Literature Review
What is palliative care, and can you get it at home?
07/15/24 at 03:00 AMWhat is palliative care, and can you get it at home?
C-TAC: CMS’ ‘Palliative’ Definition in 2025 Proposed Hospice Rule ‘Misaligned, Problematic’
07/15/24 at 03:00 AMC-TAC: CMS’ ‘Palliative’ Definition in 2025 Proposed Hospice Rule ‘Misaligned, Problematic’ Hospice News; by Holly Vossel; 7/12/24 Efforts to establish potential payment mechanisms for high-acuity palliative services within the Medicare Hospice Benefit will require greater clarity from regulators, according to the Coalition to Transform Advanced Care (C-TAC). The U.S. Centers for Medicare & Medicaid Services’ (CMS) 2025 proposed hospice payment rule contained a request for information (RFI) on the potential implementation of reimbursement pathways for “high intensity palliative care services,” such as chemotherapy, blood transfusion and dialysis. CMS in its proposed rule indicated that, “Hospice care changes the focus of a patient’s illness to comfort care (palliative care) for pain relief and symptom management from a curative type of care.” C-TAC’s recommendations are as follows: [Click on the title's link to read more.]
Jim Jenkins: The long, strong, spectacular life of Robert McMillan ends with grace
07/15/24 at 03:00 AMJim Jenkins: The long, strong, spectacular life of Robert McMillan ends with grace WRAL News, Raleigh, North Carolina; by Jim Jenkins; 7/14/24 Robert McMillan long ago had been decorated with every honor his city and his state could bestow. But it was his private acts of kindness, his advice and the wisdom he offered so privately and the judgment everyone trusted profoundly. ... McMillan maintained his dignity most recently as he knew his time was coming, and he made the decision himself to enter hospice care, saying, “I need to rest.” Over 36 hours, there was time for his children and their children and friends to come to his bedside. Some whispered, some spoke to him strongly and recalled his kindnesses, and again and again, said, “I appreciate all you did for me and I’ll never forget it.”
Caring with compassion: VNA Health’s commitment to holistic home health care
07/15/24 at 03:00 AMCaring with compassion: VNA Health’s commitment to holistic home health care VNA Health Live Well; by VNA Health; 7/10/24 Santa Barbara County has a unique home health care organization that is focused on serving its patients and their families without worrying about turning a profit. “As a nonprofit, VNA Health is more invested in the overall care of the patient,” said registered nurse Jadona Collier, the director of home health. “We provide programs and services that cannot be billed to Medicare or insurance.” The organization offers holistic care, meaning that, regardless of the service being used — including home health care, palliative care, hospice, and bereavement care — its medical professionals care about patients.
[CMS CAHPS Hospice Survey] Agency Information Collection Activities: Submission for OMB Review; Comment Request
07/15/24 at 03:00 AM[CMS CAHPS Hospice Survey] Agency Information Collection Activities: Submission for OMB Review; Comment Request Federal Register; A Notice by the Centers for Mediare & Medicaid Services; 7/9/24 Type of Information Collection Request: Revision of a currently approved collection; Title of Information Collection: CAHPS Hospice Survevy; Use: CMS launched the development of the CAHPS Hospice Survey in 2012. Public reporting of the results on Hospice Compare started in 2018. The goal of the survey is to measure the experiences of patients and their caregivers with hospice care.
Chevron deference derailed
07/15/24 at 03:00 AMChevron deference derailed The Rowan Report; by Kristin Rowan; 7/12/24 ... Chevron Deference in Home Health: Since the advent of the PDGM model, CMS has calculated payment rates based on its interpretation of budget neutrality. The National Association for Home Care and Hospice [NAHC] has disputed the validity of both the interpretation of budget neutrality and the formulas used to calculate it. Last year’s 2024 CMS Proposed Rule cut payment rates even further with a 2.890% Budget Neutrality permanent payment rate adjustment and a temporary rate adjustment to account for alleged overpayments from 2020-2022. The lawsuit filed against CMS in response to the 2024 Final Rule was dismissed. NAHC began pursuing an administrative review with CMS. [Click on the title's link to continue reading the discourse between CMS and NAHC, specific to home health.]
A ‘Culture of Caring’: Calvary Hospital’s 125 year legacy in hospice and palliative care
07/15/24 at 03:00 AMA ‘Culture of Caring’: Calvary Hospital’s 125 year legacy in hospice and palliative care Hospice News; by Jim Parker; 7/11/24 Calvary Hospital in New York City is a progenitor of the hospice and palliative care models, but it has its eyes on the future nevertheless. The only hospital in the nation that is specifically devoted to hospice and palliative care, Calvary is celebrating the 125th anniversary of its founding this year. The faith-based organization was established in 1899 by a group of Catholic widows who called themselves the Women of Calvary. Its initial mission was to care for dying women who had been abandoned by the health care system, often with nowhere to live and no one to care for them.
Employment protection for assisted dying medics
07/15/24 at 03:00 AMEmployment protection for assisted dying medics BBC, Isle of Man; by Ashlea Tracey; 7/9/24 The employment rights of healthcare staff on the Isle of Man[] who choose to be part of any potential assisted dying service will be protected under new proposed laws. Members of the House of Keys previously ensured similar rights for conscientious objectors during a previous debate on the Assisted Dying Bill 2023. The Isle of Man is a self-governing British Corwn Dependency in the Iris Sea, between Great Briatin and Ireland.
Today's Encouragement: Ah, summer ...
07/15/24 at 03:00 AMAh, summer, what power you have to make us suffer and like it. ~ AnonymousHappy mid-July!
Fewer deaths after serious illness in veterans treated with PARC Care Model
07/15/24 at 03:00 AMFewer deaths after serious illness in veterans treated with PARC Care Model U.S. Medicine; by LaTina Emerson; 7/11/24 After a serious illness, veterans who received medical care via the Post-Acute Recovery Center (PARC) model experienced fewer deaths and more days outside of the hospital compared to those not treated with PARC, according to a recent study. ... Using telehealth, PARC is administered by nurse practitioners to address the complex needs of intensive care unit (ICU) survivors as they transition from hospital to home and improve access to post-ICU care for high-risk veterans, ... Each year, “more than 100,000 veterans transition from ICUs to their home after treatment for life-threatening illnesses, but this transition presents many challenges, including unresolved acute medical issues and the lingering effects of acute organ dysfunction,” according to the study authors. ...
10 key Medicare Advantage updates in 2024
07/14/24 at 03:55 AM10 key Medicare Advantage updates in 2024 Becker's Payer Issues; by Rylee Wilson; 6/27/24 The first half of 2024 brought shifting trends for Medicare Advantage. Payers continued to warn of rising medical costs in the MA population, and some are predicting they will lose members next year. Insurers picked up a win in June when CMS said it would recalculate star ratings for 2024. Here are 10 key Medicare Advantage updates to know:
Gen Z prefers burial over cremation, reversing decades of preferences trending toward cremation
07/14/24 at 03:50 AMGen Z prefers burial over cremation, reversing decades of preferences trending toward cremationPR Newswire; by National Funeral Directors Association; 7/9/24 There is no shortage of social commentary on how Gen Z is redefining norms and challenging older generations to think differently, from fashion to workplace culture. But what about their perspective on death and dying? A first-of-its-kind survey conducted by the National Funeral Directors Association (NFDA) offers definitive data to show how Gen Z thinks differently about end-of-life matters for themselves and their loved ones – as well as similarities with older generations. Notable differences between the generations highlight Gen Z's unique perspective, even compared to Millennials who are the closest in age, highlighting a pivot in end-of-life preferences to come:
Supporting the grieving child and family: Clinical report
07/14/24 at 03:45 AMSupporting the grieving child and family: Clinical reportPediatrics; by David J. Schonfeld, MD, FAAP; Thomas Demaria, PhD; Arwa Nasir, MBBS, MSc, MPH, FAAP; Sairam Kumar, MD, FAAP; Committee on Pyschosocial Aspects of Child and Family Health; Council on Children and Disasters; 6/17/24At some point in their childhood, the majority of children will experience the death of a close family member or friend. Approximately 1 in 20 children in the United States experiences the death of a parent by the age of 16. ... The death of someone close to a child often has a profound and lifelong effect on the child and results in a range of both short- and long-term reactions. ... This clinical report offers practical suggestions on how to talk with grieving children to help them better understand what has happened and its implications. An understanding of guilt, shame, and other common reactions as well as an appreciation of the role of secondary losses and the unique challenges facing children in communities characterized by chronic trauma and cumulative loss will help the [healthcare professional] to address factors that may impair children’s adjustment and to identify complicated mourning and situations when professional counseling is indicated. Advice on how to support children’s participation in funerals and other memorial services and to anticipate and address grief triggers and anniversary reactions is provided. ...Editor's Note: This significant article can be downloaded and shared with your organization's clinicians. For additional, ongoing resources, explore the National Alliance for Children's Grief. If your hospice provides specialized children's grief services, are they listed on the NACG's "Find a Support Center or Camp Near You" search engine? Click here to add or update your listing.
How Hospice of the Chesapeake is innovating bereavement care, family support
07/14/24 at 03:40 AMHow Hospice of the Chesapeake is innovating bereavement care, family support Hospice News; by Jim Parker; 7/4/24 Maryland-based Hospice of the Chesapeake has been pursuing innovation in its bereavement and caregiver support programs. The nonprofit hospice and palliative care provider offers grief care to its entire community regardless of whether a family member was one of their patients. Out-of-pocket payments for those services are on a sliding scale. To expand its reach, Hospice of the Chesapeake works with organizations like schools, senior living communities and other community partners, according to Faith Fitzgerald, director of community support programs for the hospice.
‘Normalizing’ Trauma-Informed Hospice Care Delivery
07/14/24 at 03:35 AM‘Normalizing’ Trauma-Informed Hospice Care Delivery Hospice News; by Holly Vossel; 7/2/24 Stakeholders and advocacy organizations recently collaborated to develop stronger trauma-informed care delivery guidelines that help hospices better address violence, abuse and neglect among serious and terminally ill populations. The global anti-violence advocacy organization NO MORE in concert with the National Partnership for Healthcare and Hospice Innovation (NPHI) recently unveiled a resource guide to help strengthen hospice providers’ understanding of traumatic experiences and their impact on end-of-life outcomes. “Understanding that elder abuse and domestic violence are two really distinct and prevalent issues in the older population has really become front and center,” NPHI President Carole Fisher told Hospice News. “These victims often suffer in silence, and we need to pay better attention to their issues.” The guide, dubbed Breaking the Silence: Addressing Domestic Violence, Elder Abuse and Neglect, is one of many steps needed in developing more supportive structures for patients and their families, according to Fisher. A main aim is to illuminate the prevalence of abuse and trauma and to arm hospice providers with tools to shape more innovative trauma-informed care models, she said.Editor's Note: NPHI is a sponsor. This significant Guide pairs with readers' "Top Read" articles we posted recently:
Judge Realty partners with Hospice Savannah to offer home modification to support aging in place
07/14/24 at 03:30 AMJudge Realty partners with Hospice Savannah to offer home modification to support aging in placeSavannah Business Journal Staff Report; 7/8/24Judge Realty recently announced a partnership with Hospice Savannah to encourage and support aging in place. Judge Property Management, a division of Judge Realty, is working in conjunction with Hospice Savannah’s CAPABLE+ program to help older adults live independently with strategic support in the privacy of their home environment. ... Hospice Savannah’s CAPABLE program provides a support team, including a Registered Nurse, an Occupational Therapist and a Handyworker who offer home visits and provide limited care for older adults, which can decrease hospitalization and reduce healthcare costs. The standard CAPABLE program is available as a free service for low-income adults age 62 or older in Chatham, Bryan Effingham or Liberty County who are cognitively intact, but experiencing some difficulty bathing, dressing, grooming, eating or walking.
New ER program helped more patients get needed hospice care
07/14/24 at 03:25 AMNew ER program helped more patients get needed hospice care U.S. News & World Report; by Carole Tanzer Miller, HelathDay Reporter; 7/9/24 One hospital's push to transition patients who are nearing the end of life from the emergency room to hospice care appears to be working. After the program went into effect, 54% of ER patients at Brigham and Women's Hospital in Boston transitioned to hospice care within 96 hours. That compared to 22% before the program began in 2021. Their findings suggest that such programs may help adults who present at the ER near the end of life avoid delayed or missed hospice care. "When patients come to an emergency room near end of life, the default is typically to admit them to the hospital, engage them in conversations about goals and end-of-life care and potentially move them into hospice care," said first study author Dr. Christopher Baugh, an emergency department physician at Brigham and Women's. "However, this lengthy progress can take longer than the patient has left to live." He said the new program helps doctors quickly identify patients who are eligible for hospice care and get them there quicker. In hospice care, attempts to cure a person's illness are stopped and the focus shifts to comfort care and family support. ... The findings were reported July 8 in the journal JAMA Network Open.
CMS Innovation Center launches Guiding an Improved Dementia Experience [GUIDE] Model, announces participants
07/14/24 at 03:20 AMCMS Innovation Center launches Guiding an Improved Dementia Experience [GUIDE] Model, announces participantsCMS press release; 7/8/24The Centers for Medicare & Medicaid Services (CMS) is pleased to announce the launch of the Guiding an Improved Dementia Experience (GUIDE) Model, with almost 400 participating organizations building Dementia Care Programs (DCPs) serving hundreds of thousands of Medicare beneficiaries nationwide.Publisher's Note: Downloadable participant list here. By my brief estimate, approximately 10% of current participants are hospices. Who's participating in your state?
CMS: GUIDE Model Infographic, Facts, and Participants
07/14/24 at 03:15 AMCMS: GUIDE Model Infographic, Facts, and Participants CMS.gov and various press releases; retrieved from the internet 7/10/24 The Guiding an Improved Dementia Experience (GUIDE) Model is a voluntary nationwide model test that aims to support people with dementia and their unpaid caregivers. The model began on July 1, 2024, and will run for eight years. Editor's Note: Since the release of GUIDE's formal press release on 7/8 and our post yesterday (7/10), numerous press releases have already populated across the internet. We re-share this list of links to the GUIDE's information, participants, paired with new, sample press releases from 3 of the 400 participants.
The Physician-Focused Payment Model Technical Advisory Committee (PTAC) listening session 2: Complex chronic conditions [including Ira Byock, MD, FAAHPM, and Betty Ferrell, RN, PhD]
07/14/24 at 03:10 AMThe Physician-Focused Payment Model Technical Advisory Committee (PTAC) listening session 2: Complex chronic conditions [including Ira Byock, MD, FAAHPM, and Betty Ferrell, RN, PhD]Press release; 7/4/24PTAC held a 2-day meeting on Addressing the Needs of Patients with Complex Chronic Conditions or Serious Illnesses in Population-Based Total Cost of Care (PB_TOC) Models. [Presentations include Ira Byock, MD, FAAHPM: Patient perspectives & doctors' roles in caring well through the end of life (timestamp 33:53) and Betty Ferrell, RN, PhD: Optimizing the mix of palliative care and end-of-life care in PB-TCOC Models (timestamp 48:32).]
3 pillars of effective hospice sales
07/14/24 at 03:05 AM3 pillars of effective hospice sales Hospice News; by Jim Parker; 7/8/24Hospices seeking to grow should consider building a culture of compliance driven by data, effective system design and accountability, including for its sales force. Compliance and sales should walk hand-in-hand, according to a recent report from the Transcend Strategy Group. This can help prevent sales staff from running afoul of regulations inadvertently as well as support sustainable growth, according to Tony Kudner, chief strategy officer for Transcend. ... “[Without] understanding of what the rules of the road are, you’re going to run into trouble,” he said. “Though no one-size-fits-all approach exists, providers can adapt three overarching strategies to support this kind of culture.”
Clinician- and patient-directed communication strategies for patients with cancer at high mortality risk
07/14/24 at 03:00 AMClinician- and patient-directed communication strategies for patients with cancer at high mortality risk JAMA Network Open - Oncology; by Samuel U. Takvorian, MD, MSHP; Peter Gabriel, MD, MSE; E. Paul Wileyto, PhD; Daniel Blumenthal, BA; Sharon Tejada, MS; Alicia B. W. Clifton, MDP; David A. Asch, MD, MBA; Alison M. Buttenheim, PhD, MBA; Katharine A. Rendle, PhD, MSW, MPH; Rachel C. Shelton, ScD, MPH; Krisda H. Chaiyachati, MD, MPH, MSHP; Oluwadamilola M. Fayanju, MD, MA, MPHS; Susan Ware, BS; Lynn M. Schuchter, MD; Pallavi Kumar, MD, MPH; Tasnim Salam, MBE, MPH; Adina Lieberman, MPH; Daniel Ragusano, MPH; Anna-Marika Bauer, MRA; Callie A. Scott, MSc; Lawrence N. Shulman, MD; Robert Schnoll, PhD; Rinad S. Beidas, PhD; Justin E. Bekelman, MD; Ravi B. Parikh, MD, MPP; 7/1/24 Serious illness conversations (SICs) that elicit patients’ values, goals, and care preferences reduce anxiety and depression and improve quality of life, but occur infrequently for patients with cancer. Behavioral economic implementation strategies (nudges) directed at clinicians and/or patients may increase SIC completion. ... In this cluster randomized trial, nudges combining clinician peer comparisons with patient priming questionnaires were associated with a marginal increase in documented SICs compared with an active control. Combining clinician- and patient-directed nudges may help to promote SICs in routine cancer care.
Sunday newsletters
07/14/24 at 03:00 AMSunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!
Today's Encouragement
07/14/24 at 03:00 AMAll I know today is that you can think that what you’ve done is only the flap of a butterfly wing, when it’s really a thunderclap. And both can result in a hurricane. ~Catherine McKenzie, Fractured
NHPCO Celebrates the life of Dr. Bernice Catherine Harper
07/14/24 at 01:00 AMNHPCO Celebrates the life of Dr. Bernice Catherine HarperNHPCO press release; 7/11/24The National Hospice and Palliative Care Organization (NHPCO) and the NAHC-NHPCO Alliance mourn the recent passing of Dr. Bernice Catherine Harper, MSW, MScPH, LLD, and celebrate her remarkable life of leadership and service to our professional community and the world. Dr. Harper’s lifelong leadership had profound and lasting positives impact across social work; hospice care; and diversity, equity, inclusion, and belonging (DEIB).