Literature Review
All posts tagged with “Clinical News | Advanced Illness Management News.”
Medicare pushes end-of-life discussions in hospitals
06/30/26 at 03:00 AMMedicare pushes end-of-life discussions in hospitalsAXIOS; by Maya Goldman; 6/29/26The Trump administration wants to formalize the process for recording whether Medicare patients want to be kept alive if they become incapacitated. Why it matters: Health providers have been required to ask about living wills and other "advance directives" since the early 1990s. But the questions are often skipped - or become a box-check in the admissions process. Only about a third of U.S. adults have documented their end-of-life care wishes. More consultations could reduce costly life-extending treatments that patients don't really want.Driving the news: The administration is proposing that hospitals begin reporting adult patients' preferences for end-of-life care in electronic health records starting in 2028.
Difficulties in honoring patient requests for hospice when relying on surrogate decision-makers: A case study
06/27/26 at 03:15 AMFlying high: A Rainbow veteran’s late-life adventure
06/26/26 at 03:00 AMFlying high: A Rainbow veteran’s late-life adventure Watertown Daily Times, Watertown, WI; by Kenyon Kemnitz, Rainbow Community Care; 6/24/26 [The story of a 98 year-old veteran in hospice care going on an Honor Flight to Washington DC.] Behind the scenes, the Rainbow [hospice] staff balanced rigorous clinical planning with deep emotional support. Amanda served as the clinical anchor for the mission. Initially, there were discussions about postponing his flight until May, but Raduege advocated for keeping the timeline the same. She coordinated with the Honor Flight’s specialized medical team and ensured that every potential health variable was addressed long before takeoff. ... The Honor Flight carried over 80 veterans, but Weber was the patriarch of the group. ... Throughout the day, he was accompanied by his own personal medic, an EMT named Travis, who stayed by his side, providing a continuous blanket of clinical safety and companionship.
Family caregivers' perspectives on challenges and support needs in hospital-based palliative care for persons living with dementia
06/24/26 at 03:00 AMFamily caregivers' perspectives on challenges and support needs in hospital-based palliative care for persons living with dementia Baylor Medicine | Texas Medical Center Documents ; by Jung Kwak, Anita Chary, Sarah Stayer, Kwaku Duah Oppong, Sumin Yoon, Snehal Patel, and Elizabeth A Kvale; originally pub 11/17/25, reposted online 6/23/26Palliative care needs of hospitalized persons living with dementia (PLWD) and their family caregivers remain poorly understood. ... Thematic analysis of interviews revealed three themes: the value of palliative care in navigating end-of-life uncertainty in dementia, uncoordinated and reactive care during hospitalization, and lack of guidance for post-hospital transitions. While caregivers valued palliative care for emotional and decision-making support, findings underscore the need for earlier integration and improved coordination across hospital teams to better support families.
Dying patients shouldn’t have to choose between dialysis care and comfort
06/23/26 at 03:00 AMDying patients shouldn’t have to choose between dialysis care and comfort The Boston Globe, Boston, MA; by Patricia Ramsden; 6/22/26 ... Medicare currently requires most end-stage kidney failure patients to choose between dialysis and hospice benefits. ... People dying from other terminal illnesses do not face this harsh choice. For several years, Dialysis Clinic, Inc. (DCI), the only national not-for-profit dialysis organization, has collaborated with not-for-profit hospice organizations to offer concurrent palliative dialysis and hospice care to selected patients in Tennessee and Western Pennsylvania. A 2026 collaboration between DCI and Care Dimensions, the largest hospice provider in the state, expanded that model to Eastern Massachusetts. However, this innovative program, relying on philanthropic funding, remains available only to a few patients.
Dying without a safety net
06/23/26 at 03:00 AMDying without a safety net MedCityNews; by Darren Schulte; 6/21/26 Recently, I reviewed the case of a woman with advanced metastatic breast cancer – we’ll call her Helen. ... As one therapy after another failed, Helen cycled in and out of the hospital: complications from treatment, complications from the cancer itself, and each time the system responded the only way it knew how – rapid escalation, ICU stays, more procedures, more drugs. Finally, a palliative care team was consulted during her last hospitalization. After long family meetings, Helen was discharged to hospice and died days later. Throughout that final year, Helen suffered. No one on her medical team had documented her wishes, preferences, or goals of care. No one had walked her through the trade-offs she faced with each treatment decision. The system did what it was designed to do, and it failed her completely.
The illusion of choice at the end of life
06/23/26 at 03:00 AMThe illusion of choice at the end of life Huffpost Personal; by Jennifer Obel, MD; 6/21/26 After the hospice nurse increased my mother’s morphine drip to ease the feeling of drowning, my mom never spoke to me again. By then, her metastatic lung cancer had taken nearly everything: her strength, her vigor, her independence. What remained was breathlessness that came in waves, each one more frightening than the last. The morphine was meant to quiet her panic and soften the feeling of suffocation. It did. It also closed the door on any final conversation. I was both daughter and oncologist, and the weight of those roles was devastating. I understood what was happening physiologically from decades of treating patients. That knowledge did nothing to make it easier to sit at her bedside, waiting for her to wake, unsure if she could hear me or say goodbye. ...
Cracks in the AI crystal ball: why clinical prediction tools fall short in the real world
06/23/26 at 03:00 AMCracks in the AI crystal ball: why clinical prediction tools fall short in the real world Journal of General Internal Medicine; by David Gamble MD, Andrew Wong MD, MS and Amiran Baduashvili, MD; 6/22/26 ... In this issue of the Journal of General Internal Medicine, Patel and colleagues evaluate the real-world performance of five Epic predictive AI tools: the Deterioration Index, Sepsis Model, Unplanned Readmission Model, End-of-Life Care Index, and Patient No-Show Model. Their systematic review and meta-analysis, encompassing 22 studies and over two million patients, focused on the models’ ability to distinguish between patients who ultimately did and did not experience a specific outcome—a property known as discrimination.
[Portugal] Reiki and Therapeutic Touch for symptom burden and quality of life in palliative settings: A systematic review
06/20/26 at 03:05 AM[Portugal] Reiki and Therapeutic Touch for symptom burden and quality of life in palliative settings: A systematic reviewPalliative Medicine; by Raquel Pontes-Gomes, Paulo Reis-Pina; 5/26Evidence regarding Reiki and Therapeutic Touch in palliative and end-of-life care remains limited and heterogeneous. Nine studies involving 415 participants were included: five mixed-methods studies, three randomized controlled trials, and one qualitative cross-sectional study conducted in North America (n = 6) and Europe (n = 3). Cancer was the predominant diagnosis. Some studies reported improvements in symptoms (pain, anxiety, depression, fatigue, and stress), and in quality-of-life domains (sleep, relaxation, energy, hope, and emotional well-being). Qualitative findings described perceived relaxation, comfort, and emotional support. Further well-designed studies are needed to clarify their potential role in palliative care.
Serious illness care exclusion, disclosure, & trust for older gay men & caregivers in the Deep South
06/20/26 at 03:05 AMSerious illness care exclusion, disclosure, & trust for older gay men & caregivers in the Deep SouthJournal of Pain & Symptom Management; by Korijna Valenti, Margaret Armstrong, Michael Barnett, Stacy Smallwood, Ronit Elk; 5/26Older gay men in the Deep South experience serious illness within healthcare systems shaped by heteronormativity and structural racism. Although disparities in access and disclosure are documented, less is known about how negative or ambiguous healthcare encounters are interpreted in serious illness settings. Using a community-based participatory research approach, we conducted semi-structured interviews with 16 participants (11 patients aged 50 years or older living with serious illness and 5 caregivers) residing in the Deep South. Five themes emerged: discriminatory experiences and bias, clinician communication gaps, exclusion from decision-making, system-level gaps in care quality, and disclosure, trust, and safety. Participants described overt and subtle forms of bias, dismissal of partners in clinical encounters, rushed or unclear communication, and institutional barriers that intensified vulnerability during serious illness. Black participants more frequently identified racialized experiences and contextualized mistrust within histories of systemic racism.
Palliative care utilization, advance care planning, and outcomes among older adults with cancer presenting to the emergency department
06/19/26 at 03:00 AMPalliative care utilization, advance care planning, and outcomes among older adults with cancer presenting to the emergency department Academic Emergency Medicine; by Meredith Janes, Nancy Wood, Emily Strong, Lisa Smith, Eric Snyder, Sule Yilmaz; 6/17/26 Conclusions: Older adults with cancer presenting to the emergency department (ED) experience high rates of hospitalization, intensive care use, and short-term mortality, yet palliative care remains underutilized. Although advanced care planning (ACP) documentation increased during acute care encounters, these changes often occur with clinical deterioration. The ED offers an opportunity to identify unmet palliative care needs and facilitate earlier integration.
‘Unmet needs’: Clinicians agree spiritual care important in cancer, but do not provide it
06/18/26 at 03:00 AM‘Unmet needs’: Clinicians agree spiritual care important in cancer, but do not provide it Healio; by Josh Friedman; 6/17/26 Most clinicians agree that spiritual care is “essential” to taking care of patients with cancer, but only a fraction routinely screen for distress. In a survey of nearly 700 oncologists, hematologists and palliative care clinicians, more than 90% agreed spiritual suffering can negatively affect outcomes, yet many of those respondents reported screening should not be part of their professional role, and less than 15% said they always screened for spiritual distress.
The collusion in discussing prognosis with cancer patients
06/17/26 at 03:00 AMThe collusion in discussing prognosis with cancer patients MedPage Today's KevinMD.com; by Kyle Edmonds, MD; 6/14/26 Two people sit in an exam room. One has an illness that will end their life. The other knows. Neither wants to say it out loud, so neither does. The conversation drifts toward next steps (another scan, another line of therapy, another visit on the calendar), and both leave the room feeling that it went well. This is not a thought experiment. In 2012, the New England Journal of Medicine published a study by Jane Weeks and colleagues that should have changed practice overnight. ... That was 2012. Same finding turned up again recently: 986 advanced cancer patients, 74 percent still misperceiving their treatment’s intent. The pattern is alive and well.
Well-timed nudges help care providers to honor the wishes of patients with cancer according to study
06/16/26 at 03:00 AMWell-timed nudges help care providers to honor the wishes of patients with cancer according to study National Comprehensive Cancer Network; edited by Gaby Clark and reviewed by Andrew Zinin; 6/15/26 New research in the June 2026 issue of Journal of the National Comprehensive Cancer Network finds that small, targeted prompts delivered to both patients and providers at the right moment can significantly increase the number of serious illness conversations that take place. The randomized controlled trial out of Dana-Farber Cancer Institute tested two simple nudges designed to encourage important conversations between patients with cancer and their oncologists about goals and preferences for care. ... When these nudges were combined, these conversations occurred significantly more often.
Hospice care takes a community: Lynn Mock
06/16/26 at 02:00 AMHospice care takes a community: Lynn Mock Cleveland.com, Cleveland, OH; by guest columnist Lynn Mock, chief strategy officer for Reserve Care; 6/14/26 ... Across Northern Ohio, families face some of life’s most difficult moments when a loved one is living with serious illness. In those moments, medical expertise matters. But so does something less clinical, but just as essential: human presence. Hospice brings both. ... This support allows patients to focus on what matters most in the time they have. But hospice does not stand alone in that work. It is strengthened by the community around it. ... Community support also makes grief care possible.
The missing middle in healthcare—and why it matters | part two
06/15/26 at 03:00 AMThe missing middle in healthcare—and why it matters | part one Teleios Collaborative Network (TCN); podcast hosted by Chris Comeaux with Bridget Sumser and Sonya Dolan; 6/20/26 What happens between a life-changing diagnosis and hospice care? In Part One of this thought-provoking conversation, Chris Comeaux welcomes Mettle Health co-founder Sonya Dolan and Director of Counseling & Programs Bridget Sumser to explore what they call healthcare’s “missing middle.” ... Together, they unpack how Mettle Health was created to provide a different kind of support: one centered on accompaniment rather than treatment, resilience rather than answers, and human connection rather than healthcare transactions.
A humanities curriculum for preparing medical students to work with dying patients
06/13/26 at 03:40 AMAmbiguity at the end of life: Clinical heuristics and the problem of terminal illness
06/13/26 at 03:25 AMTop ten tips all palliative care clinicians should know about Anorexia Nervosa and eating disorder care
06/13/26 at 03:15 AMThe clinical relevance of sleep disturbance ("insomnia") in patients with advanced cancer receiving palliative care: A scoping review
06/13/26 at 03:10 AMThe clinical relevance of sleep disturbance ("insomnia") in patients with advanced cancer receiving palliative care: A scoping reviewSupportive Care in Cancer; by Shauna Munir, Eva Jones, Faith Precious Omeokwe, Andrew Neil Davies; 5/26Sleep disturbance ("insomnia") is common in patients with advanced cancer receiving specialist palliative care. The studies highlight that sleep disturbance is associated with a range of physical symptoms (e.g. fatigue, drowsiness), a variety of psychological problems (e.g. anxiety, depression), impaired quality of life, and reduced overall survival. Sleep disturbance is an "orphan" symptom, and the results of this scoping review suggest that it deserves much greater attention. Indeed, healthcare professionals should screen all palliative care patients for the problem and, when identified, perform a thorough assessment and initiate an appropriate treatment.
Managing cancer-related pain in patients receiving long-acting buprenorphine for opioid use disorder
06/13/26 at 03:05 AM[China] The quiet between goodbyes: Witnessing, holding, and remaining present at the end of life
06/13/26 at 03:00 AMHow Mayo Clinic adopted an innovative AI tool for palliative care utilization
06/12/26 at 03:00 AMHow Mayo Clinic adopted an innovative AI tool for palliative care utilization HealthLeaders; by Christopher Cheney; 6/10/26 The AI tool not only identifies hospitalized patients with serious illnesses who could benefit from palliative care services but also targets these patients faster than the health system could in the past. ... To address underutilization of palliative care services, Mayo Clinic and Bayesian Health developed an AI tool to boost palliative care in the hospital setting.
The missing middle in healthcare—and why it matters | part one
06/11/26 at 03:00 AMThe missing middle in healthcare—and why it matters | part one Teleios Collaborative Network (TCN); podcast hosted by Chris Comeaux with Bridget Sumser and Sonya Dolan; 6/20/26 What happens between a life-changing diagnosis and hospice care? In Part One of this thought-provoking conversation, Chris Comeaux welcomes Mettle Health co-founder Sonya Dolan and Director of Counseling & Programs Bridget Sumser to explore what they call healthcare’s “missing middle.” ... Together, they unpack how Mettle Health was created to provide a different kind of support: one centered on accompaniment rather than treatment, resilience rather than answers, and human connection rather than healthcare transactions.
Father with terminal illness fights to attend MHSAA championship to see son play
06/08/26 at 03:00 AMFather with terminal illness fights to attend MHSAA championship to see son play Northeaset Mississippi Daily Journal, Tupelo, MS; by Caleb McCluskey; 6/6/26 From the time Carter Barefoot, 17, could walk, he was playing baseball, especially with his father, Alan Barefoot, who played Division I baseball in college. But illness has limited his father’s ability to enjoy the game they have shared throughout their lives. ... “He never missed a game,” Carter said. After doctors diagnosed Alan, 55, with terminal cancer and admitted him to Sanctuary Hospice, he physically could not be there for most of Carter’s junior-year season. Sanctuary made it happen, arranging for Alan to attend the playoffs in Pearl, where he watched his son’s Mooreville team become Class 4A state champion. It meant the world to Carter to see his dad there.
