Literature Review

World Hospice & Palliative Care Day 2025 Achieving the Promise: Universal access to palliative care ehospice; by Stephen Connor; 7/7/25 This year we celebrate the 20th anniversary of World Hospice & Palliative Care Day (World Day). ... World Day is organised by the Worldwide Hospice Palliative Care Alliance each second Saturday in October, this year on 11 October 2025, on behalf of the global palliative care community, including international, national, and regional palliative care organisations such as the IAHPC, ICPCN, PallCHASE, APCA, EAPC, ALCP, APHN, and including national organisations such as the IAPC. ... This year’s theme, Achieving the Promise: Universal Access to Palliative Care, builds on last year’s to explore what is needed in the coming 5-10 years to build toward universal access to palliative care, especially as part of universal health coverage. The subthemes this year are:

Community turned-out for 7th annual Hoedown for Hospice in Dickinson The Dickinson Press, Dickinson, ND; by Press Staff; 7/11/25 The spirit of community and compassion was on full display June 19 as families, friends and neighbors gathered at Veterans Memorial Park for the 7th Annual Hoedown for Hospice. This beloved fundraising event benefits the Dickinson hospice program offered through CHI Health at Home.A crowd of all ages turned out, making the event a resounding success. Attendees enjoyed a lunchtime filled with activities and entertainment. Children laughed and played in colorful bouncy houses, met furry new friends at the petting zoo, and everyone enjoyed delicious food and ice cream.

The best time to plant a tree was 20 years ago. The second best time is now. - Chinese proverb

The grave outlook for hospice family caregivers Hospice News; by Holly Vossel; 7/10/25 The state of family caregiving in the United States has reached a critical tipping point amid rising demand for end-of-life care and insufficient resources. Many family caregivers are ill-equipped to navigate the complexities of supporting a loved one with a terminal illness, according to Dr. Arul Thangavel, CEO of the advance care planning company WiserCare. Thangavel is also an attending physician at the University of California, San Francisco (UCSF). Among the issues is that conversations about the end of life and goals of care are often brought up far too late in a disease trajectory, Thangavel said. This trend leaves families grappling with uncertainty, moral distress, guilt and compounded grief in the decision-making process, he stated. 

Hill Country vigil draws hundreds after deadly Texas floods MYSA, San Antonio, TX; by Nicholas Hernandez; 7/11/25 ... On Thursday, July 10, hundreds gathered downtown for a Candlelight Vigil of Hope to honor those affected [by the "catastophic flood"] and shine a light on the importance of grief and mental health support in the wake of disaster. Organized by River City Advocacy in partnership with Hope Hospice and other local nonprofits, the event brought together counselors, community leaders and families. Handheld candles were distributed at the plaza, where people stood shoulder-to-shoulder in silence, prayer and remembrance.Editor's Note: Thank you Hope Hospice for your leadership in providing this meaningful way to gather and grieve. Calling all hospice leaders to simply "check in" on employees who have family and friends in affected areas when such crises occur. Other recent examples include Hurricanes Helene & Milton, the Los Angeles wildfires, Kentucky floods, and these Texas / New Mexico floods. Your kind words can make a lasting difference.

'One Big Beautiful Bill Act': Key final Medicaid changes explained Morgan Lewis; by Jeanna Palmer Gunville and Tesch Leigh West; 7/9/25 The One Big Beautiful Bill Act was signed into law on July 4 and includes significant changes to the Medicaid program, particularly with regard to state and federal financing for the program. This LawFlash provides a high-level summary of certain key provisions that will impact various Medicaid stakeholders, including states, providers, and enrollees. ...

Hard decisions: Using legal authority over an aging parent Forbes; by Carolyn Rosenblatt; 7/9/25 The phone call came to Dad’s daughter (FD) at 6 AM. Again. This time, it was the night [home] caregiver reporting that her father had fallen while trying to get out of bed. She had jumped up and tried to stop him but she could only get to him in time to break his fall. ... For months, FD had watched her father's condition deteriorate from 300 miles away, visiting as often as she could. Advanced dementia had robbed Dad of his independence, and multiple physical ailments had left him requiring round-the-clock care. He was on hospice care, ... FD [daughter and legal authority] felt compelled to make a decision about moving Dad [from home to a facility]. ...

Palliative care knowledge, attitudes, and self-competence of nurses working in hospital settingsJournal of Palliative Care; by Mona Ibrahim Hebeshy, Darcy Copeland; 6/25With the growing need to integrate palliative care into healthcare systems, nurses in hospital settings often provide care for patients with life-limiting conditions, many of whom lack formal education in palliative care. [Conclusions:] Nurses generally feel competent; however, they often lack confidence in addressing patients’ social and spiritual needs. They experienced unease when discussing death and exhibited paternalistic attitudes. Significant differences were found in educational background, nursing experience, personal caregiving experience, and practice setting. Positive correlations exist between attitudes, knowledge, and self-competence, indicating that greater knowledge and competence were associated with better attitudes toward end-of-life care.

20 states sue after the Trump administration releases private Medicaid data to deportation officials Associated Press (AP), Washington, DC; by Amanda Seitz and Kimberly Kindy; 7/1/25The Trump administration violated federal privacy laws when it turned over Medicaid data on millions of enrollees to deportation officials last month, California Attorney General Rob Bonta alleged on Tuesday, saying he and 19 other states’ attorneys general have sued over the move. Health secretary Robert F. Kennedy Jr.’s advisers ordered the release of a dataset that includes the private health information of people living in California, Illinois, Washington state, and Washington, D.C., to the Department of Homeland Security, The Associated Press first reported last month. All of those states allow non-U.S. citizens to enroll in Medicaid programs that pay for their expenses using only state taxpayer dollars.

Palliative care in the ICU: From oxymoron to standard of careIntensive Care Medicine; by Nancy Kentish-Barnes, Judith E. Nelson; 6/25Palliative care can be integrated into intensive care through ICU clinicians and palliative care specialists, and these approaches are complementary and synergistic. One study found that proactive specialist involvement in ICU rounds for high-risk patients led to more and earlier family meetings and shorter hospital stays. However, collaboration challenges, such as continuity of communication, highlight the need for close team cooperation. The integrative model trains intensivists and ICU nurses to embed palliative care into routine practice, ideally starting in medical and nursing education. Research has shown that improved communication and support from intensivists and ICU nurses are associated with better bereavement outcomes for families, including reduced post-traumatic stress, anxiety, depression, and prolonged grief.

Texas floods: "Ways you can help" and "Community crisis and grief resources for hospices"Lists and links compiled at Composing Life Out of Loss - Community Grief; by Joy Berger; updated 7/8/25 

Medicaid provisions threaten home and community-based services for millions of vulnerable Americans National Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 7/3/25The National Alliance for Care at Home (the Alliance) issued the following statement today in response to the House’s passage of the “One Big Beautiful Bill Act,” also known as the Reconciliation bill, which now heads to President Trump’s desk for his signature. “The Alliance is deeply troubled by the Medicaid provisions within the One Big Beautiful Bill Act, which has passed both chambers of Congress and now awaits President Trump’s signature,” said Alliance CEO Dr. Steve Landers. “These provisions—including work requirements, reduced provider taxes, and new cost-sharing mandates—prioritize short-sighted budget savings over the health and wellbeing of our most vulnerable citizens who rely on home and community-based services (HCBS).” The home care community advocated throughout the legislative process for Congress to mitigate these harmful Medicaid provisions.

Pallitus Health Partners receives CHAP Accreditation for Adult Palliative Care and Pediatric Care Certification for Kourageous Kids Pallitus Health Partners, Louisville, KY; Press Release; 7/8/25 Community Health Accreditation Partner, Inc. (CHAP) has awarded Care Guide Partners, Inc. (dba Pallitus Health Partners) CHAP Accreditation under the CHAP Palliative Care Standards of Excellence. The nonprofit also received certification for its Kourageous Kids (KKids) palliative care program. CHAP Accreditation demonstrates that Pallitus Health Partners meets the industry’s highest nationally recognized standards. The rigorous evaluation by CHAP focuses on structure and function, quality of services and products, human and financial resources, and long-term viability. Simply stated, adherence to CHAP’s standards leads to better quality care. ... Pallitus Health Partners, an affiliate of Hosparus Health, offers comprehensive palliative care for serious illnesses in Kentucky and Indiana. Editor's Note: Congratulations to Pallitus Health Partners and Hosparus Health! This accreditation marks yet another milestone of excellence for this organization—originally founded as Hospice of Louisville—which established one of the nation’s first pediatric hospice teams in 1980. I had the privilege of serving on the Pediatric Team of Hospice & Palliative Care of Louisville from 1997 to 2001. Profound experiences with these children, their parents, siblings, grandparents, our dedicated team members, and community partners are embedded in me, forever. They continue to shape my perspective and purpose in my role as editor in chief of this newsletter.