Literature Review

End-of-life care needs cultural humility and social justice BMJ; by Jamilla Akhter Hussain, Rekha Vijayshankar, and Mary Hodgson; 12/18/25 Death, dying, and grief are not medical events—they are profoundly social, relational, and shaped by the histories people carry into their final days. ... [A] key question is: how can end-of-life care services become more trustworthy? Too often, institutions respond with so-called cultural competency initiatives. ... What is needed is cultural humility and social justice. Cultural humility involves ongoing self-reflection and acknowledgement of bias at individual, organisational, and system levels. Palliative care must prioritise cultural humility and social justice: trust grows not through outreach alone but through shared creation of knowledge, meaning, and care—and at the end of life ...

Is moral adequacy possible in the face of structural disadvantage? The experiences of health and social care staff in supporting homeless people using substances at the end of life Palliative Care and Social Practice; by Gary Witham https, Gemma Anne Yarwood, Sarah Galvani, Lucy Webb, and Sam Wright; 11/26/25 Background: Homeless people using substances at the end-of-life face many challenges in accessing and receiving good care. These can relate to poor interdisciplinary working by health and social care practitioners, stigma and structural disadvantage. Results: The data analysis resulted in three key discourse positions relating to how practitioners position themselves in relation to the practice challenges of supporting homeless people using AODs and approaching end of life. These were as follows: (i) what constitutes a good death and where, (ii) the limitations of professional boundaries and (iii) maintaining moral adequacy in the face of traumatic death.

My patient was gone. I had to help his family see it: The art of medicine means sitting with families’ grief and hope Stat10 - First Opinion; by Raya Elfadel Kheirbek; 12/15/25 Bullets tore through Michael Thompson’s car at a stop sign, ending the life of a 35-year-old father in an instant. Just minutes earlier, he had dropped his 8-year-old daughter, Emma, at dance class, her pink tutu bouncing as she waved goodbye. Now, in the ICU, his young body lay tethered to machines — ... a ventilator’s hiss forcing his chest to rise. ... His family’s grief filled the room, raw and heavy, as I prepared to document our meeting. On the screen, a pop-up appeared: “Patient is deceased; do you want to continue?” Its cold bluntness paled against their pain. Michael looked alive. His chest rose and fell with the ventilator. ... Medicine isn’t just tests or machines. It is presence — sitting with families in their grief, faith, and love. Our tools should support that presence, not interrupt it with cold prompts. ... Most U.S. hospitals lack clear guidelines for these situations, leaving families and clinicians alike in limbo. They also worried about organ donation — a decision fewer than 1% of families consent to after brain death, often because the body still looks alive.Editor's Note: We thank the palliative care physicians, nurses, social workers, and chaplains who provide sensitive presence with families in the unbearable spaces between hope and loss, especially when life support decisions arise. In this season, may we pause to honor those who carry this sacred work—and remember the families who have had to accept harsh truths while machines still “breathe.”

Award-winning documentary chronicles hospice nurse’s final 39 days Hospice Foundation of America (HFA) and TGBeyond, Washington, DC; Press Release; 12/1/25Hospice Foundation of America (HFA) and TGBeyond today announced the release of A Butterfly Has Been Released, an award-winning short documentary, alongside a new professional continuing education program, From Caregiver to Patient: Hospice Nurse Allyson’s Final 39 Days. Pre-purchase is available now, with formal release in January 2026. The 36-minute film follows Allyson, a hospice nurse with more than 20 years of experience guiding patients and families through death and grief, as she navigates her own final 39 days after a life-limiting diagnosis. Through candid kitchen-table conversations, a 150-person living funeral, and a natural green burial, Allyson demonstrates what she spent decades teaching others: live with purpose, presence, and connection until the very last day.Editor's Note: Is the concept of a "living funeral" new to you? I've seen this moving film several times, with a group discussion among healthcare professionals led by its producers Jason Zamer and Barry Koch. Click here for its 2-minute trailer.

Rediscovering purpose in the hardest moments of cancer care Medscape; by Mark A. Lewis, MD; 11/7/25 ... I'm a GI oncologist, and about a quarter of my patients have metastatic pancreatic cancer. Treat that awful disease often enough and, believe me, you start to doubt your own abilities as a supposed healer. I mean, talk about overpromising and underdelivering. ... When you judge your worth by your outcomes, especially longevity, imposter syndrome sets in like dry rot, and feelings of ineffectiveness lead to therapeutic nihilism in the very caregiver that patients look to for hope. It turns out, though, the best antidote to self-pity is right in front of me every day: my patients. ...

Geisinger medical students accompany Scranton, Wilkes-Barre Allied hospice patients with No One Dies Alone program WWIA/PBS/NPR; by Lydia McFarlane; 11/23/25 Tommy Ahlin was very close with his grandfather. He looked up to the man he called “Pap-Pap” for his military service, wisdom and family values. He spent the last few months of his life in a nursing home under hospice care, where he died at age 97. “Unfortunately, on the day he passed, he did pass by himself and was alone for a couple of hours before anyone got to him," Ahlin said. ... Ahlin, a second-year student at Geisinger Commonwealth School of Medicine, or GCSOM, is now a representative for the No One Dies Alone program, which partners the medical school with Allied Services Hospice. Program volunteers vigil sit, which means to provide company to hospice patients whose loved ones can't be with them.

How one Lafayette man's offer to cook for families in need turned into a mission The Acadiana Advocate; by Adam Daigle; 11/17/25 Kent Zerangue planned to open a catering business when he retired in 2017, but one experience overshadowed any need to make money. ... He began cooking for families in need and launched Food With Love, “a heart centered ministry of Hospice of Acadiana.” ... He had 10 families in six months.  ... Today, Food With Love serves about 135 families and prepares about 800 meals a week.

Pidgie Chapman marks nearly four decades as a hospice volunteer The Pilot; by Maggie Boncurrter; 11/7/25 The ladies weren’t exactly Thelma and Louise of big screen fame, but they probably looked very similar driving through the Moore County community of Addor. FirstHealth Hospice volunteer Pidgie Chapman had a patient decades ago who loved to dress up and wear fancy hats. Chapman had quite the chapeau collection, so she presented her patient with a giant, floppy hat while donning a similar one. “In those days we could drive our patients around,” said Chapman, who has been a hospice volunteer since 1986. “We got in the car and visited all her friends – in our hats. She was absolutely delighted.” ... Chapman is one of the area’s most seasoned hospice volunteers, starting her career soon after the philosophy of care took hold in Moore County. 

Hospice of Orange & Sullivan’s sixth annual community breakfast features caregivers’ emotional stories of courage, compassion and dignity FocusMedia, Middletown, NY; Press Release; 11/7/25 Hospice of Orange & Sullivan Counties, Inc.’s Sixth Annual Community Breakfast celebrated the profound difference Hospice makes through caregivers who shared touching stories of supporting patients during their final life journey. The ”Real Stories, Real Impact” panel discussion was moderated by Eric Gatsik, President and CEO of Hospice of Orange & Sullivan Counties and Heather Bell-Meyer, President and CEO of the Orange County Chamber of Commerce. About 115 attendees at the Barn at Villa Venezia connected, reflected and were inspired by stories of love, dignity and trust offered to patients at the end of their lives. 

Influencer Kaelin Bradshaw's tragic death at age 29 shared by her husband Distractify; by Kelley Schepper; 11/3/25 Searches for Kaelin Bradshaw's cause of death surged after the TikTok creator’s tragic passing. Kaelin had documented her symptoms, diagnosis, and hospice move with unflinching honesty. She died on October 27, 2025, at the age of 29, peacefully and surrounded by family, according to her husband. ... Her last videos back that up with a clear timeline. 

Alive Hospice founders mark 50 years by reflecting on how their first patient molded themThe Tennessean; by Brad Schmitt; 11/2/25 ... The third hospice program in the world launched in Nashville in 1974 with coffee and doughnuts. One of its cofounders, Vanderbilt psychiatrist David Barton, felt the hospitals could be institutionally apathetic toward terminally ill patients. "There was a bit of aversion to being constantly around people whose lives are ending," Barton said. So, after studying about dying and reading about hospice care facilities that had opened in London and Connecticut, he bought refreshments and invited eight people to his West Meade home. ... Barton pitched the idea to those eight, who included a few other doctors, a neighbor with cancer, his rabbi, and his wife, who by that point had become a clinical social worker. At meeting's end, he had pledges of support. Within a year, they had raised $57.

HBO’s ‘The Pitt’ inspires viewers to consider organ donation, end-of-life planning WBOG Country 101.3; by Ozzy; 10/28/25 A University of Southern California study reveals HBO’s Emmy-winning The Pitt motivates viewers toward organ donation and end-of-life preparations. Research examining two multi-episode storylines shows 26.9% of surveyed audiences sought organ donation information while 17.2% shared donation details with others. The organ donation narrative particularly resonated with Black viewers, a demographic overrepresented on transplant waiting lists yet underrepresented as donors. Editor's Note: The Pitt's storyline involving organ donation is from Season 1, Episode 6, titled' 12:00 P.M."

Hospice of the Valley launches support group for people with mild cognitive impairment Lovin' Life; by Lin Sue Flood; 11/2/25 Living with mild cognitive impairment (MCI) can be an isolating experience, but a new program from Hospice of the Valley offers a welcoming space for connection and support. GATHER is a peer-led group where individuals diagnosed with MCI can share their experiences, navigate emotions, and discover new coping strategies together. ... GATHER provides a safe environment for members to lead their own discussions. Unlike traditional support groups, members are empowered to guide conversations toward topics that are most relevant to them. This novel format models successful programs in Europe.