Literature Review
All posts tagged with “General News | Changing the Culture of Dying.”
[International] Healthcare on the brink: Palliative Care Unit and Late Shift
03/18/25 at 03:00 AM[International] Healthcare on the brink: Palliative Care Unit and Late Shift The 75th Berlin International Film Festival - Part 7, wsws.org; by Martin Nowak and Bernd Reinhardt; 3/16/25 Two films, the drama Late Shift (Heldin) and the documentary Palliative Care Unit (Palliativstation), featured at this year's Berlin International Film Festival, addressed the current situation in German and Swiss hospitals. The sold-out festival screenings reflected the burning public interest in this topic. This is particularly remarkable bearing in mind that Palliative Care Unit has a running time of more than four hours. ... [In the] documentary Palliative Care Unit by Philipp Döring, shot at the Franziskus Hospital in Berlin, ... [the] camera quietly observes the daily routine, staff consultations and the constant empathy of the head of the ward towards employees and seriously ill patients, who usually spend their last weeks here. The very calm, always discreet images emphasise the necessity of sufficient time for care and reflection when making life-critical decisions. ... How can the highest possible quality of life be achieved? The high ethical standard of treating incurable patients as active human beings ... is admirable and makes a lasting impression throughout the film.
The 1 truly difficult part about being a caregiver that often gets overlooked
03/17/25 at 03:00 AMThe 1 truly difficult part about being a caregiver that often gets overlooked HuffPost; by Kimberley Richards; 3/13/25 Emma Heming Willis, wife of actor Bruce Willis, recently talked about the needs of caregivers on social media. Experts share what to know about the vital role. ... Among the different ways society may overlook the various caregiving experiences, there’s one aspect of it that isn’t often talked about: Many times it’s an “invisible” job. ... Hemings Willis’ post sparked conversations online about caregivers and the many struggles that come with it. And experts say perhaps one of the most isolating is the issue of “invisibility. ... She said that caregiving is often seen as a “family duty,” which prevents it from “being recognized as a broader issue requiring systemic attention.” “This view is often compounded by gendered expectations, where women are traditionally expected to take on caregiving roles, leading to feelings of guilt and pressure when they seek assistance,” she said. “The lack of formal policies ... only deepens the invisibility of this vital role, making it even harder for caregivers to balance their responsibilities with their own well-being.”
PBS documentary, Going Your Way, premieres nationally March 31
03/12/25 at 03:00 AMPBS documentary, Going Your Way, premieres nationally March 31 Nine PBS, St. Louis, MO; by Sarah Brandt; 3/11/25 A new documentary produced in St. Louis by Nine PBS, Going Your Way, will get a national premiere on PBS stations across the country on Monday, March 31. It will air locally at 9 p.m. and 10 p.m. Central, following the network’s popular series Antiques Roadshow. The documentary debuted locally on Nine PBS in October 2024. Going Your Way focuses on the personal, medical and spiritual issues surrounding end-of-life care, the options available, and steps that can be taken to put those wishes to practical use. The documentary’s title highlights the active role many people are now taking to ensure their death goes according to their own plans and wishes. The film was produced with expert consultation from the Oasis Institute and features insights from health professionals in St. Louis, ... [and] personal stories of families dealing with these decisions and issues ...
My Stories program preserves cherished memories of patients in hospice
03/12/25 at 03:00 AMMy Stories program preserves cherished memories of patients in hospice The Alpena News, Alpena, MI; by Reagan Voetberg; 3/8/25 The Hospice of Michigan in Alpena preserves the stories of patients, not in a book or photo album, but on a flashdrive. It’s called the My Stories program. Patients in hospice are given the opportunity to video record their stories and memories for their loved ones to hear once they’ve passed. Patients do not have to pay a dime to record their life stories. Alpena’s Hospice of Michigan Volunteer Program Coordinator Kristie Lukes talked about how meaningful the My Stories project is to patients and their families. Lukes coordinates volunteers to help patients with their recordings. Lukes explained further what My Stories is. “It’s a recording of the patient’s life and the stories that they want to share with family and patients,” she said. “So it becomes kind of a legacy project.”
The staging of 'The Story of My Life' at Asbury Memorial filled with serendipitous moments
03/11/25 at 03:00 AMThe staging of 'The Story of My Life' at Asbury Memorial filled with serendipitous moments Savannah Morning News, Savannah, GA; by Amy Paige Condon; 3/6/25 ... [Ray] Ellis, a retired music and drama teacher who works now as a caregiver, and fellow church member Dottie Kluttz, a retired hospice nurse, were hanging decorations in Asbury Memorial’s Social Hall. Ellis shared how his dream of producing “The Story of My Life” was back on his mind … A former hospice nurse, Kluttz founded Savannah Hospice’s Story Keeping program in 2001 as a way for people near the end of their lives to share the story of their lives. … [Click on the title’s link to read the serendipitous, synergistic encounters that unfolded, resulting in shows March 28, 29, 30.] [Upon underwriting for production costs,] Ellis proposed that ticket sales for the musical could serve as a fundraiser for Savannah Hospice’s Story Keeping program and the Michael J. Fox Foundation for Parkinson’s Research—a nonprofit near and dear to Ellis, who was diagnosed about three years ago with the progressive brain disease that causes tremors, stiffness and balance problems. … Stage and film actor Mark Rand, who was diagnosed with Parkinson’s around the same time as Ellis, agreed to portray Thomas to Ellis’s Alvin—even after Rand thought he would never perform again. …
Local pharmacist advising Ohio health director on palliative care
03/11/25 at 03:00 AMLocal pharmacist advising Ohio health director on palliative care Herald-Star, Steubenville, OH; by Christopher Dacanay; 3/10/25 A local pharmacist hopes to “expand utilization” of palliative care in Jefferson County and increase patients’ quality of life from her new position as an adviser to the Ohio Department of Health director. Steubenville resident Mary Mihalyo, doctor of pharmacy, was appointed Dec. 10 to the Palliative Care and Quality of Life Interdisciplinary Council. Bringing her own expertise, Mihalyo joins a diverse, 20-person group of professionals with experience in the provision of palliative care. ... Mihalyo, who founded Steubenville’s A&B Pharmacy with her husband, is the former CEO of Delta Care Rx LLC. She now serves as chief clinical officer for the company, which has been rebranded as Dragonfly Health. ... Her professional work, since [1999], has focused on serving hospice and palliative care patients locally and nationally as part of interdisciplinary teams. ... [Council members] ... actively consult with and advise the director on palliative care initiatives in the state, identify standards of practice, pinpoint initiatives at the state or national level integrating palliative care into the healthcare system and developing its practice and lay out patient identification guidelines for health care providers.
How to start the hospice conversation: Judy Bartel
03/11/25 at 03:00 AMHow to start the hospice conversation: Judy Bartel Cleveland.com, Cleveland, OH; by Guest columnist Judy Bartel, chief clinical officer for Hospice of the Western Reserve; 3/9/25 Discussing hospice care with a loved one is one of life’s most delicate and emotional conversations. For many, the word “hospice” evokes fear -- fear of finality, of giving up, of losing hope. But the truth is, hospice isn’t about giving up; it’s about focusing on what matters most -- comfort, dignity and quality of life. ...
Understanding a patient’s AI medical journey
03/10/25 at 02:00 AMUnderstanding a patient’s AI medical journey The Hastings Center; by Ian Stevens, Erin William, Jean-Christophe Bélisle-Pion, and Vardit Ravitsky; 3/5/25As artificial intelligence becomes increasingly integrated into U.S. health care, patients should know the ways in which AI is being used in their care, concludes a new paper, “Bring a ‘Patient’s Medical AI Journey’ to the Hill.” Transparency is crucial for interactions between health care providers and individual patients, as well as for systemic level uses of AI, including:
Film: Lives well lived
03/07/25 at 03:00 AMFilm: Lives well livedSecond Wave Southwest Michigan and Lives Well Lived; film by Sky Bergman; 3/6/25A Life Well Lived, a series of community meetings and learning opportunities that concludes March 15, and the documentary "Lives Well Lived," by guest speaker Sky Bergman, ... On the film's website, filmmaker Sky Berman describes, "In our society, the elderly are often overlooked. Lives Well Lived celebrates the incredible wit, wisdom, and life experiences of older adults living full and meaningful lives in their later years. Their stories are about perseverance, the human spirit, and staying positive during the great personal and historic challenges. I hope these stories inspire people of every age to achieve the longevity of both health and spirit, and to realize that growing older can be a journey to be celebrated." ... Beginning with its premiere at the Santa Barbara International Film Festival, Lives Well Lived has screened in more than 200 cities. The film has won eight awards, and the theatrical run garnered enthusiastic reviews and a 100% Fresh rating on Rotten Tomatoes. Organizations like Aging 2.0, AARP’s Movies for Grownups, Encore.org, and Leading Age have screened Lives Well Lived. Now the film is available on PBS! Editor's note: Click here for Second Wave Southwest Michigan use of this film for community outreach. Click here for the film's website, Lives Well Lived.
Children and family bereavement needs on the rise at Hospice of Santa Barbara
03/07/25 at 03:00 AMChildren and family bereavement needs on the rise at Hospice of Santa Barbara Santa Barbara Independent, Santa Barbara, CA; by Hospice of Santa Barbara; 3/5/25 It’s not just adults who are impacted by grief and loss in our community. Children are as well. One in five children will experience the death of someone close to them by age 18, and one in twenty children will experience the death of one or both parents before reaching adulthood. Although death and grief are inevitable parts of life, these statistics highlight just how many children are impacted. Children are especially vulnerable when they lose a close loved one, and without professional support, grief can be especially paralyzing and overwhelming. ... Hospice of Santa Barbara’s Children and Family Services program provides free professional support and coping tools for children, teens and their families ... HSB is active in local campuses, providing professional weekly support groups from elementary to college age students. On-campus counseling services provide a vital space for open communication, support and the development of coping skills.Editor's note: What specialized child, teen and family bereavement services are you providing? Missing? What more can you do, with life-changing outcomes for those you serve?
A hospice for kids: Grinnell family eyes Iowa City for state's first pediatric hospice
03/07/25 at 02:00 AMA hospice for kids: Grinnell family eyes Iowa City for state's first pediatric hospice Des Moines Register, Des Moines, IA; by Richard Hakes; 3/6/25 A Grinnell couple’s dream to help other families after they lost their young son to a rare disease took a big step forward in Iowa City just a few days ago. Shanna and Curtis Sieck’s non-profit called Mason’s Light House has signed a contract for land just west of the Johnson County Historic Poor Farm as the initial step toward building Iowa’s first pediatric hospice. Named in honor of their son, the facility is expected to be only the fourth in the United States. ... Mason’s Light House would accept up to seven children for both hospice and respite care, provide family suites and be fully staffed with a pediatric palliative care team of nurses, social workers, therapists and other specialists in the field. There would be no cost to patients and their families who use it.
Parting Stone celebrates serving 10,000 families with solidified remains service
03/06/25 at 03:00 AMParting Stone celebrates serving 10,000 families with solidified remains service Business Insider, Santa Fe, NM; Press Release; 3/5/25Parting Stone, an innovative death care company transforming the way families memorialize loved ones, is proud to announce that it has served 10,000 families with its solidified remains service. … s more families choose cremation for a loved one or pet, they seek meaningful ways to navigate grief, Parting Stone has emerged as a trailblazer in reshaping the narrative around death and memorialization. By offering a new form of remains that resembles a collection of 40–80 smooth stones, the company is helping people find comfort and connection in the grieving process. Solidified remains are a complete alternative to conventional “ashes.” … The National Funeral Directors Association predicts that by 2030, nearly 80% of Americans will choose cremation over traditional burial. Editor’s note: Click on the title’s link to see a photo.
The project: This is hospice care
03/05/25 at 03:00 AMThe project: This is hospice care PA Mediapoint, United Kingdom; 3/1/25 Hospice UK approached us to support the launch of their national “This is Hospice Care” campaign. The campaign aimed to raise awareness about hospice care and encourage people to leave a gift in their will to their local hospice. ... To further strengthen the campaign’s storytelling, we encouraged hospice nurses to bring objects representing the diverse services offered by hospices. Some of props included a pug to represent pet therapy, a potted plant symbolising hospice gardens and outdoor spaces, a birthday cake reflecting the sense of community and celebration within hospices, and a gift box to emphasise the theme of leaving a legacy. Bringing together nurses from twelve hospices, the shoot successfully blended visual storytelling with the core campaign messages. The imagery not only highlighted the importance of hospice care but also created compelling content for national and regional media.Editor's note: This creative initiative can be adapted easily for hospice teams (clinical and non-clinical), volunteers, and more. Click on the title's link to read more about this project's meaningful design, implementation, and outcoms.
What do the ashes symbolize in life, death, and cultural rituals?
03/05/25 at 03:00 AMWhat do the ashes symbolize in life, death, and cultural rituals? Brain Wise Mind - Symbolism; by Jodie Lawrence; 1/26/25In this article, you’ll explore the rich symbolism behind ashes, from themes of loss and renewal to connections with the cycle of life. By understanding these meanings, you can gain a deeper appreciation for how ashes play a role in various rituals and practices. Get ready to uncover the significance that lies within these seemingly simple remnants. ... Ashes symbolize a range of profound concepts, particularly in relation to life and death. You can find their meanings in various cultures and traditions, reflecting significant themes.
My mother and brother have terminal cancer. I'm worried I won't feel anything when they die.
03/05/25 at 02:00 AMMy mother and brother have terminal cancer. I'm worried I won't feel anything when they die. Business Insider; essay by Kimanzi Constable; 3/1/25 ... My brother was diagnosed with Cutaneous T-cell lymphoma (CTCL) three years ago, and my mother found out she had stage four lung cancer a year ago. I got a call earlier this year that the cancer was spreading, and I flew to spend time with them. I knew it would be hard seeing them battling late-stage cancer, but what I walked into was my brother in the Advanced Cancer Care Center, unable to move, and my mother wanting to hold an "end of life" planning meeting. It was worse than I anticipated. It was hard to see him not moving and the nurses having to help him do everything. My mother looked like she weighed 50 pounds ... I'm worried I won't feel anything when they pass away. ... I think it might be just another day when they pass away. I've been thinking — what does that say about me? Am I a bad person for not falling on the ground and losing it for over half of my family dying? Or is this nothingness an OK feeling due to the complicated relationship we've had most of my life? ... Editor's note: Leaders, welcome to the daily world of your clinicians, especially your social workers, chaplains, and grief counselors. Read this with openness to the normalcy of this author's conflicted relationships, emotions, thoughts, and empowered actions toward "not wanting to regret how I handled this opportunity to say goodbye more healthily."
How much does end-of-life care generally cost?
03/04/25 at 03:00 AMHow much does end-of-life care generally cost? 50 Plus Finance; by David Leto; 3/3/25 [For the public] ... Knowing how much end-of-life care generally costs can help you manage and prepare your finances appropriately to ease the burden on you and loved ones when the time comes. ... The cost of end-of-life care can vary widely depending on the services required. On average, however, Americans spend between $10,000 and $70,000 on such care, with the majority of expenses often occurring in the last year or month of life. These costs can stem from hospital stays, at-home care, or nursing facility care. Hospice, which focuses on comfort and pain management, typically costs less than intensive medical treatments but still averages several thousand dollars each month, or around $150 a day with insurance. Understanding these figures helps you set realistic financial expectations and prepare for them. ...
Local care specialists launch first-ever ‘memory cafe’ in the Upstate
03/04/25 at 03:00 AMLocal care specialists launch first-ever ‘memory cafe’ in the Upstate WSPA Greenville, SC; by Simone Jameson; 3/3/25 Some Upstate care providers are bringing a new concept to the region they said will benefit families of adults with dementia. The Blake at Hollingsworth Park Assisted Living and Think Different Dementia are two partners behind a first of its kind ‘memory cafe’ in Greenville. ‘The Upstate Memory Cafe’ provides a community setting where people living with dementia and their caregivers can bond. ... Organizers told 7NEWS the ‘memory cafe’ offers a space where attendees play cards, make flowers and do other activities together. They said ten to twelve home health care and hospice representatives are present for each meeting and educate families on best dementia care practices, while offering them support and respite services.
Aging With Adventure: The challenge of caring
03/03/25 at 03:00 AMAging With Adventure: The challenge of caring Daily Hampshire Gazette, Northampton, MA; by Eric Weld; 2/28/25 I made a mistake. I took a hiatus from writing in this space about aging with adventure because I thought I was taking a hiatus from adventure. Boy, was I wrong. I errantly thought that spending more than a year caring for my elderly mother in her final time on earth was taking me away from adventure. I am honored to have enabled my mother’s final days spent at home — not her home, but my sister’s private home — instead of in a public or private nursing facility. ... I assumed, in taking on the role of her co-caretaker, I would temporarily preempt my semi-retirement modus operandi of striking out on great adventures. To the contrary, what I learned from spending nearly two years co-caring for my aging mother is that end-of-life care is, indeed, every bit an adventure on many levels. And of course, it’s certainly about aging. [Click on the title's link to continue reading this inspirational caregiver story.]
Empowering employees to drive CX [Customer eXperience] innovation: A comprehensive path to success
02/26/25 at 03:00 AMEmpowering employees to drive CX [Customer eXperience] innovation: A comprehensive path to successCustomerland; by Ricardo Saltz Gulko; 2/24/25 ... While it is widely recognized that employees play a crucial role in shaping customer experience (CX), their impact on innovation is often less clear. However, employees are the bedrock of innovation within any organization. They bring diverse perspectives, skills, and creativity that fuel the development of new products, services, and processes. This article delves into the significant ways employees influence innovation, providing a comprehensive analysis supported by ten key points. ...
Interdisciplinary strategies for establishing a trusting relation as a pre-requisite for existential conversations in palliative care: a grounded theory study
02/26/25 at 03:00 AMInterdisciplinary strategies for establishing a trusting relation as a pre-requisite for existential conversations in palliative care: a grounded theory study BMC Palliative Care - Part of Springer Nature, Open Acces; by Annica Lagerin, Christina Melin-Johansson, Bodil Holmberg, Tove Godskesen, Elin Hjorth, Lena Junehag, Carina Lundh Hagelin, Anneli Ozanne, Johan Sundelöf & Camilla Udo; 2/19/25... This study aimed to gain an in-depth understanding of healthcare professionals’ (HCPs) experiences of existential conversations with patients with PC needs and their next-of-kin by generating a theoretical model. ... To emphasize the importance of ethical competence for quality patient care, particularly in PC, a combination of care ethics, clinical proficiency, relational skills and effective communication is essential. ... The potential obstacles we identified that require attention include the need for managers ... to support HCPs by allowing time for reflection, developing new routines, and providing education focused on existential conversations in PC. However, the main contribution of this study is the description of the interdisciplinary strategies HCPs used to establish meaningful, existential conversations by maintaining presence, as this paved the way for trusting conversations with patients and next-of-kin. Editor's note: Pair this with today's article "Why being trustworthy is a leadership hack that drives success."
How boomers are personalizing their last chapter
02/26/25 at 03:00 AMHow boomers are personalizing their last chapter Broadview; by Larry Krotz; 2/19/25 From death doulas to digital legacies, this generation is flipping the script on end-of-life traditions. ... I confess that I don’t generally think much about dying, though many in my generation do. Baby boomers, that great bulge in the population whose concerns for so long have dominated the culture, have moved from preoccupations with creative retirement or the adequacies of the health-care system to a fascination with death. Witness the immense popularity last year of the Royal Ontario Museum’s multisensory exhibit Death: Life’s Greatest Mystery or the growth of death cafés ... For my contemporaries, death has become the next item on the to-do list. What it will look like. How to prepare for it. How to make it your own. ...
Pennsylvania lawmaker introduces ‘No Patient Left Behind Act’
02/25/25 at 03:00 AMPennsylvania lawmaker introduces ‘No Patient Left Behind Act’ WHTM - PA Homepage; by Brady Doran; 2/19/25 A Pennsylvania lawmaker introduced a bill that would ensure hospitals have visitation policies that balance patient needs with public health protocol. According to Sen. Doug Mastriano (R-33), elderly patients left alone in hospitals experience faster physical and cognitive decline. The No Patient Left Behind Act, introduced by Mastriano, would ensure Pennsylvanians with medical treatment or end-of-life care have support by their sides. “Hospitals should be places of healing. However, for far too many, they have become places of loneliness, despair, and unnecessary suffering,” Mastriano said.
[UK] Campaign focuses on hospice's work: [This Is Hospice Care]
02/21/25 at 03:00 AM[UK] Campaign focuses on hospice's work: [This is Hospice Care] The Free Library; by Sam Volpe; 2/17/25 Tyneside Hospice is taking part in a new national campaign highlighting their "vital role" - while one son has paid tribute to the care his mother received in her final days. St Oswald's Hospice in Newcastle is one of more than 140 hospices taking part in a new campaign called "This is Hospice Care" which is designed to demystify the role hospices play in our communities. [England, Scotland and Wales] Click here for "This is Hospice Care | UK," on the St. Oswald's Hospice website.
Juniper House on National Historic Register
02/20/25 at 03:00 AMJuniper House on National Historic Register K103, Portland, OR; 2/18/25 The Juniper House is among Oregon's latest entries in the National Register of Historic Places ... for its statewide significance as Oregon's first end-of-life care home dedicated exclusively to residents with HIV/AIDS [May 1987] and for its substantial impact on statewide healthcare and LGBTQ+ history. ... In addition to caring for residents, the work of Juniper House included advocacy and educational efforts that were crucial in shaping public opinion and responses to HIV/AIDS.
Celebrating Black History Month: 12 Black American medical pioneers
02/20/25 at 02:00 AMCelebrating Black History Month: 12 Black American medical pioneers Brighton Hospice; blog from 2/24/21, still relevant todayThese trailblazing clinicians, researchers, inventors, and advocates broke barriers, shattered stereotypes, and advanced medicine in this country and beyond.