Literature Review

All posts tagged with “Clinical News | Advanced Illness Management News.”



Apathy in dementia with Lewy bodies: Frequency, correlates, and impact on patient and caregiver experiences

08/01/26 at 03:20 AM

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Pruritus, fever, and sweats at the end of life: Nursing assessment and management considerations

08/01/26 at 03:15 AM

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Nearly 500 readers shared stories of deathbed visions. Here are 10.

07/28/26 at 03:00 AM

Nearly 500 readers shared stories of deathbed visions. Here are 10. The Washington Post; by Caitlin Gibson and Stephanie Arrigotti; 7/26/26 When we pub­lished our recent project about end-of-life dreams and vis­ions, we invited Post read­ers to share their per­sonal exper­i­ences with this phe­nomenon. ... I hoped we might col­lect a few dozen anec­dotes. To date, we’ve received about 500 sub­mis­sions and count­ing. It’s been a priv­ilege to read every one. ... The major­ity of people who wrote in — no mat­ter how they made sense of what they’d seen — described an exper­i­ence that seemed to instill a sense of calm or solace in the per­son who was dying, and in turn, brought a last­ing com­fort to their bereaved care­givers. From those hun­dreds of accounts, here is a selec­tion of 10. The fol­low­ing are drawn from writ­ten sub­mis­sions and fol­low-up inter­views, and edited for length and clar­ity.

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Poverty level affects end-of-life care in adolescent and young adult cancer patients

07/27/26 at 03:00 AM

Poverty level affects end-of-life care in adolescent and young adult cancer patients  Cancer Therapy Advisor; by Liam Andrew DAvenport, MA; 7/24/26 Adolescent and young adult (AYA) cancer patients from high-poverty neighborhoods face disparities in end-of-life (EoL) care, according to research published in the Journal of the National Comprehensive Cancer Network. AYA patients from high-poverty neighborhoods have more emergency department visits and hospitalizations, and less hospice use, than their low-poverty counterparts, study researchers reported. ... Eligible patients had been diagnosed with cancer and died between 12 and 39 years of age, and were enrolled in one of the participant health systems for more than 90 days prior to their death. 

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Caring with confidence: A guided approach to end-of-life care

07/25/26 at 03:35 AM

Caring with confidence: A guided approach to end-of-life careJournal of Pain & Symptom Management; Laura Maldoon, Stacy L. Nilsen; 6/26Nurses may face uncertainty when caring for dying patients due to inadequate education and experience. This uncertainty coupled with varying practices for end-of-life care may affect both care quality and nurses’ attitudes. In nurses caring for hospitalized End-of-Life patients, does having a guided End-of-Life template and care resources, compared to current practices, improve registered nurse attitudes in providing individualized end-of-life care? Two inpatient nursing units received a 30-minute End-of-Life educational intervention utilizing the City of Hope’s Comfort, Airway, Restlessness and Delirium, Emotional and Spiritual Support (CARES) toolset as a standard resource to assess and prioritize end-of-life symptom management and family communication. This project suggests improved comfort and confidence among RNs in providing end-of-life care with the use of the CARES toolset. Nurses also demonstrated increased interest in seeking additional education.

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The effect of palliative care involvement in vascular patients at the end-of-life

07/25/26 at 03:30 AM

The effect of palliative care involvement in vascular patients at the end-of-lifeJournal of Vascular Surgery; by Angela McCarthy, Kristy Wrana, Emma Triantafyllou, Ya-Huei Li, Carol Strycharz, Lindsay Lynch, Edward D Gifford; 6/26Vascular surgeons frequently manage critically ill patients and support complex end-of-life decision-making. Despite well-documented benefits of palliative care in serious illness, prior studies report that only 25% of vascular patients near the end of life received such support. Those without a palliative consult were more likely to undergo a code (18.0% vs. 6.6% ... ). After palliative consultation, the proportion of patients with a code status of do-not-resuscitate increased from 50.0% to 77.4%, and the proportion with a full code designation decreased from 50% to 22.6%  ... Patients with the goal of care to allow natural death increased to more than half of the patients from 18.4% after the palliative consultation ... These findings highlight an opportunity for vascular surgeons to proactively integrate palliative care, improving alignment between clinical interventions and patient preferences.

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“A lot of the times, patients really don’t know what questions to ask:” Communication perspectives of Black patients with advanced lung cancer

07/25/26 at 03:10 AM

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[Italy] Fever in a palliative care setting: Clinical insights and implications from a prospective observational cohort study

07/25/26 at 03:05 AM

[Italy] Fever in a palliative care setting: Clinical insights and implications from a prospective observational cohort studyPalliative Medicine; by Stefania Cheli, Elena Angeli, Oscar Corli, Sofia Dinegro, Agostino Zambelli, Tania Carta, Romina Shazivari, Michaela Smolikova, Paolo Franceschi, Francesco Molà, Yara Silva Cruzeiro, Emilio Clementi, Andrea Gori; 5/26Fever is a frequent but complex symptom in adults with a limited prognosis, arising from multifactorial causes beyond infection. The study was conducted in an inpatient hospice palliative care unit within the Luigi Sacco Hospital in Milan, Italy (January and December 2024). Fever occurred in 40% of patients, with a median onset of 5.5 days after admission. In 39.7% of cases, fever was attributed to infections, mainly catheter-associated urinary tract infection. Its strong association with medical devices highlights the need for proportional, personalised interventions that primarily consider prognosis, symptom relief, and quality of life.

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Only one in five U.S. young adults with advanced cancer receive palliative care as part of treatment, study shows

07/24/26 at 03:00 AM

Only one in five U.S. young adults with advanced cancer receive palliative care as part of treatment, study shows American Cancer Society, Atlanta, GA; Press Release; 7/23/26 Young adults with advanced cancer face unique challenges that make palliative care especially important. This population often experiences physical, emotional, and social needs while undergoing treatment, related to their developmental and life-stage transitions. However, a new study by researchers at the American Cancer Society (ACS) reveals that despite a small increase in use over time, only 18.3% of young adults in the United States with advanced cancer received palliative care as part of treatment in 2023. The study is published today in the Journal of the American Medical Association (JAMA) Network Open. 

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Difficult discussions: How UTC nursing faculty are using AI to teach the hardest conversations in care

07/22/26 at 03:00 AM

Difficult discussions: How UTC nursing faculty are using AI to teach the hardest conversations in care The University of Tennessee Chattanooga, Chattanooga, TN; by Chuck Wasserstrom; 7/20/26 Two University of Tennessee at Chattanooga College of Nursing faculty members recently shared their work on AI-assisted simulation with an international audience, leading a webinar on how the technology can help prepare graduate nurse practitioner students for difficult conversations in palliative care: Dr. Chris Doneski, director of UTC’s acute care nurse practitioner program and a simulation faculty member, and Dr. Rosebelle Peters, nursing simulation program director and senior lecturer. ... The presentation centered on a gap the two faculty members see in graduate nursing education. Doneski said students often receive training in procedures, prescribing and transition to practice, but communication training for difficult situations can be harder to build in meaningful ways. ... The recorded webinar is available through HealthySimulation.com. Users must register for a free account to view it.

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Palliative Care team manifests dreams of butterbeer and Harry Potter

07/22/26 at 02:00 AM

Palliative Care team manifests dreams of butterbeer and Harry Potter Vanderbilt Health News, Nashville, TN; by Jill Clendening; 7/20/26 After Mike Guth and his family learned that his pancreatic cancer had advanced beyond treatment, the Vanderbilt Health Palliative Care team worked magic to make a dream trip possible. ... Mike, 53, a beloved high school social studies teacher in southern Indiana and father of four, was diagnosed with Stage 2 pancreatic cancer in early 2025. ... Mike has always loved the magical lore of Harry Potter, excitedly consuming the books and movies with their children (now adults). Mike perhaps seized inspiration from the plot twists of the fantasy series to say he still longed to visit The Wizarding World of Harry Potter in Orlando, Florida. With careful planning to manage symptoms and stay on top of hydration, the Vanderbilt Health Palliative Care team surprised the Guths and said his dream was doable. ... Palliative care physician Zack Watson, MD described, "for him to have that time with his kids and his wife. Hopefully, this gave them an anchor of joy in the midst of this really tough time." On July 14, Mike died peacefully at home, surrounded by his loved ones.

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H.R.9703 - Improving access to transfusion care for hospice patients act of 2026

07/21/26 at 03:00 AM

H.R.9703 - Improving access to transfusion care for hospice patients act of 2026 U.S. Congress.gov, House Ways and Means Committee; sponsored by Rep. Debbie Dingell (D-MI-6); bill introduced 7/15/26 H.R. 9703: To require the Center for Medicare and Medicaid Innovation to test allowing blood transfusions to be paid separately from the Medicare hospice all-inclusive per diem payment.

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Some kids come here for vacation. Others come to die. Either way, parents are grateful

07/21/26 at 03:00 AM

Some kids come here for vacation. Others come to die. Either way, parents are grateful USA TODAY, San Leandro, CA; by Madeline Mitchell; 7/20/26 ... There are mainly two kinds of families who come to George Mark's Children's House. Some come for respite, entrusting their medically fragile but otherwise stable children to skilled nurses while parents leave for a much-needed break from around-the-clock caregiving. Others come for pediatric end-of-life care, a rare and essential service that changed the trajectory of CEO Shekinah Eliassen's life. These parents stay with their children at George Mark and can bring the patient's siblings, too, to soak in their last days together. "This type of service, I believe, should be part of the system of pediatrics," Eliassen says, adding that families never see a bill for their visits. Her son, Lars, died at George Mark when he was 21 days old, after he was born having seizures. 

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“I wish to be in the same room as my wife so I can hold her hand”: CalvertHealth grants husband’s final wish

07/21/26 at 02:00 AM

“I wish to be in the same room as my wife so I can hold her hand”: CalvertHealth grants husband’s final wishThe Baynet, Calvert County, MD; by CalvertHealth; 7/19/26 It was one final wish Phillip “Phil” Pfanschmidt shared after learning he had terminal cancer. Just days earlier, his wife of more than 66 years, Joyce “Joy” Pfanschmidt, had entered hospice care at CalvertHealth Medical Center. Now, Phil had entered hospice as well. When members of the palliative care team asked about his wishes, he didn’t hesitate.He wanted to be with Joy.Caregivers across CalvertHealth worked together to make that wish a reality. Phil was reunited with Joy, and the couple spent precious moments together, hand in hand. Less than two hours later, Joy peacefully passed away with her hand resting on Phil’s arm.

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An updated analysis of serious health-related suffering from 2021 to 2023

07/20/26 at 03:00 AM

An updated analysis of serious health-related suffering from 2021 to 2023 Journal of Pain and Symptom Management; by Afsan Bhadelia, Xiaoxiao Jiang Kwete, Tania Pastrana, Héctor Arreola-Ornelas, Jinfeng Ding, Oscar Méndez-Carniado, Lukas Radbruch, William E Rosa, Hongliang Tao, Valentina Vargas Enciso, Felicia Marie Knaul; 7/15/26 Results: Between 2021 and 2023, global serious health-related suffering (SHS) grew by 3.9% - outpacing population growth (1.8%) - driven by sharp increases in upper-middle-income countries (UMICs) (5.5%) and high-income countries (HICs) (5.2%) and notable condition-specific increases in SHS associated with lung disease (18.2%), inflammatory disease of the central nervous system (11.4%), and dementia (7.9%). Moreover, increases in SHS due to cancer were particularly stark in LICs (17.8%), while injuries markedly rose in HICs (15.9%).

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Personal experience fuels Jeannie Meyer's commitment to helping the homeless die with dignity

07/20/26 at 03:00 AM

Personal experience fuels Jeannie Meyer's commitment to helping the homeless die with dignity UCLA Health; by Sandy Cohen; 7/15/26  The UCLA Health palliative care nurse is a national advocate for recording end-of-life wishes for unhoused individuals. Jeannie Meyer, MSN, didn’t realize she was homeless as a child. She thought everyone moved from place to place, hotel to hotel, and never answered the phone or the door in case a bill collector was on the other side. “I knew what ‘eviction notice’ meant when I was 5 years old,” she says. Those childhood experiences made her empathetic, but it was the pain of learning that her alcoholic father died on Skid Row that inspired Meyer, a palliative care nurse at UCLA Health, to advocate for advance care planning for homeless people.

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Emotional and ethical impacts on healthcare professionals performing cardiopulmonary resuscitation

07/18/26 at 03:40 AM

Emotional and ethical impacts on healthcare professionals performing cardiopulmonary resuscitationAmerican Journal of Hospice & Palliative Medicine; by Patrick J. Macmillan, Susan Hughes, Dumindra Gurusinghe, Allison Go, Chase Lancaster, Iris Price; 6/26Many studies exist outlining poor outcomes related to cardiopulmonary resuscitation (CPR) administered to patients who are elderly and/or have comorbid medical conditions with sudden cardiac arrest. Studies show only 10% of patients with out-of-hospital cardiac arrest and initial asystole survive until they reach the hospital. Less than 5% survive until hospital discharge with good neurologic function. This study presents data that suggests that there is an association between moral distress and performing CPR on individuals who are elderly with multiple comorbid medical conditions. More than sixty percent of our respondents were challenged emotionally during these types of code situations, and a similar number of healthcare workers felt the code could be considered unethical.

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Restarting medications after deprescribing in adults discharged from hospital to skilled nursing

07/18/26 at 03:35 AM

Restarting medications after deprescribing in adults discharged from hospital to skilled nursingJAMA Network Open; by Thomas J. Reese, Sandra F. Simmons, Eduard E. Vasilevskis, Emily K. Hollingsworth, Matthew S. Shotwell, Amanda S. Mixon; 6/26Question: Among older adults discharged to skilled nursing facilities (SNFs) after hospital-initiated deprescribing, what is the frequency and timing of medication restarts ...?  In this cohort study analyzing data from 2 randomized trials with a total of 598 participants, 15.9% of deprescribed medications were restarted. Higher health literacy and longer intervention exposure were associated with fewer restarts, whereas more prescribers, higher number of baseline medications, and fewer pharmacies were associated with medication restarts; restart during the SNF stay was associated with greater 90-day hospital readmissions. Conclusions: In this cohort study, approximately 1 in 6 deprescribed medications were restarted within 90 days, with nearly half occurring soon after SNF discharge. Patient factors and markers of care fragmentation were associated with restart, suggesting that enhancing transitional care and postdischarge support may improve the durability of hospital-initiated deprescribing.

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Toward home cancer care—Reducing time toxicity for the right patients with prostate cancer

07/18/26 at 03:30 AM

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Breast-directed palliative radiotherapy in metastatic and inoperable locally advanced breast cancer: From clinical efficacy to psychosocial impact

07/18/26 at 03:25 AM

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[Spain] Post-recurrence management of malignant glial brain tumors: Therapeutic strategies, evidence and limitations, palliative care, terminal sedation, and end-of-life considerations

07/18/26 at 03:05 AM

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When technology meets its limits: Integrating Medical Aid in Dying with withdrawal of a left ventricular assist device

07/18/26 at 03:00 AM

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Nurse practitioner: my patient qualified for hospice. I couldn’t get her there

07/17/26 at 03:00 AM

Nurse practitioner: my patient qualified for hospice. I couldn’t get her there The Examiner News; by Diane Pagan; 7/15/26 ... I’ve been Marie’s primary care nurse practitioner for seventeen months. She was referred to me at the time by her PCP because she could no longer physically manage going into the office. She suffered from dementia and her gait was worsening ... Marie’s daughter chose a hospice agency close to her home. The agency reviewed my referral and notes and accepted Marie into their program. The next step was to send them a Certificate of Terminal Illness (CTI) stating that Marie had a terminal illness with an anticipated life expectancy of 6 months or less. Then the obstacle arose. I couldn’t sign the form. ... The inability of nurse practitioners to sign a CTI does not stem from their lack of education or clinical expertise in determining when a patient is nearing end of life. The restriction is rooted in federal Medicare law, written more than 40 years ago, when the role of nurse practitioners was very different than it is today.

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VITAS medical director: improve hospice referrals for cancer patients

07/17/26 at 03:00 AM

VITAS medical director: improve hospice referrals for cancer patients Hospice News; by Jim Parker; 7/16/26 Hospice utilization among some cancer patients is leveling off and slowing growth, but healthcare providers and medical educators can adopt certain strategies to move the needle. This is according to Dr. Ileana Leyva, regional medical director for VITAS Healthcare. ... Neuro-degenerative, lung and cardiac diseases are gaining more prominence among hospice diagnoses. In 2024, senile degeneration of the brain was the most common terminal diagnosis among Medicare decedents at 9%, followed by Alzheimer’s at 6%, according to the National Alliance for Care at Home. Chronic obstructive pulmonary disease rounded out the top three at 4.2%. Lung cancer was the 11th most common diagnosis that year, at 2.1%, the highest rate for any form of cancer. Hospice News spoke with Leyva about the barriers that prevent cancer patients from accessing hospice sooner and what stakeholders can do to drive improvement.

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Japan pushes to expand children’s hospices through new consultation service

07/16/26 at 03:00 AM

Japan pushes to expand children’s hospices through new consultation service Europe Says, Osaka, Japan; Press Release; 7/15/26 For children with life-limiting illnesses or severe disabilities, even simple experiences such as playing freely or having friends stay overnight can be difficult. Children’s hospices aim to make such experiences possible while also providing support for their families, and efforts are underway to expand the number of these facilities in Japan. Tsurumi Children’s Hospice in Osaka, which opened in 2016, launched a consultation service in April to help people establish similar facilities across the country.

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