Literature Review

Pediatric oncology hospice: A comprehensive reviewAmerican Journal of Hospice and Palliative Care, by Ali Tafazoli and Katharine Cronin-Wood; 1/15/24.Our systematic approach led to development of a well-organized structure introducing the foundational elements, highlighting complications, and uncovering hidden gaps in this critical area. This structured framework comprises nine major categories including general ideology, population specifications, role of parents and family, psychosocial issues, financial complications, service locations, involved specialties, regulations, and quality improvement. This platform can serve as a valuable resource in establishing a scientifically reliable foundation for future experiments and practices in pediatric oncology hospice.

Handbook of Social Justice in Loss and Grief, in Routledge's Series in Death, Dying and BereavementRoutledge, Series in Death, Dying and Bereavement, edited by Darcy L. Harris and Tashel C. Bordere; pub. 2016, available The Handbook of Social Justice in Loss and Grief is a scholarly work of social criticism, richly grounded in personal experience, evocative case studies, and current multicultural and sociocultural theories and research ...  at the very junctures when people are most vulnerable—at points of serious illness, confrontation with end-of-life decision making, and in the throes of grief and bereavement. Harris and Bordere give the reader an active and engaged take on the field, enticing readers to interrogate their own assumptions and practices while increasing, chapter after chapter, their cultural literacy regarding important groups and contexts.Editor's Note: Are you eager to take a deep dive into Diversity, Equity, and Inclusion (DEI) in our worlds of loss and grief? Immerse yourself in this definitive, thanatological (the study of dying, death, and bereavement) research and its applications for you.

How history has shaped racial and ethnic health disparities: A timeline of policies and eventsKFF, with thanks to Daniel Dawes, Gilbert Gee, Michelle Tong; ongoing reference for health policy research, polling and journalismThis timeline offers a historical view of significant U.S. federal policies and events spanning the early 1800s to today that have influenced present-day health disparities. It covers policies that directly impacted health coverage and access to care, relevant events in medicine, social and economic policies and developments that influence health, and efforts to tackle inequalities. ... While not exhaustive, the timeline aims to provide context for addressing disparities, acknowledging the complex history that shapes racial and ethnic health and health care disparities that persist today.

Videos help increase communication of care goals for hospitalized older adultsNational Institute on Aging; 1/11/24A video intervention delivered to older hospital patients by palliative care educators helped increase communication and documentation of care preferences. These findings, published in JAMA Network Open, are from a study led by NIA-funded Harvard Medical School and Massachusetts General Hospital researchers.

Death anxiety impairs self-esteem, quality of life in older adults with chronic diseaseMcKnights Long-Term Care News, by Kristen Fischer; 1/4/24No surprise here: A new study that shows anxiety about dying can affect self-esteem and quality of life among people with chronic diseases. The authors said they’d like to see more interventions to bolster self-esteem and lower death anxiety in middle-aged and older adults who have chronic diseases. The study was published on Tuesday in BMC Psychiatry. The negative consequences of chronic diseases like cancer, diabetes and cardiovascular disease (along with the unpredictability of death) makes middle-aged and elderly adults who have these diseases more vulnerable to death anxiety, the authors wrote. 

For underserved patients, Alzheimer’s care requires balance, respect, and cultural sensitivityPittsburgh News December 20, 2023Dr. Jennifer Hagerty Lingler

Top 5 ‘Hidden Gem’ Palliative Care News Stories from 2023Palliative Care NewsDecember 18, 2023Reimbursement and regulation reigned in the news this year, but other important trends garnered attention as well. Below are top five under-the-radar stories that, while important, didn’t make our most read this year. The topics range from unmet staff and patient needs, financial and operational headwinds and research fueling innovative care delivery approaches.

Hospices’ Unanswered Questions—Filling the Research GapsHospice NewsDecember 14, 2023Research around hospice care has come a long way. But data gaps exist when it comes to expanding understanding of some aspects of end-of-life care delivery. A range of researchers has amassed a growing base of data on hospice, with some common themes tied to quality outcomes, costs, length of stay and general inpatient care. ... Having more information around successful care delivery models and training processes could impact the ability for hospices to foster growth and improve sustainable clinical capacity. 

Shifting focus to MA will alter ‘life as we know it’ for home care providers, experts sayMcKnight’s Home Care DailyDecember 7, 2023Medicare Advantage is disrupting the traditional home care landscape, experts from the Research Institute for Home Care said in a webinar hosted Wednesday afternoon by the National Association for Home Care & Hospice. As MA continues to dominate Medicare and cover those beneficiaries receiving home health, certain trends—such as access issues or shifting utilization rates for services within traditional Medicare—have become more pronounced. “Medicare Advantage is growing, and that’s going to result in a decreased volume in home health claims among traditional Medicare beneficiaries,” Elizabeth Hamlett, senior research associate for evaluation and health economics at KNG Health, said during the webinar about the recently released 2023 RIHC [Research Industry for Home Care] Chartbook. Home health users in general also may become more reflective of the characteristics of MA beneficiaries—which essentially means sicker and poorer, she said. ... However, MA and fee-for-service beneficiaries showed greater variation in their reported access to home health services. “What we’re seeing here is potentially an access problem for Medicare Advantage users,” Hamlett said.