Literature Review



Hospice wedding a declaration of love in the face of medical challenge

04/08/24 at 03:00 AM

Hospice wedding a declaration of love in the face of medical challenge Penticton Western News, by Alistair Taylor; 4/4/24 The essence of hospice philosophy – emphasizing the significance of cherishing every moment and embracing life to the fullest – was exemplified by the touching and beautiful wedding of Sean Adelberg and Mary Davidson at Campbell River’s Hospice House on Tuesday, April 2. ... “This journey to the altar accompanies Mary’s heroic battle with stage 4 Glioblastoma—an incurable brain cancer. Despite the odds, we’re seizing this incredible chance to celebrate our love,” Adelberg said.

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Incorporating bereavement into the continuum of care

04/08/24 at 03:00 AM

Incorporating bereavement into the continuum of careMedpage Today, by Charles Bankhead; 4/4/24... Despite being integral to high-quality, family-centered healthcare, bereavement support often is poorly resourced, even described as the "poor cousin of palliative care." ... To develop a framework for compassionate communities requires shifting bereavement care from "an afterthought to a public health priority," wrote Wendy G. Lichtenthal, PhD, of the University of Miami Sylvester Comprehensive Cancer Center, and co-authors in Lancet Public Health. ... In an ideal setting, bereavement care begins with pre-death grief education, continues through the dying process and end of life, and transitions into community-based support and psychosocial services, as needed. .. The [continuum of care] model comprises five essential "pillars":

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New documentary explores how Lower Moreland’s Terri Schiavo’s story captured the nation

04/08/24 at 03:00 AM

New documentary explores how Lower Moreland’s Terri Schiavo’s story captured the nation Delco.Today, by Tracey Romero; 4/3/24 Between Life & Death: Terri Schiavo’s Story, a new documentary about the right-to-die case of Lower Moreland Township native Terri Schiavo is streaming on Peacock, writes Brian Brant for People. Schiavo who lived in Florida with her husband lived in a persistent vegetative state for 15 years after experiencing cardiac arrest. The documentary explores the familial legal battle over whether or not Schiavo’s feeding tube should be removed.

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Kaiser closes Geisinger Health acquisition, forming Risant Health

04/08/24 at 03:00 AM

Kaiser closes Geisinger Health acquisition, forming Risant Health Modern Healthcare, by Caroline Hudson; 4/2/24Kaiser Permanente has acquired Geisinger Health and folded it into Risant Health, a new nonprofit formed to create a national value-based care network.

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Study shows strong social ties may ease the way for older adults in life's final chapter

04/08/24 at 03:00 AM

Study shows strong social ties may ease the way for older adults in life's final chapter Medical & Life Sciences, by Vijay Kumar Maleus; 4/4/24  Study Results: ... The analysis revealed that higher levels of loneliness were significantly associated with increased odds of experiencing anxiety, sadness, and pain in the last month of life, suggesting a pivotal link between social isolation and end-of-life symptomatology. Furthermore, marital status and the receipt of personal care were predictors of dying in a hospital, pointing to the influence of social support structures on the location of death. Interestingly, a larger social network was correlated with a higher likelihood of receiving hospice or palliative care, highlighting the potential benefits of broader social connections. 

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How a CU biostatistician is helping improve palliative care research

04/08/24 at 03:00 AM

How a CU biostatistician is helping improve palliative care research University of Colorado - Anschutz Medical Campus, by Tayler Shaw; 4/3/24 

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Optimizing RN responsibilities ‘more essential’ than staffing hours: study

04/08/24 at 03:00 AM

Optimizing RN responsibilities ‘more essential’ than staffing hours: study McKnights Long-Term Care News, by Josh Henreckson; 4/2/24 ... [New] analysis suggests that optimizing the role of registered nurses would be an even more effective way of increasing quality of care. Care quality would strongly benefit from an industry-wide focus on the responsibilities of RNs, the study’s authors said. Specifically, leaders should more actively differentiate RNs from licensed practical nurses, use a nursing practice model framework to maximize the role of RNs and provide RNs with more education in leadership and geriatric care.

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Today's Encouragement: Everybody on a championship team ...

04/08/24 at 03:00 AM

Everybody on a championship team doesn’t get publicity, but everyone can say they are a champion. - Magic Johnson

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In the spirit of Ramadan: Diverse access to palliative care

04/08/24 at 03:00 AM

In the spirit of Ramadan: Diverse access to palliative care Medscape UK, by Dr. Mohammed Sattar; 4/4/24 St. Gemma’s Hospice hosted their first ever Ramadan community iftar in Moortown, Leeds on March 19, with almost 100 guests in attendance. For me, this was a historic moment. This iftar was about creating a sense of community. ... [I've] seen the visionary leadership that is provided by St. Gemma’s senior team, ... taking careful consideration of what hospice and palliative care services should look like in an ever-changing Leeds population. The team members ask themselves some difficult questions about how to become an inclusive service for all and no faiths. The iftar, the sunset meal when Muslims break their daily fast, was a testament to that. ...

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Malnutrition, thyroid cancer result in high rates of death among home care, hospice patients, studies finds

04/08/24 at 02:15 AM

Malnutrition, thyroid cancer result in high rates of death among home care, hospice patients, studies finds McKnights Home Care, by Adam Healy; 4/5/24 Two separate studies analyzing disparities in patients’ place of death revealed high death rates related to malnutrition and thyroid cancer among patients receiving care at home and in hospice. The first study, “Disparities in Place of Death Among Malnourished Individuals in the United States,” found that more than 31,000 malnutrition-related deaths occurred among home care and hospice patients between 1999 and 2020. ... Another study, “Disparities in the Place of Death for Patients With Malignant Neoplasms of the Thyroid Gland,” discovered that roughly half of all patients who died of thyroid cancer between 1999 and 2020 did so in home care or hospice.

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It’s past time for an upgrade to the Medicare Hospice Benefit

04/08/24 at 02:00 AM

It’s past time for an upgrade to the Medicare Hospice BenefitHealth Affairs, by Cara L. Wallace and Stephanie P. Wladkowski; 4/5/24When most people think about hospice care, they imagine someone such as the late Rosalynn Carter, who enrolled onto hospice and died within a few days. Jimmy Carter’s long hospice stay, now more than a year, has shown a different model for hospice—one that supports its mission to help people live well, with dignity and quality of life, for whatever time remains. However, current policy restrictions to enroll and remain on hospice make it difficult for many hospice recipients to receive hospice care for “whatever time remains,” as 17.2 percent of Medicare hospice patients are discharged alive. Editor's Note: Many hospices used Jimmy Carter's one-year anniversary as a marketing tool that hospice is not really for the "dying." Many--if not most--of these articles were not transparent in identifying any type of recertification, decertification, or revocation processes. Yes, while it may be past time for CMS to upgrade the Hospice Benefit, it's also past time for hospice marketing to be more transparent with the public.

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Qualitative analysis of initial palliative care consultations in amyotrophic lateral sclerosis

04/08/24 at 02:00 AM

Qualitative analysis of initial palliative care consultations in amyotrophic lateral sclerosis Journal of Pain and Symptom Management; by Christine L Watt, Ian C Smith, Jill Rice, Rebekah Murphy, Ari Breiner, Maria Duff, Danica Nogo, Shirley H Bush, Susan McNeely, Usha Buenger, Belinda Zehrt, Jocelyn Zwicker; 4/2/24, online ahead of print Background: Palliative care (PC) benefits patients with amyotrophic lateral sclerosis (ALS), however the needs of patients and caregivers and the optimal timing of PC discussions remains unclear. This study reports the analysis of PC consult notes from a larger feasibility trial. The specific aims of this analysis were to i) identify the PC needs of patients with ALS via qualitative analysis and ii) identify characteristics of patients and caregivers that could predict specific PC needs.

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Proposed hospice rule offers key quality improvement changes, experts offer

04/08/24 at 02:00 AM

Proposed hospice rule offers key quality improvement changes, experts offer McKnights Home Care, by Adam Healy; 4/4/24While the recently proposed 2025 hospice payment update included a payment adjustment that stakeholders have perceived as inadequate, it also introduced valuable new tools to address hospice quality and more, according to industry regulatory experts. One of the proposed rule’s most enticing features is the Hospice Outcomes and Patient Evaluation (HOPE) tool, which next year will replace the current Hospice Item Set (HIS) measurement system used by the Centers for Medicare & Medicaid Services to track hospice quality.

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Lutheran Senior Services/Diakon agreement forms one of largest US nonprofit LTC organizations

04/07/24 at 03:45 AM

Lutheran Senior Services/Diakon agreement forms one of largest US nonprofit LTC organizations McKnights Senior Living, by Kathleen Steele Gaivin; 3/29/24 Diakon Senior Living operations and its four continuing care retirement / life plan communities will become part of Lutheran Senior Services under an agreement ... that the organizations say will create one of the largest nonprofit senior living and care organizations in the country. The transaction is pending regulatory approvals and is expected to close this summer.

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9 health systems join digital startup venture with Northwell Health

04/07/24 at 03:40 AM

9 health systems join digital startup venture with Northwell HealthBecker's Health IT, by Giles Bruces, 4/2/24 Nine health systems are partnering with a venture studio aiming to launch digital health startups. The systems will work with Aegis Ventures, a startup incubator that has built four companies over the past three years with New Hyde Park, N.Y.-based Northwell Health. John Noseworthy, MD, emeritus president and CEO of Rochester, MN-based Mayo Clinic, will serve as chair of the new Digital Consortium. The group says its goal is to develop solutions "built for health systems by health systems." The nine founding members of Aegis Ventures' Digital Consortium are:

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Home care providers hail bill establishing standard classification for direct support workers

04/07/24 at 03:35 AM

Home care providers hail bill establishing standard classification for direct support workers McKnights Home Care, by Adam Healy; 4/3/24 The Senate last week passed legislation that would address the dire shortage of direct support workers with the establishment of a classification to help stakeholders collect workforce data. Specifically, if signed into law, the Recognizing the Role of Direct Support Professionals Act would require the Office of Management and Budget to consider establishing a standard occupational classification (SOC) for direct support professionals (DSPs). This classification would make it easier for policymakers to gather useful data about these workers and help them better address critical workforce challenges.

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How’s Your Soul?

04/07/24 at 03:30 AM

How’s Your Soul? JAMA Network, by Daivd Vermette, MD, MBA, MHS; 3/28/24 "Brother David, how’s your soul?” The question took me by surprise. It was time for my first advisement meeting with my residency program director. In medicine, the machine runs on competence and achievement of “milestones.” Yet, as I braced for a meeting to trudge through performance evaluations and in-training exam scores, I awoke to humanity. ... Medical education has numerous models for coaching, advising, and mentoring. While these models helped develop my professional life, they missed the fundamental core of who I am: a human being. Perhaps instead we could embrace a model in medical education built on the tenets of pastoral care. ...

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Bereaved Parent Support Study: Seeking Participants

04/07/24 at 03:25 AM

Bereaved Parent Support Study: Seeking Participants Sylvester Comprehensive Cancer Center/University of Miami Miller School of Medicine, Memorial Sloan Kettering Cancer Cancer, St. Jude Children's Hospital, and Children's Hospital of Philadelphia; 4/2/24This program is offered as a research study examining three types of support for bereaved parents who have lost a child to cancer. This is a National Institutes of Health-funded trial taking place at Sylvester Comprehensive Cancer Center/University of Miami Miller School of Medicine, Memorial Sloan Kettering Cancer Center, St. Jude Children's Hospital, and Children's Hospital of Philadelphia; however, families need not have received care from one of these institutions. ... For those assigned to receive counseling, services will be provided through videoconferencing, and all study activities can be completed from the participant’s home. ... There will be no charge for any support offered through the study. ... [Click on the title's link for more information.] Editor's Note: If your hospice does not have bereavement services tailored to the needs of parents who have lost a child, consider this opportunity for free support from these reputable sources. Click on the title's link for eligibility requirements and descriptions.

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April 21-27, 2024 National Volunteer Week: NHPCO's outreach suggestions & recognition ideas

04/07/24 at 03:20 AM

April 21-27, 2024 National Volunteer Week: NHPCO's outreach suggestions & recognition ideasNHPCO website, for April 21-27, 2024The U.S. hospice movement was founded by dedicated volunteers and volunteer commitment continues to be a core part of the Medicare Hospice Benefit today. This National Volunteer Week, April 21 – 27, 2024, we’re shining a light on the dedicated, compassionate volunteers who brighten the lives of the patients and families we collectively serve.Editor's Note: Download and use NHPCO's pdf for numerous In-Person Recognition Ideas and Virtual Recognition Ideas.

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[Utilization] Hospice care for those with dementia falls far short of meeting people’s needs at the end of life

04/07/24 at 03:15 AM

[Utilization] Hospice care for those with dementia falls far short of meeting people’s needs at the end of life The Conversation, Maria J Silveira, University of Michigan; 4/1/24... Strikingly, only 12% of Americans with dementia ever enroll in hospice. Among those who do, one-third are near death. This is in stark contrast to the cancer population: Patients over 60 with cancer enroll in hospice 70% of the time. In my experience caring for dementia patients, the underuse of hospice by dementia patients has more to do with how hospice is structured and paid for in the U.S. than it does patient preference or differences between cancer and dementia.

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What home health providers need to know about the Medicare TPE Audit Process

04/07/24 at 03:15 AM

What home health providers need to know about the Medicare TPE Audit ProcessHome Health Care News, by Joyce Famakinwa;  4/2/24... TPE is a medical review program that began for the home health and hospice settings in December 2017. The goal of the program is to weed out improper payments by zeroing-in on providers with high claims denial rates or unusual billing practices. ... TPE has three pillars. Target refers to errors or mistakes that are identified through data in comparison to providers or peers. Probe is the examination of 20 to 40 claims. ... Education means helping providers reduce claim denials and appeals through one-on-one individualized education. 

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Fostering respect and appreciation seen as keys to retaining direct care workers

04/07/24 at 03:05 AM

Fostering respect and appreciation seen as keys to retaining direct care workersMcKnights Online Forum, by Kimberly Bonvissuto; 3/27/24 Expressions of appreciation and respect can go a long way in addressing senior living’s direct care workforce crisis, according to a panel of direct workers and employers who addressed what makes employees want to stay — or go. ... Nate Hamme, president and executive director of the Ceca Foundation, ... said that the most important part of employee recognition is listening to people. ... He added that there is a science to recognition backed by research into what motivates people and implementing programs around that. ... Recognition programs, Hamme added, should focus on IMPACT: inclusive, mission-aligned, public, authentic, consistent and timely. 

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Today's Encouragement

04/07/24 at 03:00 AM

You can’t go back and change the beginning, but you can start where you are and change the ending. ~CS Lewis

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Mortality, hospice use rates differ in assisted living communities depending on whether memory care is offered

04/07/24 at 03:00 AM

Mortality, hospice use rates differ in assisted living communities depending on whether memory care is offeredMcKnights Senior Living, by Kimberly Bonvissuto; 4/4/24Assisted living communities that provide memory care services may attract residents closer to the end of life or promote hospice use at the end of life compared with assisted living communities without such services, according to the findings of a new study. ... Researchers from the Brown University School of Public Health, the University of Melbourne and the Johns Hopkins University School of Nursing examined whether end-of-life outcomes — mortality and hospice use — differed between assisted living facilities with and without memory care services among 15,152 residents who moved into larger communities between 2016 and 2018.Editor's Note: Click here for the source article, "Do end-of-life outcomes differ by assisted living memory-care designation?"

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Sunday newsletters

04/07/24 at 03:00 AM

Sunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!

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