Literature Review



Feasibility of a serious illness communication program for pediatric advance care planning

08/31/24 at 03:25 AM

Feasibility of a serious illness communication program for pediatric advance care planningJAMA Open Newtwork; Danielle D. DeCourcey, MD, MPH; Rachelle E. Bernacki, MD, MS; Brett Nava-Coulter, MPH; Sithya Lach, BS; Niya Xiong, MSPH; Joanne Wolfe, MD, MPH; 7/24Children and adolescents and young adults (AYAs) with serious illness often have a variable clinical course with periods of stability alternating with life-threatening deteriorations; consequently, many children and AYAs experience health crises without opportunities to discuss preferences for medical care. Furthermore, bereaved parents report a lack of preparation to address their child’s medical and emotional needs at end of life (EOL). Advance care planning (ACP) is an iterative process to honor patient and family goals and values involving communication about prognosis and the formulation of care plans addressing symptom management, quality of life, preferences for life-sustaining interventions, and anticipatory guidance about EOL. Pediatric advance care planning (ACP), which aims to ensure care is aligned with family goals and values, is associated with better end-of-life outcomes; however, ACP in pediatrics remains uncommon. This pilot cohort study found that the PediSICP [Pediatric Serious Illness Communication Program] was feasible, acceptable, and highly valued by clinicians and parents of children with serious illness.

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Reducing central nervous system–active medications to prevent falls and injuries among older adults-A cluster randomized clinical trial

08/31/24 at 03:20 AM

Reducing central nervous system–active medications to prevent falls and injuries among older adults-A cluster randomized clinical trialJAMA Open Network; Elizabeth A. Phelan, MD, MS; Brian D. Williamson, PhD; Benjamin H. Balderson, PhD; Andrea J. Cook, PhD; Annalisa V. Piccorelli, PhD; Monica M. Fujii, MPH; Kanichi G. Nakata, PhD; Vina F. Graham, BS; Mary Kay Theis, MA, MS; Justin P. Turner, PhD; Cara Tannenbaum, MD, MSc; Shelly L. Gray, PharmD, MS; 7/24This cluster randomized clinical trial found that a health system–embedded deprescribing intervention was no more effective than usual care in reducing medically treated falls among community-dwelling older adults prescribed CNS-active medications. For health systems that attend to deprescribing as part of routine clinical practice, additional interventions may confer modest benefits on prescribing without a measurable effect on clinical outcomes.

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Patient-Reported outcome measures help patients with cancer

08/31/24 at 03:15 AM

Patient-Reported outcome measures help patients with cancerMichael J. Hassett, MD, MPH; Christine Cronin, BS; 8/24Outside of cancer medicine, there is ample evidence that care management interventions improve patient-related, therapy-related, and health care utilization outcomes, especially when PROMs [patient recorded outcome measures] are incorporated. Altogether, these findings led to the hypothesis that symptom-focused care management programs that rely on PROMs could have a substantial positive impact for patients with cancer. Over the past 2 decades, dozens of clinical trials have explored this question. The analysis by Balitsky and colleagues adds further support to the argument that PROMs should be used routinely in oncology practice.

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Fairness in predicting cancer mortality across racial subgroups

08/31/24 at 03:10 AM

Fairness in predicting cancer mortality across racial subgroupsJAMA Open Network; Teja Ganta, MD; Arash Kia, MD; Prathamesh Parchure, MSc; Min-heng Wang, MA; Melanie Besculides, DrPH; Madhu Mazumdar, PhD; Cardinale B. Smith, MD; 7/24In this cohort study, a machine learning [ML] model to predict cancer mortality for patients aged 21 years or older diagnosed with cancer ... was developed. ... The lack of significant variation in performance or fairness metrics indicated an absence of racial bias, suggesting that the model fairly identified cancer mortality risk across racial groups. The findings suggest that assessment for racial bias is feasible and should be a routine part of predictive ML model development and continue through the implementation process.

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Trends in post-acute care use in Medicare Advantage versus Traditional Medicare: A retrospective cohort analysis

08/31/24 at 03:05 AM

Trends in post-acute care use in Medicare Advantage versus Traditional Medicare: A retrospective cohort analysisJournal of the American Medical Directors Association; by Robert E Burke, Indrakshi Roy, Franya Hutchins, Song Zhong, Syama Patel, Liam Rose, Amit Kumar, Rachel M Werner; 8/24We sought to describe national trends in hospitalization and post-acute care utilization rates in skilled nursing facilities (SNFs) and home health (HH) for both Medicare Advantage (MA) and Traditional Medicare (TM) beneficiaries, reaching up to the COVID-19 pandemic (2015-2019). We found hospitalizations, SNF stays, and HH stays were all decreasing over time in both populations. Although similar proportions of MA and TM beneficiaries received SNF or HH care, MA beneficiaries received fewer days. The largest difference we found was in the number of post-acute care providers used in TM and MA, with MA using far fewer; however, quality ratings were similar among post-acute care providers used in each program.

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Saturday newsletters

08/31/24 at 03:00 AM

Saturday newsletters focus on headlines and research - enjoy!

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Modeling nursing home harms from COVID-19 staff furlough policies

08/31/24 at 03:00 AM

Modeling nursing home harms from COVID-19 staff furlough policiesJAMA Open Network; by Sarah M Bartsch, Colleen Weatherwax, Bruce Leff, Michael R Wasserman, Raveena D Singh, Kavya Velmurugan, Danielle C John, Kevin L Chin, Kelly J O'Shea, Gabrielle M Gussin, Marie F Martinez, Jessie L Heneghan, Sheryl A Scannell, Tej D Shah, Susan S Huang, Bruce Y Lee; 8/24What is the tradeoff between COVID-19–related harms and non–COVID-19–related harms when allowing nursing home staff with mild COVID-19 to work while masked? The findings of this study suggest that allowing nursing home staff who were mildly ill with COVID-19 to work while masked was associated with less harm from alleviated missed tasks, outweighing increasing harm from COVID-19 transmission.

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Updated Care Compare for Hospice released

08/30/24 at 03:05 AM

Updated Care Compare for Hospice ReleasedCMS website; 8/28/24Publisher's note: See link above to access updated Care Compare for Hospice publicly reported quality measures.

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Today's Encouragement: There is no wisdom without ...

08/30/24 at 03:00 AM

There is no wisdom without leisure. ~ W. B. YeatsEditor's Note: Hospice & Palliative Care News Today wishes you a wonderful Labor Day weekend. 

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Rounds with Leadership: Focusing on the outcomes of NP practice

08/30/24 at 03:00 AM

Rounds with Leadership: Focusing on the outcomes of NP practice American Association of Colleges of Nursing - The Voice of Academic Nursing; by American Colleges of Nursing (AACN); 8/28/24 ... In a synopsis of more than 50 research studies, the American Association of Nurse Practitioners found that patients under the care of NPs have fewer unnecessary hospital readmissions, higher patient satisfaction scores, and fewer unnecessary emergency room visits than patients under the care of physicians only. Recent studies have shown that ... NPs engaging in end-of-life care had fewer hospitalizations and higher hospice use; ... Despite such compelling evidence, challenges to NP education and practice continue. More than 20 states have yet to grant full scope of practice authority to NPs, denying these expert clinicians the opportunity to exercise the full range of their clinical expertise.

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Meet Germany’s biographer of the dying

08/30/24 at 03:00 AM

Meet Germany’s biographer of the dying WhatFingerNews, WhatFinger.com; YouTube video with English voiceover; 8/26/24 Sabrina Görlitz writes biographies about people on their deathbeds. In a hospice, she meets Gisela—an 87-year-old woman sharing her personal story for posterity.

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This was the year advanced practice nurses thought they’d get full practice authority in NC. They were wrong.

08/30/24 at 03:00 AM

This was the year advanced practice nurses thought they’d get full practice authority in NC. They were wrong.NC Health News - NC Board of Nursing; by TwumasiD-Mensah; 8/29/24 Every so often, Megan Conner, a nurse anesthetist in Greenville said she sees a patient who’s driven for hours to come for a screening colonoscopy but who instead has to be sent to the emergency department. ... It frustrates Conner that so many patients, who have to travel sometimes hours for care in eastern North Carolina, end up not getting it because of common ailments they can’t get treated closer to home.That’s why Conner is a big believer in the Safe, Accessible, Value-directed and Excellent Health Care Act (SAVE Act), which would give advanced practice registered nurses (APRNs) like her full practice authority. She argues the data show that more nurse practitioners would provide primary care in rural North Carolina if the state would give them autonomy to practice, bringing care to small burgs that often go without. And now, the demands for care are being driven by hundreds of thousands of patients newly eligible for care because of Medicaid expansion. Along with a growing number of lawmakers who believe the legislation is overdue, advanced practice nurses thought this would be the year that the SAVE Act finally passed. They were wrong. [Click on the title's link to continue reading.]

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Illinois Medicaid launches Program of All-Inclusive Care for the elderly

08/30/24 at 03:00 AM

Illinois Medicaid launches Program of All-Inclusive Care for the elderly Open Minds, Gettsburg, PA; 8/28/24 On August 15, 2022, the Illinois Department of Healthcare and Family Services (HFS) announced the launch of the Medicare-Medicaid Program of All-Inclusive Care for the Elderly (PACE) in five regions. The Illinois PACE contracts were awarded in June 2024 by HFS and the Centers for Medicare and Medicaid Services (CMS). PACE is a Medicare and Medicaid risk-based care program that offers comprehensive, team-based medical and social services for adults age 55 and older through collaborating health care agencies. 

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Grief Memoir: ‘It was my turn to do everything for her’

08/30/24 at 03:00 AM

Grief Memoir: ‘It was my turn to do everything for her We Are The Mighty; by Jessica Hall; 8/28/24 ... I joined the phone call with the doctor where he told us all the worst news. The cancer was growing everywhere along the spine. ... He told us that it was time for hospice. ... Even though I had been preparing for this for months, I was truly not ready to go from child to caretaker. ... For my entire life, my mom had cared for me. She had been there when I was sick or hurt. She cleaned my house (sometimes to my chagrin). She cooked my favorite meals and she let me take breaks. Now it was my turn to do everything for her. It hit me like a ton of bricks, but I also just knew that I had to do it. We all had to do everything for her to make her final days easy for her. Hospice came by to get everything set up. ... [Click on the title's link to continue reading this beautiful, personal story.]Editor's Note: Calling all hospice executive leaders who do not have clinical, direct patient care experience--read this article to grasp common family dynamics, decisions, actions, emotions, and life-changing moments for each patient you serve. Multiply this out for the many family members of each patient you serve. How do your hospice services tune into and support these family members?

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Executive Personnel Changes - 8/30/24

08/30/24 at 03:00 AM

Executive Personnel Changes - 8/30/24 

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Bon Secours Mercy Health partners with private equity-owned provider

08/30/24 at 03:00 AM

Bon Secours Mercy Health partners with private equity-owned provider[VA] VPM; by Adrienne Hoar McGibbon; 8/27/24There is a growing demand for hospice care in Virginia. 40,000 people received hospice care in the state in 2023, according to the U.S. Centers for Medicare and Medicaid Services. The joint venture with Compassus plans for expanded hospice and home health care. Bon Secours Mercy Health’s home health and hospice care division is teaming up with national home health care provider Compassus as part of a newly minted partnership. The home health and hospice program will now be called Bon Secours Home Care and Hospice by Compassus... The merger will also impact BSMH locations in Florida, Illinois, Kentucky, Ohio and South Carolina.

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‘Keep going’: Wish to ride horse granted for woman with cancer

08/30/24 at 03:00 AM

‘Keep going’: Wish to ride horse granted for woman with cancer WDTN Dayton, Huber Heights, Ohio; by Allison Gen; 8/28/24 A Miami Valley woman with terminal cancer got a little help to check a goal off her bucket list. She wanted to ride a horse again. Wednesday afternoon, her wish was granted at the Carriage Hill MetroPark Riding Center. Brenda Garramone has stage four bone cancer. ... “I’m out here for everybody else that’s got cancer,” Garramone said. A few weeks ago she was taken into the care of Grace Hospice. Garramone grew up around horses on a dairy farm in Oregon. That’s why after her terminal diagnosis, she wanted to have a chance to ride again. “We learned through her interactions with her nurse that her last wish was to spend time with a horse again,” Emily O’Flynn, Grace Hospice office manager and social work intern, said.

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Year-over-year health spending growth highest ‘by far’ for home healthcare

08/30/24 at 03:00 AM

Year-over-year health spending growth highest ‘by far’ for home healthcare McKnights Senior Living; by Lois A. Bowers; 7/28/24 Year-over-year growth in national health spending in June was highest “by far” for home healthcare, at 20.9%, compared with other major healthcare categories, according to a brief issued late Tuesday by Altarum. Most of the growth, 18.5 percentage points, was due to changes in utilization rather than price, George Miller, PhD, Altarum fellow and research team leader, told the McKnight’s Business Daily. “Nursing home care spending was a distant second, at 10.0% year-over-year growth,” Miller said. By comparison, year-over-year spending growth was 8.3% for prescription drugs, 8.2% for hospital care, 7.3% for dental services and 6.6% for physician and clinical services, according to the report. Overall, spending on healthcare goods and services grew by 8.1% between June 2023 and June 2024, with utilization growth continuing to outpace price growth.

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Hospice care standards are important. Congress must be careful tinkering with them.

08/30/24 at 03:00 AM

Hospice care standards are important. Congress must be careful tinkering with them. NorthJersey.com, Special to the USA TODAY Network; by Patrick Maron; 8/28/24... As hospice care grows, real attention needs to be paid to the differences between nonprofit and for-profit centers.  [A] staggering  73%  of hospice programs today are for-profit and are driven by financial motives, ... Rep. Earl Blumenauer, D-Oregon, is drafting legislation that, if enacted, would represent the most significant reforms to date for hospice payment and oversight. Though Blumenauer’s bill, the Hospice Care Accountability, Reform, and Enforcement — or Hospice CARE — Act, is still in development, key provisions will likely include a new payment mechanism for high-acuity palliative services, changes to the per-diem payment process and actions to improve quality and combat fraud. The bill would also implement a temporary, national moratorium on the enrollment of new hospices into Medicare, to help stem the tide of fraudulent activities ... However, there are significant challenges for nonprofit freestanding inpatient hospice facilities like Villa Marie Claire in Saddle River. Most important, the proposed five-year moratorium on enrolling new hospice programs into Medicare could limit our ability to expand services, straining resources of the Villa ... What’s more, the legislation mandates more frequent inspections and enhanced oversight, which could lead to operational stress and higher costs. [Click on the title's link to continue reading.]

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Awards and Recognitions: August 2024

08/30/24 at 03:00 AM

Awards and Recognitions: August 2024 We congratulate these honorees and celebrate their contributions to our collective hospice and palliative care mission, vision, and compassionate care throughout our world. Do you know any of these leaders? We encourage you to forward this to them or to find another way to celebrate their success. (We are piloting this as a monthly feature in Hospice & Palliative Care Today.)

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TCN podcast: Mapping the Future via the Mission with John McBeth

08/30/24 at 03:00 AM

TCN podcast: Mapping the Future via the Mission with John McBeth Teleios Collaborative Network (TCN); podcast hosted by Chris Comeaux, with John McBeth; 8/28/24 In this episode of the Anatomy of Leadership podcast, John McBeth, Former Co-founder and CEO of Next Century Corporation, shares his journey in the technology industry, from software engineer to CEO roles. McBeth emphasizes the importance of creating high-performance organizations and having a great and worthy purpose.  He discusses his experience with Vistage where he met Dr. Lee Thayer and the profound impact of working with Dr. Thayer had on him and his organizations. McBeth also shares the inspirational story of starting Next Century Corporation and their mission to protect the country and save lives through real-time actionable information.  The conversation emphasized the importance of mission and purpose in mapping the future for both individuals and organizations.

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$83M fraud case against nursing home group may proceed, with no defendants excused

08/30/24 at 03:00 AM

$83M fraud case against nursing home group may proceed, with no defendants excusedMcKnight's Long-Term Care News; by Jessica R. Towhey; 8/27/24A New York Supreme Court judge threw out all arguments from lawyers for an embattled group of nursing homes that sought to have charges dismissed in a case accusing the owners and operators of $83 million in Medicare and Medicaid fraud. Judge Melissa Crane ruled that the owners of Centers Health Care, along with numerous other individuals, did not make sufficient arguments for dropping charges of fraud, “saddling” nursing homes with “excessive debts,” colluding to pay “sham vendors,” and paying themselves “inflated” salaries.

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Share QR code with colleagues to register for our newsletter

08/30/24 at 03:00 AM

Share this QR code with your colleagues to register for our free, national newsletter

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Hospice patient publishes first poetry book

08/30/24 at 02:00 AM

Hospice patient publishes first poetry book BBC News, Derby, United Kingdom; by Jude Winter; 8/26/24 A woman receiving end-of-life care has fulfilled an ambition by publishing a book of poems. Sarah Colina started writing the poems more than 40 years ago but never got round to getting her work published despite encouragement from friends and family. The 60-year-old has been receiving care at Ashgate Hospice since being admitted to its Inpatient Unit in Old Brampton, Chesterfield. ... he added staff at the hospice had been "so supportive" and is selling 50 of her books to raise money to support their work. "I’m hoping it will be nicely received and people will enjoy reading my poems", said Ms Colina. She added: "Some of the poems are very dark, but some make you laugh. "I'm hoping it gives people an insight into their inner person." 

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Today's Encouragement: August ...

08/29/24 at 03:00 AM

August: When we discover that even the sun can have an attitude problem. ~ Anonymous

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