Literature Review

Local bat mitzvah project becomes ‘bear’ mitzvah Columbus Jewish News, Columbus, OH; by Bill Motchan; 6/4/25 Most 13-year-olds preparing for their b’nai mitzvah mark the occasion by completing a community service initiative. Emily Cammeyer had her bat mitzvah in 2012, but her mitzvah project lives on. In fact, it recently turned 13. The program is known as Love & Hugs and is part of the admission process at Wexner Heritage Village’s Zusman Hospice. A new hospice patient receives a stuffed bear to be there as a comfort tool. Eventually, the bear is reunited with the family of the patient. For her mitzvah project, Cammeyer raised enough money to donate 100 bears to Zusman Hospice. Since then, the program has placed more than 4,000 bears. ... “Our social workers help match the bear to the patient,” Sears told the CJN. ... Personalizing the bears was part of an evolution of the program, but it has made it special for hospice patients, Cammeyer said.

Hospices facing a US caregiving ‘crisis’ Hospice News; by Holly Vossel; 6/2/25 Family caregivers in the United States are being challenged by a swelling aging population inneed of greater support and stronger policy infrastructures. Much room for improvement exists at both state and federal levels when it comes to recognizing the important roles that family caregivers play, according to Steven Lee, co-founder and CEO of ianacare, a Boston-based patient and caregiver resource company. More innovative care models and disease-specific reimbursement options have widened pathways for hospice providers to improve family caregiver support, Lee said in a recent Hospice News Elevate podcast. But these fall short of addressing the diverse scope of practical, emotional and financial needs, he stated. Editor's note: This article has an excellent map of US states with caregiver categories for "Well-Supported," "Safe for Now," "High Risk," and "Critical" (courtesy of Otsuka America Pharmaceutical). Additionally, our sponsor Hospice Analytics provides the National Hospice Locator, for caregivers/families to find hospices that serve in each US county, and sorted by their quality scores. And, our sponsor Composing Life equips hospice organizations with caregiver/family video libraries that span the continuum of serious illness, hospice, and grief care. 

Hard conversations, celebrations accompany AANHPI Heritage Month Public News Service; by Roz Brown and Suzanne Potter; 5/30/25 Asian Americans, Native Hawaiian and Pacific Islanders are a rapidly growing population in California and across the nation - but as they age, research indicates they're less likely to use hospice care or be familiar with end-of-life options. Nationwide, the group makes up about 6% of the population - and 15% in California - but like many minorities, they face greater health-care disparities. Ben de Guzman, director of the Office on Asian and Pacific Islander Affairs in the Washington, D.C., mayor's office and the son of Filipino immigrants, said cultural beliefs can hinder conversations about death and dying, and language also is a barrier.

Finding Solutions: Local group makes flowers for everyone WRDW-12 & WAGT-26, Augusta, GA; by Zayna Haliburton; 5/21/25 Flowers are something that can put a smile on someone’s face, whether you’re receiving or giving them. For one local group, they’re making bouquets to bring to nursing homes, shelters and hospitals. They’re now finding solutions in asking the community to consider donating their leftover flowers from weddings and events in order to brighten someone else’s day. “These are going to go to hospice patients that a part of Enhabit Augusta, ..." said Patricia Proctor, co-owner of El Rey and founder of non-profit Corazón Bonito ... which translates to "beautiful heart" in English. 

[Australia] Overtreatment of older people near end of life: A qualitative scoping review of modalities, drivers, and solutionsOmega-Journal of Death and Dying; Samantha Fien, Emily Plunkett, Daniel Wadsworth, Magnolia Cardona; 4/24This study aimed to understand the drivers better to help minimise further risks of overtreatment for older people near the end of life (dysthanasia). Determinants included healthcare system factors, patient-centered care, family and caregiver, and clinician perspectives. This review confirms that despite almost two decades of recognition of the potential harms of overtreatment near the end of life, society, patients, and health systems have a role to play in reducing and addressing the determinants. We offer a range of solutions for clinicians, health service managers, and members of the public to consider.

Newly Available: Improving Dying Hospice Foundation of America, Washington, DC; Press Release, contact Lisa Veglahn; 5/7/25 Virtual reality, physical therapy, music therapy, pet care, and even a haircut are therapeutic, innovative, and practical ways to improve the quality of life for people with terminal illness and are profiled in a new book and continuing education course recently released by Hospice Foundation of America (HFA). “End-of-life care providers are doing amazing work that rarely gets the attention it deserves,” said Amy Tucci, HFA’s president and CEO. “With Improving Dying, HFA’s goal is to recognize their efforts and provide models that can be replicated to enhance care for dying and the bereaved.”

Dying ‘Beautifully’ in the Rio Grande Valley: Rivera-Burciaga embeds end-of-life nursing into UTRGV curriculum: National Nurses Week is May 6-12 UTRGV, The University of Texas Rio Grande Valley - The Newsroom, Rio Grande Valley, TX; by Karen Villarreal; 5/9/25 Death, for the most part, makes people uncomfortable. But not UTRGV’s Dr. Andrya Rivera-Burciaga.  After a personal loss early in her nursing career drove her to seek advanced certification in hospice and palliative care, she has made it her life’s work to normalize conversations about death and dying.   ... While Rivera-Burciaga’s efforts successfully have woven palliative care into the UTRGV nursing curriculum, her Ph.D. research on the unique cultural perspective of death and dying among Mexican Americans aims to further tailor the care that nurses provide to end-of-life patients in South Texas.  ... Through clinical interviews, Rivera-Burciaga found that many individuals of the Mexican American culture are afraid to die – despite engaging in Día de los Muertos, a celebration of death every November. “We've built a compassionate community for the dying, yet we don't say it by name. Many Mexican Americans in the United States believe that to talk about death invites it. Or, that we don't have time to be depressed, or that even in mourning men don't cry,” she said.

Think you know what nursing research looks like? Think again Boise State News, Boise, ID; 4/30/25 “Research” doesn’t just mean generating new discoveries through experimentation. Boise State supports Boyer’s model of scholarship, which expands the definition of research and creative activity to include applying and integrating knowledge into other settings, as well as teaching it. ... [An] interdisciplinary team is working to improve hospice and palliative care for refugees. ... Clinicians and refugees often do not share common cultures, languages or communication norms, so [Kate] Doyon has been building a community advisory board to create a communication guide. They’re working with stakeholders–including refugees and providers–to develop prompts that will enhance the care refugees receive, starting on the level of communication. Ornelas said the refugees they interviewed “gave us a lot of insight on different cultures and how we can go about and make prompts.” The prompts are short phrases to remind the healthcare team of best ways to interact with refugees and productively approach conversations.

By the Bay forges educational partnerships to grow hospice, home-based care workforce Hospice News; by Holly Vossel; 4/23/25 By the Bay Health has launched a new career program that aims to build up the next generation of home-based health care professionals amid widespread workforce shortages. The California-based health system unveiled its educational initiative, Pathways to Care Careers, in December 2024 as part of its 50th anniversary commemoration. The program is a collaboration with local schools and community organizations. By the Bay Health recently began a $1 million fundraising campaign to support the expansion of the career initiative. A main goal is to reach an increasingly diverse range of health care workers further upstream in their educational journeys, said Robertina Szolarova, chief administrative officer at By the Bay Health and program lead for its Pathways to Care Careers initiative.

The intersection of dignity and healing with Dr. Harvey Max Chochinov Practice of the Practice; podcast by Jo Sanok with Dr. Harvey Max Chochinov; 4/22/25 How can we ensure dignity in end-of-life care? What does every therapist need to know about actively incorporating dignity into therapeutic care for their clients? What is the procedure for a practical application of dignity in therapy and healthcare? In this podcast episode, Joe Sanok discusses the intersection of dignity and healing with Dr. Harvey Max Chochinov. 

This weekend: Passover and Easter with hospice patients and familiesHospice & Palliative Care Today; by Joy Berger, DMA, FT, BCC, MT-BC, editor in chief; 4/17/25 This weekend brings a confluence of the Jewish Passover and Christian Easter holy days. Whatever your faith system, understanding at least a bit about the diverse faith systems of those you serve matters. We provide these hospice-specific resources as references:

A hospice nurse made a promise—and found homes for 1,300 pets  Miami Herald, Miami, FL; by Jen Reeder; 4/7/25Working as a hospice nurse, Joanne Bonicelli spent years offering comfort to dying people. Then, in 1998, a request from one patient changed her life. A young woman in her 40s had a fluffy white dog named Jasper, who never left her side while she was at Pikes Peak Hospice & Palliative Care in Colorado Springs, Colorado.  One day, the woman called Joanne to her bedside. “I don’t know where Jasper will end up or who will care for him when I am gone…it’s just too painful to bear,” she told Joanne as tears streamed down her face. “I can’t die in peace worrying what will happen to him…can you euthanize him in my arms as I pass?” The heart-wrenching request stunned Joanne. She asked a veterinarian about what they could do, and after meeting Jasper, the vet’s eyes welled with tears at the prospect of putting down a healthy dog. There has to be a better way, they both agreed. [Continue reading ...]

Terri Schiavo's death 20 years ago sparked lingering debate about death and politics USA Today; by Marc Ramirez; 3/31/25 Monday [March 31st marked] 20 years since the death of Terri Schiavo, whose landmark case became the symbol of the "right to die" movement, generated political controversy and sparked public outcry as her husband and family members took their fight over her fate to the courts. Schiavo died on March 31, 2005, after a dragged-out legal and political battle ... The case thrust discussions about end-of-life care into the public consciousness, a topic that continues to provoke heightened emotions among Americans. “It became the most reviewed, debated end-of-life case in history,” said Arthur Caplan, who heads the division of medical ethics at New York University’s Grossman School of Medicine. [Continue reading ...]