Literature Review
Jewish hospice volunteer goes beyond ‘Shabbat blessings’ with ‘Froth and Bubble’
06/08/25 at 03:10 AMJewish hospice volunteer goes beyond ‘Shabbat blessings’ with ‘Froth and Bubble’ Jewish News; by Shannon Levitt; 5/20/25 Jeff Lewis, 71, had about 100 boxes of books with him when he moved to the Valley from California more than a decade ago. Surprisingly, those books became his first link to Hospice of the Valley (HOV), an organization that would become very important to him through the years. ... Thus, when he decided to retire from his photography business but wanted to stay busy, his friend again nudged him toward HOV and its Shabbat Blessings volunteer program. ... As a Shabbat Blessings volunteer, Lewis, a member of Temple Solel in Paradise Valley, offers hospice patients a small Shabbat service, including lighting Shabbat candles, saying the Hamotzi and Kiddush blessings and offering small prayers. [Story of patient financially choosing between medicine and food.] ... [Lewis} started buying $75 grocery gift cards to give away. [This developed into] The Froth and Bubble Foundation for Food Assistance. Editor's note: This inspirational Shabbat blessings story tells the rich background behind our 3rd top-read story from last week, Hospice volunteer donates 10,000 gift cards to cancer patients. Scroll to the end of this story for the meaning behind the name "Froth and Bubble."
Research study participation, 5/31/25
06/08/25 at 03:05 AMResearch study participation, 5/31/25
Today's Encouragement
06/08/25 at 03:00 AMDon't aim at success. The more you aim at it and make it a target, the more you are going to miss it... success will follow you precisely because you had forgotten to think about it. ~Viktor Frankl, Man's Search for Meaning
Sunday newsletters
06/08/25 at 03:00 AMSunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!
A strategic path forward for hospice and palliative care: A white paper on the potential future of the field
06/08/25 at 03:00 AMA strategic path forward for hospice and palliative care: A white paper on the potential future of the fieldPalliative Medicine Reports; by Ira Byock; 6/5/25The field of hospice and palliative care in the United States is experiencing serious problems and faces an uncertain future. Quality of hospice care is highly variable. Unethical hospice business practices are common in some regions. Palliative care’s integration within American health care has stalled, despite demonstrating that much better care for seriously ill and dying people is both feasible and affordable... Efforts must start with zero tolerance of fraudulent business and clinical practices that harm vulnerable patients. The four components of this strategic approach are:
Today's Encouragement
06/07/25 at 03:55 AMIf you have knowledge, let others light their candles in it. ~Margaret Fuller
Online dialectical behavioral therapy for emotion dysregulation in people with chronic pain-A randomized clinical trial
06/07/25 at 03:45 AMOnline dialectical behavioral therapy for emotion dysregulation in people with chronic pain-A randomized clinical trialJAMA Network Open; Nell Norman-Nott, BPsychSc; Nancy E. Briggs, PhD; Negin Hesam-Shariati, PhD; Chelsey R. Wilks, PhD; Jessica Schroeder, PhD; Ashish D. Diwan, MD, PhD; Jina Suh, PhD; Jill M. Newby, PhD; Toby Newton-John, PhD; Yann Quidé, PhD; James H. McAuley, PhD; Sylvia M. Gustin, PhD; 5/25Chronic pain, defined as pain persisting beyond 3 months,1 affects 20% to 30% of the population. Beyond its sensory experience, chronic pain is an intrinsically emotional experience associated with heightened negative emotions, including anger, worry, and low mood, alongside a diminished capacity to regulate emotions. Dysregulated emotions contribute to comorbid psychological disorders; symptoms of anxiety and depression, which are present in 50% to 80% of people with chronic pain; and worsening pain intensity. One emotion regulation–focused intervention being adapted for chronic pain is dialectical behavioral therapy (DBT). In DBT skills training, emotion regulation is improved by encouraging emotion recognition, emotion expression, and reaction evaluation. Results of small in-person trials of DBT for people with chronic pain show promise to improve emotion dysregulation, depression, anxiety, and pain intensity.
A single academic site study of five years evaluating pharmacy students’ palliative care clinical reasoning using Script Concordance Testing
06/07/25 at 03:40 AMA single academic site study of five years evaluating pharmacy students’ palliative care clinical reasoning using Script Concordance TestingAmerican Journal of Hospice ad Palliative Medicine; Florence Labrador, PharmD-c; Kyle P. Edmonds, MD, FAAHPM; Toluwalase A. Ajayi, MD, FAAP, FAAHPM; Rabia S. Atayee, PharmD, BCPS, APh, FAAHPM; 5/25This study aimed to evaluate the impact of a Pain and Palliative Care elective didactic course on enhancing clinical reasoning skills among Doctor of Pharmacy (PharmD) students using the Script Concordance Test (SCT). The elective course was offered six times, covering various palliative care topics such as opioid management, procedural pain, and end-of-life care. The study found a statistically significant improvement in SCT scores from pre- to post-course assessments ... This study demonstrates the effectiveness of a targeted palliative care elective in improving clinical reasoning skills among pharmacy students.
Naming the pain: Grief-ism, grief-ist, and the linguistics of loss
06/07/25 at 03:35 AMNaming the pain: Grief-ism, grief-ist, and the linguistics of lossIllness, Crisis & Loss; Laurel E. Hilliker, Bob Baugher; 5/25This article introduces two new terms, Grief-ism and Grief-ist, to expose some of the behaviors, actions, inactions, and unrealistic expectations of others (from individual support persons to societal institutions) towards bereaved individuals. In this article, we provide examples of subtle prejudice, discrimination, and marginalization involving those adjusting to significant loss. As well, this work draws attention to the medicalization and policing of the process of grief by well-meaning others. We believe these actions accumulate over time, weigh down those who are grieving loss, and tend to make the grief feel unsupported. As a result, people coping with the loss of a loved one may experience feelings of isolation and, in some cases, a lengthening of the grief process.
Palliative care for patients with end-stage renal disease-An examination of unmet needs and experiencing problems
06/07/25 at 03:30 AMPalliative care for patients with end-stage renal disease-An examination of unmet needs and experiencing problemsJournal of Hospice & Palliative Nursing; Darawad, Muhammad W. PhD, RN; Reinke, Lynn F. PhD, ANP-BC, FPCN, FAAN; Khalil, Amani PhD, RN; Melhem, Ghaith Bani PhD, RN; Alnajar, Malek MSN, CNS, RN; June 2025Patients with end-stage renal disease face numerous physical, emotional, and financial burdens, necessitating palliative care (PC) interventions. This cross-sectional study ... revealed that 64.7% of participants experienced significant challenges, primarily financial difficulties (78.5%), autonomy concerns (68.8%), and a need for information (68.0%). More than half (51.9%) reported needing PC [palliative care], particularly for managing fatigue (78.3%), pain (79.8%), and depression (72.9%). Unmet needs were common (47.6%), with the most notable gaps in financial support (52.5%) and information provision (50%). These findings underscored the urgent need for tailored PC interventions for end-stage renal disease patients, particularly in addressing symptom management, psychosocial and spiritual support, financial support, and information deficits, to enhance their quality of life.
Where adults with heart failure die: Insights from the CDC-WONDER database
06/07/25 at 03:25 AMWhere adults with heart failure die: Insights from the CDC-WONDER databaseCirculation: Heart Failure; Farman Ali, Shaaf Ahmad, Aman Ullah, Ali Salman, Adarsh Raja, Faizan Ahmed, Prinka Perswani, Ahsan Alam, Jishanth Mattumpuram, Muhammad Talha Maniya, Hamza Janjua, Tyler J Bonkowski, Aravinda Nanjundappa; 5/25This study underscores the shifting trends in the locations of death among patients with HF [heart failure], with a ≈2-fold increase in HF-related deaths occurring at home over the past 2 decades. Hospice/nursing home deaths increased from 30.95% ... in 1999 to 34.71% ... in 2017, but declined to 29.54% ... by 2023. Young adults (20-34 years) had the highest proportion of inpatient deaths. Sex, ethnicity, and urbanization were significant predictors of death location, with men, White individuals, and those in large metropolitan areas more likely to die in medical facilities.
Describing the impact of physician end-of-life communication training on simulated stress using a novel stress marker
06/07/25 at 03:20 AMDescribing the impact of physician end-of-life communication training on simulated stress using a novel stress marker American Journal of Hospice and Palliative Medicine; by Amy H. J. Wolfe, MD, MEd, Pamela S. Hinds, PhD, RN, FAAN, Adre J. du Plessis, MD, Heather Gordish-Dressman, PhD, and Lamia Soghier, MD, MEd-2; 3/25/25 Introduction: Empathetic end-of-life (EOL) communication is important for high quality pediatric patient and family outcomes. Trainees may have limited exposure and training in caring for patients at EOL which may impact communication-related stress. ... Conclusions: Pediatric residents report limited opportunities to communicate with patients/families at EOL, which may impact stress responses when communicating life-altering news to families. Simulated communication encounters can be designed to evoke subjective and objective stress which can be measured using novel technology and may help address limited EOL opportunities.
An end-of-life nursing education consortium (ELNEC) regional approach to integrating primary palliative care in nursing education
06/07/25 at 03:15 AMAn end-of-life nursing education consortium (ELNEC) regional approach to integrating primary palliative care in nursing educationJournal of Professional Nursing; Toni L Glover, Olga Ehrlich, Andra Davis, Megan Lippe, Carrie L Cormack, Theresa Jizba, Amanda J Kirkpatrick, Susan Meskis; May-June 2025With the concurrent movement toward competency-based nursing education and the incorporation of Hospice, Palliative, and Supportive Care as one of the four spheres of care in the latest AACN [American Association of Colleges of Nursing] Essentials, nurse educators face a myriad of challenges in incorporating palliative care content into undergraduate and graduate curricula. The challenges include: a lack of faculty expertise in palliative care education; a lack of administrative or faculty support to include primary palliative care content in nursing curricula; a lack of evidence-based teaching strategies on primary palliative care nursing education; and, a lack of funding to support the development of robust, evidence-based strategies to strengthen primary palliative care nursing education. The purpose of this article is to describe an innovative regional approach advancing primary palliative care nursing education. To ensure nursing students are practice-ready, both undergraduate and graduate programs must provide education that builds knowledge and competency in primary palliative nursing care.
Avoidant and approach-oriented coping strategies, meaning making, and mental health among adults bereaved by suicide and fatal overdose: A prospective path analysis
06/07/25 at 03:10 AMAvoidant and approach-oriented coping strategies, meaning making, and mental health among adults bereaved by suicide and fatal overdose: A prospective path analysisBehavioral Sciences; Jamison S. Bottomley, Robert A. Neimeyer; 5/25The current study shed light on the role of avoidance- and approach-oriented coping strategies in aggravating or ameliorating the longer-term distress of the survivors of such losses, roughly half of whom showed continued clinical-level elevations of prolonged grief, posttraumatic stress, and depressive symptomatology two years following the death. The results provided cautionary evidence that avoidant coping through denial, distraction, and behavioral disengagement prospectively predicted higher levels of prolonged grief and posttraumatic stress, with the impairment of meaning making about the loss accounting for much of the variance in the former outcome. In contrast, actively approaching others for support and attempting to confront and surmount the problems posed by bereavement consistently predicted a reduction in prolonged grief, posttraumatic stress, and depression symptoms in the months that followed. The latter impacts were found to be fully mediated by the enhancement of meaning making about the loss, carrying practical implications for bereavement support and grief therapy for this vulnerable population of mourners.
Live hospice discharge of individuals with cognitive disabilities: A systematic review
06/07/25 at 03:05 AMLive hospice discharge of individuals with cognitive disabilities: A systematic reviewJournal of the American Medical Directors Association; by Victoria M Winogora, Christine E DeForge, Kimberlee Grier, Patricia W Stone; 4/25This systematic review is the first to focus on live discharge from hospice for individuals with cognitive disabilities. All studies focused exclusively on individuals with dementias. Although the term cognitive disability was absent from the literature reviewed, cognitive disability was associated with live discharge. Future research should aim to include the greater cognitive disability community to assess hospice and other end-of-life outcomes to identify potential targets for future intervention.
[Singapore] An interdisciplinary approach to legacy work for a young cancer patient - A case illustration
06/07/25 at 03:05 AM[Singapore] An interdisciplinary approach to legacy work for a young cancer patient - A case illustrationJournal of Social Work in End-of-Life and Palliative Care; Deborah Tan, Grace Yong, Vivian Wong, Benjamin Hooi, Eng Koon Ong; 4/25An interdisciplinary approach to care is essential and crucial in the practice of end-of-life and hospice care. However, there is a lack of data on how social workers and art therapists may work together to provide psychosocial-spiritual interventions. This case study illustrates how the home hospice medical social worker and art therapist employed complementary methods to fulfill the wish of a young adult with advanced cancer through legacy work. Similar team approaches in practice may benefit other patients with similar needs.
Saturday newsletters
06/07/25 at 03:00 AMSaturday newsletters focus on headlines and research - enjoy!
GreenCape Health partners with Central Valley Hospice Palliative Medicine
06/07/25 at 03:00 AMGreenCape Health partners with Central Valley Hospice Palliative Medicine WLUS FM 98.3, Greenville, SC; Press Release; 6/5/25 GreenCape Health is proud to announce a strategic partnership with Central Valley Hospice Palliative Medicine (CVHPM), an innovative hospice agency committed to delivering state-of-the-art, compassionate end-of-life care in medically underserved areas across California. ... At the heart of this partnership is mPRO, GreenCapes patient-reported outcomes platform, which enables individuals to report symptoms in real time from home. These insights allow hospice care teams to anticipate needs, respond quickly to changes in condition, and continually adjust care plans to align with each patients evolving goals.
[Kazakhstan] Mechanisms of chronic pain in Alzheimer's Disease: A narrative review
06/07/25 at 03:00 AM[Kazakhstan] Mechanisms of chronic pain in Alzheimer's Disease: A narrative reviewCurrent Medicinal Chemistry; Roman Konovalov, Mina Aubakirova, Dmitriy Viderman; 4/25AD [Alzheimer's Disease] causes structural and functional alterations in the affected brain, including shrinkage of gray matter volume and disruptions in brain network connectivity. Besides memory loss, pain is a significant yet often neglected symptom. Effective pain management in AD is challenged by the adverse effects of pain-relief medications and communication difficulties, especially as the disease progresses. Pharmacological options include opioids, nonsteroidal anti-inflammatory drugs, paracetamol/acetaminophen, and adjuvant pain relievers like antidepressants and antiepileptic medications, though these are not officially approved for pain relief in AD. Non-pharmacological strategies, such as exercise therapy, music therapy, Reiki, reflexology, and behavioral therapy, are preferred to prevent the side effects of medication. The review highlights a crucial link between neurological changes in AD and the perception of pain, underscoring the need for customized pain management approaches for this population.
Research study participation, 6/7/25
06/07/25 at 03:00 AMResearch study participation, 6/7/25
Gaps in the coordination of care for older adults with or at risk for cardiovascular disease
06/06/25 at 03:00 AMGaps in the coordination of care for older adults with or at risk for cardiovascular disease The American Journal of Managed Care; by Lisa M. Kern, MD, MPH,Joselyne E. Aucapina,Samprit Banerjee, PhD, Joanna B. Ringel, MPH, Jonathan N. Tobin, PhD, Semhar Fisseha, MPH, Helena Meiri, MA, RN, Madeline R. Sterling, MD, MPH, Kurt C. Stange, MD, PhD, Monika M. Safford, MD, Paul N. Casale, MD, MPH; 6/3/25 ... To determine whether older adults with cardiovascular disease (CVD) or CVD risk factors perceive gaps in communication among their providers and whether they consider those gaps to be consequential, we conducted a cross-sectional survey of Medicare beneficiaries 65 years and older with CVD or CVD risk factors and highly fragmented ambulatory care (reversed Bice-Boxerman Index score ≥ 0.85).
CMS budget proposal would shift nursing facility oversight
06/06/25 at 03:00 AMCMS budget proposal would shift nursing facility oversight Becker's Hospital Review; by Elizabeth Gregerson; 6/4/25 Key changes put forth in President Donald Trump’s proposed fiscal year 2026 budget may have downstream effects on the survey and certification of skilled nursing facilities. ... Here are three things to know about the proposed changes:
HOPE Assessment Tool blog series: All about active diagnoses
06/06/25 at 03:00 AMHOPE Assessment Tool blog series: All about active diagnosesCHAP blog; by Jennifer Kennedy; 6/5/25The implementation date of the HOPE assessment is now five months away and providers should be well on the path for readiness... This blog series has been working its way through the domains of the HOPE assessment tool and this edition will discuss patient diagnoses and health conditions... This domain (Section I) and its items refer to the patient’s primary diagnosis and any active co-morbidities. It includes the most common principal diagnoses among hospice patients, as well as comorbidities and co-existing conditions...
NPHI proud to announce its partnership on the upcoming documentary for PBS, Caregiving, from Executive Producer Bradley Cooper
06/06/25 at 03:00 AMNPHI proud to announce its partnership on the upcoming documentary for PBS, Caregiving, from Executive Producer Bradley Cooper National Partnership for Healthcare and Hospice Innovation (NPHI), Washington, DC; 5/19/25 The National Partnership for Healthcare and Hospice Innovation (NPHI) is proud to announce its partnership on the upcoming PBS documentary Caregiving, a powerful new film executive produced by Academy Award-nominated actor, director, and producer Bradley Cooper. Created in collaboration with Cooper’s production company, Lea Pictures, as well as WETA Washington, D.C., and Ark Media, Caregiving will shine a national spotlight on the often unseen yet essential work of caregivers across the country. NPHI is honored to serve as a national partner on this important project. Narrated by Uzo Aduba (The Residence, Orange Is the New Black) and directed by Chris Durrance, Caregiving intertwines deeply personal stories of caregivers with the untold history of the American care system. The documentary examines how caregivers—often family members, friends, and frontline professionals—navigate the immense challenges and unseen achievements of their roles.