Literature Review

Only one in five U.S. young adults with advanced cancer receive palliative care as part of treatment, study shows American Cancer Society, Atlanta, GA; Press Release; 7/23/26 Young adults with advanced cancer face unique challenges that make palliative care especially important. This population often experiences physical, emotional, and social needs while undergoing treatment, related to their developmental and life-stage transitions. However, a new study by researchers at the American Cancer Society (ACS) reveals that despite a small increase in use over time, only 18.3% of young adults in the United States with advanced cancer received palliative care as part of treatment in 2023. The study is published today in the Journal of the American Medical Association (JAMA) Network Open. 

Palliative Care team manifests dreams of butterbeer and Harry Potter Vanderbilt Health News, Nashville, TN; by Jill Clendening; 7/20/26 After Mike Guth and his family learned that his pancreatic cancer had advanced beyond treatment, the Vanderbilt Health Palliative Care team worked magic to make a dream trip possible. ... Mike, 53, a beloved high school social studies teacher in southern Indiana and father of four, was diagnosed with Stage 2 pancreatic cancer in early 2025. ... Mike has always loved the magical lore of Harry Potter, excitedly consuming the books and movies with their children (now adults). Mike perhaps seized inspiration from the plot twists of the fantasy series to say he still longed to visit The Wizarding World of Harry Potter in Orlando, Florida. With careful planning to manage symptoms and stay on top of hydration, the Vanderbilt Health Palliative Care team surprised the Guths and said his dream was doable. ... Palliative care physician Zack Watson, MD described, "for him to have that time with his kids and his wife. Hopefully, this gave them an anchor of joy in the midst of this really tough time." On July 14, Mike died peacefully at home, surrounded by his loved ones.

Some kids come here for vacation. Others come to die. Either way, parents are grateful USA TODAY, San Leandro, CA; by Madeline Mitchell; 7/20/26 ... There are mainly two kinds of families who come to George Mark's Children's House. Some come for respite, entrusting their medically fragile but otherwise stable children to skilled nurses while parents leave for a much-needed break from around-the-clock caregiving. Others come for pediatric end-of-life care, a rare and essential service that changed the trajectory of CEO Shekinah Eliassen's life. These parents stay with their children at George Mark and can bring the patient's siblings, too, to soak in their last days together. "This type of service, I believe, should be part of the system of pediatrics," Eliassen says, adding that families never see a bill for their visits. Her son, Lars, died at George Mark when he was 21 days old, after he was born having seizures. 

Personal experience fuels Jeannie Meyer's commitment to helping the homeless die with dignity UCLA Health; by Sandy Cohen; 7/15/26  The UCLA Health palliative care nurse is a national advocate for recording end-of-life wishes for unhoused individuals. Jeannie Meyer, MSN, didn’t realize she was homeless as a child. She thought everyone moved from place to place, hotel to hotel, and never answered the phone or the door in case a bill collector was on the other side. “I knew what ‘eviction notice’ meant when I was 5 years old,” she says. Those childhood experiences made her empathetic, but it was the pain of learning that her alcoholic father died on Skid Row that inspired Meyer, a palliative care nurse at UCLA Health, to advocate for advance care planning for homeless people.

Emotional and ethical impacts on healthcare professionals performing cardiopulmonary resuscitationAmerican Journal of Hospice & Palliative Medicine; by Patrick J. Macmillan, Susan Hughes, Dumindra Gurusinghe, Allison Go, Chase Lancaster, Iris Price; 6/26Many studies exist outlining poor outcomes related to cardiopulmonary resuscitation (CPR) administered to patients who are elderly and/or have comorbid medical conditions with sudden cardiac arrest. Studies show only 10% of patients with out-of-hospital cardiac arrest and initial asystole survive until they reach the hospital. Less than 5% survive until hospital discharge with good neurologic function. This study presents data that suggests that there is an association between moral distress and performing CPR on individuals who are elderly with multiple comorbid medical conditions. More than sixty percent of our respondents were challenged emotionally during these types of code situations, and a similar number of healthcare workers felt the code could be considered unethical.

VITAS medical director: improve hospice referrals for cancer patients Hospice News; by Jim Parker; 7/16/26 Hospice utilization among some cancer patients is leveling off and slowing growth, but healthcare providers and medical educators can adopt certain strategies to move the needle. This is according to Dr. Ileana Leyva, regional medical director for VITAS Healthcare. ... Neuro-degenerative, lung and cardiac diseases are gaining more prominence among hospice diagnoses. In 2024, senile degeneration of the brain was the most common terminal diagnosis among Medicare decedents at 9%, followed by Alzheimer’s at 6%, according to the National Alliance for Care at Home. Chronic obstructive pulmonary disease rounded out the top three at 4.2%. Lung cancer was the 11th most common diagnosis that year, at 2.1%, the highest rate for any form of cancer. Hospice News spoke with Leyva about the barriers that prevent cancer patients from accessing hospice sooner and what stakeholders can do to drive improvement.

Cardiologists treating increasingly complex patients as America ages Medscape; by Sarah Amandolare; 7/14/26 ... Heart failure (HF) affects 15%-20% of adults over 80, according to the American Heart Association/American College of Cardiology/Heart Failure Society of America Guideline for the Management of Heart Failure. HF with preserved ejection fraction (HFpEF), which becomes more likely after age 80, is related to other common conditions of aging, including hypertension, chronic kidney disease, diabetes, and obesity. “Almost by definition, most people that have HFpEF have multiple comorbidities,” Hummel said. “You have to account for a lot of them when you’re thinking about how to help the patient best.” This population also has higher chances of developing dementia and frailty, which affect 35% of adults age 90 and older and 31% of octogenarians, respectively. Older adults hospitalized for HF also have a high likelihood of polypharmacy; 68% take 10 or more medicines.

Most Americans prefer to die at home, but the US healthcare system often prevents it ArcaMax; by Karen Lutfey Spencer; 7/14/26 Ask people what they want at the end of their lives, and overwhelmingly the answers will revolve around comfort, dignity and time at home with loved ones. Yet the U.S. healthcare system often thwarts these wishes. Most Americans say they want to die at home, but only one-third do. What could be an intentional last chapter may instead become a roller coaster of hospitalizations and decisions made with incomplete information. News headlines reflect the challenges of facing the end of life in crisis mode. ... Unfortunately, these crisis scenarios are happening to millions of families each year.

Utilization of hospice and palliative care among patients with mental illness: a retrospective cohort study Journal of the American Geriatrics Society; by Sean O'Mahony, Utpol Das, Yuanyi Zhang, Anirudh S. Babu, Mukaila A. Raji, James Gerhart, Yong-Fang Kuo; 7/11/26 Background: Individuals with mental illness (MI) experience premature mortality and health disparities, yet little is known about their access to hospice and palliative care. Conclusions: Mental illnesses were associated with complex hospice utilization patterns characterized by longer length-of-stay, higher likelihood of enrollment far from death, lower likelihood of enrollment within 180 days before death, and lower palliative care consultation use in some groups.

Advance Care Planning is becoming quality data: why the conversation must be documented clearly ICD10monitor, Inver Grove Heights, MN; by Penny Jefferson, MSN, RN, CCDS, CCDS-O, CCS, CDIP, CRC, CHDA, CRCR, CPHQ, ACPA-C; 7/13/26 Advance care planning has always been personal. It is one of the most human conversations that occurs in healthcare. It asks patients, families, caregivers, and clinicians to talk about goals, values, fears, treatment preferences, and what should happen if the patient is no longer able to speak for themselves. But advance care planning is also becoming something else: quality data. In the FY 2027 IPPS/LTCH PPS proposed rule, the Centers for Medicare & Medicaid Services (CMS) proposes adopting an Advance Care Planning electronic clinical quality measure, or eCQM, beginning with the FY 2030 payment determination. CMS also proposes adopting the same eCQM in alignment with the Medicare Promoting Interoperability Program and adopting an Advance Care Planning eCQM for the PPS-Exempt Cancer Hospital Quality Reporting Program beginning with the FY 2030 program year. Editor's Note: FY 2027 Hospital Inpatient Prospective Payment System (IPPS) and Long-Term Care Hospital Prospective Payment System (LTCH PPS) Proposed Rule — CMS-1849-P