Literature Review

The day Ram Dass Died The New Yorker, by Christopher Fiorell; 4/6/24 He taught me to be more curious, present, and self-loving. His final lesson was more surprising. ... I woke up every thirty minutes the night before Ram Dass died. Stretching my perception through the big divider that separated his study—where I lay on a narrow couch—from his bedroom, I’d count the seconds between the short, ragged breaths churning through his sleep-apnea machine. Four years later, I still have no idea why I was chosen to watch over him that night. 

Thinking outside the box: eco concerns prompt greener funeral options Positive.News, by Alison McClintock; 4/5/24 Keeping a lid on your carbon footprint doesn’t stop with your last breath. Your choice of funeral can have a significant environmental impact. In a recent report by the US-based National Funeral Directors Association, 60.5% of those surveyed expressed their interest in greener options including resomation (water cremation) human composting and natural burials.  And while the UK’s funeral preferences are currently split 80:20 between cremations and burials, YouGov research finds that almost a third (29%) of people in the UK would choose alternative committal methods if available. 

I'm 34 and terminally ill, but I'm not scared of death anymore Metro / Microsoft Start, by Jyoti Smith; 3/31/24 I’ve spent the last nine years living with the idea of dying. In 2015, aged 25, I received my terminal diagnosis. ... My prognosis: three-to-five years. But here I am, almost 10 years on, at 34, and I’m living life to the fullest – if on the edge – and it’s largely down to one thing. Embracing hospice care. ... Editor's Note: Jyoti describes her journey and the care she now received from Marie Curie (hospice), in the United Kingdom.

Cancer: It’s not like the moviesUCI Health, by Heather Shannon; 3/21/24Movies have the power to make fictional stories seem so vivid they leave an impression and a feeling that lasts forever. That’s especially true for films about someone diagnosed with cancer who ultimately meets a tragic end. “Patients often come in with an image in their head based on the movies they’ve seen that had a cancer patient in it,” says UCI Health medical oncologist Dr. Arash Rezazadeh Kalebasty. ... Rezazadeh and his co-authors found several problems with how cancer was characterized in the movies, including: Cancer type ...; Curability ...; Palliative care ...

Navigating difficult conversations with patients with terminal cancer diagnoses Oncology Nursing News, by Darlene Dobkowski, MA; 3/18/24 Although oncology nurses need strong communication skills to help all of their patients navigate their cancer journeys, it is critical to have the ability to have difficult conversations with patients who received a terminal diagnosis, ... Betty Ferrell, Ph.D., M.S.N., CHPN, director and professor in the Division of Nursing Research and Education in the Department of Population Sciences at City of Hope in Duarte, California, said in an interview with Oncology Nursing News. For the past 24 years, her institution has been directing a project called the End-of-Life Nursing Education Consortium (ELNEC), which is a palliative care training program and includes a module focused on communication.  ... “One of the things that we teach nurses is … that your No. 1 job is to listen,” Ferrell said. “Another thing that we say to nurses is, it is not your job to have all the answers. Patients ask very unanswerable questions. ‘Why me?’ is not an answerable question. But when a patient says, ‘Why me,’ then we want nurses to have good communication skills to say, ‘I can imagine why you're asking that question. Because as you've shared with me, you had no idea that you might be diagnosed with cancer, or you're the first person in your family to ever have cancer.’”

Is extending life by weeks worth the toll some cancer drugs take? Doctors push for 'common-sense oncology' CBC News, by Amina Zafar and Christine Birak; 3/11/24 People may celebrate a 2-week improvement in survival without acknowledging costs. When a treatment buys a few weeks or months but comes with with a lot of side-effects, then the perspectives of people with cancer may differ, says Dr. Christopher Booth. ... The goal of what they call "common-sense oncology" is to prioritize treatments that meaningfully improve survival and quality of life. They aim to address what they see as problems in the field, such as a lack of critical thinking in oncology training, falling standards for drug approvals and avoidance of end-of-life discussions.

Rising suicide risk among seniors due to loneliness, mobility, financial insecurity, study finds McKnights Home Care, by Adam Healy; 3/5/24As the number of adults over 65 continues to grow, suicide rates among older adults have also been rising, according to data from the National Center for Health Statistics. Between 2008 and 2017, the share of suicide-related emergency department visits among adults 65 years and older more than doubled. These older adults face age-related stressors that can negatively affect mental health, such as declining physical health, reduced mental sharpness, or the loss of friends or loved ones, which can heighten the risk of suicide. 

Unexpected Fatality Review Committee Report UFR-23-017Washington State Legislature; 2/27/24... The purpose of the unexpected fatality review is to develop recommendations for Department Of Corrections (DOC) and the legislature regarding changes in practices or policies to prevent fatalities and strengthen safety and health protections for incarcerated individuals in DOC’s custody. ... Consultative remarks that do not correlate to the cause of death but should be considered for review by the Department of Corrections: DOC should continue implementing the end-of-life care program. Editor's Note: 

This hospice volunteer program is transforming end-of-life care for inmates in MaineYouTube - News Center Maine, video news; 2/16/24The prisoner hospice volunteer program started in 2001 as a partnership among the Maine Hospice Council, Maine State Prison, and Maine Department of Corrections.

The importance of art in a “good death”Hyperallergic, by Brianna L. Hernandez; 2/11/24... Resham Mantri and Eliana Yoneda are two artists and death doulas who are collaborators and founders of Community Deathcare Digest, an evolving collection of art projects and death cafes, as well as a bi-weekly newsletter about death and care. The newsletter gathers resources and educational content, and coordinates mutual aid for death rituals and funeral needs.

Explore the enormous benefits of multigenerational living in this essential guide for the modern American familyNewsDirect; 2/5/24In today's rapidly evolving world, the modern American family encounters unprecedented challenges without a roadmap for guidance. Addressing this pressing need, Under One Roof (River Grove Books, Feb. 5, 2024) emerges as a comprehensive guidebook authored by Emily K. Graham, Angel L. Vargas, and John L. Graham. With a wealth of experience and insights, the authors present innovative approaches to multigenerational living, shedding light on its opportunities and complexities.

Hollywood's portrayal of cancer in movies fuels misconceptions, new study findsPR Newswire; 1/17/24... Researchers reviewed more than 100 films released between 2010-2020 and found several key findings about films' lasting impact on public perception of cancer treatment, prevention and care options. Key findings from the study include:

Black ownership provides a different perspective on hospice careMichigan Chronicle, by Ebony JJ Curry; 10/10/23... In essence, Black-owned hospices stand as beacons of trust, understanding, and respect within the African-American community. They have the power to transform end-of-life care for African Americans, ensuring it is a time of peace, dignity, and compassion, surrounded by providers who understand and honor their cultural context, values, and wishes.