[Australia] The unmet needs of parents in pediatric palliative care: A qualitative systematic review

[Australia] The unmet needs of parents in pediatric palliative care: A qualitative systematic review
Journal of Palliative Medicine; by Piyumi Senanayake, John Oldroyd; 8/25
The goal of pediatric palliative care is to improve the quality of life of children with life-limiting or life-threatening disease and their families through a holistic care approach. Thirteen studies were included [in this analysis]. Five major themes emerged: (1) pediatric palliative care services delivery and care coordination, (2) emotional, psychological, and spiritual support, (3) end-of-life care and bereavement support, (4) practical and daily living support, and (5) communication and information. Parents reported unmet needs in multiple dimensions and wished for more support in caring for their children. Given that all of the unmet needs align with already established pediatric palliative care standards, this review highlights the need for revised health care policies and practices that will lead to better implementation of these standards in practice.