Literature Review

Adult Protective Services work with clients at the end of life: Challenges and support needsJournal of Elder Abuse and Neglect; by Wei-Lin Xue, Joy Swanson Ernst, Pi Ju Liu; 9/25Adult Protective Services (APS) professionals frequently interact with clients who are seriously ill or dying as they investigate cases of elder abuse and self-neglect. This study explored the unique challenges and support needs of APS workers in these end-of-life contexts. Thematic analysis identified two overarching domains: (1) challenges – including family conflict, limited caregiver preparedness, client self-determination, challenges to service access, and emotional strain on professionals; and (2) support needed – such as improved interagency collaboration, peer and organizational support. Participants emphasized the emotional toll of witnessing client decline and death, and highlighted gaps in training, coordination, and workplace support. Findings highlight the need for targeted policy and practice reforms to better equip APS professionals addressing elder abuse and self-neglect at the end of life.

Rise in late-stage lung cancer in nonsmokers highlights need for awareness and screening Medscape Medical News; by Evra Taylor; 9/5/25 ... The common thinking is that lung cancer is a smoker’s disease, but that isn’t the full picture, Jessica Moffatt, PhD, vice president of programs and health system partnerships at Lung Health Foundation in Toronto, told Medscape Medical News. ... Moffatt and her colleagues are working to dispel the stigma that smokers “get what they deserve.” Rosalyn Juergens, MD, professor of oncology at McMaster University in Guelph, Ontario, and president of Lung Cancer Canada, said, “If you find out someone has lung cancer, your first question shouldn’t be ‘Did you smoke?’ It should be ‘What can I do to help you along this journey?’ ” 

Assessing the perspectives of genetic counselors with oncology patients at the end of lifeJournal of Genetic Counseling; Rosalyn D. Brown, Lori Williamson, Natalie Brooke Peeples, Jing Jin, Alexandrea Wadley; 8/25Cancer genetic services identify individuals that may have a hereditary component to cancer, as it is estimated that up to 10% of cancers are due to a cancer-predisposition gene variant. When an oncology patient has reached the end of life (EOL), genetic counseling and testing may benefit the patient and their family by clarifying hereditary cancer risks. Despite high comfort and preparedness, 77% of respondents desired additional educational training opportunities about providing genetic counseling to oncology patients at the EOL, supporting the need for ongoing education opportunities. The high comfort levels and preparedness reported in this study suggest that genetic counselors are ready and willing to counsel patients facing a terminal diagnosis of cancer and should be further integrated into multidisciplinary teams.

Alzheimer's Association: New telenovela series highlights Alzheimer’s in Hispanic and Latino communities Alzheimer's Association, Chicago, IL; Press Release; 9/15/25In conjunction with National Hispanic and Latino Heritage Month, the Alzheimer’s Association is premiering "Memories of My Grandfather" ("Recuerdos de mi abuelo"), a five-episode mini telenovela aimed at encouraging Hispanic and Latino families to have open discussions about memory loss, diagnosis and caregiving across generations. The series, available in both English and Spanish, follows the emotional journey of a multigenerational Hispanic family in the United States after their grandfather’s Alzheimer’s diagnosis. The telenovela will be screened during two webinars hosted by the Alzheimer’s Association: one in English on Sept. 30 and one in Spanish on Oct. 7. Both webinars will feature a moderated discussion hosted by actress, film producer and Telemundo news anchor Gabi Del Moral. ... Both webinars are free and open to the public. Register for the English-language webinar or the Spanish-language webinar.

Living with dementia: To improve lives, we need to change how we think and talk about this experience in aging societies EurekAlert! - AAAS (American Association for the Advancement of Science); peer reviewed publication by The Hastings Center; 9/24/25 To experience or even contemplate dementia raises some of the most profound questions: What does it mean to be a person? How does someone find meaning in life while facing progressive neurological deterioration? ... To improve the lives of our fellow citizens who are living with dementia or providing dementia care, all of us need to pay attention to how we imagine and talk about these interwoven and increasingly common experiences, concludes Living with Dementia: Learning from Cultural Narratives in Aging Societies, a special report published by The Hastings Center for Bioethics. This report responds to calls from health care and social service practitioners for new ways to depict and talk about dementia, a collective term for Alzheimer disease and related dementias. Editor's Note: Click here for free access to multiple articles in this crucial report, such as

How some people are using playlists to prepare for dyingBBC News; by Alex Taylor; 9/21/25  For years, local DJ Dave Gilmore soundtracked other people's nights out in pubs and clubs. But now he's curating a uniquely personal playlist - the songs of his own life to carry him through terminal illness. The list includes both November Rain and Sweet Child O' Mine by Guns and Roses, The Shadows by Apache - which inspired Dave to play guitar - and Pink Floyd's Comfortably Numb. ... Moments like this emphasise the power of music to forge everlasting connection. ... The impact is neurological as well as emotional, explains Sarah Metcalfe, managing director of the Utley Foundation's Music for Dementia campaign. Brain activity scans show music "lights up" multiple parts of our brain, simultaneously touching physical and emotional sense centres. "Even if one part of the brain is damaged, those other parts can still be accessed," Sarah says.

Early palliative care intervention improves end-of-life care in ovarian cancer Medscape; by Maurie Markman, MD; 9/18/25 ... This particular study asked an important question: Is there a relationship between that timing when palliative care is introduced to the ultimate end-of-life aggressiveness of care (emergency room use, use of intensive care, and hospitalization)? ... The outcome was timing, or introduction, of palliative care with emergency room use, hospitalization, and intensive care use within the last 30 days of life and chemotherapy in the last 14 days of life, as well as the risk of death occurring in the hospital.  ... The investigators found that any palliative care or any use of a palliative care physician called in as a consult earlier than 3 months before the death was associated with a lower risk of aggressive end-of-life care. 

What makes a good death? GeriPal - A Geriatrics and Palliative Care Podcast for Every Healthcare Professional; by Alex Smith with Karen Steinhauser, Rasa Mikelyte and Edison Vidal; 9/18/25What is a “good death”? How should we define it, and who gets to decide? Is the concept of a “good death” even useful? ... In today’s podcast, we are honored to have Karen join us to discuss this pivotal study and the nature of a “good death”. We are also joined by Rasa Mikelyte and Edison Vidal, co-authors of a recent study comparing the perspectives of people with dementia in the UK and Brazil on what constitutes a good death. In addition to exploring the nature of a good death and their individual studies, we will discuss:

The best end-of-life care begins with TRUTHProfessional Case Management; by Julie-Kathryn E Graham, Christina Kelley, Gabriella Malagon-Maldonado; 9/25For decades, research has recommended truth and transparency in end-of-life care discussions with patients, families, and family-centered care. This study demonstrated that, in practice, this is often not done, resulting in further traumatization to families at the end of life ... [which] makes information processing and decision-making very difficult. At end-of-life, person-centered care is family-centered care. A person's individuality is inextricable from who they are to their family. If we do not care for the family, we do not care for our patients. 

A nurse’s journey through advanced breast cancer: Michele’s invasive ductal carcinoma Stage 4 diagnosis Norton Healthcare, Paducah, KY; by Sara Thompson; 9/15/25 When Paducah, Kentucky, native Michele Burgess received her Stage 4 invasive ductal carcinoma diagnosis Feb. 6, 2020, she faced the advanced breast cancer the same way she approaches everything in life — head on. As a nurse manager for an inpatient hospice unit, Michele had spent years caring for others in their most vulnerable moments. Now, she would draw on that same strength for her own battle. ... Most people expected Michele to step away from her demanding career after her cancer diagnosis. After all, working in hospice while fighting breast cancer seemed like an impossible burden. But Michele saw it differently. “Why wouldn’t I continue?” she asked herself. Her work gave her purpose, and her 10-bed inpatient unit needed her steady leadership. ...

O’Neill Healthcare Hospice creating Moments of Joy The Villager Newspaper, Bay Village, OH; 9/15/25 At O’Neill Healthcare Hospice, our mission goes beyond providing exceptional clinical care ... One way we do this is through our Moments of Joy program, an initiative devoted to creating meaningful experiences and lasting memories for those we care for. Recently, we had the privilege of honoring our patient, Frank, with a very special moment of joy outing, ... "back to the ballpark in person." ... Programs like Moments of Joy enable us to honor our patients’ stories and interests, celebrate their passions, and provide families with cherished moments to remember.Editor's Note: See our recent related posts, "Fulfilling end-of-life dreams: A scoping review of bucket lists in palliative and hospice care" and "Baptist Health Floyd's 'Three Wishes' project provides comfort during end-of-life process."

Heart disease tops US mortality in 2024, CDC reports McKnights Long-Term Care News; by Foster Stubbs; 9/12/25 The leading causes of death in the United States in 2024 were heart disease, cancer and unintentional injury, the Centers for Disease Control and Prevention said in a September report. ... In total, there were 3,072,039 total deaths that occurred in the US in 2024 with a death rate of 722.0 per 100,000 people. This was 3.8% lower than the totals in 2023. Death rates also decreased for all race and ethnicity groups but rates for Black people remain higher than those for all other groups. Overall, death rates were highest for males, older adults and Black people, demonstrating a need for further examination of the health of these demographic groups. Heart disease caused 683,037 deaths, cancer caused 619,812 deaths and unintentional injury resulted in 196,488 deaths. Mortality statistics were collected by The National Center for Health Statistics’ (NCHS) National Vital Statistics System (NVSS) using US death certificate data. [The CDC Report is at Vital Statistics Rapid Release, Number 039, September 2025.]

Fulfilling end-of-life dreams: A scoping review of bucket lists in palliative and hospice care Palliative Supportive Care - Cambridge University Press; by Swasati Handique, Michael Bennett and Scott D Ryan; 9/12/25 Results: Four major themes were established using thematic content analysis: (1) impact on holistic well-being, (2) role of family in wish fulfillment, (3) cultivation of gratitude, and (4) collaborative leadership in wish fulfillment. In wish fulfillment, the results significantly pointed to the need for more intricate evaluation among patients and interventions that cover beyond the physical aspect. Significance of results: Palliative and hospice care settings should work toward securing sustainable funding for structured wish-fulfillment programs to address existing accessibility gaps and further enhance the holistic nature of care in these settings. Editor's Note: For hospice organizations that can receive donations, setting up a Wish/Bucket LIst fund makes for a meaningful, easy-to-demonstrate ROI on donated gifts. You need to have some type of discretionary review/approval process in place, with assurances of confidentiality when important to the person and/or family.