Literature Review

Nonprofit participates in ALS Ice Bucket Challenge Coeur d'Alene / Post Falls Press, Coeur d'Alene, ID; 5/31/25 Hospice of North Idaho took the plunge this week after being nominated by Kootenai Health to participate in the ALS Ice Bucket Challenge, a viral campaign aimed at raising awareness and funds to fight amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease. In a video on social media, Hospice of North Idaho’s Leadership Team and staff sat front and center Wednesday as team members gathered, cheered and doused them with buckets of ice-cold water all in the name of a great cause, Hospice of North Idaho shared in a Friday news release. ... “Hospice of North Idaho is proud to take part in this movement and show our support for those affected by ALS,” Megan Ryan, communications specialist at Hospice of North Idaho.

HOPE Tool Anxiety: What are we forgetting in the rush to prepare?Teleios Collaborative Network (TCN); by Melissa Calkins and Ashley Espy; 5/30/25 Panic is in the air.  With the HOPE assessment tool set to replace HIS, hospice teams are racing to prepare—scrubbing workflows, updating systems, and trying to wrap their heads around new clinical documentation demands.  But amid the rush, it's easy to overlook critical gaps: non-clinical staff being left out of planning, unclear timelines, poor communication, or the complete absence of a project lead.  HOPE isn't just about compliance—it's about execution. If we don't step back and ask what's missing, we risk rolling out a system that nobody is truly ready for.Steps to Operationalize the HOPE Tool:

Jewish hospice volunteer goes beyond ‘Shabbat blessings’ with ‘Froth and Bubble’ Jewish News; by Shannon Levitt; 5/20/25 Jeff Lewis, 71, had about 100 boxes of books with him when he moved to the Valley from California more than a decade ago. Surprisingly, those books became his first link to Hospice of the Valley (HOV), an organization that would become very important to him through the years. ... Thus, when he decided to retire from his photography business but wanted to stay busy, his friend again nudged him toward HOV and its Shabbat Blessings volunteer program. ... As a Shabbat Blessings volunteer, Lewis, a member of Temple Solel in Paradise Valley, offers hospice patients a small Shabbat service, including lighting Shabbat candles, saying the Hamotzi and Kiddush blessings and offering small prayers. [Story of patient financially choosing between medicine and food.]  ... [Lewis} started buying $75 grocery gift cards to give away. [This developed into] The Froth and Bubble Foundation for Food Assistance. Editor's note: This inspirational Shabbat blessings story tells the rich background behind our 3rd top-read story from last week, Hospice volunteer donates 10,000 gift cards to cancer patients. Scroll to the end of this story for the meaning behind the name "Froth and Bubble." 

OP-ED: How hospice care falls short for people living with dementia Being Patient - Alzheimer's News, Advice, Stories & Support; by Maria J. Silveira; 5/30/25Only 12 percent of Americans with dementia ever enroll in hospice. This may be due to how hospice is structured and paid for in the U.S., explains University of Michigan associate professor of internal medicine Maria J Silveira. ... In contrast to the former president [Jimmy Carter's extended hospice care], his wife, who had dementia, lived only nine days under hospice care. Palliative care physicians like myself who treat both conditions are not surprised at all by this disparity. ... Strikingly, only 12 percent of Americans with dementia ever enroll in hospice. Among those who do, one-third are near death. This is in stark contrast to the cancer population: Patients over 60 with cancer enroll in hospice 70 percent of the time.

June is the time for being in the world in new ways, for throwing off the cold and dark spots of life. ~ Joan D. Chittister

French lawmakers approve assisted dying bill Le Monde with AP and AFP; 5/27/25France's Assemblée Nationale adopted a bill on Tuesday, May 27, to allow adults with incurable illnesses to take lethal medication, the initial step in a lengthy process that could grant patients medical assistance to end their lives in clearly defined circumstances. The bill received 305 votes in favor and 199 against, after all parties in parliament allowed their lawmakers a free vote on the issue. It will now be sent to the Sénat for further debate. A definitive vote on the bill could take months to be scheduled. In parallel, another bill on palliative care, meant to reinforce measures to relieve pain and preserve patients' dignity, was also adopted on Tuesday, unanimously. 

Illinois House passes bill allowing terminally ill people to end their lives with physician’s help Chicago Tribune, Springfield, IL; by Jeremy Gorner and Addison Wright; 5/30/25 Legislation that would allow terminally ill people to end their lives with the help of a doctor was narrowly passed by the Illinois House and now heads to the Senate. It marks the first time a medical aid in dying bill has passed through one legislative chamber in Illinois since advocates unsuccessfully pushed for the practice to be legalized in the state last year. The bill passed late Thursday by a 63-42 vote, just three votes more than the minimum number required for bills to pass the House by a simple majority, with a handful of Democrats joining Republicans in voting against it.

Redwood Coast PACE opens location at MRCH for vital senior services Mad River Union, Arcata, CA; 5/29/25 Redwood Coast PACE (Program of All-inclusive Care for the Elderly), a program of the Humboldt Resource Center, has opened its new location in Arcata at 3798 Janes Road, on the Mad River Community Hospital campus. The Arcata center – along with the PACE centers in Eureka and Fortuna – offers a full range of medical, social and supportive services designed to meet the unique needs of local seniors who have complex medical needs and their families. 

‘The whole family is the patient’: Children’s hospice program in Raleigh receives $2.5 million gift CBS WNCN-17, Raleigh, NC; by Maggie Newland; 5/28/25 Memories of Eliza Craven fill every corner of her family’s home. “She loved art, she loved reading, she loved learning, she loved being outside,” mother Amanda Hayes Craven said. Said father Lee Craven, “She loved her brothers, loved them both fiercely.” In the spring of 2020, that smart, sweet rough-and-tumble 7-year-old got a diagnosis that left her entire family reeling: a brain tumor.  ... The family began receiving services through Transitions LifeCare’s Transitions Kids program in Raleigh.  ...  “The night that she died, it was a weekend night,” Hayes Craven continued. “It was a Friday night. It was after midnight. We expected one nurse and we got an army of people here to support us.” ... While the Craven family wouldn’t wish their pain on anyone, they are grateful that other families facing similar situations can find help through Transitions Kids, which recently received a 2.5 million dollar anonymous gift.

Hard conversations, celebrations accompany AANHPI Heritage Month Public News Service; by Roz Brown and Suzanne Potter; 5/30/25 Asian Americans, Native Hawaiian and Pacific Islanders are a rapidly growing population in California and across the nation - but as they age, research indicates they're less likely to use hospice care or be familiar with end-of-life options. Nationwide, the group makes up about 6% of the population - and 15% in California - but like many minorities, they face greater health-care disparities. Ben de Guzman, director of the Office on Asian and Pacific Islander Affairs in the Washington, D.C., mayor's office and the son of Filipino immigrants, said cultural beliefs can hinder conversations about death and dying, and language also is a barrier.

CMS’ TEAM Payment Model: What hospices need to know Hospice News; by Jim Parker; 5/30/25 A forthcoming alternative payment model for hospitals focuses on discharge planning and ensuring effective post-acute care, including hospice and palliative care when appropriate. The U.S. Centers for Medicare & Medicaid Services (CMS) late last year unveiled its new Transforming Episode Accountability Model (TEAM). Participation in the model will be mandatory for select hospitals. The program is set to launch on Jan. 1, 2026 and run through Dec. 31, 2030. CMS designed the program based on lessons learned from previous episode-based payment models, as well as input from stakeholders in response to a Request for Information published in 2023.  

Veteran’s Last Patrol joins NVBDC’s MVO Task Force to support veterans in hospice care Eurozone.Newswire, Detroit, MI; by EIN Presswire.com; 5/27/25 The National Veteran Business Development Council (NVBDC) proudly welcomes Veterans Last Patrol as the newest member of its Military and Veteran Organization (MVO) Task Force. This collaboration expands the Task Force’s ability to reach and support Veterans during one of the most critical moments in their lives—end-of-life care. Founded by retired military officer Claude Schmid, Veterans’ Last Patrol is a national nonprofit dedicated to providing companionship and support to Veterans in hospice care. With a mission to “befriend, honor, and support,” the organization works to ensure that no Veteran faces the end of life alone, offering meaningful connection and comfort during their final days, or their “Last Patrol.”

I quit my healthcare job to take care of my grandmother. It’s a mix of happy and sad moments, but ultimately has been life-changing for us. DNYUZ; "as-told-to essay based on a coversation with Kristina McDonald"; 5/26/25My grandmother is 80, and my grandfather is 83. I quit my full-time job to care for my grandmother as I noticed that her undiagnosed dementia was worsening. ...