Literature Review

Characteristics of patients enrolled in hospice presenting to the emergency department American Journal of Emergency Medicine; by Kayla P Carpenter, Fernanda Bellolio, Cory Ingram, Aaron B Klassen, Sarayna S McGuire, Alisha A Morgan, Aidan F Mullan, Alexander D Ginsburg; 12/9/24, online ahead of print Emergency Departments (EDs) frequently care for patients with life-limiting illnesses, with nearly 1 in 5 patients enrolled in hospice presenting to an ED during their hospice enrollment. This study investigates the reasons patients enrolled in hospice seek care in the ED, the interventions they receive, and their outcomes. ... Patients enrolled in hospice most frequently presented to the ED for trauma [36%; with 15% for pain, 12% for catheter/tube malfunction]. Most received laboratory studies and imaging. Nearly half of patients were admitted to the hospital and short-term mortality was high, particularly for patients enrolled in hospice for needs for ED care? Ie.,

What they love and loathe: Medscape Nurse Career Satisfaction Report 2024 Medscape; by Jon McKenna; 12/13/24 Despite well-publicized issues buffeting their profession, nurses in a Medscape survey overwhelmingly said they are happy with their career choice, and most said they would make it again. They also told us about their most- and least-favored job features, recounted any experiences with abuse at work, revealed possible alternative careers, and reported union membership, among other insights. [Click on the title's link to continue reading.]

Families value flexibility and compassion in end-of-life care for children with cancer Hematology Advisor; by Megan Garlapow, PhD; 12/12/24 Bereaved families of children who died of cancer expressed a strong desire for high-quality end-of-life care that balanced comfort with continued treatment efforts, particularly chemotherapy, according to results from a study published in Cancer. Families did not perceive a conflict between comfort care and the pursuit of chemotherapy, seeking both as integral parts of their child’s final days. Despite variations in race and location, there was no clear preference for home or hospital deaths, ... Instead, decisions surrounding the location of death were often driven by the child’s preferences, medical needs, the impact on other family members, and prior experiences with death. ... Family decision-making was centered on maintaining hope, avoiding harm, and doing what was best for their child and themselves, with religious beliefs playing a significant role.

Caring for emotional and spiritual needs of ICU families Medical Xpress; by Regenstrief Institute; 12/10/24 Family members of intensive care unit (ICU) patients often experience psychological and spiritual distress as they deal with serious illness and potential death. A new paper authored by a national team of experts at the intersection of health and spirituality highlights the critical role of the spiritual care provided by chaplains in supporting family members of ICU patients. ... "Our model describes three important ways that chaplain care supports ICU family members and helps them when faced with difficult decisions," said study co-author and chaplain-researcher George Fitchett, DMin, Ph.D., professor of religion, health and human values at Rush University Medical Center. "Chaplains provide family members with spiritual and emotional support. They also facilitate conversation with the medical team and help family members process the information from those conversations. Significantly, our study highlights the care provided by chaplains to ICU patient families and its impact on important outcomes." Editor's note: Click here for Improving Outcomes for for ICU Family Members: The Role of Spiritual Care, published in the Journal of Palliative Medicine, Oct 2024.

The most significant palliative care research trends in 2024 Hospice News; by Holly Vossel; 12/6/24 Palliative care has been at the forefront of several research efforts in 2024, with findings increasingly pointing to the value proposition of these services when it comes to cost savings and quality. Data has become a crucial component of understanding both unmet patient needs and where to fuel resources that address them, Empath Health President and CEO Jonathan Fleece said during the Hospice News Palliative Care Executive webinar. ... Several studies have examined the impacts of palliative care delivery across various health care settings, including hospitals, oncology clinics and in the home. When provided with these services, research has found links to improved mental health support, particularly among patients with serious illnesses. ... Data on improved patient outcomes and cost savings associated with palliative care treatments can be helpful for providers when it comes to navigating reimbursement pathways in the value-based arena, according to Susan Ponder-Stansel, president and CEO of Florida-based Alivia Care.

Palliative care bypasses Black heart disease patients The St. Louis American; by Alvin A. Reid; 11/30/24 A study by Saint Louis University researchers paints a grim picture for many heart failure patients in America – and the outlook is worse for African Americans. The study, published in the Journal of the American Heart Association, found that only one in eight patients with heart failure nationwide receive palliative care consultations within five years of diagnosis. Alarmingly, Black people were 15% less likely to receive palliative care compared to white patients with similar heart health illness. Other recent respective studies illustrate the higher risk and mortality rates for cardiovascular disease in the Black population – further demonstrating that the missing palliative care options have a greater negative impact on African American health. New statistics from a medical team at EHproject show African American women are at a greater risk for cardiovascular disease than their white counterparts. It found that 47.3% of Black women have heart disease. If they do not have it currently, they are 2.4 times more likely to develop heart disease. ... A March 2023 study published in JAMA Cardiology showed that Black men remain at the highest risk of dying from cardiovascular disease. ... 

New HFSA Consensus Statement provides practical guide for implementing palliative care with heart failure patients PR Newswire; by Heart Failure Society of America; 11/26/24 Patients with heart failure (HF) suffer from compromised quality of life, high mortality, and complex medical decision-making. Palliative care is an essential part of a comprehensive HF care plan. Integration of Palliative Care into Heart Failure Care: Consensus-Based Recommendations from the Heart Failure Society of America (HFSA), published today in the Journal of Cardiac Failure (JCF), is a practical guide for implementing palliative care as a component of overall HF care. It has been shown that palliative care interventions improve disease-specific quality of life, symptom control, and caregiver burden among patients with HF. Authors of the statement are indicating that HF clinicians should be skilled in providing primary palliative care with competence in basic domains including the management of physical and psychosocial symptoms and serious illness communication.

Nursing homes with more black residents lag in care goal discussions Medical Xpress; by Columbia University Irving Medical Center; 11/20/24 New research from Columbia University School of Nursing published in the American Journal of Hospice and Palliative Medicine shows that timely goals of care discussions are less likely to take place in nursing homes with a higher percentage of Black residents. These discussions are crucial to ensuring that nursing home residents receive care that aligns with their wishes, postdoctoral research fellow Jung A. "Chloe" Kang, Ph.D. '24, Professor Patricia Stone, Ph.D., and their colleagues note in the report, published online September 15, 2024. But these conversations are often delayed until patients experience life-threatening events, the authors add, which can lead to unwanted therapies and unnecessary hospitalizations. ... 

How health system palliative providers can leverage data to gain more resources Hospice News; by Jim Parker; 11/12/24 Palliative care clinicians in health systems can apply research to lobby administrators for additional resources. In doing so, they may get a profile boost due to the COVID-19 pandemic. Palliative care’s reputation grew during the pandemic, with more patients and health care organizations recognizing its benefits and value. Stakeholders can leverage this in discussions with organization leaders, according to Dr. Tamara Vesel, chief of the Palliative Care Division at Tufts Medical Center and associate professor of medicine and pediatrics, Tufts University School of Medicine. ... When approaching organization leaders to advocate for palliative care, the importance of data cannot be overstated, according to study co-author Dr. Bernice Burkarth, chief medical officer of Tufts Medicine Care at Home and assistant professor of medicine at Tufts University School of Medicine.Editor's note: Reminder, our newsletter's Saturday edition always compiles relevant, timely research articles for you. To me, the word "research" means to "re-search," as in to search again--now--for the best information and appliciations available, today. We do alot of the work for you, re-searching and re-searching topics, pairing timely hospice and palliative challenges with formal research's background needs, research methods, data, references, conclusions, applications, and needs for further examination. 

Most heart failure patients miss out on guideline-recommended palliative care Cardiovascular Business; by Dave Fornell; 11/6/24 Over the past decade, the American Heart Association (AHA) and European Society of Cardiology have recommended integrating palliative care into heart failure management. Despite these recommendations, the use of palliative care for heart failure remains low in the United States. Racial and geographic variations in access and use of palliative care are also pronounced, highlighting health disparities. These were the findings of a recent study in the Journal of the American Heart Association. Researchers at Saint Louis University led the study and said only one in eight patients with heart failure in the United States receive palliative care consultations within five years of diagnosis. Their study highlights the alarmingly low uptake of palliative care among adults with heart failure in the U.S., especially compared to patients with cancers that have the same mortality rates. The study also pointed out significant racial and geographic disparities. Black patients were 15% less likely to receive palliative care compared to their white counterparts. They said this disparity is particularly concerning given the higher cardiovascular risk and mortality rates in the Black population.

How four partnerships are advancing cutting-edge cancer care Modern Healthcare; by Caroline Hudson; 11/4/24 Top cancer treatment organizations are leaning into partnerships to take care delivery to the next level. The National Cancer Institute estimates more than 2 million cases of cancer will be diagnosed in 2024. Healthcare leaders say collaboration among technology companies, research institutes, academic medical centers and universities allows them to combine resources and develop cutting-edge treatments more quickly — potentially at a fraction of the cost of standalone projects. ... Here’s what executives say about how four partnerships are advancing cancer care and why collaboration made the most sense for their systems.

Dr. Wu explores team engagement in Psychology Today Montclair State University; Feliciano School of Business; 10/28/24 Dr. Te Wu, Associate Professor in the department of Management, recently published an article in Psychology Today. The article, The Psychology of Team Engagement, co-authored with Dr. Brian Williamson, delves into the importance of empathetic leadership for high performing, motivated teams. Team engagement is crucial for organizational success, especially in today’s complex work environment. High engagement levels lead to increased productivity, creativity, and profitability, while disengagement can result in high turnover and low employee morale. Research indicates that highly engaged employees can make companies 22% more profitable and contribute to a 19% increase in operating income. Key factors influencing engagement include autonomy, competence, and connection. Autonomy allows employees to take control of their work, competence is enhanced through continuous learning and feedback, and connection establishes a sense of belonging. 

Millennials are reporting a mysterious wave of memory problems. What’s going on? Globe Magazine, Boston, MA; by Felice J. Freyer; 10/21/24 ... Memory lapses are expected as we age, but there’s evidence that many younger people — in the prime of life, ages 20 to 50 — are losing their grip on thoughts, struggling to retain new information and retrieve old knowledge. Experts blame the way we live and the world we live in, abuzz with distracting technologies amid endless demands on our time and minds. Dr. Andrew E. Budson, a Boston University neurologist who specializes in memory disorders in older adults, runs into younger people whenever he gives a talk. Inevitably, someone in their 30s or 40s will approach him afterward with: My memory is terrible. . . . I know I’m young, but I’m concerned I’m getting Alzheimer’s disease. ... [Click on the title's link to continue reading.]