Literature Review

All posts tagged with “General News | Changing the Culture of Dying.”



Examining public-facing hospice medical aid in dying participation policies in legalizing U.S. jurisdictions

10/18/25 at 03:10 AM

Examining public-facing hospice medical aid in dying participation policies in legalizing U.S. jurisdictionsJournal of Palliative Medicine; by Todd D. Becker, Paul Duberstein, Elizabeth A. Luth, Sanjana Kumar, Samuel Nemeth, Kira Phillips, Veda Kota, Elissa Kozlov; 9/25 Nearly 9 in 10 patients in the United States who use medical aid in dying (MAID) are enrolled in hospice. Only 39 of 724 hospices (5.4%) published a public-facing MAID participation policy. Policy availability was low even within the two jurisdictions mandating hospice online publication (0 of 52 from New Mexico [0.0%]; 14 of 389 from California [3.6%]). Moreover, even when published, policy content was highly variable and often too vague to discern which MAID-related activities were permitted. For instance, 18 of 39 policies (46.2%) did not report whether or not physicians were permitted to prescribe MAID medication. The lack of availability and specificity in hospices’ public-facing MAID participation policies may jeopardize patient access to legal end-of-life care options. 

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From her hospice bed, Sister Grace Miller watches her new homeless shelter come to life

10/17/25 at 03:00 AM

From her hospice bed, Sister Grace Miller watches her new homeless shelter come to life WXXI News NPR, Rochester, NY; by Gino Fanelli; 10/15/25  The last mission of Sister Grace Miller is set to come to life through a partnership with the Open Door Mission. La Madonna Della Strada, or “The Lady of the Streets,” will operate a new low-barrier overnight shelter for men on West Main Street. The shelter has capacity for up to 25 people. Folding cots dot the floor of the space in a grid, and the space also includes a full kitchen and bathrooms. The building’s signage reads “Sister Grace’s Homeless Shelter.” Miller, who currently is in hospice care, first announced plans to launch a new shelter in 2023 ... 

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LGBTQ+ history project: The need to preserve LGBTQ+ histories of rural America

10/15/25 at 03:00 AM

LGBTQ+ history project: The need to preserve LGBTQ+ histories of rural America Watermark Out News; by Lauren Rowello; 10/14/25 ... Resources importantly emerged as people formally organized — bringing critical health care and hospice networks during the HIV/AIDS crisis, for instance, and launching LGBTQ+ voices into expansive advocacy careers. Across the US, some of the most impactful voices for change have come from rural regions. ... Editor's Note: For more on this interface with the birth of hospice care in the US, examine "The AIDS Epidemic’s Lasting Impact on Hospice Care for LGBTQ+ Populations," by Holly Vossel, Hospice News, 6/28/24. Pair these with today's post, "Inside the hospice that feels like home: How Omega House catches those who fall through the cracks." 

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What we get wrong about death, according to end-of-life workers

10/13/25 at 03:00 AM

What we get wrong about death, according to end-of-life workers Yahoo Lifestyle, originally appeared on HuffPost; by Monica Torres; 10/10/25 The one big thing that people have in common is that we all will die, and we likely will experience the death of someone we love, too. ... That’s why it can help to hear the insights of people who see death all the time, because understanding it now can help us better process grief about others and feel more at ease when thinking about our own mortality. ...

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Timing matters: Impact of early advance care planning conversations on hospice utilization in outpatient oncology

10/09/25 at 03:00 AM

Timing matters: Impact of early advance care planning conversations on hospice utilization in outpatient oncologyJCO Oncology Practice, An American Society of Clinical Oncology Journal; by Lydia Mills, Malia Albin, Ami Gorsky-Zabukovic, Liz Hutchison, Molly Mendenhall, and Robyn Tibert; 10/7/25  Results: 53% of physicians interviewed defined [Advance Care Planning] ACP as hospice, end-of-life, or code status conversations. This group of providers preferred waiting to conduct ACP discussions until later in a patient’s disease trajectory. However, 33% of physicians interviewed viewed ACP as broader discussions, to include patients’ values, goals and preferences for EOL care. These physicians stated they engage in ACP conversations as early as the first or second visit, especially with patients who have Stage IV disease or have a poor prognosis, introducing hospice as a potential option and revisiting these discussions throughout the course of treatment. PI data showed that providers who engage in early and consistent ACP discussions have a 17% higher hospice enrollment rate compared to their peers. 

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Capturing the comfort and care of palliative care this World Hospice and Palliative Care Day

10/08/25 at 03:00 AM

[South Africa] Capturing the comfort and care of palliative care this World Hospice and Palliative Care Day Good Things Guy, South Africa; by Nothando Mthembu; 10/7/25 It’s said that a picture is worth a thousand words, and it is upon this very adage that the Association of Palliative Care Centres (APCC) of South Africa has launched a powerful photographic campaign to capture the dignity, comfort and support that patients facing life-threatening illness receive and deserve through the provision of palliative healthcare services. With the hope of showcasing the impact of palliative care through real-life stories and images, the ‘Through the Palliative Care Lens’ campaign aligns with the theme for World Hospice and Palliative Care Day 2025 (WHPCD2025): ‘Universal Access to Palliative Care’.

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What is water cremation and why did Pa. lawmakers just back a bill to legalize it?

10/06/25 at 03:00 AM

What is water cremation and why did Pa. lawmakers just back a bill to legalize it? LeighValleyLive.com, Leigh Valley, PA; by Lehigh Valley Community News; 10/5/25 The Pennsylvania House of Representatives passed bipartisan legislation on Wednesday authorizing alkaline hydrolysis, commonly known as water cremation, as an approved cremation method in the state. The bill would give Pennsylvania families a more environmentally sustainable option for end-of-life services. Alkaline hydrolysis uses a mixture of water and alkali in a sealed pressurized steel chamber to reduce the body to bone, which is then processed into ash. The process consumes significantly less energy than traditional flame cremation, which requires temperatures exceeding 1,600 degrees Fahrenheit. According to the Mayo Clinic, alkaline hydrolysis uses only about one-quarter of the energy required for flame cremation. 

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Grief etiquette in the digital age: Why waiting, listening, and respecting family wishes matters more than ever

10/06/25 at 03:00 AM

Grief etiquette in the digital age: Why waiting, listening, and respecting family wishes matters more than ever National Funeral Directors Association (NFDA) - Remembering a Life; by Dr. Camelia L. Clarke; 10/2/25When my nephew died unexpectedly, I was still reeling from the news when my phone began to buzz with notifications. Within an hour, his death was already circulating on social media. The world had found out before our family had even begun to process the loss, let alone notify our closest friends and relatives. I remember feeling overwhelmed, exposed, and, most of all, heartbroken—not just by the loss itself, but by how quickly and impersonally it became public knowledge. As a funeral director and grief educator for nearly thirty years, I’ve witnessed this scenario unfold countless times. 

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Doyel: I didn't know how strong and kind my special Mom was. Not until she started dying

10/02/25 at 03:00 AM

Doyel: I didn't know how strong and kind my special Mom was. Not until she started dying. Indianapolis Star, Indianapolis, IN; by Greg Doyle; 10/1/25 The last time we talked, I told my mom the truth: I’d missed just how wonderful she was. Make no mistake, I knew she was wonderful. Kind, considerate, strong – she checked all the best boxes. And generous? Mom’s the most generous person I’ve ever known, and I’ve known it for years. But I didn’t know just how generous she was. Not until she started dying. Didn’t know how strong she was, either. Not until she was so weak she couldn’t stand on her own two feet. That’s when I finally saw it. ...

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Elizabeth Earley explores the fear of death in new essay collection

09/30/25 at 03:00 AM

Elizabeth Earley explores the fear of death in new essay collection SGN - Seattle & The Pacific Northwest's LGBTQIA+ News & Network; by Lindsey Anderson; 9/26/25 ... Humans often push the idea of death to the fringes of our minds, especially in Western cultures. However, for writer and clinical research scientist Elizabeth Earley, this topic contains multitudes as vast as the human experience. The more she studied the history and science of mortality, the more she found an underlying beauty, which inspired her latest work, Little Deaths All in a Row, a collection of prose diving deep into death. ... Realizing death is the inevitable end for us all, Earley decided to face her fear. "I believe the best way to get over fearing something is just to get closer to it and more intimate with it, so that's what I did," she said. She began volunteering in a hospice program as a form of exposure therapy. 

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6 Coloradans took to the Colorado River to grieve. What they found was a way to feel less alone.

09/30/25 at 03:00 AM

6 Coloradans took to the Colorado River to grieve. What they found was a way to feel less alone. The Colorado Sun, Loma, CO; by Shannon Mullane; 9/28/25 Losing a loved one leaves people reeling. It forces the body to reconfigure deep bonds and impacts health. One Colorado River retreat aims to help people navigate. ... One by one, the members — all Colorado residents who ranged in age from their 40s to their 70s — shared their stories of death and grief. It was the start of a grief therapy retreat on the Colorado River, and the clients and crew members on the trip had lost parents, children and life partners. This moment was what they came for: a chance to open up space in their day-to-day lives to grieve. With other people who know what it’s like. Without having to act like they were holding it together. ... In their seven years of operation, Podmore and Pathfinders have offered about 20 grief retreats on the Colorado River for over 160 clients of all ages — including everyone from children to seniors — mostly from the Roaring Fork Valley in western Colorado. 

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Master gardeners in New Hampshire cultivate community and connection

09/30/25 at 03:00 AM

Master gardeners in New Hampshire cultivate community and connection ABC WMUR-9, Auburn, NH; by Erin Fehlau and Mary-Paige Provost; 9/26/25 On Thursday mornings at the New Hampshire Audubon's Massabesic Center in Auburn, dozens of volunteers from the University of New Hampshire Extension's Master Gardener Program can be found getting their hands dirty, welcoming visitors and sharing their gardening knowledge. ... One way master gardeners give back is by volunteering at therapy gardens, such as the Community Hospice House in Merrimack. ... "The house has been designed so that every room has a private patio, and the patients can be outside. The idea is to bring life into the rooms and honor the life cycle," master gardener Jean Abramson said. 

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New AAHPM CEO on ensuring widespread access to hospice and palliative care

09/26/25 at 03:15 AM

New AAHPM CEO on ensuring widespread access to hospice and palliative care Hospice News; by Jim Parker; 9/25/25 Workforce, access to care, reimbursement and public policy are top agenda items for the A merican Academy of Hospice and Palliative Medicine as new CEO Pierre M. Désy takes the reins. ... Hospice News sat down with Désy to discuss the academy’s current priorities and the top issues facing hospice and palliative medicine. ... [Jim Parker] "Could you tell me some of your top priorities as you come into this new role?" [Dr. Pierre Désy] I have been focusing on listening and alignment. So the first part is a listening tour and relationship building tour, where I’m talking with every board member, one on one. I’m talking with committee chairs, council chairs. I’m speaking with all of our partners, every staff person, sponsors and individual donors.

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Alzheimer's Association: New telenovela series highlights Alzheimer’s in Hispanic and Latino communities

09/26/25 at 03:00 AM

Alzheimer's Association: New telenovela series highlights Alzheimer’s in Hispanic and Latino communities Alzheimer's Association, Chicago, IL; Press Release; 9/15/25In conjunction with National Hispanic and Latino Heritage Month, the Alzheimer’s Association is premiering "Memories of My Grandfather" ("Recuerdos de mi abuelo"), a five-episode mini telenovela aimed at encouraging Hispanic and Latino families to have open discussions about memory loss, diagnosis and caregiving across generations. The series, available in both English and Spanish, follows the emotional journey of a multigenerational Hispanic family in the United States after their grandfather’s Alzheimer’s diagnosis. The telenovela will be screened during two webinars hosted by the Alzheimer’s Association: one in English on Sept. 30 and one in Spanish on Oct. 7. Both webinars will feature a moderated discussion hosted by actress, film producer and Telemundo news anchor Gabi Del Moral. ... Both webinars are free and open to the public. Register for the English-language webinar or the Spanish-language webinar.

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Community turns out for Banner's Senior Expo

09/23/25 at 03:00 AM

Community turns out for Banner's Senior ExposCleveland Daily Banner, Cleveland, TN; by Will Bublitz; 9/19/25 Hundreds of seniors enjoyed the food, door prizes, free samples and information to improve their lives during the Living 55Plus Senior Expo, held Thursday in Wacker Commons at the PIE Innovation Center in Cleveland. This was the sixth year for this popular and free event sponsored by the Cleveland Daily Banner. It was co-sponsored by Bradley Medical Center, Cleveland Utilities, Garden Plaza of Cleveland, Ahlberg Audiology, Companion Funeral Homes and Life Care Center of Cleveland. "The 2025 55Plus Senior Expo was the best expo thus far, with the most vendors and attendees yet," said Joyce Taylor, publisher of the Cleveland Daily Banner. [Vendors included, but were not limited to Adoration Hospice, Hearth Hospice,  and Hospice of Chattanooga.]

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Students lift patients' spirits with Words of Warmth

09/23/25 at 03:00 AM

Students lift patients' spirits with Words of Warmth The Daily Toreador, Texas Tech University, Lubbock, TX; by Christian Jeter; 9/19/25 As pens hit paper with words of love and encouragement, students gathered to write letters to patients currently in hospice care at the Student Activities Board’s Words of Warmth event on Sept. 19. Hosted on the first floor of the Student Union Building, the event invited students to write a letter or decorate gift bags with uplifting words as a part of the SAB’s Service Week, a period of time in which the organization holds community service-focused volunteer events. ... Phrases such as “Peace and love” and “Wishing you comfort” were some of the many suggestions SAB members recommended students write on their letters. Students could also write more in-depth text or personal anecdotes.

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Noel: Life events bring clarity to the truth about change

09/23/25 at 03:00 AM

Noel: Life events bring clarity to the truth about change Telegraph Herald, Dubuque, IA; by Lavonne Noel, Executive Director for Hospice of Dubuque; 9/21/25 When my children were young, they enjoyed the “Where’s Waldo” books. ... Like us, Waldo finds himself in a complex, dynamic world. The reader is challenged with finding Waldo hiding somewhere amid the chaos. ... [Lavonne uses the Waldo metaphor to describe her recent mid-March to early-July leave of absence, due to her new grandbaby's medical needs and her own hip replacement/recovery. She describe the following about this time away.] ...  My thoughts frequently centered on these three truths:

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[UK] Key themes and approaches in palliative and end-of-life care education for the general public: A systematic review

09/20/25 at 03:05 AM

[UK] Key themes and approaches in palliative and end-of-life care education for the general public: A systematic reviewBMC Palliative Care; by Muzeyyen Seckin, Rumandeep Tiwana, David Fry, Cara Bailey; 8/25 These [twenty] studies involved a total of 10,307 participants and identified 16 different educational programmes for the public, volunteers, and lay caregivers. The analysis revealed six main themes: foundational concepts and philosophies, communication and decision-making, planning and preparation, symptom management, end-of-life care practices, and caregiving support. This review highlights the importance of training programmes to improve community involvement in caregiving and enhance the quality of care for individuals with life-limiting conditions. Expanding access to such educational resources can empower more people to contribute confidently to end-of-life care in their communities.

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Americans choosing cremation at historic rates, NFDA report finds

09/19/25 at 03:00 AM

Americans choosing cremation at historic rates, NFDA report finds National Funeral Directors Association (NFDA), Brookfield, WI; Press Release; 9/18/25 Americans are choosing cremation more than ever before, setting a new milestone in funeral service trends for 2025. According to the National Funeral Directors Association (NFDA) 2025 Cremation & Burial Report, the U.S. cremation rate will reach 63.4% this year, more than double the projected burial rate of 31.6%. These shifting preferences reflect lasting changes in family priorities, funeral profession practices and cultural attitudes. Key 2025 Report Highlights: 

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How a novel coaching intervention is building resilience and hope in adolescents and young adults with advanced cancer: A conversation with Abby R. Rosenberg, MD, MS, MA

09/18/25 at 03:00 AM

How a novel coaching intervention is building resilience and hope in adolescents and young adults with advanced cancer: A conversation with Abby R. Rosenberg, MD, MS, MA The ASCO Post; by Jo Cavaloo; 9/15/25 Each year, nearly 90,000 adolescents and young adults (AYAs; aged 15–39) are diagnosed with cancer, and approximately 9,300 die of the disease. ... AYAs are at increased risk for developing adverse long-term side effects from cancer and/or its treatment, including chronic conditions, secondary cancers, infertility, poor psychosocial health, and financial toxicity. ... The findings from a recent randomized phase III clinical trial investigating a novel resilience coaching intervention for AYA patients with advanced cancer are showing promising results in improving feelings of resilience and hope, as well as longer-term improvement in quality of life for these patients. ... In a wide-ranging interview with The ASCO Post, Dr. Rosenberg discussed the psychosocial impact of cancer on AYA cancer survivors, the results of the PRISM-AC study, and how AYA survivors are able to cope with having a terminal prognosis.

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A natural segue: Retired hospice physician Ralph Caldroney ’72 turns a planned gift into immediate impact with new lecture sponsorship

09/18/25 at 03:00 AM

A natural segue: Retired hospice physician Ralph Caldroney ’72 turns a planned gift into immediate impact with new lecture sponsorship W&L - The Columns, Washington & Lee University, Lexington, VA; by Barbara Elliott; 9/15/25 [Dr. Ralph Caldrony, retired medical director for Hospice of Rockbridge County,] attended several Mudd Center lectures during this past year’s series: “How We Live and Die: Stories, Values and Communities.” ... Impressed by the range and quality of the Mudd Center presentations [at Washington & Lee University], Caldroney previously committed a $250,000 planned gift to the center for his 50th reunion gift in 2022. However, after such a positive experience attending this year’s lecture series, he decided to fast-track his support. For each of the next five years, his $5,000 per-year gift will sponsor an annual lecture. “It was a natural segue,” Caldroney says. “This way, I can enjoy some of the fruits of my labor while I am still alive.”

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St. Charles fifth graders make greeting cards for hospice patients

09/16/25 at 03:00 AM

St. Charles fifth graders make greeting cards for hospice patients Hometown Stations - ABC, CBS, FOX, NBC, Lima, OH; by Pearl Lewandowski; 9/11/25 For the past 25 years, students have taken part in making greeting cards for local hospice patients. ... “Fifth graders are at an age where they may have already lost someone, or they may have someone who's sick, or they may have aging grandparents, so there's always concerns and questions,” said Dr. Amy Mestemaker, medical director of Mercy Health Hospice. “If we can help support them or help them better understand the process, we want to do that.” 

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Fulfilling end-of-life dreams: A scoping review of bucket lists in palliative and hospice care

09/16/25 at 02:00 AM

Fulfilling end-of-life dreams: A scoping review of bucket lists in palliative and hospice care Palliative Supportive Care - Cambridge University Press; by Swasati Handique, Michael Bennett and Scott D Ryan; 9/12/25 Results: Four major themes were established using thematic content analysis: (1) impact on holistic well-being, (2) role of family in wish fulfillment, (3) cultivation of gratitude, and (4) collaborative leadership in wish fulfillment. In wish fulfillment, the results significantly pointed to the need for more intricate evaluation among patients and interventions that cover beyond the physical aspect. Significance of results: Palliative and hospice care settings should work toward securing sustainable funding for structured wish-fulfillment programs to address existing accessibility gaps and further enhance the holistic nature of care in these settings. Editor's Note: For hospice organizations that can receive donations, setting up a Wish/Bucket LIst fund makes for a meaningful, easy-to-demonstrate ROI on donated gifts. You need to have some type of discretionary review/approval process in place, with assurances of confidentiality when important to the person and/or family.

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[New Zealand] 'Cuddle beds' for terminally-ill hospice patients

09/15/25 at 03:00 AM

[New Zealand] 'Cuddle beds' for terminally-ill hospice patients BBC News, New Zealand; by Jack Silver; 9/5/25 A hospice in Guernsey has installed seven "cuddle beds" for patients with life-limiting or terminal illnesses. The beds, which cost £17,000 each, widen to allow patients to lie next to and embrace their love ones or pets. Les Bourgs Hospice, in St Andrews, said the beds brought "comfort, dignity, and human connection" to patients and their families. Rob Jones, from Les Bourgs, said the beds would help with the hospice's mission to "support people at one of the most difficult times of their life."

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Ancient wisdom: How do we want to be remembered?

09/15/25 at 03:00 AM

Ancient wisdom: How do we want to be remembered? The FP - Weekend Culture; by George Raveling; 9/7/25This week, we’re bringing you reflections from a man who aged more gracefully than just about anyone we know: legendary basketball coach George Raveling, who died Monday at the age of 88. ... This excerpt is from the last chapter of his book [What You're Made For], ... titled: “To Live.”

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