Literature Review

[Canada] First reading: Hundreds seeking death due to loneliness — inside Canada’s new MAID figures National Post, Toronto, Ontario, Canada; by Tristin Hopper; 12/13/24 [Health Canada has] released the official figures on medical assistance in dying (MAID) deaths in 2023. The Fifth Annual Report on Medical Assistance in Dying in Canada, published on Wednesday, reveals that one in every 20 Canadian deaths is now due to assisted suicide. There were 15,343 total MAID deaths in 2023, the median age ... was 77.7 years, and 622 people received MAID for a non-terminal illness. ... The growth rate [in Canada] remains higher than anywhere else. ... Half of non-terminally ill people applying for MAID report being lonely. When applying for MAID, patients are asked to detail all the types of suffering they’re experiencing in order to determine if their condition qualifies as something “grievous and irremediable” — and thus eligible for death. Health Canada’s report reveals that 47.1 per cent of non-terminally ill Canadians who applied for MAID reported “isolation or loneliness” as one of the causes of their suffering. This was significantly higher than the number of terminally ill applicants who said the same (21.1 per cent).

Fabric artist's new exhibition in Historic Overtown sheds light on 41 years of wrongful incarcerationThe Miami Times; by Morgan C. Mullings; 12/10/24Whether volunteering in hospice, designing the prison magazine or leading the drama team, Gary Tyler lived an eventful life in prison. After 41 years of living in a cell he didn’t deserve to occupy, he found new life as an artist.  “Grief Not Guilty: Reclaiming My Time” features Tyler’s original quilts, photos of his mother and floral wreaths created by Quantavia Love. The exhibit speaks to the resilience of the human spirit, and the importance of recognizing the names and faces of those yet to be freed. It is on display now at the Black Police Precinct and Courthouse Museum in historic Overtown, a space dedicated to Black police officers of the pre-civil rights era and primed for discussions on the U.S. prison system. ...  After an angry anti-busing mob attacked him and other Black students in St. Charles Parish, Louisiana, he was destined to live and die in prison. ... That prison would be one of the most notorious in the U.S. Louisiana State Penitentiary. ... Also known as Angola, Angola Plantation, The Farm, or Alcatraz of the South, Louisiana State Penitentiary is the largest maximum security facility in the country. Tyler refused to do the manual labor required at this prison farm, calling it “slave work.” 

How hospice CNAs provide comfort in end-of-life care Intelligent Living; by Jennifer Barns; 12/8/24 End-of-life care is one of the most challenging yet meaningful services that healthcare professionals can offer. During such a delicate time, the role of a hospice CNA becomes essential. ... Table of Contents:

'I've already had my miracle': 26-year-old Savannah mom enters hospice care with only weeks to live ABC WJCL 22 News, Savannah, GA; by Savannah Younger; 12/4/24 As the holiday season begins, Sara Long, a 26-year-old Savannah woman, is entering hospice care after a prolonged battle with kidney failure. Now the wife and mother is preparing to say her final goodbyes to family and friends. "I wanted to make sure that everything's kind of ready to go for when family visits and all that kind of stuff," Long said. "So, I just want to make things as easy as possible for everybody." Long has been told she has two to three weeks left to live and is now preparing her family for her passing. ... Their daughter, Riley, 4, is too young to understand what is happening, but Long is creating a hope chest so Riley can always remember her. "There are probably dozens, if not hundreds, of letters at this point, to open at different various points in her life. So, like her first day of school all through, or a graduate degree, potentially," Long said. "I feel like I've already had my miracle," Sara said. "I feel like Riley is my miracle. ..."Editor's note: See our "Today's Encouragement" for today, with a beautiful quote from Sara Long, in this article.

Hospice of the Valley and CLS bridge the generation gap Arcadia News, Phoenix, AZ; by Cliff Summerhill; 12/1/24 Hospice of the Valley (HOV) and Christ Lutheran School (CLS) are entering the second year of a partnership that connects students with individuals at the Dementia Care and Education Campus. As part of HOV’s Adult Day Club, fifth-grade students visit individuals living with dementia to bridge intergenerational divides and spread enrichment, support, and joy that lasts long after the day’s activities have ended. ... Students partake in various meaningful activities with club members, including painting, coloring, gardening, and activities like cornhole, catch, and shuffleboard. The most important activity, however, is conversation. “Even though there is an age gap, both the Adult Day Club members and the students have the opportunity to learn from each other as they share stories and various interests,” CLS Service Learning Coordinator Mandi Schnepf said.

If my dying daughter could face her mortality, why couldn’t the rest of us? DNYUZ, appearing first in The New York Times; Ms. Wildman; 11/25/24 The first week of March 2022, I flew to Miami with my 13-year-old daughter, Orli; her 8-year-old sister, Hana; and my partner, Ian. We were, by all appearances, healthy. Robust, even. In reality, we were at the end of a reprieve. Orli’s liver cancer had by then been assaulted by two years of treatments — chemotherapy, a liver transplant, more chemotherapy, seven surgeries. Now new metastases lit up a corner of one lung on scans, asymptomatic but foreboding. We asked her medical team if we might show her a bit of the world before more procedures. Our oncologist balked. Hence, this brief weekend away. When we arrived at the beach Orli ran directly to the water, then came back and stretched out on a lounge chair. She turned to me and asked, “What if this is the best I ever feel again?” Three hundred and seventy-six days later, she was dead. In the time since she left us, I have thought often of Orli’s question. All that spring, Orli asked, pointedly, why did we think a cure was still possible, that cancer would not continue to return? Left unspoken: Was she going to die from her disease? It was a conversation she wanted to have. And yet what we found over the wild course of her illness was that such conversations are often discouraged, in the doctor’s office and outside it. ... [Click on the title's link to continue reading this profound story.]Editor's note: While families are gathered for Thanksgiving, many health changes will be observed since this time last Thanksgiving, with countless unknowns to unfold until Thanksgiving next year. Tune into the wide scope of conversations that people do want to have, don't want to have, and--perhaps--that your own family needs to have, with grace and care for all.

How to start the most difficult conversation in the world this holiday season EIN Presswire, Philadelphia, PA; by Cremstar; 11/25/24 According to a Caring.com Survey only 32% of Americans have a will. This Thanksgiving take advantage of this year’s holiday gatherings to plan for the inevitable. ... “There isn’t one right way to approach this topic. It really depends on the person you’re talking with,” says J.G. Sandom, CEO of Cremstar, a leading online cremation service. For example, if you know your person doesn’t like to be taken by surprise, give them a heads up, says Kate DeBartolo of the Conversation Project, an initiative of the Institute for Healthcare Improvement. Planning a visit with your parent(s)? Let them know beforehand that this topic is on your mind and that you’d like to talk about it with them. This gives them the opportunity to think about what they want, if they haven’t already. Here are Four Tips to ensure a successful dialogue:

Bringing stories to life, and death: Why animated movies are more than entertainment for kids The Stony Brook Press; 11/19/24 ... Whether it is the parents of the protagonist dying in the first few minutes in Frozen or the epic finale where the villain succumbs to a fatal fate like in The Hunchback of Notre Dame or The Princess and the Frog, it is somewhat of an oxymoron to call animated movies “childish,” as they often deal with serious topics. These movies are not outliers; there are videos dedicated to Disney’s “body count,” which counts how many characters have died in Disney movies. While these films may be magical or fantastical in plot, the moral truths of death and life covered in them often stir conversations about mortality. “Despite the fact that we would love to have people or animals or our loved ones forever, death is inevitable,” explained Bonnie Nickels, co-writer of the study End-of-Life in Disney and Pixar Films: An opportunity for Engaging in Difficult Conversation. “We can use these films as opportunities to introduce our young viewers and our young children to this idea.” To Nickels, these movies can create a dialogue between parents and children about dying and even model coping methods. “The fact that it’s a common feature in these films, kind of reiterates this idea that it’s common in life.” Editor's note: What movies will your intergenerational family watch through the holidays? This article's referenced study--"End-of-Life in Disney and Pixar Films"--describes, "A content analysis of 57 movies resulted in a total of 71 character deaths. For different generations, what reactions do you remember having experienced yourself, or from others? Bambi's mother. The Lion King's Mufasa. Frozen's parents of the two sisters. Coco's family members. Click here for a related article, "15 Saddest Disney Death, Ranked." 

It’s been weeks since I watched Elizabeth Olsen's His Three Daughters, and there's one thing I still can't shake CinemaBlend; by Heidi Venable; 11/10/24 There is a seemingly never-ending list of great options to binge on Netflix, and while I do love to actually make a trip to the theater, there’s no denying the convenience of streaming. After hearing some positive things about His Three Daughters — an offering on Netflix’s 2024 schedule — I decided to check it out, despite knowing the subject matter might hit a little close to home. It’s now been weeks since I watched the movie about three sisters navigating their father’s final days, and I still cannot shake how true it felt to my family’s own experiences with end-of-life care. ... Old wounds and a complicated family dynamic are quickly revealed as they all deal with his impending death in their own ways. The story really stuck with me, and here are a few reasons it felt so real.

Blue Ridge Care expands bereavement care with new Center for Hope & Healing Hospice News; by Jim Parker; 11/1/24 Blue Ridge Care has unveiled its new Center for Hope & Healing, a facility dedicated to offering comprehensive grief care. The Virginia-based nonprofit hospice, palliative care and PACE provider financed the center through philanthropic donations. The facility is located in the same building as Blue Ridge’s PACE program, according to CEO Jason Parsons. At the center, Blue Ridge bereavement care staff will offer specialized programs, workshops, support groups and individual counseling. “The center is a central organizing unit of our mission fulfillment in the areas of grief, family support and loss in a place people can come to that’s welcoming, inviting and centered around hope and healing,” Parsons told Hospice News. ... The center was built to create a relaxing atmosphere to help put visitors at ease, according to Parsons, with a sky blue color palette and several murals depicting natural scenes. In one display, a collection of rocks symbolizes the weight of grief. Visitors can write a message on the rocks to “leave that weight behind,” Parsons said. They can also paint their loved ones’ names on a mural of a branching tree in the lobby area. 

How end-of-life dreams and visions are bringing comfort to dying patients: A conversation with Christopher W. Kerr, MD, PhD The ASCO Post (American Society of Clinical Oncology); by Jo Cavallo; 11/1/24 Just weeks or even days or hours away from death, the majority of conscious terminally ill patients often experience growth and meaning in their lives and the absence of fear through end-of-life dreams and visions, according to research by Christopher W. Kerr, MD, PhD. Dr. Kerr is Chief Executive Officer and Chief Medical Officer of Hospice and Palliative Care Buffalo, New York, and coauthor of Death Is But a Dream: Finding Hope and Meaning at Life’s End (Avery, 2020). ... In this interview with The ASCO Post, Dr. Kerr discussed how end-of-life dreams and visions bring comfort to dying patients, the difference between these experiences and hallucinations, and the importance of ensuring that patients understand the reality of their prognosis when cure is no longer attainable.

I'm a palliative care nurse and I look after patients on their deathbeds - these are the top 5 regrets I hear from people in their final days DailyMail.com; by Ellen Coughlan; 10/30/24 When people are faced with their own mortality they experience a variety of emotions and gain perspective on their lives. A palliative care nurse, who works at Old Colony Hospice in Massachusetts, wrote a blog post, which has since resurfaced, revealing the top five regrets people express on their deathbed.  ...