Literature Review

Pennsylvania lawmaker introduces ‘No Patient Left Behind Act’ WHTM - PA Homepage; by Brady Doran; 2/19/25 A Pennsylvania lawmaker introduced a bill that would ensure hospitals have visitation policies that balance patient needs with public health protocol. According to Sen. Doug Mastriano (R-33), elderly patients left alone in hospitals experience faster physical and cognitive decline. The No Patient Left Behind Act, introduced by Mastriano, would ensure Pennsylvanians with medical treatment or end-of-life care have support by their sides. “Hospitals should be places of healing. However, for far too many, they have become places of loneliness, despair, and unnecessary suffering,” Mastriano said.

Improving knowledge, confidence, and skills in perinatal bereavement care through simulation in baccalaureate nursing studentsState Nurses Associations - Kansas State Nurses Association; by Shelby True, MSN, RN; Libby Rosen, PhD, RN, IBCLC; Ashley Seematter MSN, RN; Jeri Harvey & Karly Lauer, MSN, RN; 2/20/25Many baccalaureate nursing programs throughout the United States thread concepts of bereavement and end-of-life care throughout their curriculum. However, a standardized education program for nursing students that increases the knowledge, confidence level, and application of skills a nurse must possess when providing perinatal bereavement care is often absent from the curriculum (Sorce & Chamberlain, 2019).  Perinatal loss can have a profound impact on parents and their loved ones, leading to emotional, psychological, physical, and spiritual trauma that deeply affects the lives of those involved. The nursing care each parent receives at the time of the loss may be remembered for years to come and is crucial to determining the nature of the grieving process (Sorce & Chamberlain, 2019). ... To improve the knowledge, confidence, and skill level of nurses providing perinatal bereavement care, a role-play perinatal bereavement simulation was developed and implemented in two Midwestern universities’ baccalaureate nursing programs in the maternal/newborn courses. Editor's note: Having served our hospice's Pediatrics Team for four years, the grief of parents, grandparents, siblings affected me deeply. I remember vividly a young mom unable to physically leave her baby's body with the hospital's nurse. Gently, we held her baby together. Over the course of about 15 minutes, the mother gradually shifted the weight of holding her baby over to me, before the hardest task of her life--leaving the hospital without her child. (It was Christmas week. I bawled when I got home.) Visiting them at the funeral home and after in their home, I experienced horrible, disenfranchised comments and attitudes from others (especially a local preacher). Leaders: tune into your pediatric hospice and palliative team members. What specialized support and education do they need? And, we never know what personal stories of perinatal bereavement those around us continue to carry. 

Still Waters Hospice hosts "Sweet Treats Celebration" for Valentine’s Day ABC KLAX 31, Alexandria, LA; by Sarah Drell; 2/17/25Still Waters Hospice in Alexandria, Louisiana, hosted a "Sweet Treats Celebration" on Valentine’s Day, bringing joy to patients and their families. ... Sarah Zito, Owner, Nurse Practitioner, and Administrator of Still Waters explained why they hosted this lovely event. “We wanted to put this on today because not everyone's Valentine's Day looks the same. And we have a lot of people in our community that are celebrating their first Valentine's Day without their loved ones. And we have a roomful of people and that situation. And so we wanted to take this opportunity and show them that they are still love and we value them and we grieve with them.” ... The "Sweet Treats Celebration" was more than just an event; it served as a testament to the hospice’s dedication to holistic care. 

Witnessing a living funeral Parkview Health; by Tim O'Sullivan, MA, Spiritual and Social Services Supervisor, Parkview Hospice; 2/16/25 ... Rather than planning services after they pass and miss out on a gathering of the people who are most precious to them, some are choosing to schedule a "funeral" while they are still living so they can be a part of the ceremony. These events are known as Living Funerals. As a hospice caregiver, I have seen a rise in the number of these pre-death celebrations of life. While this may not be for everyone, it can be a meaningful experience for those who have chosen to remember a life in this way. I was invited to one of these events and witnessed firsthand the power of acknowledging death while fully living in the moment. ... [Click on the title's link to continue reading.]

Hearts for Hospice showers patients with love Davidson Local, Davidson County, NC; 2/14/25 As people prepare to shower each other with love each Valentine's Day, the annual Hearts for Hospice provides comforting packages to more than 350 patients and families. Staff says that the community initiative is a highly regarded event at [Hospice of Davidson County] HODC, eagerly anticipated by volunteers and staff each year. This Valentine-themed event begins with contributions of sweet treats, stuffed animal items, and personal care items donated by individuals, civic groups, and the business community. Following the drop-offs, a team assembles Valentine-themed goodie bags filled with delightful treats. These lovingly prepared gifts are then delivered to participating patients throughout the service area on Valentine’s Day, creating an opportunity to spread joy, warmth and affection.

Death Matters: The gift of presence: Tips for visiting someone who is dying Squim Gazette, Squim, WA; by Jeanette Stehr-Green, Volunteer Hospice of Clallam County; 2/12/25 We sometimes avoid visiting friends or family members who are terminally ill. We make lots of excuses. We don’t know what to say. We don’t know how to act. We don’t want to be a bother. The hard truth is that dying, the final stage of life, can be a lonely experience without the presence of family and friends. A visit during this time can bring comfort to the dying person and their family. It can also provide an opportunity to share feelings, reminisce, and say goodbye. Visiting a dying person seems difficult because most of us lack experience. It only takes a little courage and a few ideas to create a meaningful moment. ... Editor's note: These excellent guidelines empower hospice patients' families and friends--and protect patients' vulnerable energies and emotions--in multiple settings across the trajectory of dying. How might you adapt these for your own patient/caregiver support and community outreach?

Aging for Amateurs: Valentine's Day brings out the poetry of aging in love The Post and Courier, Charleston, SC ; by Bert Keller; 2/10/2 The week of Valentine’s Day breathes love. Many elders have lived through love’s changing seasons consciously, experiencing what an alive, evolving, hazardous and soul-satisfying thing love is. ... In every long love, the emotional part undergoes a change as the stages of life are lived through. Marriage begins like a bonfire that melts and merges us: our togetherness wants no separation. Then it eases into a practical fire for cooking meals and washing dishes — those years of getting up with the baby, balancing the books, taking out the garbage. ... And then in old age ... love is less a feeling alongside other feelings, and more a shared sense of being with the other. My wife calls it “with-ness.” ... What was transactional in an earlier stage has become grace. After retirement I volunteered to do chaplaincy with a local hospice. I recall a moment sitting at the bedside of a 93-year-old man whose memory was erased by Alzheimer’s disease. He was now dying ... His wife, who also had Alzheimer’s and was no longer capable of much conversation, sat in a wheelchair by his bed and held his hand. She kept repeating to me, tears flowing, “We’ve been married for 73 years, you know.” It was a kind of mantra. How could I know what it’s like to be at the deathbed of a partner with whom you’ve intimately shared 73 years of life? All the stories, all the peaks and valleys, of such a lifetime? ... Editor's note: May we listen and learn.

As I held my dying daughter’s hand, what did I feel? Immense pride in a young woman who – despite a lifetime of complex special needs – taught us that perfection comes in many different guises Express Digest - DailyMail.co.uk; 2/7/25 As I held my dying daughter's hand, what did I feel? Immense pride in a young woman who – despite a lifetime of complex special needs – taught us that perfection comes in many different guises. ... There is no doubt that without her, our own lives might have been easier and much less of an emotional roller-coaster – yet they would also have been so much poorer. For she introduced us to the richness of worlds and wonderful people that we might never have encountered without her.  ... Iona showed that life was for living, despite her disabilities and health struggles. She fuelled my compassion, smoothed my sharper edges and gave me courage ...

What we talk about, or not, when talking about death Enumclaw Courier-Herald; by Wire Service; 2/9/25 Death is a guarantee for everyone, so why do people shy away from talking about it and using words like death and dying? ... As a death doula and grief coach, Kathleen Putnam hopes that providing care to those who are grieving can help change the language surrounding death. ... Putnam explains that in present society, people want to avoid grief and pain. With medical advancements and industries and marketing systems focusing on keeping people alive, the rhetoric surrounding dying has become negative. Putnam also pointed out that instead of using phrases like “they died” or “they’re dying,” other phrases like “pass away” and “they went to sleep” have become popular when talking about a loss.

New report details financial, emotional toll of Parkinson’s on family caregivers McKnights Home Care; by Foster Stubbs; 2/4/25 A new report sheds a light on the unique challenges faced by family caregivers who care for loved ones with Parkinson’s disease (PD). The report, Parkinson’s Disease Caregiving in the US, features insights from secondary analysis and supplementary interviews with 10 PD caregivers. These caregivers average 31 hours of unpaid care per week; half of interviewed caregivers exceed 100 hours each week, according to the report. The National Alliance for Caregiving (NAC), with support from The Michael J. Fox Foundation for Parkinson’s Research (MJFF) and Arcadia University, released the report.  

Garlock: How to prepare children for hardships and tragedies The Citizen; by Dr. Victor Garlock; 2/4/25 All of us must face hardships and tragedies. How well we are able to get through difficult times is a major factor affecting the overall quality of our lives. Sometimes these challenges arrive individually, as in a sudden serious illness, an accident, or the death of a loved one. Sometimes — as in last fall’s devastating floods in North Carolina or the recent wildfires in Southern California — entire communities must find a way to move forward. ... Resilience is the capacity to recover from challenges and adversity. Tragic optimism is the determination to remain optimistic and find meaning and purpose in the face of tragedy. [With children:]

Shameless star Justin Chatwin had a pivotal Law & Order role in a heartbreaking episode NBC; by Jill Sederstrom; 1/30/25 Attorney Nolan Price found himself at odds with his brother, played by Chatwin, as the siblings were forced to make a painful decision. ... Justin Chatwin — who rose to fame on the hit comedy-drama series Shameless — took on the role of Thomas Price, the brother of Executive Assistant District Attorney Nolan Price, in “The Hardest Thing" episode, which premiered on January 30, 2025. The siblings disagreed about how to handle their father’s failing health. ... The brothers had to decide whether they wanted to put in a feeding tube, which could prolong their dad’s life by a few months, or “manage his pain levels” to “make his passing as comfortable as possible," a doctor explained. 

The Handbook of LGBTQIA-inclusive Hospice and Palliative Care, 2nd edition Review in Ageing & Society, published online by Cambridge University Press; book authored by Kimberly D. Acquavia, review authored by Luis Stoisser; 1/23/25 The Handbook of LGBTQIA-inclusive Hospice and Palliative Care is a comprehensive guide to providing inclusive palliative and hospice care to everyone, regardless of their self-identification. Following the author's belief that LGBTQIA+ hospice and palliative care requires change at three levels - individual, institutional and systemic - the book extends state-of-the-art palliative and hospice practices (US focused) by including LGBTQIA+ perspectives. Such a rethinking educates hospice and palliative care practitioners on how to provide person-centered care, how to be self-reflexive on a daily basis and how to handle their own stereotypes and stigmas. [This book is available via Columbia University Press and Amazon.]