Literature Review

Too many people overvalue what they are not and undervalue what they are. ~ Malcom S. Forbes

Iowa legislature passes "Mason's Law," with assistance from Children's Respite Homes of America, paving way for 1st Pediatric Palliative Care Center License in the nation Cision PRWeb; by Children's Respite Homes of America; 5/16/25 Iowa has made history. With final approval from both chambers of the Iowa Legislature, "Mason's Law" (House File HF 933) has officially passed, making Iowa the first state poised to authorize a specialized Pediatric Palliative Care Center license. This landmark legislation now awaits the Governor's signature—anticipated before the end of June—and is set to transform how children with life-limiting conditions receive care in Iowa and beyond. Named in memory of Mason Sieck, a young child who passed away in 2021, Mason's Law represents the tireless advocacy of Mason's parents, Shanna and Curtis Sieck. 

What is it like to die? University of Minnesota’s VR experience offers some answers. The Minnesota Star Tribune; by Richard Chin; 5/2/25 Our reporter returned from the Embodied Labs experience with some thoughts on what he’d like his last hours to look like. When the University of Minnesota offered to let me experience what it’s like to die, naturally I said yes. Aren’t we all morbidly curious about the undiscovered country, as Hamlet put it, from which no traveler returns? Except this time, happily, I would get to return because it would be a virtual death, an experience in a VR studio that’s part of the university’s Health Sciences Library system.

What is at-home hospice care and how it works near NYC Medical Device News Magazine; 5/19/25 

Trump Administration Executive Order TrackerMcDermott+Consulting; by McDermott+; 5/19/25 [This article] is a tracker of healthcare-related executive orders (EOs) issued by the Trump administration, including overviews of each EO and the date each EO was signed. We will regularly update this tracker as additional EOs are published. It is important to note that EOs, on their own, do not effectuate policies. Rather, in most cases, they put forth policy goals and call on federal agencies to examine old or institute new policies that align with those goals. ...

NorthStar Care Community launches 'Life's Big Moments' campaign to initiate nationwide conversation about end-of-life hospice care PR Newswire, Ann Arbor, MI; by NorthStar Care Community; 5/19/25 NorthStar Care Community has launched Life's Big Moments, a campaign that celebrates the beauty of life's journey from the big milestones to the small, everyday moments that leave the deepest impact on our well-being and purpose. The campaign aims to initiate conversation and awareness around end-of-life care while also raising money to benefit the members of NorthStar Care Community. Companies, organizations, and individuals are invited to support these efforts throughout the campaign, focusing on recognizing the needs of our Veterans.

The evolution of hospice care The Journal; by Dr. Sarah Phillips, Medical Director, Hospice of the Panhandle; 5/18/25 Historians believe that the first hospices originated in Malta around 1065, dedicated to caring for the ill and dying enroute to and from the Holy Land. The term “hospice” referred to places of shelter for travelers, particularly in medieval Europe. The moder hospice movement began to gain momentum in the 1960’s with Dame Cicely Saunders’s establishment of St. Christopher’s Hospice in London, which emphasized comfort and quality of life for patients and their families. This idea of specialized care for the dying was first introduced to the United States during a lecture at Yale University in 1963. In the early 1970’s the first national hearings on the subject of death with dignity were conducted by the U.S. Senate Special Committee on Aging. In 1978, the National Hospice Organization was established and the U.S. Department of Health, Education, and Welfare task force reports that “the hospice movement … is a viable concept and one which holds out a means of providing more humane care for Americans dying of terminal illness while possibly reducing costs. As such, it is the proper subject of federal support.” [Continue reading ...]

The Quilters: NetflixPersonal communication; 5/16/25The Quilters follows the daily lives of several quilters inside the sewing room at South Central Correctional Center, a Level 5 maximum-security prison in a small town two hours south of St. Louis, MO. From design to completion, the men reveal their struggles, triumphs, and sense of pride in creating something beautiful in this windowless, sacred space deep within the prison walls. Watch on Netflix: https://www.netflix.com/title/82006530.Publisher's note: This program donates quilts to foster children in surrounding counties - similar to the quilt program at Angola Penitentiary in Louisiana that creates quilts as a fundraiser for their hospice program.

'I kept going': After blindness and cancer, UT student fulfills PhD dream Ausint American-Statemen, Austin, TX; by Lily Kepner and Nicole Villalpando; 5/18/2025 Qusay Hussein has dedicated his life to advocating for refugees, marginalized people and those with disabilities. For almost a decade, he chose to drive that change at the University of Texas. Hussein is an education advocate and a doctoral student at the [University of Texas] Steve Hicks School of Social Work. He received the highest degree in the field this month, having overcome seemingly impossible barriers: a suicide bombing in Mosul, Iraq, in 2006 that left him blind and his face severely damaged; 70 reconstruction surgeries; and immigrating to the U.S. He recently finished his first book about his early years and the bombing: "Can You Open My Eyes?" He's currently writing a second book, "Between Two Worlds: From Refugee to Ph.D." ... After battling terminal kidney cancer the last two years, his dream - he told his doctors - was to walk across the graduation stage May 10, honoring the promise he made to his father that he would come to the U.S. and get an education.

New standards could transform palliative care for dementia patients McKnights Long-Term Care News; by Donna Shryer; 5/15/25 An Invited Commentary published Wednesday [5/14/ in JAMA Network Open highlights vital new consensus on when to refer dementia patients to specialist palliative care. The commentary, authored by Laura J. Morrison, MD, from Yale University School of Medicine, analyzes the Delphi survey study, which established the first international agreement on palliative care referral criteria for dementia patients.The Delphi survey study, led by Yuchieh K. Chang, DO, and colleagues, brought together 63 experts from five continents who identified 15 major criteria for specialist palliative care referral, grouped into five categories: dementia type, symptom distress, psychosocial factors, comorbidities and hospital use. Each major criterion was considered sufficient on its own to warrant referral, even for patients expected to live more than two years. Additionally, the study outlined 42 minor criteria, which could be used in combination to justify a referral decision.

Blessing hands, healing hearts: CHP honors nurses with special ceremony Hometown Stations - ABC, FOX, NBC, CBS, Delphos, OH (WLIO); by Todd Cummins; 5/15/25 A local nonprofit agency is recognizing the dedication of its staff with a special blessing ceremony. In honor of National Nurses Week, the staff of CHP Home Care and Hospice participated in a “blessing of the hands” — a centuries-old tradition meant to honor the vital role nurses play in healing and compassion.  The idea came from Colleen Quickery, the administrator of Hearth & Home in Van Wert. Chaplain Steve Haddix said he has performed about 240 blessings for staff across Paulding and Van Wert counties, as well as the Lima and Delphos offices. This marks the first year CHP has offered the ceremony, and it has had a powerful impact on many who received it.Editor's note: Reminder that CNA Week is June 12-18, 2025.

Table of Experts: Women leaders create resilient company culture Portland Business Journal, Portland, OR; 5/16/25 Prioritizing employee well-being, providing support and fostering empowerment are essential for navigating challenges and driving business success. Portland Business Journal Publisher and President Candace Beeke recently convened a Portland BizWomen Coalition roundtable sponsored by Providence Health Plan. ... The topic was navigating the currents of change: women leaders fostering resilient workplace cultures. 

How to put together your AI Dream Team Forbes; by Megan Poinski; 5/15/25 What are front-runners [with AI] doing differently? Accenture found they have five imperatives in common. They’re prioritizing AI innovation and growth over cost reduction—with C-suite leaders agreeing on the reasons behind it and how to measure the outcomes. They’re reinventing talent and ways of working, hiring employees who can do more with AI and upskilling existing staff, and giving them more opportunities to learn on the job by experimenting with it. They’re building an AI-enabled digital core, ensuring that their core systems and data are all designed with current and future AI use in mind. They’re using AI responsibly, focusing on governance for its use and risk assessments for both security issues and impacts on the workforce. And they’re also continuously reinventing their strategies and goals, creating a change-management framework that can shift with the way tools are employed, actual results, and changes in technology capabilities and the larger business environment.