Literature Review

Palliative care is about living better — not giving up Patch, Westport, CT; by Hartford HealthCare, featuring Dr. Sara Dost; 8/31/26 For many patients and families, the words palliative care can be difficult to hear. Some assume it means treatment has stopped. Others confuse it with hospice care or believe it is only appropriate during the final stages of life. But according to Dr. Sara Dost of Hartford HealthCare's Cancer Institute at St. Vincent's Medical Center, palliative care is about something much different: helping people feel better and live as fully as possible while facing a serious illness. “I like to call palliative care supportive care,” Dr. Dost said. “We help patients deal with side effects, decision-making and the challenges that can come with a serious illness. Think of us as an extra layer of support.”

The death I feared, and the peace I found Gillette News Record; by Michelle Mathal; 8/29/26 ... From the dreaded day my brother was diagnosed, to two years later when my parents tragically died in a car accident and I surfaced from the glacial water knowing I had to live to be his caregiver, to grieve alone. ... We enrolled in hospice earlier than most because Tomas was falling and losing movement in his left hand. ... No one told me that caring for a dying person would be so intimate. When I dressed him in the morning, I realized we had the same hands and feet, big enough that we should’ve been a foot taller. No one told me about the deep trust between caregiver and patient. It is a sacred pact not bound by blood, but an understanding that we would be seen at our most vulnerable and sensitive times, but not judge each other for these moments, but respect one another despite them.

[Israel] Hadassah Hospice: bringing meaning it life Hadassay.org | Medicine & Research, Jerusalem, Israel; Press Release; 8/26/26 "Outside, there may be conflicts and wars, but inside these walls is a small microcosm, disconnected from the outer world, that concentrates on humanity." This is how Dr. Daniel Azoulay described the Inna and Jack Kay Hospice at Hadassah Hospital Mount Scopus. ... This October, the hospice is marking 40 years since its founding by Dr. Reuven Fink and nurse Ruth Shahal-Gassner. In the quiet place Dr. Azoulay describes, the staff provides end-of-life palliative care to some 220 patients every year. "There's a closeness here among Jews and Muslims, religious and secular people. At the end of life, everyone is the same — everybody asks that their suffering be alleviated and battles the same anxieties and fears," said Dr. Azoulay, who is head of palliative service and responsible for the Hospice Department.Editor's Note: May we listen and learn. In the midst of our deluge of political wars each way we turn, may we find ways to "concentrate on humanity." Read again: "There's a closeness here among Jews and Muslims, religious and secular people. At the end of life, everyone is the same — everybody asks that their suffering be alleviated and battles the same anxieties and fears."

American Society of Nephrology (ASN) comments on CY2027 ESRD PPS QIP Requests for Information (RFIs)American Society of Nephrology; official comments letter from ASN to Centers for Medicare & Medicaid Services; 8/24/26RE: CMS-1846 Medicare Program; CY2027 Changes to the End-Stage Renal Disease (ESRD) Prospective Payment System, Acute Kidney Injury Dialysis (AKI) Payment, and ESRD Quality Incentive Program On behalf of the more than 37,000,000 Americans living with kidney diseases and the 22,000 nephrologists, scientists, and other kidney health care professionals who comprise the American Society of Nephrology (ASN) ... In this letter, ASN provides feedback on the following requests of information (RFIs): ...

Ethics of artificial intelligence prognostication in palliative care: perspectives from a national survey of palliative care physicians BMJ Supportive Palliative Care; by Ahmed Y Alasmar, Lauren Gunn-Sandell, Stacy M Fischer, Regina M Fink, Elizabeth Juarez-Colunga, Eric G Campbell, Matthew DeCamp; 8/2-/26, online ahead of print ... Although global consensus is emerging about the importance of ethical principles for artificial intelligence (AI), such as respecting autonomous choice, promoting patient well-being, reducing bias, trust, and more, little is known about how palliative care physicians perceive these issues. This study aims to improve understanding of palliative care physicians' perspectives about the ethics of AI-based prognostication. Conclusion: Palliative care physicians see the potential of AI-based prognostication to improve palliative care and also express ethical concerns. Implementation of AI requires context-specific ethical guidance responsive to palliative care, where relationships and communication are paramount.

[Israel] Existential suffering at the end of life in long-term care: A critical essay on recognition, dignity, and witnessPalliative Care & Social Practice; by Anat Romem, Rachel Bardach; 7/26Existential suffering is widely acknowledged in palliative care, but it remains inconsistently recognized and unevenly addressed in long-term care. This critical essay argues that the gap is not caused by clinician indifference, but by a persistent mismatch between whole-person ideals and care systems organized around measurable symptoms, risk management, task completion, and professional uncertainty. [This] ... essay identifies three interrelated shortcomings: the reduction of suffering to medically actionable symptoms; the depersonalizing effects of institutional routines on frail older adults; and the absence of shared existential literacy across interdisciplinary teams. The essay also cautions against romanticizing suffering or treating meaning-making as a clinical expectation. It proposes a practical framework of recognition, dignity, and witness: recognizing biography and identity as clinically relevant; protecting dignity in the ordinary details of care; and enacting witness ... Long-term care cannot resolve every existential wound, but it can reduce existential neglect by treating personhood as a core quality indicator of palliative care.

New York's Medical Aid in Dying Act takes effect: what clients and providers need to know JDSupra; by Dana Walsh Sivak; 8/18/26 ... Provider Obligations and Protections

45 minutes saved per admission: how one hospice is re-shaping their businessHospice News; by Jack Silverstein; 8/17/26When Dar Miller came to Faith Hospice of Arizona two years ago, the organization’s census was just over 100 and their staff worked overtime to enter patient profiles. Now, their average daily census is 135-140, while their nurses have more time available at the bedside and with families. The change? Faith Hospice’s relationship with their pharmacy partner OnePoint Patient Care, whose combination of collaboration, communication, integrated technology and process ensures that hospices are not only getting the best pharmacy service possible, but that their operation is always evolving with the times.

Dad demands answers after daughter dies of rare cancer: why are so many kids getting sick in this community? (exclusive)People; by Wendy Grossman Kantor; 8/14/26Lilly Dalton grew up a few miles from Ladera Ranch, where at least a dozen young people and children have been diagnosed with Ewing sarcoma. Three days after graduating from college at Loyola University in New Orleans, Lilly Dalton told her parents her stomach hurt. Doctors found a tumor on the 21-year-old’s liver and she was diagnosed with a very rare, one-of-a-kind cancer. Lilly was raised in Laguna Niguel, a city in Orange County, Calif. — just six miles from Ladera Ranch, where 12 children and young adults have been diagnosed with another rare cancer, Ewing sarcoma. “That’s not a coincidence,” says her father, Brian Dalton, 49, who now lives in Meridian, Idaho, with Lilly’s mom, Nicole Dalton, 50.