues Frédéric Dalsace and Jean-Louis Barsoux, Chevallier wrote the HBR article “The Art of Asking Smarter Questions.”

Transitions LifeCare receives $2.5 million gift to support Transitions Kids Program Tranisitions LifeCare, Raleigh, NC; Press Release; 5/15/25 Transitions LifeCare is honored to announce a generous $2.5 million gift from a family who wishes to remain anonymous. This heartfelt contribution, pledged over the next five years, comes from a family profoundly impacted by the care they received and is designated to support Transitions Kids—our program providing hospice and palliative care for children. “This gift is incredibly moving,” said Dr. Adam Wolk, CEO of Transitions LifeCare. “It reflects not only the power of compassionate care but also the lasting bond that forms between our team and the families we walk alongside. We’re so grateful for this family’s trust and belief in our mission.”

The Quilters: NetflixPersonal communication; 5/16/25The Quilters follows the daily lives of several quilters inside the sewing room at South Central Correctional Center, a Level 5 maximum-security prison in a small town two hours south of St. Louis, MO. From design to completion, the men reveal their struggles, triumphs, and sense of pride in creating something beautiful in this windowless, sacred space deep within the prison walls. Watch on Netflix: https://www.netflix.com/title/82006530.Publisher's note: This program donates quilts to foster children in surrounding counties - similar to the quilt program at Angola Penitentiary in Louisiana that creates quilts as a fundraiser for their hospice program.

An hour of hard practice is worth five hours of foot-dragging. ~ Pancho Seugra

A proposal to remove hospice providers from a state review poses a threat to patient care The Boston Globe, Boston, MA; by Diana Franchitto; 5/16/25 The General Assembly should maintain rigorous standards and oppose rolling back Rhode Island’s Certificate of Need process, writes HopeHealth president and CEO. ... As the president and CEO of HopeHealth Hospice & Palliative Care, I am proud that Rhode Island offers some of the highest-quality hospice care in the nation. But right now, legislation before the General Assembly could put that quality at risk.A proposal in Governor Dan McKee‘s fiscal 2026 budget would eliminate the requirement that hospice providers be scrutinized by Rhode Island’s Certificate of Need (CON) process. Some may position this as an effort to streamline government, but those of us who work in hospice care know better. The CON process isn’t one of the flashier, public-facing functions of state government, but it has a direct impact on the quality of health and hospice care that Rhode Islanders receive throughout their lives. ... Exempting hospice from meeting the rigorous standards that a CON requires poses an immediate threat to the quality of patient care. ...

HHS wants input on how to improve digital health tech for Medicare patients Fierce Healthcare; by Heather Landi; 5/14/25 The Department of Health and Human Services (HHS) wants feedback on how it can develop better digital health tools for Medicare beneficiaries and drive adoption. The Centers for Medicare & Medicaid Services (CMS), in partnership with HHS' health IT arm, now called the Assistant Secretary for Technology Policy/Office of the National Coordinator for Health Information Technology (ASTP/ONC), is seeking public input on how best to "advance a seamless, secure, and patient-centered digital health infrastructure."

Table of Experts: Women leaders create resilient company culture Portland Business Journal, Portland, OR; 5/16/25 Prioritizing employee well-being, providing support and fostering empowerment are essential for navigating challenges and driving business success. Portland Business Journal Publisher and President Candace Beeke recently convened a Portland BizWomen Coalition roundtable sponsored by Providence Health Plan. ... The topic was navigating the currents of change: women leaders fostering resilient workplace cultures. 

Doctors told him he was going to die. Then A.I. saved his life.New York Times; by Kate Morgan; 3/20/25Scientists are using machine learning to find new treatments among thousands of old medicines... The handful of success stories so far have led researchers to ask the question: How many other cures are hiding in plain sight?... The first time Dr. Fajgenbaum [University of Pennsylvania] repurposed a drug, it was in an attempt to save his own life... “Essentially we ran a query that said, ‘Show us every proposed treatment there has ever been in the history of medicine for nausea,’” said Matt Might, a professor at University of Alabama at Birmingham...Publisher's note: While slightly dated, this is an interesting application of AI in medicine and provoked me to consider "what are other ways AI could be used in hospice?" Accessing this article may require a subscription.

AHA urges HHS to cut regulations that burden hospitals and staff OR Manager; by Matt Danford; 5/16/25 The American Hospital Association (AHA) has called on the Department of Health and Human Services (HHS) to eliminate or ease a variety of federal regulations, arguing that excessive administrative rules drive up costs, reduce patient access, and hinder innovation, Modern Healthcare reported May 13. According to the article, the AHA submitted more than 100 deregulatory suggestions to HHS, the Centers for Medicare and Medicaid Services (CMS), and the Office of Management and Budget. [Continue reading for descriptions specific to billing and payment, quality and safety regulations, and workforce-related recommendations.]

AAHPM Announces New CEO: Pierre M. Désy, MPH, CAEAAHPM announcement; 5/16/25The American Academy of Hospice and Palliative Medicine (AAHPM) is pleased to announce the selection of its new Chief Executive Officer, Pierre M. Désy, MPH, CAE. Désy, will begin serving in the role on July 23, 2025.

SERIOUS ILLNESS: 10 ways to embrace Mother’s Day with a seriously ill mother Roze Room Hospice, Culver City, CA; Website; retrieved from the internet 5/8/2025Spending Mother’s Day with a seriously ill mother can be emotional, but it’s also an opportunity to create meaningful and loving memories. Here are 10 ways to embrace Mother’s Day with a seriously ill mother:

“I’m as mad as hell and I’m not going to take this anymore!”JAMA Neurology; by David N. Korones; 4/25So shouted news broadcaster Howard Beale in the iconic 1976 film “Network” as he decried pollution, unemployment, inflation, crime, and all that was wrong in the world back then. And so shouted I, as I slammed down the phone after yet another denial from an insurance company—this time denial of treatment for an 8-year-old little girl with a brain tumor.Every day the phone, email, and text messages mount: an antinausea medication is not approved, oral chemotherapy is denied to a child because it is in liquid form, and only tablets are approved, brain surgery is denied because the patient has the misfortune of not living in the same state as the neurosurgeon who has the unique skill set to remove it, an insurance company that had previously approved an essential therapy for one of my patients now, for inexplicable reasons, denies refills half way through her prescribed course of treatment. Perhaps the more we push back, send them bills for our time, follow that up with bill collectors, call our congressional representatives, and summon our hospital leadership, we can gather a chorus of physicians, patients, hospital leaders, and politicians who all open their windows and, following Howard Beale’s lead, scream in unison that they, too, are mad as hell, and it is long past time to change this unjust system of care. To paraphrase Howard Beale, “our children, our patients are human beings, goddammit, their lives have value!”