Literature Review
All posts tagged with “Clinical News | Advanced Illness Management News.”
Breast cancer palliative care and metastatic disease: Looking beyond end of life
03/18/24 at 03:00 AMBreast cancer palliative care and metastatic disease: Looking beyond end of life MedPage Today, by Shalmali Pal; 3/15/24 ... It is important to inform patients that they can receive palliative care at any timeopens in a new tab or window during their treatment, from the time of diagnosis to end of life. ... At some juncture, the options for metastatic breast cancer treatment become limited. Progression can be classified into four general types:
Hospices stepping up performance on visits-in-last-days-of-life measure
03/18/24 at 03:00 AMHospices stepping up performance on visits-in-last-days-of-life measure Hospice News, by Jim Parker; 3/14/24 Hospices, in aggregate, are showing improvement on the quality measure for visits in the last days of life. The number of registered nurse and social worker visits during a patient’s final week is one of the seven quality measures that CMS uses to evaluate providers. In Calendar Year 2021, the share of hospice care days with nurse visits in the last seven days of life rose to 63%, up from 62% year over year, according to the National Hospice and Palliative Care Organization (NHPCO).
Hines VA introduces new monitoring system for hospice and nursing home Veterans
03/18/24 at 03:00 AMHines VA introduces new monitoring system for hospice and nursing home Veterans VA Press Release; 3/15/24 Edward Hines Jr. VA Hospital has begun integrating a new patient monitoring system to improve Veteran health and assist medical staff. The AvaSure© Continuous Video Monitoring System places portable cameras in patients’ rooms who may need closer monitoring. Staff can observe up to 15 patients simultaneously through a virtual interface to monitor for issues such as a patient out of bed or patient-caused medical device interference. ... The monitoring system will be used in Hines VA’s Community Living Center (CLC), which includes short- and long-term nursing home care and hospice.
Preventing adverse drug events in hospice care
03/18/24 at 03:00 AMPreventing adverse drug events in hospice care Hospice News, by Holly Vossel; 3/15/24 Documentation errors and a fragmented health system pose the greatest risks for adverse drug events among hospices. ... Evaluating these risks involves having solid medication reconciliation processes in place — both at the time of a patient’s admission and throughout their end-of life care experience, according to Mary Lynn McPherson, professor and executive program director of advanced post-graduate education in palliative care at the University of Maryland’s School of Pharmacy. McPherson also serves on the board of the American Academy of Hospice and Palliative Medicine (AAHPM).
Specialized nursing facility clinicians improve end-of-life care
03/18/24 at 03:00 AMSpecialized nursing facility clinicians improve end-of-life care Cornell Chronicle, by Marijke Vroomen Durning, Weill Cornell Medicine; 3/15/24 Specialized nursing facility clinicians, or SNFists, may decrease the likelihood of nursing home residents experiencing stressful hospitalizations and improve the quality of life in their last days, according to researchers from Weill Cornell Medicine. The paper, published March 15 in JAMA Network Open, examined how SNFists uniquely impacted the care of nursing home residents in their last 90 days, compared with those cared for by other clinicians. This large-scale study is the first of its kind.
Responding to Soul Injury: Tools for hope and healing
03/15/24 at 03:00 AMResponding to Soul Injury: Tools for hope and healing Journal of Hospice & Palliative Nursing; by Deborah Grassman, Abi Katz, Luann Conforti-Brown, Josephine F Wilson, Angie Snyder; 3/13/24Soul Injury is defined as a wound that separates a person from their real self, caused by unmourned loss and hurt, unforgiven guilt and shame, and fear of helplessness or loss of control. Tools and interventions have been developed to guide people impacted by Soul Injury. This study assessed the effectiveness of 12 tools and interventions, ... The Anchor Your Heart tool was the most frequently used tool and had the most enduring utilization across time and settings.Editor's Note: Click here for The Anchor Your Heart Tool identified in this article. Share this research and article with your clinical teams and bereavement counselors.
Palliative and end-of-life care in hematologic malignancies: Progress and opportunities
03/15/24 at 03:00 AMPalliative and end-of-life care in hematologic malignancies: Progress and opportunities JCO Oncology Practice, by Mazie Tsang, MD, MAS, MS and Thomas W. LeBlanc, MD, MA, MHS, FAAHPM, FASC; 3/13/24 ... An important finding from this study was the qualitative data from narratives of volunteer caregivers and hospice staff that described daily patient care, changes in patient status, perceived symptom burden, and indications for medication administration. The authors identified skin integrity concerns, bleeding, pathologic fractures, and delirium as unique issues for patients with hematologic malignancies enrolled on hospice. ... These findings provide further evidence that hospice care can and does work well for some patients with hematologic malignancies.
Heart failure staging and indications for advanced therapies in adults with congenital heart disease
03/15/24 at 03:00 AMHeart failure staging and indications for advanced therapies in adults with Congenital Heart DiseaseHeart Failure Clinics / Elsevier, by Alexander C Egbe and Heidi M Connolly; pre-publish 4/24 via onlineSummary: Heart Failure (HF) is common in adults with Congenital Heart Disease (CHD), United States, and it is the leading cause of death in this population. Adults with CHD presenting with stage D HF have a poor prognosis, and early recognition of signs of advanced HF, and referral for advanced therapies for HF offer the best survival as compared with other therapies. The indications for advanced therapies for HF outlined in this article should serve as a guide for clinicians to determine the optimal time for referral. Palliative care should be part of the multidisciplinary care model for HF in patients with CHD.
Doctor with terminal cancer shares the three things everyone should consider doing to prepare for death
03/15/24 at 02:30 AMDoctor with terminal cancer shares the three things everyone should consider doing to prepare for deathYour Tango, by Alexandra Blogier; 3/12/24Kim is a resident doctor who was diagnosed with metastatic sarcoma when she was 28 years old. She invites people to see what her life is like, as both a medical resident and a cancer patient, focusing on the practice of gratitude and being present. ... Kim revealed the three most important things she’s done as a cancer patient to get the administrative side of her affairs in order, which she recommends everyone do, even if they're not sick.
In the resuscitation discussion, do words matter between doctors and patients?
03/15/24 at 02:15 AMIn the resuscitation discussion, do words matter between doctors and patients? Rutgers, by Patti Zielinski; 3/12/24Rutgers Health researchers seek to reduce barriers to physicians having code status conversations with older adults. ... The study, published in the Journal of the American Geriatrics Society, sought to determine the best language doctors could use when discussing a patient’s code status to reduce the barrier to having these conversations. It found that it takes less than five minutes on average for doctors to have discussions going over what CPR is, what a patient’s preference might be and making a decision that patients felt comfortable with regarding whether they want to be resuscitated, according to the study.Editor's Note: Click on the title above for the summary description; click here for the detailed research article, "Aligning patient values and code status: Choice of Diction's Effect (CODE) study.
What are ageing and death from a biological point of view?
03/15/24 at 02:00 AMWhat are ageing and death from a biological point of view? Polytchnique insights, by Alexis Gautreau and Clemence Guillermain; 3/12/24 Linking philosophy and biology may seem strange. Yet there are many subjects where the two disciplines come into play and are, in turn, essential to understanding them. Death is a perfect example. This biological reality remains an abstract concept until we experience it in our own lives. But, however abstract it may be, death is based on a biological reality.
Can we make more accurate prognoses during last days of life?
03/14/24 at 03:00 AMCan we make more accurate prognoses during last days of life?Journal of Palliative Medicine; by Sylvie Bouchard, Andreea Paula Iancu, Elena Neamt, François Collette, Sylvie Dufresne, Patricia Maureen Guercin, Suganthiny Jeyaganth, Desanka Kovacina, Taliá Malagón, Laurie Musgrave, Marilisa Romano, Jenny Wong, Sybil Skinner-Robertson; 3/8/24Background: ... Established methods (Palliative Performance Scale [PPS], Palliative Prognostic Index [PPI]) have been validated for intermediate- to long-term prognoses, but last-weeks-of-life prognosis has not been well studied. Patients admitted to a palliative care facility often have a life expectancy of less than three weeks. Reliable last-weeks-of-life prognostic tools are needed. Conclusions: ... Using SPS [Short-Term Prognosis Signs] along with PPS and PPI during the last weeks of life could enable a more precise short-term survival prediction across various end-of-life diagnoses. The translation of this research into clinical practice could lead to a better adapted treatment, the identification of a most appropriate care setting for patients, and improved communication of prognosis with patients and families.
[ALS] Controlling what can be controlled: Palliative Care
03/14/24 at 03:00 AM[ALS] Controlling what can be controlled: Palliative Care ALS Association [Amyotrophic Lateral Sclerosis, commonly known as "Lou Gehrig's Disease]; 3/13/24 “Palliative care specialists can help people determine and define what are the ‘everyday things’ that matter to them. Some people may already know what these are but may not have had an opportunity to share this information with their health care team,” Dr. Mehta says. “Others may not know they can share this with their health care team. They may not know where to find help with these ‘everyday things.’ [Dr. Ambereen K. Mehta, MD, MPH, FAAHPM, associate professor of palliative care in the Departments of Medicine and Neurology at the Johns Hopkins School of Medicine]Editor's Note: Are your palliative care services connected with your local ALS Association? This page on the ALS website describes beautifully the benefits of palliative care as soon as the diagnosis occurs.
Palliative care cuts costs for metastatic cancer
03/13/24 at 03:00 AMPalliative care cuts costs for metastatic cancer
Facing dementia: clarifying end-of-life choices, supporting better lives
03/13/24 at 03:00 AMFacing dementia: clarifying end-of-life choices, supporting better lives EurekAlert!, by The Hastings Center; 3/11/24A new Hastings Center special report considers how America’s aging society responds to the needs and concerns of people facing dementia. ... Three essays reconsider familiar ways of thinking and talking about decision-making and care concerning people nearing the end of life to better reflect the needs and concerns of people facing dementia. For example, “Too Soon or Too Late: Rethinking the Significance of Six Months When Dementia Is a Primary Diagnosis” takes a critical look at the “six-month rule.”
Oncology hospitalists improve hospice transitions for patients with advanced cancers
03/13/24 at 03:00 AMOncology hospitalists improve hospice transitions for patients with advanced cancers Yale School of Medicine, by Osman Moneer; 3/11/24Unplanned hospitalizations for patients with advanced cancer often trigger discussions about care goals and transitions to hospice. Late referrals to hospice, particularly near the end of life, have been associated with reduced quality of life and increased healthcare costs. A new research study published in Cancer investigates the impact of oncology hospitalists on the timing of hospice transitions for patients with advanced cancers.
ACC updates HFrEF Decision Pathway, reinforcing the Four Pillars of Therapy
03/13/24 at 03:00 AMACC updates HFrEF Decision Pathway, reinforcing the Four Pillars of Therapy
Whistleblower cases on the rise nationwide; Sarbanes-Oxley, Dodd-Frank laws open door for more to speak out
03/13/24 at 03:00 AMWhistleblower cases on the rise nationwide; Sarbanes-Oxley, Dodd-Frank laws open door for more to speak out PressReader, Herald-Tribune; by Esteban Parra and Xerxes Wilson; 3/10/24A former medical director specializing in neurosurgery at southern Delaware's largest health care provider claims in a lawsuit that Bayhealth Medical Center misclassified "brain-dead" patients in order to overbill for services.
Is extending life by weeks worth the toll some cancer drugs take? Doctors push for 'common-sense oncology'
03/13/24 at 03:00 AMIs extending life by weeks worth the toll some cancer drugs take? Doctors push for 'common-sense oncology' CBC News, by Amina Zafar and Christine Birak; 3/11/24 People may celebrate a 2-week improvement in survival without acknowledging costs. When a treatment buys a few weeks or months but comes with with a lot of side-effects, then the perspectives of people with cancer may differ, says Dr. Christopher Booth. ... The goal of what they call "common-sense oncology" is to prioritize treatments that meaningfully improve survival and quality of life. They aim to address what they see as problems in the field, such as a lack of critical thinking in oncology training, falling standards for drug approvals and avoidance of end-of-life discussions.
In the ICU, what is a good death? Understanding why clinicians and patients' families may disagree in Intensive Care Unit
03/13/24 at 02:00 AMIn the ICU, what is a good death? Understanding why clinicians and patients' families may disagree in Intensive Care Unit Northwestern Now, by Marla Paul; 3/7/24What is a good death for a patient in the Intensive Care Unit (ICU)? The answer to that question may depend on whether you ask a family member of a patient or the physician, who are not necessarily aligned. ... Approximately 20-30% of people who die in the U.S., die in the ICU, according to previous research. Nearly 60% of ICU admissions result in death. Wide discrepancies have been documented between a patient’s stated preferences and the end-of-life care actually delivered.
When health care is woven in our family fabric, we find support in unexpected places
03/12/24 at 03:40 AMWhen health care is woven in our family fabric, we find support in unexpected places Oncology Nursing Society (ONS) Voice, by Suzanne M. Mahon, DNS, RN, AOCN®, AGN-BC, FAAN; 3/7/24... We have a built-in support system in our family. We understand all of those feelings and stressors in each other. We just get it. ... Where is your dinner table of support? Who is your go-to person who just gets it and listens? My husband and daughters support me, and I also have friends from nursing school, the workplace, and ONS who support me. They make all the difference in the world. Today, take time to thank your own support team.
NYC Health + Hospitals/Bellevue opens new Palliative Care Serenity Unit for patients and families
03/12/24 at 03:00 AMNYC Health + Hospitals/Bellevue opens new Palliative Care Serenity Unit for patients and families NYC Health+Hospitals Press Release; 3/7/24 NYC Health + Hospitals/Bellevue today announced the opening of a new Palliative Care Serenity Unit for patients and families. ... “We created the Serenity Unit because we noted an increasing number of patients either spending their dying days at the hospital or in need of extra support and symptom management expertise that palliative care provides,” said Susan E. Cohen, MD, director of the Palliative Care Program at NYC Health + Hospitals/Bellevue. “We want to ensure that patients who are here in their final days are being treated with dignity and expertise.”Editor's Note: NYC Health + Hospitals/Bellevue is the oldest hospital in America, tracing their roots back to 1736 when a six-bed infirmary opened on the second floor of the New York City Almshouse.
Palliative care: A compassionate approach for mesothelioma patients
03/12/24 at 02:15 AMPalliative care: A compassionate approach for mesothelioma patientsSurviving Mesothelioma, by Holly Zink; 3/10/24Mesothelioma is a rare and aggressive cancer linked to asbestos exposure. It poses significant challenges to those diagnosed and their loved ones. The disease affects the lining of the lungs (pleura). But it can also occur in the lining of the abdomen (peritoneum) and other organs. Mesothelioma has an average survival rate ranging from 8 to 14 months post-diagnosis. Managing the physical, emotional, and practical aspects of this condition is important.
Patients with metastatic cancer state more accurate prognosis when in poor health
03/12/24 at 02:00 AMPatients with metastatic cancer state more accurate prognosis when in poor healthMedscape / YouTube, Dr. Maurie Markman; 3/7/24Dr. Maurie Markman discusses a paper focused on the controversial oncology topic of prognosis beliefs among patients with metastatic cancer.Editor's Note: For the transcript, click on the link beneath the YouTube's description that has the text "medscape.com/viewarticle."
Programmatic palliative care consultations in pediatric heart transplant evaluations
03/11/24 at 03:00 AMProgrammatic palliative care consultations in pediatric heart transplant evaluations Pediatr Cardiol, by Erika J Mejia, Rui Xiao, Jennifer K Walter, Chris Feudtner, Kimberly Y Lin, Aaron G DeWitt, Meeta Prasad Kerlin; 3/8/24 Guidelines advocate for integrating palliative care into the management of heart failure (HF) and of children with life-limiting disease. The potential impact of palliative care integration into pediatric HF on patient-centered outcomes is poorly understood. The present study sought to assess the association of programmatic implementation of palliative care into the heart transplant evaluation process with hospital-free days (HFD) and end of life (EOL) treatment choices.