Literature Review



Learning from death: New memoir If We Never Meet Again imparts lessons from working with hospice patients

02/16/25 at 03:35 AM

Learning from death: New memoir If We Never Meet Again imparts lessons from working with hospice patientsThe MarCom Journal, Charleston, SC; by Globe Newswire; 2/6/25While the topic of death is generally considered taboo, English teacher turned hospice administrator Matthew Cornett believes there is much to be learned from death. After becoming an empty nester, Cornett left the classroom behind and began a second career in hospice care. And the more time he spent with people as they approached the end of their life, the more he realized that their deaths had meaning. And what emerged from those final moments was something profound. Hoping to make others feel more comfortable when it comes to preparing for and talking about death, he presents a memoir of his journey into the world of hospice care. In If We Never Meet Again, Cornett chronicles his experiences providing compassion and support to hospice patients while adjusting to his new role. Finding inspiration in his patient’s “death stories,” he found himself on an unexpected path of self-discovery. Cornett’s personal reflections on these intimate and emotional interactions encourage readers to reconsider how they view death and dying.

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Palliative care initiated in the Emergency Department-A cluster randomized clinical trial

02/16/25 at 03:30 AM

Palliative care initiated in the Emergency Department-A cluster randomized clinical trialJAMA; Corita R. Grudzen, MD, MSHS; Nina Siman, MA, MSEd; Allison M. Cuthel, MPH; Oluwaseun Adeyemi, MBBS, PhD; Rebecca Liddicoat Yamarik, MD; Keith S. Goldfeld, DrPH, MS, MPA; PRIM-ER Investigators; 1/25Question-What is the effect of a multicomponent intervention to initiate palliative care in the emergency department on hospital admission in older adults with serious, life-limiting illness? In this cluster randomized clinical trial, which was conducted at 29 US emergency departments and included 98,922 initial visits, there was no difference in the rate of hospital admission in older adults with serious, life-limiting illness receiving care before (64.4%) vs after (61.3%) emergency department clinical staff receipt of a multicomponent primary palliative care intervention. Relevance-This multicomponent intervention to initiate palliative care in the ED did not have an effect on hospital admission, subsequent health care use, or short-term mortality in older adults with serious, life-limiting illness.

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Palliative care program for community-dwelling individuals with dementia and caregivers: The IN-PEACE randomized clinical trial

02/16/25 at 03:25 AM

Palliative care program for community-dwelling individuals with dementia and caregivers: The IN-PEACE randomized clinical trialJAMA Network; by Greg A. Sachs, Nina M. Johnson, Sujuan Gao, Alexia M. Torke, Susan E. Hickman, Amy Pemberton, Andrea Vrobel, Minmin Pan, Jennifer West, Kurt Kroenke; 1/25Among community-dwelling individuals with moderate to severe dementia, does a dementia care management program with integrated palliative care reduce patients’ neuropsychiatric symptoms? In this randomized clinical trial, a dementia care management program with integrated palliative care did not significantly improve patients’ neuropsychiatric symptoms.

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Arkansas Hospice names Brian Bell new President and CEO

02/16/25 at 03:20 AM

Arkansas Hospice names Brian Bell new President and CEO Arkansas Money & Politics (AMP); by AMP Staff; 2/7/25 Arkansas Hospice announced Thursday that Dr. Brian W. Bell, M.D., FAAHPM, will take over as president and CEO for Arkansas Hospice’s Family of Care on March 10.  He joined the company in 2016 and is currently the chief medical officer. He will replace Judith Wooten, who announced her retirement last year. Wooten will stay on through April to ensure a smooth transition. Bell has worked in hospice care since 2006 and is board-certified in family medicine and hospice and palliative medicine. He is one of only people in the state with the designation fellow of the Academy of Hospice and Palliative Medicine. 

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Access tops list of Americans' healthcare concerns: 4 survey findings

02/16/25 at 03:15 AM

Access tops list of Americans' healthcare concerns: 4 survey findings Becker's Clinical Leadership; by Erica Carbajal; 2/5/25A quarter of Americans rank healthcare access and affordability as the top public health priority they want government leaders to focus on, according to poll findings from Gallup and Emory University's Rollins School of Public Health. ... Four key findings:

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Flu cases continue to rise across the country

02/16/25 at 03:10 AM

Flu cases continue to rise across the countryABC 6 News, Rochester, MN; by KAALTV; 2/10/25Flu cases are continuing to rise across the country as doctor visits for flu-like symptoms are now reaching their highest point in 15 years. The CDC estimates at least 24 million illnesses this flu season alone, with 13,000 turning deadly. Right now, about 31% of flu tests are coming back positive, nearly double the peak from last season. Doctors say your best line of defense is vaccination. Editor's note: We see this surge across news media sources, and compiled this state-specific list for you. 

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HealthcareBusinessToday.com series on hospice care

02/16/25 at 03:05 AM

HealthcareBusinessToday.com series on hospice careEditor's note: The following community education articles about hospice care were posted by HealthcareBusinessToday.com on 2/10/25.

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New report details financial, emotional toll of Parkinson’s on family caregivers

02/16/25 at 03:00 AM

New report details financial, emotional toll of Parkinson’s on family caregivers McKnights Home Care; by Foster Stubbs; 2/4/25 A new report sheds a light on the unique challenges faced by family caregivers who care for loved ones with Parkinson’s disease (PD). The report, Parkinson’s Disease Caregiving in the US, features insights from secondary analysis and supplementary interviews with 10 PD caregivers. These caregivers average 31 hours of unpaid care per week; half of interviewed caregivers exceed 100 hours each week, according to the report. The National Alliance for Caregiving (NAC), with support from The Michael J. Fox Foundation for Parkinson’s Research (MJFF) and Arcadia University, released the report.  

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Today's Encouragement

02/16/25 at 03:00 AM

Stopping by woods on a snowy evening  ...The woods are lovely, dark and deep,   But I have promises to keep,   And miles to go before I sleep,   And miles to go before I sleep.    By Robert Frost [click on the link above for the entire poem]

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Today's Encouragement

02/15/25 at 03:55 AM

Keep your face always toward the sunshine—and shadows will fall behind you. ~Walt Whitman

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Long-term health care use among children surviving multiple organ dysfunction

02/15/25 at 03:40 AM

Long-term health care use among children surviving multiple organ dysfunctionJAMA Network Open; Robert Ohman, MD, MPH; Jerry J. Zimmerman, MD, PhD; 1/25Mortality outcomes of pediatric critical illness have improved over the last several decades, while concurrently the population of patients with technology dependency and complex chronic morbidities has continued to grow and the incidence of MOD [multiple organ dysfunction] has simultaneously increased. In the setting of declining critical illness mortality, pediatric outcomes research has broadened its scope to assess metrics beyond mortality, describing the trajectory of recovery from critical illness with measures of patient quality of life; physical, cognitive, and functional status; and family psychological and economic well-being. As the authors point out, assessment of the larger financial impact of this higher health care utilization on families themselves would be valuable future knowledge, as high health care utilization, appointments, and recurrent hospitalizations may detract from families’ ability to work, care for their other children, and attend to their own medical needs. Targeted support for families of survivors of MOD may be necessary to minimize these secondary impacts and to optimize outcomes for this vulnerable population of patients.

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Compassion in the justification of physician-assisted dying: Gandhi’s non-violence vs. Aristotle’s virtues and vices

02/15/25 at 03:40 AM

Compassion in the justification of physician-assisted dying: Gandhi’s non-violence vs. Aristotle’s virtues and vicesMedicine, Health Care and Philosophy; Ercan Avci; 1/25Compassion is an essential phenomenon in the therapeutic relationship, and some use it to justify physician-assisted dying practices. However, different approaches to its definition and scope can lead to distinct conclusions about the role of compassion in end-of-life interventions. In this context, the paper aims to compare Mahatma Gandhi’s and Aristotle’s views on compassion to explore whether it can be utilized to justify physician-assisted dying. Gandhi’s thoughts on compassion and Aristotle’s standpoint on virtues and vices demonstrate that Gandhi evaluates this concept as a moral duty to relieve intractable suffering, whereas Aristotle relies on balancing all virtues through relevant deficiencies and excesses. Therefore, even though Gandhi’s opinion on compassion can for allow assisted dying interventions, Aristotle’s idea of virtues and vices restricts compassion to a scope that alleviates suffering through available means without causing death.

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Lived experiences of patients hospitalized with acute decompensated heart failure and kidney dysfunction

02/15/25 at 03:25 AM

Lived experiences of patients hospitalized with acute decompensated heart failure and kidney dysfunctionJAMA Network Open; Gwen M. Bernacki, MD, MHSA; Ann M. O’Hare, MD, MA; Mahlet Assefa, MD; Kevin D. O’Brien, MD; David K. Prince, PhD; James N. Kirkpatrick, MD; Nisha Bansal, MD, MAS; Catherine R. Butler, MD, MA; 1/25This qualitative study of patients currently or recently hospitalized with ADHF [acute decompensated heart failure] and kidney dysfunction offers a window on the lived experiences of members of this medically vulnerable group. Study participants offered vivid accounts of how their illness had impacted their day-to-day lives, sense of self, life priorities, and hopes and expectations for the future. However, many lacked a detailed understanding of the medical aspects of their illness and did not always feel equipped or empowered to actively participate in their care. Our findings suggest that there may be untapped opportunities to improve quality of communication for patients with ADHF and kidney dysfunction. 

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Brain biomarkers for pain sensitivity

02/15/25 at 03:25 AM

Brain biomarkers for pain sensitivityJAMA Neurology; Prasad Shirvalkar, MD, PhD; Christopher J. Rozell, PhD; 1/25Identifying objective biomarkers that track individual pain severity has been dubbed “the holy grail” of pain neuroscience. Chronic pain affects up to one-fifth of US adults, and its complexity is attributed to a confluence of physical, emotional, and cognitive factors that contribute to suffering and disability. The epidemic of chronic pain initially contributed to the rise of the opioid epidemic and continues to plague nearly all fields of clinical medicine. Identifying and validating biomarkers to predict individual risk for chronic pain facilitate a precision medicine approach to pain medicine. Despite the unknown provenance of the proposed biomarkers, the results of the present study have the potential to aid in the practical development of personalized pain management strategies.

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Sudden unexpected infant death and disparities in infant mortality in the US, 1999-2022

02/15/25 at 03:15 AM

Sudden unexpected infant death and disparities in infant mortality in the US, 1999-2022JAMA Pediatrics; Elizabeth R. Wolf, MD, MPH; Frederick P. Rivara, MD, MPH; Anabeel Sen, MBBS, MPH; Steven H. Woolf, MD, MPH; 1/25This study found that infant mortality from SUID [sudden unexpected infant death] has increased significantly. Previous data through 2020 showed that SUID increased among Black infants. Our analysis, which included 2021 and 2022 data, showed a more generalized increase. Possible explanations include COVID-19 or other respiratory illnesses, maternal opioid use, and social media’s influence on infant sleeping practices. SUID mortality rates were notably higher among American Indian or Alaska Native, Black, and Native Hawaiian or Other Pacific Islander infants than among Asian and White infants. Disparities in SUID could reflect unsafe sleeping position, prematurity, tobacco exposure, and/or infant feeding practices; further research is needed.

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Reimagining care and research for Amyotrophic Lateral Sclerosis

02/15/25 at 03:15 AM

Reimagining care and research for Amyotrophic Lateral SclerosisJAMA Neurology; Suma Babu, MBBS, MPH; Joshua M. Sharfstein, MD; Eva L. Feldman, MD, PhD; 1/25Amyotrophic lateral sclerosis (ALS) is a fatal neurological disease involving progressive motor neuron degeneration. In 2022, US Congress and the National Institutes of Health (NIH) commissioned the National Academies of Science, Engineering and Medicine (NASEM) to identify priorities to make ALS a livable disease within a decade. After extensive deliberations and input from the public, researchers, and persons with lived experience, the committee released its report, Living With ALS. To accelerate progress in patient care and therapeutics, one of the report’s major recommendations was for the National Institute of Neurological Disorders and Stroke (NINDS) to fund a clinical trials network dedicated to ALS that is distributed across diverse geographic regions and integrated within a novel hub-and-spoke system of care and research for ALS. The hubs are ALS Centers of Excellence that provide patient care and research, both basic and clinical, while the spokes represent a large number of community and regional ALS clinics that provide care and link to hubs for research. By integrating ALS clinical trials within this structure, we have the potential to transform ALS care, drive innovation in ALS therapeutic development, and pave the way for breakthroughs in other neurodegenerative diseases. 

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Factors influencing the self-reported palliative care practices of acute care nurses

02/15/25 at 03:10 AM

Factors influencing the self-reported palliative care practices of acute care nursesWestern Journal of Nursing Research; Keshia Kotula, Catherine Dingley, Du Feng, Lori Candela, Megan Pfitzinger Lippe; 1/25 Provision of palliative care in acute care settings is significantly lacking despite evidence that early integration leads to better patient/family-related outcomes and improved healthcare cost and efficiency. A descriptive, cross-sectional design was used to examine the effects of personal and environmental factors on nurses’ palliative care practices in the acute care setting. Personal factors, especially self-efficacy and attitudes toward care of the dying, are the most significant influencing factors to the frequency of acute care nurses’ palliative care practices.

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Impact of inpatient palliative care on end-of-life care among patients with early-onset colorectal cancer

02/15/25 at 03:10 AM

Impact of inpatient palliative care on end-of-life care among patients with early-onset colorectal cancerJournal of Clinical Oncology; Suriya Baskar, Bohae R Lee, Rajiv Midha, Udhayvir Singh Grewal; 1/25Palliative care has proven benefits in elderly patients with advanced cancer; however, the objective benefits of palliative care in younger patients with cancer remain under-studied. We sought to examine the impact of inpatient palliative care consultation on end-of-life (EOL) care among hospitalized patients with early-onset colorectal cancer (EO-CRC). Inpatient palliative care consultation at EOL among patients with EOCRC was associated with lesser use of aggressive interventions and higher rates of DNR code status. We also noted significantly lower costs of hospitalization among patients receiving inpatient palliative care consultation at EOL. These results underscore the importance of integration of inpatient palliative care consultation among patients with EOCRC at EOL. 

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Underused palliative care could aid stroke survivors

02/15/25 at 03:00 AM

Underused palliative care could aid stroke survivorsJAMA; Samantha Anderer; 1/25Every year in the US, 800,000 people experience strokes, and although most survive, current treatment plans fail to adequately address their physical, emotional, psychosocial, and spiritual distress, according to a new scientific statement from the American Heart Association. Palliative care could aid in the quality of life for both patients and their families by helping during all stages of poststroke care, including adapting to functional changes, navigating complex health care systems, and preparing for death when necessary. Although all affected individuals could benefit from palliative care, the statement noted that it is most underused in Black and Hispanic populations, which tend to have a higher incidence of stroke, worse functional outcomes, and a lower likelihood of receiving acute stroke treatments.

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Hospice - The time is now for additional integrity oversight

02/15/25 at 02:00 AM

Hospice - The time is now for additional integrity oversightJAMA Forum; by Joan M. Teno; 4/23...Leading hospice organizations are calling for more oversight. The National Partnership for Healthcare and Hospice Innovation, LeadingAge, the National Association for Home Care & Hospice, and the National Hospice and Palliative Care Organization provided a comprehensive set of recommendations to preserve the integrity of hospice. These organizations are returning to the historic mission of hospice: to improve care for dying persons and support for their family members... The recommendations put forth by the 4 hospice organizations are important. Further reforms also are needed.

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How to help caregivers of patients with dementia

02/14/25 at 03:00 AM

How to help caregivers of patients with dementia Physician's Weekly; by Linda Girgis, MD, FAAP; 2/13/25 Dr. Linda Girgis discusses how physicians can assist caregivers of patients with dementia, helping these critical caretakers avoid experiencing burnout. ... As doctors, we all have witnessed caregiver burnout. Often, it was a family member who bore the brunt of the responsibility, one for whom there were no vacation days or sick time available. Whatever specialty we practice, we know patients with dementia can present a significant problem. ... How can we assist caregivers of patients with dementia?

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St. Croix Hospice opens new location in La Crosse

02/14/25 at 03:00 AM

St. Croix Hospice opens new location in La Crosse News 8 Now, La Crosse, WI; by Corey Peters; 2/12/25 St. Croix Hospice held a ribbon cutting for their new location in La Crosse on Wednesday. St. Croix Hospice originated back in 2009 in Oakdale, Minnesota, and have now expanded to 18 locations around Wisconsin. St. Croix Hospice held a ribbon cutting for their new location in La Crosse on Wednesday. St. Croix Hospice originated back in 2009 in Oakdale, Minnesota, and have now expanded to 18 locations around Wisconsin.

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Today's Encouragement: In the flush of love's light ...

02/14/25 at 03:00 AM

In the flush of love’s light, we dare be brave. And suddenly we see that love costs all we are, and will ever be. Yet it is only love which sets us free. ~ Maya AngelouHonoring Black History Month 2025

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Aging for Amateurs: Valentine's Day brings out the poetry of aging in love

02/14/25 at 03:00 AM

Aging for Amateurs: Valentine's Day brings out the poetry of aging in love The Post and Courier, Charleston, SC ; by Bert Keller; 2/10/2 The week of Valentine’s Day breathes love. Many elders have lived through love’s changing seasons consciously, experiencing what an alive, evolving, hazardous and soul-satisfying thing love is. ... In every long love, the emotional part undergoes a change as the stages of life are lived through. Marriage begins like a bonfire that melts and merges us: our togetherness wants no separation. Then it eases into a practical fire for cooking meals and washing dishes — those years of getting up with the baby, balancing the books, taking out the garbage. ... And then in old age ... love is less a feeling alongside other feelings, and more a shared sense of being with the other. My wife calls it “with-ness.” ... What was transactional in an earlier stage has become grace. After retirement I volunteered to do chaplaincy with a local hospice. I recall a moment sitting at the bedside of a 93-year-old man whose memory was erased by Alzheimer’s disease. He was now dying ... His wife, who also had Alzheimer’s and was no longer capable of much conversation, sat in a wheelchair by his bed and held his hand. She kept repeating to me, tears flowing, “We’ve been married for 73 years, you know.” It was a kind of mantra. How could I know what it’s like to be at the deathbed of a partner with whom you’ve intimately shared 73 years of life? All the stories, all the peaks and valleys, of such a lifetime? ... Editor's note: May we listen and learn.

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Hodges remembered as hospice founder

02/14/25 at 03:00 AM

Hodges remembered as hospice founder The News-Gazette, Lexington, VA; by Scotty Dransfield; 2/12/25Helen Hodges, the last living founder of what is now Connections Plus Hospice + Healthcare, died on Feb. 1, leaving behind a legacy of compassion and dedication, and a lasting impact on health care in Rockbridge County. Her work helped shape end-of-life care in the area, ensuring that those facing their final days could do so with dignity and comfort. Hodges was one of the four women ... who set out in the late 1970s to bring hospice care to the community. They were a grassroots team with no paid staff and no established structure — just a vision of providing comfort and support for terminally ill patients and their families. By 1983, their efforts had formalized into an official organization, and in 1984, Rockbridge Area Hospice was officially chartered. ... A stone plaque in the hospice gardens now bears her name, a quiet but permanent reminder of the foundation she built. ...

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