Literature Review

Donate Life Ceremony celebrates organ donors and their families Vanderbilt University Medical Center; by Matt Batcheldor; 5/6/25 In addition to honoring organ donors and their families, the ceremony salutes hospital staff who care for donors and transplant recipients. Seventy-one individuals donated their organs at Vanderbilt University Medical Center in 2024, and they and their families were saluted on April 30 at the annual Donate Life Ceremony. “Those 71 donors resulted in 235 lives that were saved,” said C. Wright Pinson, MBA, MD, Deputy Chief Executive Officer and Chief Health System Officer for VUMC. ...  In addition to that, there were another 191 individuals who made the remarkable gift of tissue donation … which restored sight to the blind, enhanced the lives of burn victims, and gave mobility to those with bone and joint injuries.” ... The ceremony, held in the lobby of Langford Auditorium, was part of a national effort to raise awareness about the need for organ and tissue donors.

It's time to talk about LGBTQ+ elder care Psychology Today - Caregiving; by Stephanie Sarazin, M.P.P.; 5/6/25 A once-hidden story is helping us think about queer kinship and caregiving. Key points:

RFK Jr. is gutting minority health offices across HHS that are key to reducing health disparities NBC New York 4, in partnership with CNBC; by Annika Kim Constantino; 4/30/25 

Designing and developing interprofessional learning experiences in palliative care: A collaborative workshop approachPalliative Medicine Reports; Carolyn Kezar, Justine McGiboney, Michael D. Barnett, Richard Taylor, Rebecca Edwards, Ella H. Bowman, Elizabeth McAlister, Moneka A. Thompson, Tara Schapmire, Chao-Hui Sylvia Huang; 4/25Team-based care is vital in palliative care, but there is limited interprofessional education (IPE) among health care providers, leading to siloed learning. We aimed to design, implement, and evaluate an Interprofessional Education Exchange (IPEX) Death and Dying workshop to foster interdisciplinary collaboration and improve participants’ comfort with palliative care competencies. The primary findings of our study support our initial goal of creating an effective and engaging learning experience, as demonstrated by the significant increase in comfort levels across all interprofessional competency domains. The use of a case-based, interdisciplinary approach to PC [palliative care] education was particularly impactful, with improvements of up to 50% in some areas. Notably, 96% of learners agreed that working with peers from other disciplines enhanced their education, suggesting that early collaboration can improve communication and team-based care in clinical practice.

Location of terminal care in pulmonary hypertensionCJC Open; Ramzi Ibrahim MD; Adam Habib MD; April Olson MD; Farah Shrourou; Hoang Nhat Pham MD; Mahmoud Abdelnabi MBBCh MSc; Maryam Emami Neyestanak PhD; Sabrina Soin DO; See-Wei Low MD; Bhupinder Natt MD; Mamas A. Mamas BMBCh MA DPhil FRCP; Timothy Barry MB BCh BAO; Chadi Ayoub MBBS PhD; Reza Arsanjani MD; Franz P. Rischard MD; Kwan Lee MD; 4/25Palliative care services have seen an increase in utilization in recent years, yet this uptrend has not been observed uniformly across all groups. The recent decline in mortality within inpatient facilities, despite the persistently high mortality rates of PH [pulmonary hypertension], depicts better coordinated patient-centered care, including hospice and at-home services. Nonetheless, place-of-death disparities remain, linked to demographic variables. Specifically, minority ethnic groups in the US have not experienced this increase. These populations often harbor misconceptions and unconscious biases about the nature of palliative care. The Pulmonary Hypertension Association, recognizing this gap, has advocated for the integration of palliative care into the treatment regimen for patients with PH.

Administration to close HHS Civil Rights office Newsmax; by Brian Freeman; 4/28/25 As part of massive cutbacks at the Department of Health and Human Services, the Centers for Medicare & Medicaid Services will shut down their civil rights office in June, according to an email sent to staff on Monday and viewed by Politico. HHS has already been reduced by some 20% as part of overall downsizing, with Secretary Robert F. Kennedy Jr. and President Donald Trump focusing on eliminating those programs and agencies they say promote diversity, equity, and inclusion. ... Complaints that are nearing completion connected to workplace harassment and discrimination will be closed out in the coming weeks, and remaining complaints will be "transferred to an appropriate entity," the email stated.Editor's note: Data from the 2024 NHPCO Facts and Figures Report states: "In CY 2022, 51.6% of White Medicare decedents used the Medicare Hospice Benefit. 38.1% of Asian American Medicare decedents and 37.4% of Black Medicare decedents enrolled in hospice. 38.3% of Hispanic and 37.1% of North American Native Medicare decedents used hospice in 2022." The discrepancies between white and non-white decedents demonstrate double-digit differences. Extensive evidence-based research validates wide gaps in hospice/healthcare for persons whom the HHS Civil Rights office is charged with protecting. For more, visit Office of Civi Rights Home | HHS.gov and Office of Civil Rights About Us. 

Assembly passes bill to allow medically assisted death for terminally ill New Yorkers NNY360, Watertown Daily Times and Northern New York Newspapers, Watertown, NY; by Alex Gault; 4/2925 The New York state legislature is poised to pass a bill that would allow terminally ill people to seek a medication to end their lives, a process called medical aid in dying. On Tuesday, the Assembly voted for the first time to advance a bill, carried by Assemblywoman Amy Paulin, D-Westchester, that would allow a terminally ill patient to ask for a prescription for a lethal medication, to be taken at home on their own terms. 

Top 50 Hospice Providers report now availableHospice News - Flagship Report; 4/30/25The hospice sector has undergone dramatic changes in recent years. Once a nonprofit, volunteer-driven movement, the industry is now a landscape dominated by for-profit entities, private equity, and publicly traded companies. This shift is reshaping care delivery, reimbursement models, and the competition that exists in end-of-life care. Hospice News partnered with Hospice Analytics to rank the largest hospice chains by 2023 Medicare claims. Using proprietary data, including Medicare payments and SEC filings, the report tracks changes in ownership and acquisitions, offering a comprehensive view of the industry landscape. Dive into the data and insights to better understand the evolving dynamics of the hospice industry.Editor's note: The "top" hospice providers is based on the size of chains, not on quality scores. Hospice Analytics--partner for this project--provides quality scores for these through its National Hospice Locator. (Hospice Analytics is a sponsor for this newsletter.)

Bristol Hospice expands, rebrands palliative care program Hospice News; by Holly Vossel; 4/25/25 Bristol Hospice has expanded and rebranded its palliative care program amid rising demand for these services. The hospice provider on Wednesday launched the Bristol Palliative Care program, designed to support seriously ill patients with chronic or life-limiting conditions. Formerly the Advanced Illness Management (AIM) program, the rebranding reflects the hospice’s enhanced patient-centered services and sprawling geographic footprint.

[Brazil] Music therapy in modulating pain in palliative care patients: A systematic review and meta-analysisBritish Journal of Music Therapy; Suellen Fernanda Pinheiro Hammuod, Fernada Gonzalez Santos, Lidiane da Costa Fonseca, Elaine Kakuta, Renata Verão Brito, Karolayne Silva Souza, Eduardo Henrique Loreti; 3/25 Music therapy is an intervention that uses music for therapeutic purposes, helping to preserve mental, physical, and emotional health. Its use in the care of terminally ill patients can assist in managing pain, fatigue, quality of life (QoL), anxiety, and depression. This study aimed to analyze the effects of music therapy on pain in individuals receiving palliative care. Music therapy showed effectiveness in improving pain in patients receiving palliative care ... The effectiveness of music therapy on QoL remains debatable.

7-year-old Clayton girl battling stage 4 cancer enters hospice care at her home CBS-17 News, Raleigh/Clayton, NC; by Matthew Sockol, Maggie Newland, Greg Funderburg; 4/18/25 A seven-year-old girl battling an aggressive cancer has returned to her home in Clayton, her family said Friday. Noelle Franklin was diagnosed with stage four osteosarcoma less than a year ago and received treatment at UNC Children’s Hospital. In a video post on the Noelle Strong Facebook page, her mother Toni said Noelle is entering hospice care at their home. “The staff of UNC went above and beyond,” Toni Franklin said in a statement. “The care Noelle had was more than we could ask for. “Noelle has touched so many people, not just in our community, but in the hospital too,” she continued in her statement. “Seeing how many people came to celebrate Noelle breaking out overwhelmed me with joy. We paraded three different floors, wouldn’t expect anything less for Noelle. “We are home. We are at peace.”

I’m a hospice physician. There’s one thing I dread telling my patients. Slate; by Charlotte Grinberg; 4/22/25 Tom was dying, and managing his condition at home was increasingly difficult. ... His wife Sue was in survival mode. A few sleepless nights turned into weeks without rest, during which she was constantly trying to manage Tom’s symptoms and take care of his basic needs. I’m a hospice physician, and it’s at junctures like this that I can offer a life vest that completely changes the end-of-life experience. ... I told Sue that I thought Tom should transfer to our inpatient hospice facility. “You have done everything possible for Tom at home, it’s too much to ask of you or anybody,” I said. “He needs a higher level of care.” ... Getting a devoted spouse to agree to move their dying partner out of the home isn’t always easy. But a few days after Tom arrived at the inpatient hospice facility, Sue cried tears of appreciation describing the daily baths the caretakers there gave him. 

Prevention of acute hospital transfers for long-term care residents at the end of life American Journal of Hospice and Palliative Medicine (AJHPM); by Kirsten Lanpher, DMS, MSPA, PA-C and Kirsten Brondstater, DMS, MSPAS, PA-C; 3/24/25 Findings: Long-term care residents are a vulnerable population with advanced comorbidities who often require high acuity care and are subject to preventable transfers to the hospital at the EOL. These disruptions in EOL care cause harm and complications, negatively impacting quality of care. The consequences of these events can be mitigated with early advance care planning to include documentation of EOL care goals, onsite medical clinicians to make critical decisions and provide care within LTC facilities, and adequate staffing with proper palliative and hospice care training. Conclusion: Immediate action is needed to advocate for this high risk population and implement interventions to prevent hospital transfers at the EOL, therefore improving quality of care and positively influencing LTC residents’ EOL experience.