Literature Review

[Consumer Reports] The last goodbye: How to plan a funeral Consumer Reports; by Janet Siroto; 7/7/24 A complete guide to giving loved ones the right send-off--from traditional services to new green burials. Six years ago, Kelly Avery and Kristin Harper, sisters from Birmingham, Ala., gathered their families by the sky-blue ocean waters of Destin, Fla., to memorialize their mother, Barbara Harper. ... They shared funny stories and music, and shed some tears as they spread their mother’s ashes from the deck of a large boat.  ... The experience not only gave the family a meaningful way to pay tribute to Barbara but also got the sisters thinking about their own memorials. The key is making some choices well beforehand, which more people appear to be doing. For instance, according to an April 2024 Consumer Reports nationally representative survey (PDF) of 2,042 adults in the U.S., 50 percent said they planned or intended to plan ahead either for their own funeral or for someone else’s. Read on for a rundown of possibilities and costs. ...

'I'm as happy as I've been in my life,' says aid worker Simon Boas as he faces deathBBC News; 7/4/24 In September 2023, Simon Boas was diagnosed with throat cancer. Aged just 46, he was told the disease was terminal, and that it would ultimately take his life. Over the following year, he knitted together his reflections on life into a book - A Beginner's Guide to Dying. The book is set to hit the shelves in October. It will be a posthumous publication. In what he expects to be one of his final interviews, Simon spoke to Emma Barnett on the Today Programme, offering his reflections on life and death as he moved into hospice care. "My pain is under control and I'm terribly happy - it sounds weird to say, but I'm as happy as I've ever been in my life.I used to think I'd rather be hit by the proverbial bus, but having a couple of months knowing this is coming has really helped me both do the boring 'death-min', but also get my thoughts and prepare myself, and feel so accepting of what's to come.It's been such a great bonus, actually. The book is called A Beginner's Guide to Dying, but really what I'm trying to convey is how enjoying life to the full kind of prepares you for this. ... I spent my life as an aid worker - quite a lot with the UN - and I've lived in places where death is something that not just exists in the background, but is imminently possible."Editor's Note: Click on the title's link to continue reading this inspirational story. Simon's book--to be published posthumously--is available for pre-orders on Amazon.com in Audible formats with Simon as the narrator.

When victims die more than 30 days after a crash, they don’t count StreetsBlogUSA; by Kea Wilson; 6/24/24... Since it first launched in 1975, the federal Fatality Analysis and Reporting System database has excluded all car crash deaths that occur more than 30 days after the initial collision. That means people like [9-year-old] Ben — who lived with a traumatic brain injury, a severed spinal cord, an inability to speak, and other major disabilities for five years before he died — aren't included in official annual death totals. Survivors say those stats also don't capture the sheer scale of the grief, horror, and hardship suffered by victims and their families, whether they succumb to their injuries immediately or manage to hang on. 

When your parents die: Becoming an adult orphan The Montecito Journal; by Deann Zampelli; 6/18/24 Shortly after I got married, my 64-year-old mother lost her battle with breast cancer. Seven years later my father joined her. The loss isn’t any less painful just because you are a grown-up. ... Many don’t realize that grief isn’t linear. We don’t go through a neat little phase, checking off each stage as we complete it. The famous (and somewhat debunked) five stages of grief introduced by Elisabeth Kübler-Ross in the 1960s (Denial, Anger, Bargaining, Depression, Acceptance) were from a study she did on the emotional states of patients who were dying. It was their stages she was referencing, not ours. ... I came to a frightening realization. ...  It suddenly dawned on me that my siblings and I were next in line to kick it. [Click on the title's link to continue reading.]Editor's Note: While serving in your hospice leadership roles, you experience the ongoing aging, changes and likely even deaths of your own family members, friends, and mentors. Do you, your hospice communications, and/or your grief services rely on the outdated "Stages of Grief" model? These "stages" opened the door in the 1960's for talking about death and dying, but became overpopularizd for surviving and healing after the loss. These have been replaced with extensive bereavement/loss/grief research, clinical best practices, and more. For expert information, resources, and bereavement professionals, examine www.adec.org,  the Association for Death Education and Counseling. 

How funerals and death became the new hot things New York Post; by Alix Strauss; 6/16/24 ... Funeral homes, similar to cemeteries ... are becoming the new community centers, and people are attending events not for sad occasions, but because they have become death curious, death fascinated, and death comfortable as we all move closer to that final chapter. “The stigma around funeral homes is dissipating. The vibe of our funeral home is changing. People come to these events wanting to be here, as opposed to having to be here,” said William Villanova, president of Frank E. Campbell – The Funeral Chapel. “There’s a void we are filling in our community. We put on large-scale, high-quality, catered events with talented people at an extraordinary space.”

The Aging Revolution: Growing old in America becoming more dignified, but with senior population booming, is nation’s health system prepared?BusinesssWire; 6/4/24A half-century after renowned gerontologist, psychiatrist and author Dr. Robert Butler ridiculed the nation’s medical establishment for ignoring the suffering of older Americans, Northwell Health today announced the publication of The Aging Revolution: The History of Geriatric Health Care and What Really Matters to Older Adults, which chronicles the significant advancements made in improving the physical and emotional health of the nation’s rapidly aging population. 

They sacrificed to care for family and ended up on the street Wisconsin Public Radio; by Kat McGowan; 5/29/24 ... A son or sibling or niece gives up their own apartment or full-time job to look after a relative who needs help. They share expenses, maybe living off of a benefits check. But when that family member passes away or moves to a nursing home, the social security or housing subsidy stops coming. The caregiver is in mourning, out of a job and out of a place to live. “These were folks who had left behind something to go care for mom, and then the bottom falls out,” says Margot Kushel, a homelessness researcher and professor of medicine at University of California, San Francisco. Her team documented this pattern in their intensive surveys and in-depth interviews of older homeless Californians. ... Kushel envisions one brighter possibility. Given the extreme shortage of capable home caregivers, both in California and nationwide, people who have played that role for family could be recruited to do the same job for others, helping to build this essential workforce. “If you’re caregiving for 15 months for your mom, for instance you probably have transferrable skills,” she says.Editor's Note: Pair this with recent articles we posted on 5/30/24, "The real cost of cancer: 49% of patients carry $5K+ in medical debt" and "56 percent willing to dip into retirement savings to be family caregiver: survey."

America’s biggest Medicaid insurer just pledged to help build nearly $1 billion of affordable housing: ‘We know 80% of what drives health is nonmedical’ Fortune Well; by Marco Quiroz-Gutierrez; 5/20/24The nation’s largest Medicaid insurer is pledging to help build nearly $1 billion worth of affordable housing in eight states as it moves to address one of the biggest determinants of health. ... “We know 80% of what drives health is nonmedical. Eighty percent,” Dr. Michelle Gourdine, senior vice president at CVS Health, said earlier in the conference. “We could have the best doctors in the universe and it would only fix 20% of the problem.”  

The Check-Up: How seniors can better take care of their mental health The Keene Sentinel; by Olivia Belanger Sentinel Staff; 5/8/24 My generation talks about mental health a lot. In our late 20s, my friends and I routinely check in to see how we’re feeling, reschedule plans because we’re in a mental funk or talk about how we can help support each other when we’re not feeling mentally healthy. ... But I know that for older generations, this can be hard to come by. ... [Older] adults are more likely to experience life changes — like coping with a serious illness or losing a loved one — which can lead to feelings of grief, social isolation or loneliness, according to the National Institute of Mental Health (NIMH). Loneliness in particular is one of the biggest threats to seniors, especially those who live in rural areas like the Monadnock Region where reliable transportation is limited. Research shows loneliness is as bad for people’s health as smoking 15 cigarettes per day, according to the U.S. Surgeon General. Signs that you may need to help your mental health, NIMH says, include: ... 

The spectrum of end-of-life experiences: A tool for advancing death educationOmega; by Shared Crossing Research Initiative; 3/24 Abstract: Studies on end-of-life experiences (ELEs) suggest that caregivers and loved ones of dying patients also have ELEs, though these are rarely explored. This article introduces the Spectrum of End-of-Life Experiences (SELE) as a descriptive list of types of ELEs reported by all members of the care unit, including dying patients, their caregivers, and their loved ones. We applied SELE towards identifying ELEs reported by 143 caregivers and loved ones and successfully identified every experience. Interviews revealed that participants viewed their ELEs as profound communicative events, yet a substantial minority also reported struggling to name and process these experiences. We propose that SELE be included in death education to raise awareness about ELEs that can occur within the care unit, and we suggest that SELE has additional applications, including use as a prognostic aid in end-of-life care and as a therapeutic aid for bereavement support.

America’s graying. We need to change the way we think about age. The Harvard Gazette; by Alvin Powell; 4/25/24 Experts say instead of disability, focus needs to shift to ability, health, with greater participation, economically and socially. People in their 70s, 80s, and even 90s run marathons, write books, and go to work daily. But the predominant national conversation on aging focuses on disability rather than ability, something experts say is a problem as participation of America’s older adults grows more important, economically and socially, as the nation ages.