Literature Review
All posts tagged with “Clinical News | Advanced Illness Management News.”
Leadership's perceptions of palliative care during the COVID-19 pandemic: A qualitative study
04/25/24 at 03:00 AMLeadership's perceptions of palliative care during the COVID-19 pandemic: A qualitative study Journal of Pain and Symptom Management, by Tamara Vesel, Audrey Covaleski, Veronica Burkarth, Emma Ernst, Linda Vesel; 4/19/24Background: This study aimed to explore the perceptions, understanding, and utilization of palliative care before compared to during the COVID-19 pandemic among health system leadership. Results: ... Emerging themes included the role of palliative care before compared to during the COVID-19 pandemic, facilitators and barriers to palliative care delivery, and recommendations for future practice. Participants reported that the COVID-19 pandemic increased palliative care utilization, reinforced positive perceptions of the specialty, and emphasized its role in maximizing healthcare efficiency. Many participants found palliative care financing to be a barrier to delivery; ...
Hospice nurse reveals the most common deathbed regrets
04/25/24 at 03:00 AMHospice nurse reveals the most common deathbed regretsUnilad; by Niamh Shackleton; 4/24/24Bronnie Ware, a nurse who has spent a large majority of her career working in palliative care, found that there were five common things that people regretted about their lives upon reflection as they approached death.
Comparative effectiveness of acupuncture vs massage for relieving pain in patients with advanced cancer
04/19/24 at 03:00 AMComparative effectiveness of acupuncture vs massage for relieving pain in patients with advanced cancer The ASCO Post; by Jun J. Mao, MD, MSCE and Andrew S. Epstein, MD; 4/17/24... The IMPACT study was conducted at Memorial Sloan Kettering Cancer Center and regional sites in New York, New Jersey, and Florida to evaluate the long-term comparative effectiveness of acupuncture vs massage for pain in patients with advanced cancer. ... The primary outcome—change in worst pain intensity score from baseline to 26 weeks—was measured using the Brief Pain Inventory (BPI ranging from 0–10; higher numbers indicate worse pain intensity or interference). The secondary outcomes included fatigue, insomnia, and quality of life. ... To use these therapies, it is important to seek credentialed practitioners who have training or experience in working with patients who have cancer.
Care for Alzheimer's on Medicaid is unorganized, frustrating, inhuman
04/18/24 at 03:00 AMCare for Alzheimer's on Medicaid is unorganized, frustrating, inhumanThe Indianapolis Star, by Darcy Metcalfe; 4/14/24What it is like to die of Alzheimer’s in America? Without a doubt, it is nothing as it is portrayed on NBC’s hit series This is Us. At the end of this series, the character Rebecca dies from Alzheimer’s and falls peacefully asleep, snuggly tucked in her warm bed at home, surrounded by family and 24-hour skilled nursing care. Throughout the six seasons of This is Us, I simultaneously witnessed my father’s slow dying from Alzheimer’s in a reality that was worlds away from Rebecca’s. ...
Defining metrics for assessing end-of-life care quality in children with cancer
04/18/24 at 03:00 AMDefining metrics for assessing end-of-life care quality in children with cancer Physician's Weekly; 4/16/24 In this study, the researchers sought to define the target population for applying newly developed quality measures in end-of-life (EOL) care for children with cancer. Through a series of nominal groups, panelists addressed the question: “Which children, diagnoses, conditions, or prognoses should be included when examining the quality of EOL care for children with cancer?” ... A team of pediatric oncology and palliative care clinician-scientists developed a coding structure to analyze responses and identify associated themes and subthemes.
AACN spotlights innovative tool for palliative care consultations
04/18/24 at 03:00 AMAACN spotlights innovative tool for palliative care consultations
Health care system eats away at the doctor-patient relationship
04/18/24 at 02:00 AMHealth care system eats away at the doctor-patient relationship The Boston Globe; updated 4/17/24... The system economically rewards throughput (the number of patients seen per unit time) and procedures rather than the time needed to develop an open and communicative doctor-patient relationship. While a good physician might understand the tests and evaluations that are indicated by a presenting medical problem, the excellent clinician knows which tests and evaluations should not be done. This is primarily ascertained by delving into details of the patient’s physical, psychological, social, family, and economic history. This process, as James highlights, can lead to collaborative and more effective care. ...Editor's Note: This article highlights "Dr. Thea James’s remarkable work at Boston Medical Center in addressing structural inequity in medical care as a means of enhancing outcomes brings up an underlying structural problem across the entire medical care system (“Her health equity message being heard,” April 13, 2024.)
Shared decision-making between nephrologists, patients' key to conservative kidney management
04/17/24 at 03:00 AMShared decision-making between nephrologists, patients key to conservative kidney management Healio, by Mark E. Neumann; 4/15/24 ... Conservative kidney management: Patients who decline dialysis treatment do so for many reasons, Fahad Saeed, MB, BS, and colleagues wrote in a paper published in the American Journal of Nephrology. Patients told researchers that quality of life; fewer symptoms caused by dialysis; more personal time; avoiding the burden of dialysis, including for family and friends; witnessing a family member or friend on dialysis and wanting to have a peaceful death were reasons to select conservative kidney management.
Implementing spiritual care education into the teaching of palliative medicine: An outcome evaluation
04/17/24 at 02:00 AMImplementing spiritual care education into the teaching of palliative medicine: An outcome evaluation BMC Medical Education; by Yann-Nicolas Batzler, Nicola Stricker, Simone Bakus, Manuela Schallenburger, Jacqueline Schwartz, and Martin Neukirchen; 4/15/24 Objective: This is a novel, interprofessional approach in teaching undergraduate medical students about spiritual care in the format of a seminar. The aim of this study is to assess if an increase in knowledge about spiritual care in the clinical context is achievable with this format. ... Conclusions: We conclude that implementing spiritual care education following an interprofessional approach into existing medical curricula, e.g. palliative medicine, is feasible and well perceived among medical students. ...
Comment: Rule must change to allow dialysis as end-of-life care
04/16/24 at 03:00 AMComment: Rule must change to allow dialysis as end-of-life care HeraldNet, by Matthew Rivara and Mackenzie Daniek; 4/13/24More than 1 in 7 American adults live with chronic kidney disease, making it one of the most common chronic disease conditions in the United States. ... Medicare will generally not reimburse health care providers for dialysis treatments if a patient has elected to enter hospice care, as dialysis treatments are considered by Medicare to be “curative” rather than “palliative” care. Because of this, most patients getting dialysis for ESRD must forego all dialysis treatment after entering a hospice program.
Potential CMS measure shows divide over quality training standards
04/16/24 at 03:00 AMPotential CMS measure shows divide over quality training standards Modern Healthcare, by Mari Devereaux; 4/12/24 Hospitals may soon be required to provide set quality training to staff as part of a Medicare reporting program, but health systems and advocacy organizations are split on whether the standardization of quality-related skill sets is necessary to improve patient care.
Goals of care among patients with advanced cancer and their family caregivers in the last years of life
04/16/24 at 03:00 AMGoals of care among patients with advanced cancer and their family caregivers in the last years of life JAMA Network; by Semra Ozdemir, PhD; Isha Chaudhry, MSc, Chetna Malhotra, MD; et al; 4/11/24 Conclusions and Relevance: In this cohort study of patient-caregiver dyads, findings suggested the importance of interventions aimed at reducing discordance in goals of care between patients and caregivers and helping them develop realistic expectations to avoid costly, futile treatments.
No nightmares and no light at the end of the tunnel. This dream most often repeats itself before death
04/15/24 at 02:00 AMNo nightmares and no light at the end of the tunnel. This dream most often repeats itself before death 247 News Agency; 4/12/24 Does our subconscious know that death is inevitably approaching? Taking into account the latest research, this is quite possible. It turns out that at the end of life many people have the same dream. It’s not a nightmare at all. The topic fascinates many people. For scientists, it is still a mystery that they try to solve by talking to people who survived clinical death or were on the verge of life and death. The best example is Dr. Christopher Kerr, a cardiologist and director of Hospice and Palliative Care Center in Buffalo, ... [who researched] the dreams of patients at the end of life.
Readers share stories of their loved ones’ deathbed visions
04/12/24 at 03:00 AMReaders share stories of their loved ones’ deathbed visions DNYUZ; 4/10/24 When I started reporting “What Deathbed Visions Teach Us About Living,” about the visions, often of loved ones, that some people have in the final stretches of their lives, I had no idea just how universal the experience was. But within minutes of the story’s publication, readers took to the comments section to post their own memories of having witnessed the phenomenon. The stories were rich, deeply personal, and seemed to confirm something that the researcher featured in my story, Dr. Chris Kerr, knew in his years of studying such visions: they bring peace to the dying and solace to the living. Family members wrote in with stories of watching loved ones have visions, as did health care workers, who had years of experience witnessing them. [Click on the article's title to read more stories.]
Angela Hospice opening a hospice residence at Lourdes Senior Community in Waterford
04/12/24 at 03:00 AMAngela Hospice opening a hospice residence at Lourdes Senior Community in Waterford Detroit Regional Chamber, by Angela Hospice; 4/10/24 Angela Hospice will expand its caring services to the Waterford community and beyond, when it begins operating a 15-bed hospice residence at Lourdes Senior Community this summer and providing additional home hospice services in the area. The non-profit will extend its geographic reach further into north Oakland County, offering additional outreach to benefit all in the community, not just those on hospice care, through transformational grief support groups, educational outreach, and their Good Samaritan program, which serves those who are without insurance or the ability to pay for hospice.
HopeHealth’s expanding scope of pediatric hospice, palliative services
04/12/24 at 03:00 AMHopeHealth’s expanding scope of pediatric hospice, palliative services Hospice News, by Holly Vossel; 4/8/24 HopeHealth has been growing its pediatric hospice and supportive care service lines in recent years to address a range of unmet needs among seriously ill children and their families. The nonprofit health system serves Rhode Island and southeastern Massachusetts. ... Hospice News recently sat down with pediatrician Dr. Rebecca MacDonell-Yilmaz, medical director of HopeHealth’s pediatric supportive services.
A wish to remember: Penn Medicine program fulfills patients’ last requests
04/11/24 at 03:00 AMA wish to remember: Penn Medicine program fulfills patients’ last requests Penn Medicine News, by Meredith Mann; 4/9/24 The patient was dying of cancer. All options for saving or prolonging their life had been exhausted. Now, the patient most wanted to spend one more carefree, joyous day with their grandchild. ... This is just one example of the last requests granted through Princeton Health’s Three Wishes Project. On paper, it’s about performing small gestures that bring comfort and meaning to patients at the end of their lives. In practice, it’s about so much more—providing a sense of hope and closure, not only to these patients and their families, but also to staff.
Why difficult conversations matter: How delivering bad news with clarity and empathy impacts both provider and patient
04/11/24 at 02:00 AMWhy difficult conversations matter: How delivering bad news with clarity and empathy impacts both provider and patient Cedars Sinai, by Cassie Tomlin; 4/8/24Good physicians rely on a battery of hard-won skills to treat serious illness—they observe, predict, test, prescribe and diagnose. But many physicians haven’t been taught how to have productive, mutually beneficial conversations—such as sharing a life-changing diagnosis or informing patients about disease trajectory and symptoms, prognosis and end-of-life care. High-impact communication tools can be learned at any point in a physician’s career, says Jessica Besbris, MD, director of Neuropalliative Care and the Neurology Supportive Care Medicine Program at Cedars-Sinai. Here, Besbris shares why such careful conversations matter for everyone involved, and ways physicians can improve how they discuss serious illness.
The Sunday Read: 'What deathbed visions teach us about living'
04/10/24 at 03:00 AMThe Sunday Read: 'What deathbed visions teach us about living' New York Times Podcasts, 4/7/24 Chris Kerr was 12 when he first observed a deathbed vision. His memory of that summer in 1974 is blurred, but not the sense of mystery he felt at the bedside of his dying father. ... Kerr now calls what he witnessed an end-of-life vision. His father wasn’t delusional, he believes. ... Kerr followed his father into medicine, and in the last 10 years he has hired a permanent research team that expanded studies on deathbed visions to include interviews with patients receiving hospice care at home and with their families, deepening researchers’ understanding of the variety and profundity of these visions.
‘We’re the telescope looking forward’: Medical ethicists ask tough questions as part of $66 million research project
04/09/24 at 03:00 AM‘We’re the telescope looking forward’: Medical ethicists ask tough questions as part of $66 million research project CU Department of Medicine, by Mark Harden; 4/5/24 In the original “Jurassic Park” movie, after the process of bringing dinosaurs back to life is explained to a team of consultants, one of them voices a warning: “Your scientists were so preoccupied with whether or not they could, they didn’t stop to think if they should.” University of Colorado Department of Medicine faculty members will be asking the “should” question years before there’s an answer to “could.” They’ve joined in a nationwide study of whether tiny, battery-powered electric devices and genetic material, swallowed in capsule form, could one day replace surgery or injections as treatments for metabolic diseases such as diabetes and obesity.
Translation and validation of the Chinese version of Palliative Care Self-Efficacy Scale
04/09/24 at 03:00 AMTranslation and validation of the Chinese version of Palliative Care Self-Efficacy ScalePalliative & Supportive Care; by Junchen Guo, Yongyi Chen, Boyong Shen, Wei Peng , Lianjun Wang, Yunyun Dai; 4/8/24[This] study aimed to translate, adapt, and validate the Palliative Care Self-Efficacy Scale (PCSS) among Chinese palliative care professionals. ...Significance of results: The findings from this study affirmed good validity and reliability of the C-PCSS [Chinese-PCSS]. It can be emerged as a valuable and reliable instrument for assessing the self-efficacy levels of palliative care professionals in China.
[Psychology Today] Facing Mortality Honestly
04/09/24 at 03:00 AM[Psychology Today] Facing Mortality Honestly Psychology today, by Patricia Prijatel; 4/6/24 Personal Perspective: Being Mortal, by Atul Gawander, explores end-of-life-care. I read Being Mortal by Atul Gawande when it was first published in 2014 and haven’t stopped talking about it. It shot to the top of my list as one of the most important books I’ve ever read. After 10 years, I read it again to see if it held up. It did. I was as entranced the second time as the first—even more so because, as it happens, I am also now 10 years older.
Medicine—Both a Science (Care) and an Art (CARE)
04/09/24 at 03:00 AMMedicine—Both a Science (Care) and an Art (CARE) JAMA Network - Viewpoint; by Theodore J. Strange, MD and Mario R. Castellanos, MD; 4/3/24In the current era, health care is increasingly characterized by the integration of big data, predictive analytics, medical devices, and artificial intelligence. These technological advancements have undoubtedly transformed the landscape of medical care, offering unprecedented precision and efficiency in diagnosis and treatment. Yet, amidst this surge of scientific innovation, the timeless art of medicine (compassion and caring) remains a foundational aspect of patient-centered health care ... The acronym CARE (compassion, assistance, respect, and empathy) encapsulates these enduring values. ... In a world increasingly driven by data and algorithms, these qualities foster a trusting and supportive relationship between health care professionals and patients, thereby enhancing the healing process and enriching the overall health care experience.
Study shows strong social ties may ease the way for older adults in life's final chapter
04/08/24 at 03:00 AMStudy shows strong social ties may ease the way for older adults in life's final chapter Medical & Life Sciences, by Vijay Kumar Maleus; 4/4/24 Study Results: ... The analysis revealed that higher levels of loneliness were significantly associated with increased odds of experiencing anxiety, sadness, and pain in the last month of life, suggesting a pivotal link between social isolation and end-of-life symptomatology. Furthermore, marital status and the receipt of personal care were predictors of dying in a hospital, pointing to the influence of social support structures on the location of death. Interestingly, a larger social network was correlated with a higher likelihood of receiving hospice or palliative care, highlighting the potential benefits of broader social connections.
How a CU biostatistician is helping improve palliative care research
04/08/24 at 03:00 AMHow a CU biostatistician is helping improve palliative care research University of Colorado - Anschutz Medical Campus, by Tayler Shaw; 4/3/24