Literature Review
All posts tagged with “General News | Changing the Culture of Dying.”
AI's no-fly zones: 5 executives weigh in
08/21/24 at 03:00 AMAI's no-fly zones: 5 executives weigh in Becker's Health IT; by Kelly Gooch; 8/16/24 It is clear that healthcare leaders are engaged in the artificial intelligence space. ... Below, five executives answer the question: What specific parts of healthcare delivery, operations and decision-making are best left to human judgment? ...
Virtual reality tech takes hospice patients to faraway places
08/21/24 at 03:00 AMVirtual reality tech takes hospice patients to faraway places Yuma Sun; by Alex Ebrahimi; 8/18/24 Hospice patients take trips to those faraway places they never got to visit or simply see the faces of family again no matter where in the world they are. These "trips" are made possible with the use of free virtual reality headsets offered by Southwestern Palliative Care and Hospice. The first patient to wear the VR headset had worked all his life out in San Diego as a crane operator. The paychecks didn't go beyond the roof over his family's head. Now he's able to see some of the places he never got to see in real life.Editor's Note: To read more examples, click on the title's link.
Reimagining end-of-life practices: Setas Eternal Living’s MyCoffin offers a sustainable legacy
08/19/24 at 03:00 AMReimagining end-of-life practices: Setas Eternal Living’s MyCoffin offers a sustainable legacy Franklin County Free Press; 8/13/24 In the heart of Pennsylvania’s countryside, a quiet revolution is taking place that promises to transform our end-of-life practices. At Setas Eternal Living, innovation and sustainability are at the forefront, offering an eco-friendly alternative to traditional burials through their unique MyCoffin. MyCoffin is designed to biodegrade the human body in under three years, and their pet coffin will biodegrade your pet in under two. This initiative aims to honor life while promoting environmental stewardship, reflecting a profound respect for nature’s cycles. ... The eco-friendly burial market is gaining momentum as more people become aware of the environmental impact of traditional burial practices. According to industry projections, the U.S. coffin and casket manufacturing industry is shifting towards greener alternative. ...
Aligning local marketing strategies with organizational vision
08/16/24 at 03:00 AMAligning local marketing strategies with organizational vision Forbes; by Emily Burroughs; 8/15/24 ... In today’s interconnected world, achieving a cohesive and impactful narrative requires that local marketing strategies align with the organization’s broader vision. However, silos within a company can complicate this process, impeding clarity and effectiveness. Here’s how to bridge these gaps and foster a unified message.
‘The Last Ecstatic Days’ one day screening strives to teach the world how to die without fear
08/15/24 at 03:00 AM‘The Last Ecstatic Days’ one day screening strives to teach the world how to die without fear Bangor Daily News, Bangor, ME; by BDN Community; 8/13/24 Hospice Volunteers of Waldo County invites Greater Waldo County to a single night screening on Tuesday, Aug. 20 at 7 p.m. Post-screening, there will be a Community Conversation with Hospice and Palliative Care Physician Aditi Sethi, MD and Director of the Center for Conscious Living & Dying/Hospice Volunteers of Waldo County’s Flic Shooter. Sethi, MD’s end-of-life palliative work is featured in the film. “The Last Ecstatic Days” focuses on a young man with terminal brain cancer (Ethan Sisser) as he sits alone in his hospital room. When Sisser starts live-streaming his death journey on social media, thousands of people around the world join to celebrate his courage. Still, he envisions more–to teach the world how to die without fear. To do that, Sisser needs to film his actual death. What unfolds next is a rarely-glimpsed perspective of how a community of strangers helps a young man die with grace.Editor's Note: This movie has been featured on PBS. The Boston Globe describes, "... courageous end-of-life chronicle, which overflows with compassion." The Louisiana Mississippi Hospice & Palliative Care Organization shared this as a viewing and discussion at their July 2024 conference. For the trailor and more information, click here.
Grandad rehearsed his funeral 10 years ago – Now his final wishes come true after his passing
08/01/24 at 03:00 AMGrandad rehearsed his funeral 10 years ago – Now his final wishes come true after his passing Good News Network; 7/28/24 A British senior who pre-planned his funeral and rehearsed it on TV in 2013, had his final wishes come true after peacefully passing away in June. Malcolm Brocklehurst, who is a renowned aircraft expert, commissioned an orange airplane-shaped coffin ten years ago from Crazy Coffins, an offshoot of a Nottingham-based traditional coffin and urn maker in England that helps people customize their funeral. The grandfather-of-nine was filmed sitting in the coffin on Channel 5’s Bizarre Burials, which also featured a rehearsal of the ceremony that the former aerospace engineer coordinated to the last detail. The plane was aptly called Tango One and numbered with MB 1934—his initials and year of his birth. He also announced that he wanted the funeral procession to leave from the stadium pitch where his favorite football team, Blackpool FC, plays. ... But speaking about the rehearsal in 2013, he said it was all “light-hearted fun.”
End-of-life care planning ‘needs to become routine’
08/01/24 at 03:00 AMEnd-of-life care planning ‘needs to become routine’ Nursing Times; by Gemma Mitchell; 7/30/24 Nurses need to support a "culture change" in end-of-life care whereby people's are better recorded and respected, a new report has urged. [Free trial / subscription required for full access.]
New play focuses on Advance Care Planning for LGBTQ+ families and caregivers
08/01/24 at 02:45 AMNew play focuses on Advance Care Planning for LGBTQ+ families and caregivers Hospice Foundation of America; by Lisa Veglahn; 7/29/24 Hospice Foundation of America (HFA) has added a new version of the short play “Lily” by award-winning playwright Bryan Harnetiaux to its AD (Advance Directives) Project, a collection of plays that dramatize the importance of advance directives. In the play, Jo visits her ex-wife, Lily, who is seriously ill. Jo is surprised that after years apart, Lily has asked to see her. She is even more surprised by Lily’s request that Jo serve as her surrogate decision maker when or if she cannot make healthcare decisions for herself. Hospice Foundation of America’s AD Project uses two-character, 10-minute plays featuring different relationships and settings. The plays are easy to produce and are intended for use by hospices, hospitals, and other community-based organizations wanting to engage audiences in discussions about advance care planning.The world premiere of the newest version of “Lily” was produced by Accord Hospice & Palliative Care in Sedona, AZ, in partnership with PFLAG Sedona, Unify Sedona, and the Sedona International Film Festival.Editor's Note: Click here for licensing information, to use this play in your community.
A rabbi shares what he’s learned speaking with people in their final moments of life
07/30/24 at 03:00 AMA rabbi shares what he’s learned speaking with people in their final moments of life: Exploring the final moments before death is a reminder of what really matters in life Forward - Jewish. Independent. Nonprofit.; by Rabbi Daniel Cohen; 7/28/24 I have been at the bedside of many people in their final moments on earth. The experience can be either haunting or inspiring. Ironically, my first experience of saying goodbye to someone I loved was as a 9-year-old boy. My grandfather was dying from lung cancer ... I remember the final moments as if they were yesterday. ... I have seen people call out to loved ones in the days or moments before their body and soul separate. I have seen people wait for a loved one to arrive at their bedside, further testimony that the body may be dying but the soul is very much alive. ... In truth, exploring the final moments before death is not intended to be depressing, but a reminder of what really matters in life. ... Looking at the day of death can awaken us to invest more fully in life. Each of us possesses an inner voice beckoning us and pushing us towards greatness. Do we hear that voice and do we invest in it?
‘Green burials’ grow in popularity as alternatives to traditional funerals
07/26/24 at 03:00 AM‘Green burials’ grow in popularity as alternatives to traditional funerals Planet Detroit; by Erica Hobbs; 7/24/24|... [Modern] funeral practices are wreaking havoc on the environment. Bodies are embalmed with toxic chemicals and buried in caskets placed in non-biodegradable vaults that take up increasingly limited space in cemeteries. According to a Cornell University study, an estimated 4.3 million gallons of embalming fluid, 20 million feet of hardwood, 1.6 million tons of concrete and 64,500 tons of steel are used in American burials yearly. Even cremation — often thought of as a green alternative to burial — requires up to 500 gallons of fuel and releases up to 250 pounds of carbon dioxide emissions, according to a recent study from the Green Burial Council (GBC). However, for those looking to reduce their carbon footprints even in death, green options, though still relatively rare, are available in Michigan. ... [Click on the title's link to continue reading these descriptions of "green burials."]
Fallen nurses are honored by ‘guards’ in white uniforms, capes and caps
07/19/24 at 03:00 AMFallen nurses are honored by ‘guards’ in white uniforms, capes and caps Radio Iowa; by Radio Iowa Contributor; 7/17/24 A hospital in southwestern Iowa is joining a national volunteer organization that pays tribute to nurses who have died or who are in hospice care. Registered nurse Sara Beth Jones spearheaded the effort to launch a local chapter of the Nurses Honor Guard at Cass Health in Atlantic. Jones says part of their uniform is to wear a cape that’s black on one side and red on the other, much like those worn by nurses who tended to soldiers in the 1800s. ... The Nurses Honor Guard is a comprised of current and former nurses. In addition to the funerals of nurses, they attend parades, honor walks and living tributes. Besides the cape, Jones says Honor Guard participants don the traditional white uniform and cap.
When you know you might forget everything: Living with the Alzheimer’s gene
07/18/24 at 03:00 AMWhen you know you might forget everything: Living with the Alzheimer’s gene Intelligencer; by Amelia Schonbek; 7/16/24 In 2017, 23andMe began offering tests for the genetic risk of developing certain health conditions like celiac disease, Parkinson’s, and late-onset Alzheimer’s. The Alzheimer’s test will tell you if you have the gene variant APOE4, which means you have an increased likelihood of developing the disease. One in four people carry a single copy of the gene, but 2 to 3 percent of the population have two copies — one from each parent — and have a much higher probability. As with all of 23andMe’s upcharged “Health Predisposition Reports,” the sell on it was self-empowerment: Once you know, you can plan, allowing you to take charge of your well-being.
Palliative care training initiative launches to improve quality among incarcerated populations
07/16/24 at 03:00 AMPalliative care training initiative launches to improve quality among incarcerated populations Hospice News; by Holly Vossel; 7/12/24 The California Department of Corrections & Rehabilitation’s Medical Facility (CMF) has launched a new palliative spiritual care training program aimed at improving services for incarcerated individuals. The new two-week spiritual training program was recently provided to palliative care service workers and volunteers to assist CMF’s clinical and nursing staff caring for patients at the facility’s hospice, correctional treatment center and memory care units. A dozen trainees recently completed the program, with CMF planning to provide an annual refresher course to all of its palliative care service workers, according to California Correctional Health Care Services CEO Joseph Garland.
[Global Partners in Care] 25 Years of Compassion and Impact
07/12/24 at 03:00 AM[Global Partners in Care] 25 Years of Compassion and Impact eHospice; 7/9/24 In 2024, Global Partners in Care (GPIC) celebrates its 25th anniversary. Over the past 25 years, GPIC has been dedicated to enhancing access to compassionate care for individuals and families across the globe who face serious illness, death and grief. This silver anniversary is a significant milestone in the history of the organization. Not only does it provide an occasion to reflect on the impact the organization has made, but it also provides an opportunity to consider numerous future possibilities.
Gen Z prefers burial over cremation, reversing decades of preferences trending toward cremation
07/11/24 at 03:00 AMGen Z prefers burial over cremation, reversing decades of preferences trending toward cremationPR Newswire; by National Funeral Directors Association; 7/9/24 There is no shortage of social commentary on how Gen Z is redefining norms and challenging older generations to think differently, from fashion to workplace culture. But what about their perspective on death and dying? A first-of-its-kind survey conducted by the National Funeral Directors Association (NFDA) offers definitive data to show how Gen Z thinks differently about end-of-life matters for themselves and their loved ones – as well as similarities with older generations. Notable differences between the generations highlight Gen Z's unique perspective, even compared to Millennials who are the closest in age, highlighting a pivot in end-of-life preferences to come:
Americans focus on a good life. But what about a good death?
07/10/24 at 03:00 AMAmericans focus on a good life. But what about a good death? WBUR Radio, Boston's NPR; by Here & Now host Deepa Fernandez; 7/5/24 Americans spend a lot of time thinking about what it means to live a good life. But what about a good death? In 2022 researchers at the Duke University Global Health Institute ranked countries by the quality of their end-of-life care, and the United States ranked only 43, just below Colombia, Romania, Nigeria and Guatemala. So what does this country need to do? Recent Middlebury College graduate Samara Gordon Wexler is thinking about that question. The 22-year-old winner of a prestigious Watson Fellowship is about to embark on a five-continent journey. She'll visit, work and train with end-of-life practitioners from Ghanaian coffin artists to Indian trekkers to find out what it means to die a good death and how to make it happen here.
[Consumer Reports] The last goodbye: How to plan a funeral
07/10/24 at 03:00 AM[Consumer Reports] The last goodbye: How to plan a funeral Consumer Reports; by Janet Siroto; 7/7/24 A complete guide to giving loved ones the right send-off--from traditional services to new green burials. Six years ago, Kelly Avery and Kristin Harper, sisters from Birmingham, Ala., gathered their families by the sky-blue ocean waters of Destin, Fla., to memorialize their mother, Barbara Harper. ... They shared funny stories and music, and shed some tears as they spread their mother’s ashes from the deck of a large boat. ... The experience not only gave the family a meaningful way to pay tribute to Barbara but also got the sisters thinking about their own memorials. The key is making some choices well beforehand, which more people appear to be doing. For instance, according to an April 2024 Consumer Reports nationally representative survey (PDF) of 2,042 adults in the U.S., 50 percent said they planned or intended to plan ahead either for their own funeral or for someone else’s. Read on for a rundown of possibilities and costs. ...
Navigating Aging: Lack of affordability tops older americans’ list of health care worries
07/09/24 at 03:00 AMNavigating Aging: Lack of affordability tops older americans’ list of health care worries KFF Health News - Northern Kentucky Tribune; by Judith Graham, KFF News; 7/5/24 What weighs most heavily on older adults’ minds when it comes to health care? The cost of services and therapies, and their ability to pay. ... A new wave of research highlights the reach of these anxieties. When the University of Michigan’s National Poll on Healthy Aging asked people 50 and older about 26 health-related issues, their top three areas of concern had to do with costs: of medical care in general, of long-term care, and of prescription drugs. More than half of 3,300 people surveyed in February and March reported being “very concerned” about these issues.
'I'm as happy as I've been in my life,' says aid worker Simon Boas as he faces death
07/08/24 at 02:00 AM'I'm as happy as I've been in my life,' says aid worker Simon Boas as he faces deathBBC News; 7/4/24 In September 2023, Simon Boas was diagnosed with throat cancer. Aged just 46, he was told the disease was terminal, and that it would ultimately take his life. Over the following year, he knitted together his reflections on life into a book - A Beginner's Guide to Dying. The book is set to hit the shelves in October. It will be a posthumous publication. In what he expects to be one of his final interviews, Simon spoke to Emma Barnett on the Today Programme, offering his reflections on life and death as he moved into hospice care. "My pain is under control and I'm terribly happy - it sounds weird to say, but I'm as happy as I've ever been in my life.I used to think I'd rather be hit by the proverbial bus, but having a couple of months knowing this is coming has really helped me both do the boring 'death-min', but also get my thoughts and prepare myself, and feel so accepting of what's to come.It's been such a great bonus, actually. The book is called A Beginner's Guide to Dying, but really what I'm trying to convey is how enjoying life to the full kind of prepares you for this. ... I spent my life as an aid worker - quite a lot with the UN - and I've lived in places where death is something that not just exists in the background, but is imminently possible."Editor's Note: Click on the title's link to continue reading this inspirational story. Simon's book--to be published posthumously--is available for pre-orders on Amazon.com in Audible formats with Simon as the narrator.
KCAD grad Brianna L. Hernández explores intersection of art, death, and grief through prestigious Hyperallergic curatorial fellowship
06/28/24 at 03:00 AMKCAD grad Brianna L. Hernández explores intersection of art, death, and grief through prestigious Hyperallergic curatorial fellowship Ferris State University, Grand Rapids, MI; 6/25/24 As Brianna L. Hernández grieved the loss of her mother, she understood she was not alone in the experience and her thoughts turned to helping others. Her work to share the experience has earned recognition. Hernández, a 2016 graduate of the Kendall College of Art and Design of Ferris State University, was one of five people selected for the prestigious 2024 Emily H. Tremaine Journalism Fellowship for Curators ... Every year, the fellowship offers five curators $5,000 to support their research while developing their journalistic skills. ... [Experiencing her mother's death] profoundly shifted her work toward a focus on death, and the living who are left behind to cope with loss. “As she was dying and right after she died, I knew I needed to make work about it for my own healing, but I also knew that my situation was not unique,” Hernández said. “I felt like it was of both artistic and social importance to put that out there in a way that hasn't been addressed.”
When victims die more than 30 days after a crash, they don’t count
06/26/24 at 03:00 AMWhen victims die more than 30 days after a crash, they don’t count StreetsBlogUSA; by Kea Wilson; 6/24/24... Since it first launched in 1975, the federal Fatality Analysis and Reporting System database has excluded all car crash deaths that occur more than 30 days after the initial collision. That means people like [9-year-old] Ben — who lived with a traumatic brain injury, a severed spinal cord, an inability to speak, and other major disabilities for five years before he died — aren't included in official annual death totals. Survivors say those stats also don't capture the sheer scale of the grief, horror, and hardship suffered by victims and their families, whether they succumb to their injuries immediately or manage to hang on.
Reflections: Three ways to think about death and dying
06/26/24 at 02:30 AMReflections: Three ways to think about death and dyingPost Alley, Seattle, WA; by Anthony B. Robinson; 6/21/24Our book group had a wrap-up session on our “Aging and Mortality” series last night. We invited everyone to share their own take-aways from our six books. What did we learn? What was comforting? Challenging? How might this effect your planning and decision-making? Before I share my own take-aways from the series, I would note one general theme in what we read: the more we isolate death and the dying, the more we fear death. Here my three take-aways from the series and our conversations:
It’s your funeral! How to plan ahead for the best party you’ll never attend
06/20/24 at 03:00 AMIt’s your funeral! How to plan ahead for the best party you’ll never attend The Guardian; by Doosie Morris; 6/14/24 Years before the indomitable Joan Rivers died in 2014 she immortalised hopes for her own farewell in her memoir. ... The rise in so-called “death positivity”, along with the mortal reality check wreaked on us by the pandemic, has helped to reframe death as a part of life for many of us. Taboos around discussing death are breaking down and planning your own funeral is increasingly considered as responsible as writing a will. ... While the latest Australian Funeral Industry report found less than one in five Australians have actually planned their own funeral, a definite vibe shift is occurring and 90% of people say they want to. ... “When people say ‘I don’t want a funeral’ I remind them it’s not actually for them,” Griffith says. “You might think you’re doing your loved ones a favour, but you are actually denying everyone who needs somewhere to put their grief.” ...
When your parents die: Becoming an adult orphan
06/20/24 at 03:00 AMWhen your parents die: Becoming an adult orphan The Montecito Journal; by Deann Zampelli; 6/18/24 Shortly after I got married, my 64-year-old mother lost her battle with breast cancer. Seven years later my father joined her. The loss isn’t any less painful just because you are a grown-up. ... Many don’t realize that grief isn’t linear. We don’t go through a neat little phase, checking off each stage as we complete it. The famous (and somewhat debunked) five stages of grief introduced by Elisabeth Kübler-Ross in the 1960s (Denial, Anger, Bargaining, Depression, Acceptance) were from a study she did on the emotional states of patients who were dying. It was their stages she was referencing, not ours. ... I came to a frightening realization. ... It suddenly dawned on me that my siblings and I were next in line to kick it. [Click on the title's link to continue reading.]Editor's Note: While serving in your hospice leadership roles, you experience the ongoing aging, changes and likely even deaths of your own family members, friends, and mentors. Do you, your hospice communications, and/or your grief services rely on the outdated "Stages of Grief" model? These "stages" opened the door in the 1960's for talking about death and dying, but became overpopularizd for surviving and healing after the loss. These have been replaced with extensive bereavement/loss/grief research, clinical best practices, and more. For expert information, resources, and bereavement professionals, examine www.adec.org, the Association for Death Education and Counseling.
How funerals and death became the new hot things
06/19/24 at 03:00 AMHow funerals and death became the new hot things New York Post; by Alix Strauss; 6/16/24 ... Funeral homes, similar to cemeteries ... are becoming the new community centers, and people are attending events not for sad occasions, but because they have become death curious, death fascinated, and death comfortable as we all move closer to that final chapter. “The stigma around funeral homes is dissipating. The vibe of our funeral home is changing. People come to these events wanting to be here, as opposed to having to be here,” said William Villanova, president of Frank E. Campbell – The Funeral Chapel. “There’s a void we are filling in our community. We put on large-scale, high-quality, catered events with talented people at an extraordinary space.”