Literature Review

Patients tell me they've had a paranormal experience. I Believe Them — I had one too. MSN HuffPost, by Scott Janssen; 4/23/24 Tank’s life has been full of conflict and strife. Now he’s stuck in a wheelchair on his back porch with me, a hospice social worker, peppering him with questions. He’s pondering my query about why he’s feeling peace about his impending death. His eyes soften as he motions with his head toward the workshop near the back fence. “You remember me telling you about my older boy?” he asks. “The one that died by suicide?” I ask. “Yeah, I remember.” “If you count my old man, I was the second-worst father that ever lived. Most of my life I figured I’d go straight to hell when I died.” ...

End-of-life care facility for people experiencing homelessness opens on Monona Drive [Wisconsin] Isthmus, Madison, WI, by Linda Falkenstein; 4/23/24It started as an idea from palliative care physician Dr. Ann Catlett. Catlett had experienced having to discharge terminally ill patients who had no housing onto the streets. And she had seen a model home where patients without a home could live out their days in peace, receive hospice services and other daily palliative care. ... Thus was born Solace Friends, a Madison-area nonprofit with the goal of opening a care facility for people with terminal illnesses who are unhoused or experiencing housing insecurity. ... The opening of the adult family home was celebrated Tuesday with a press conference and tour of the facility.

Professor shines light on life incarcerated

LGBTQ+ individuals have higher rates of cancer because of disparities in modifiable risk factors, ACS says ONS Voice [Oncology Nursing Society]; by Magdalen Millman; 4/18/24 About 7% of the U.S. population identifies as LGBTQ+, but understanding cancer in this population is difficult because surveillance data are limited to national surveys on risk factors and screening, the American Cancer Society (ACS) observed in a special section of its Cancer Facts and Figures 2024 report on cancer in the LGBTQ+ community. More than 50% of LGBTQ+ individuals have experienced harassment such as slurs, violence, microaggressions, and sexual harassment, even in healthcare settings. “One in 6 LGBTQ+ adults, and 1 in 5 transgender adults specifically, avoid health care due to previous discrimination,” ACS reported. It’s one factor implicated for the disparities affecting LGBTQ+ individuals’ access to cancer care, including prevention, screening, diagnosis, treatment, and palliative care. Editor's Note: Click here for this site's Cancer Facts and Figures 2024 report on cancer in the LGBTQ+ community.

Modern Healthcare's Diversity Leaders Awards: Nominate a diverse leader Modern Healthcare; 4/12/24 The Diversity Leaders in Healthcare awards program takes great pride in honoring the healthcare executives and organizations working to further equity and inclusion at their organizations and in the overall industry. ... [Click on the title's link for Individual and Organizational Awards' Dates, Eligibility, Criteria, Required Materials, and more] 

The art of the obit: Longtime journalist offers tips of the trade Times Colonist, by Pedro Arrais; 4/5/24 Sandra Martin has written obituaries for everyone from Queen Elizabeth II to Margaret Thatcher, Betty Fox — mother of Marathon of Hope runner Terry Fox — Nelson Mandela, Farley Mowat and Jackie Burroughs. ... When she tells the story of an individual’s life and legacy, Martin says, she does it with the reader, not the family, foremost in mind. In that way, her work is different from a family’s death notice. ... “As a journalist, I write for the reader, not the family. That means that it has to be true. What I include has to have had an effect on the subject’s life.”

The day Ram Dass Died The New Yorker, by Christopher Fiorell; 4/6/24 He taught me to be more curious, present, and self-loving. His final lesson was more surprising. ... I woke up every thirty minutes the night before Ram Dass died. Stretching my perception through the big divider that separated his study—where I lay on a narrow couch—from his bedroom, I’d count the seconds between the short, ragged breaths churning through his sleep-apnea machine. Four years later, I still have no idea why I was chosen to watch over him that night. 

Thinking outside the box: eco concerns prompt greener funeral options Positive.News, by Alison McClintock; 4/5/24 Keeping a lid on your carbon footprint doesn’t stop with your last breath. Your choice of funeral can have a significant environmental impact. In a recent report by the US-based National Funeral Directors Association, 60.5% of those surveyed expressed their interest in greener options including resomation (water cremation) human composting and natural burials.  And while the UK’s funeral preferences are currently split 80:20 between cremations and burials, YouGov research finds that almost a third (29%) of people in the UK would choose alternative committal methods if available. 

I'm 34 and terminally ill, but I'm not scared of death anymore Metro / Microsoft Start, by Jyoti Smith; 3/31/24 I’ve spent the last nine years living with the idea of dying. In 2015, aged 25, I received my terminal diagnosis. ... My prognosis: three-to-five years. But here I am, almost 10 years on, at 34, and I’m living life to the fullest – if on the edge – and it’s largely down to one thing. Embracing hospice care. ... Editor's Note: Jyoti describes her journey and the care she now received from Marie Curie (hospice), in the United Kingdom.

Cancer: It’s not like the moviesUCI Health, by Heather Shannon; 3/21/24Movies have the power to make fictional stories seem so vivid they leave an impression and a feeling that lasts forever. That’s especially true for films about someone diagnosed with cancer who ultimately meets a tragic end. “Patients often come in with an image in their head based on the movies they’ve seen that had a cancer patient in it,” says UCI Health medical oncologist Dr. Arash Rezazadeh Kalebasty. ... Rezazadeh and his co-authors found several problems with how cancer was characterized in the movies, including: Cancer type ...; Curability ...; Palliative care ...

Navigating difficult conversations with patients with terminal cancer diagnoses Oncology Nursing News, by Darlene Dobkowski, MA; 3/18/24 Although oncology nurses need strong communication skills to help all of their patients navigate their cancer journeys, it is critical to have the ability to have difficult conversations with patients who received a terminal diagnosis, ... Betty Ferrell, Ph.D., M.S.N., CHPN, director and professor in the Division of Nursing Research and Education in the Department of Population Sciences at City of Hope in Duarte, California, said in an interview with Oncology Nursing News. For the past 24 years, her institution has been directing a project called the End-of-Life Nursing Education Consortium (ELNEC), which is a palliative care training program and includes a module focused on communication.  ... “One of the things that we teach nurses is … that your No. 1 job is to listen,” Ferrell said. “Another thing that we say to nurses is, it is not your job to have all the answers. Patients ask very unanswerable questions. ‘Why me?’ is not an answerable question. But when a patient says, ‘Why me,’ then we want nurses to have good communication skills to say, ‘I can imagine why you're asking that question. Because as you've shared with me, you had no idea that you might be diagnosed with cancer, or you're the first person in your family to ever have cancer.’”

Is extending life by weeks worth the toll some cancer drugs take? Doctors push for 'common-sense oncology' CBC News, by Amina Zafar and Christine Birak; 3/11/24 People may celebrate a 2-week improvement in survival without acknowledging costs. When a treatment buys a few weeks or months but comes with with a lot of side-effects, then the perspectives of people with cancer may differ, says Dr. Christopher Booth. ... The goal of what they call "common-sense oncology" is to prioritize treatments that meaningfully improve survival and quality of life. They aim to address what they see as problems in the field, such as a lack of critical thinking in oncology training, falling standards for drug approvals and avoidance of end-of-life discussions.

Rising suicide risk among seniors due to loneliness, mobility, financial insecurity, study finds McKnights Home Care, by Adam Healy; 3/5/24As the number of adults over 65 continues to grow, suicide rates among older adults have also been rising, according to data from the National Center for Health Statistics. Between 2008 and 2017, the share of suicide-related emergency department visits among adults 65 years and older more than doubled. These older adults face age-related stressors that can negatively affect mental health, such as declining physical health, reduced mental sharpness, or the loss of friends or loved ones, which can heighten the risk of suicide.