Literature Review



Providers, patients would benefit from hospice telehealth extension, doc offers

08/05/24 at 03:00 AM

Providers, patients would benefit from hospice telehealth extension, doc offers McKnights Senior Living; by Rachael Zimlich; 7/31/24 The COVID-19 pandemic triggered many changes in healthcare, and not all were bad. In the years since the coronavirus forced worldwide lockdowns and limited access to care, the healthcare industry increasingly has embraced measures such as remote care and telehealth. One surprising area that has benefitted from those changes is hospice care. Hospice care by telehealth provides an obvious convenience for patients, but [Sean Oser, MD, MPH] shared his surprise at how much the increased frequency and ease of visits — plus better insight into the patient’s home environment —could improve his own experience as the provider. ... The latest extension of rules to allow hospice provided via telehealth to be paid through Medicare will end in December. ... Representatives called out the need to extend the hospital-at-home waiver, which is set to expire at the end of 2024.

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Prognosis superspecial: A podcast with Kara Bischoff, James Deardorff, and Elizabeth Lilley

08/05/24 at 03:00 AM

Prognosis Superspecial: A Podcast with Kara Bischoff, James Deardorff, and Elizabeth LilleyGeriPal Podcast; by Alex Smith, Eric Widera, Kara Bischoff, James Deardorff, Elizabeth Lilley; 7/25/24We are dusting off our crystal balls today with three amazing guests who have all recently published an article on prognosis over the last couple months: Kara Bischoff, James Deardorff, and Elizabeth Lilley. To start us off we talk with Kara Bischoff about the article she just published in JAMA Network on a re-validation of the Palliative Performance Scale (PPS) in a modern day palliative care setting... Next, we talk with James Deardorff about whether we can accurately predict nursing home level of care in community-dwelling older adults with dementia... Lastly, we invite Liz Lilley to talk about her paper in Annals of Surgery about prognostic alignment, including why as palliative care and geriatrics teams we need to take time to ensure that all disciplines and specialties are prognostically aligned before a family meeting.

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NAHC & NHPCO leaders say united organization already at work

08/05/24 at 03:00 AM

NAHC & NHPCO leaders say united organization already at work HomeCare; 8/1/24 The new group formed by the recent merger of the National Association for Homecare and Hospice (NAHC) and the National Hospice and Palliative Care Organization (NHPCO) has already gotten to work advocating in the industry—even though it doesn’t yet have a name or CEO. That’s what leaders said in a town hall meeting to discuss the progress of the alliance, which, for now, is being called “the alliance” as a sort of shorthand. “The work of the organizations doesn’t stop because of the merger,” said Ken Albert, chair of the group’s transition board, told more than 230 attendees for the online town hall on Thursday, July 31. “We’re continuing to serve members in all ways.” The two groups officially merged July 1 and hoped to have a name ready for the launch but encountered hurdles regarding trademark, said. 

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Today's Encouragement

08/05/24 at 03:00 AM

Pickleball is a lot like life. The one who serves the most usually wins...

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World Hospice and Palliative Care Day (WHPCD) Resource Toolkit

08/05/24 at 03:00 AM

World Hospice and Palliative Care Day (WHPCD) Resource ToolkitWorldwide Hospice and Palliative Care Alliance (WHPCA); 8/1/24WHPCA celebrates 10 years since the World Health Assembly (WHO’s Governing Body) passed the only stand-alone resolution on palliative care, calling for all countries to “strengthen palliative care as a component of comprehensive care throughout the life course...” [They have made a free Resource Toolkit available.]

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National plan on aging ‘essential’ to addressing key issues: AARP

08/05/24 at 03:00 AM

National plan on aging ‘essential’ to addressing key issues: AARPMcKnight's Senior Living; by Kimberly Bonvissuto; 7/18/24Aging, itself, isn’t a challenge - but being unprepared for aging is, according to AARP, which on Wednesday released a white paper that lays out a blueprint for developing a national plan on aging. The paper marks the launch of the organization’s Aging Well in America Initiative, for which the AARP took best practices from federal, state and local initiatives to create a blueprint for the development of a “robust” national plan to foster the well-being, quality of life and dignity of older Americans.

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Hospices build community partnerships to better serve patients, employees

08/04/24 at 03:55 AM

Hospices build community partnerships to better serve patients, employees Hospice News; by Jim Parker; 7/29/24 Hospice care does not occur in a vacuum, and many operators find themselves building partnerships with other community organizations to better serve patients and support their staff. Providers work with other institutions to provide general inpatient and respite care, address social determinants of health and improve health equity, among other initiatives. Some also partner with medical and nursing schools to ensure students in health care fields gain exposure to hospice and palliative care principles. Notable Mentions: Skelly Wingard, CEO of By the Bay Health; Mary Shankster, Chief Development Officer at Stillwater Hospice; Altonia Garrett, COO of Blue Ridge Hospice

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The bereavement care crisis in hospice facilities

08/04/24 at 03:50 AM

The bereavement care crisis in hospice facilities MedCity News; by Cara McCarty Abbott; 7/28/24 Bereavement care is an essential part of the hospice experience, designed to support those coping with loss. Bereavement care is not just a compassionate gesture; it is a critical component of the hospice care continuum. So why is it so underserved in the U.S.? ... Instead of pushing harder on hospice providers to find more ways to deliver comprehensive bereavement care with less, it's key to address the systemic forces hampering their ability to deliver quality care at the scale required and address these challenges. Editor's Note: Additionally, does your hospice still rely on the misnamed, overused "5 Stages of Grief"? These were determined from 1960's persons who were dying, not from bereaved persons who lived on--surviving--the deaths. Extensive fresh, contemporary, hospice-designed grief resources to support bereavement counselors and the persons they serve are provided by Composing Life Out of Loss, a sponsor for our newsletter.

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Acupuncture as a support in palliative care at Sun City Center HAW

08/04/24 at 03:45 AM

Acupuncture as a support in palliative care at Sun City Center HAW The Tidewater News, Ruskin, FL; 7/22/24 Sun City Center Health and Wellness (HAW) is dedicated to providing comprehensive care for patients managing serious illnesses, championing the use of acupuncture as a key supportive treatment in palliative care. This practice, grounded in traditional Chinese medicine, offers relief from common symptoms and enhances overall well-being. ... The role of acupuncture in palliative care is gaining recognition for its potential to improve the quality of life for patients dealing with serious illnesses.

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Why home health providers should expect to see a ‘less draconian’ final payment rule

08/04/24 at 03:40 AM

Why home health providers should expect to see a ‘less draconian’ final payment rule Home Health Care News; by Joyce Famakinwa; 7/22/24 As home health providers continue to digest the proposed payment rule for 2025, National Association for Home Care & Hospice (NAHC) President William A. Dombi believes that the industry will ultimately see a comparatively toned down final rule. “We believe we will not end up with this proposed rule as a final rule,” he said during the opening presentation at NAHC’s Financial Management Conference in Las Vegas on Sunday. “We will end up with something less draconian. The cuts will be reduced because, No. 1, that’s what they’ve done for the last several years, and, No. 2, it’s an election year.” Even with a prediction of a “less draconian” final payment rule, NAHC is still gearing up to fight against home health cuts and the Centers for Medicare & Medicaid Services’ (CMS) payment-setting methodologies.

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Hospices strategize sustainable growth for Veteran Programs

08/04/24 at 03:35 AM

Hospices strategize sustainable growth for Veteran Programs Hospice News; by Holly Vossel; 7/26/24 Hospices combat both operational and financial challenges as they seek to grow and evolve their veteran programs around the diverse and complex needs of patients and their families. Some of the largest expenses associated with offering veteran services include staffing and training costs ... In addition to staff training, this includes having ways to honor veterans for their service, assess the social determinant of health resources they may need and identify gaps of caregiver support. ... Forming community collaborations with organizations such as We Honor Veterans [NHPCO], Wounded Warriors or the Veteran Affairs’ (VA) Pet Partners therapy program can be beneficial to having a more inclusive care delivery approach.Editor's Note: Notable mentions include Carlos Graveran, executive director at Maryland-based Frederick Health Hospice; Sherri Bickley, vice president of patient support services at Oklahoma-based Crossroads Hospice & Palliative Care; and Carla Creegan, PACE director of clinical services and director of adult day swervices at Empath Health.

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Sasha McAllum Pilkington on grace and storytelling at the end of life

08/04/24 at 03:30 AM

Sasha McAllum Pilkington on grace and storytelling at the end of life Psychotherapy.net; by Lawrence Rubin; 7/22/24 Narrative Clinician, Sasha McAllum Pilkington [of New Zealand],  shares poignant stories she co-created with hospice clients which honor and celebrate their lives. [This interview includes: ...

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Senators introduce bipartisan bill to expand access to senior care program [PACE]

08/04/24 at 03:25 AM

Senators introduce bipartisan bill to expand access to senior care program [PACE] FCFreePress.com; by News Desk - Health News; 7/25/24 [Thursday, 7/25/24,] U.S. Senators Bob Casey (D-PA) and Mike Braun (R-IN), leaders of the U.S. Senate Special Committee on Aging, introduced the bipartisan PACE Anytime Act. This legislative move seeks to broaden the accessibility of the Program of All-Inclusive Care for the Elderly (PACE) which serves thousands of lower-income seniors and individuals with disabilities by offering comprehensive, integrated care. ... Under current regulations, eligible individuals can only enroll in PACE programs at the beginning of each month. The PACE Anytime Act proposes to remove this restriction, allowing for enrollment at any time during the month, thereby making the program more accessible. 

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Caregivers of end-of-life patients reveal the last words they hear most often and the most common regrets from patients

08/04/24 at 03:20 AM

Caregivers of end-of-life patients reveal the last words they hear most often and the most common regrets from patients WhatsNew2Day; by Alexander; 7/27/24... While each person’s final moments are different, chaplains and palliative care nurses have said most people approach their death with “radical acceptance.” People who are actively dying also often have a new sense of clarity about the universe and may even have a temporary burst of energy or sudden moments of clarity if they have dementia. The last words patients usually say to their families are to tell them they love them... [Often, people] who are in the midst of dying want to be surrounded by their loved ones and pets. Their final words are often words of love and pleas for forgiveness, as well as expressions of regret, ... [Another described that people show] "a desire for connection" with loved ones and faith. Editor's Note: This article provides a balanced scope of descriptions from several professionals, notably Catherine Duncan, Annemarie Switchulis, Neal Shah, and Zackary Price. In this day of social media, some hospice professionals (past or present) tout definitive, authoritative descriptions of what all dying persons experience, with too many assumptions and generalizations. Beware what you read and distribute, especially if the tone and language (of other articles) are sensationalized in a way to garner social media "expertise," followers and Shares--at the expense of more balanced, sensitive, diverse, personalized experiences.

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Empath Health, Trustbridge leaders are setting home health sights high after integration

08/04/24 at 03:15 AM

Empath Health, Trustbridge leaders are setting home health sights high after integration Home Health Care News; by Joyce Famakinwa; 7/26/24 Empath Health is a company in transition. In the spring, it completed an affiliation process with Trustbridge, which formed the largest nonprofit post-acute provider organization in the state of Florida. ... Since completion of the affiliation process, the company has focused on integration, synergistic opportunities and determining how best to deliver care to the communities it serves. One of the people at the helm of this transition is Tarrah Lowry, Empath Health’s chief operating officer and Trustbridge’s interim president. [Click on the title's link to read the recent interview by Home Health Care News' with Tarrah Lowry.]

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Awards and Recognitions: July 2024

08/04/24 at 03:10 AM

Awards and Recognitions: July 2024We congratulate these honorees and celebrate their contributions to our collective hospice and palliative care mission, vision, and compassionate care throughout our world. Do you know any of these leaders? We encourage you to forward this to them or to find another way to celebrate their success. (We are piloting this as a monthly feature in Hospice & Palliative Care Today.) 

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‘Green burials’ grow in popularity as alternatives to traditional funerals

08/04/24 at 03:05 AM

‘Green burials’ grow in popularity as alternatives to traditional funerals Planet Detroit; by Erica Hobbs; 7/24/24|... [Modern] funeral practices are wreaking havoc on the environment. Bodies are embalmed with toxic chemicals and buried in caskets placed in non-biodegradable vaults that take up increasingly limited space in cemeteries. According to a Cornell University study, an estimated 4.3 million gallons of embalming fluid, 20 million feet of hardwood, 1.6 million tons of concrete and 64,500 tons of steel are used in American burials yearly. Even cremation — often thought of as a green alternative to burial — requires up to 500 gallons of fuel and releases up to 250 pounds of carbon dioxide emissions, according to a recent study from the Green Burial Council (GBC). However, for those looking to reduce their carbon footprints even in death, green options, though still relatively rare, are available in Michigan. ... [Click on the title's link to continue reading these descriptions of "green burials."]

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Today's Encouragement

08/04/24 at 03:00 AM

Never rob your character to enrich your pocket. ~James Lendall Basford, Seven Seventy Seven Sensations, 1897

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CMS 2025 Hospice Final Rule: Content and Initial Responses

08/04/24 at 03:00 AM

CMS 2025 Hospice Final Rule: Content and Initial Responses

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Sunday newsletters

08/04/24 at 03:00 AM

Sunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!

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Familial loss of a loved one and biological aging: NIMHD Social Epigenomics Program

08/03/24 at 03:45 AM

Familial loss of a loved one and biological aging: NIMHD Social Epigenomics Program JAMA Network Open; by Allison E. Aiello, PhD, MS; Aura Ankita Mishra, PhD; Chantel L. Martin, PhD; Brandt Levitt, PhD; Lauren Gaydosh, PhD; Daniel W. Belsky, PhD; Robert A. Hummer, PhD; Debra J. Umberson, PhD; Kathleen Mullan Harris, PhD; 7/29/24Is the experience of losing a loved one associated with accelerated biological aging? In a cohort study of 3963 participants from the National Longitudinal Study of Adolescent to Adult Health, nearly 40% experienced the loss of a close relation by adulthood. Participants who had experienced a greater number of losses exhibited significantly older biological ages compared with those who had not experienced such losses. These findings suggest that loss can accelerate biological aging even before midlife and that frequency of losses may compound this, potentially leading to earlier chronic diseases and mortality.

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Advance Care Planning: Perspectives of People Living in Prison

08/03/24 at 03:40 AM

Advance Care Planning: Perspectives of People Living in PrisonJournal of Hospice and Palliative Nursing; by Erin Kitt-Lewis, Nanda Zheng, Susan J Loeb; 8/24A person-centered approach to advance care planning is recognized as a fundamental need, yet its routine implementation remains a challenge across disparate settings, such as prisons. The purpose of this study was to gain the perspectives of people who are incarcerated about advance care planning... Findings contribute to identifying best practices for infusing advance care planning into prisons.

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Adapting an intervention to address barriers to pain management in hospice: Formative research to inform EMPOWER-D for dementia caregivers

08/03/24 at 03:35 AM

Adapting an intervention to address barriers to pain management in hospice: formative research to inform EMPOWER-D for dementia caregiversPalliative Medicine Reports; by Karla T. Washington, Morgan L. Van Vleck, Todd D. Becker, George Demiris, Debra Parker Oliver, Paul E. Tatum, Jacquelyn J. Benson, John G. Cagle; 7/24Pain management is a priority for hospice patients, including those with ADRD [Alzheimer’s disease or a related dementia], most (63%) of whom experience bothersome pain. One such intervention, EMPOWER (Effective Management of Pain: Overcoming Worries to Enable Relief), has been shown to improve hospice pain management by training hospice staff on barriers to pain management, incorporating screening for pain concerns into routine hospice care, delivering tailored pain education to hospice patients and their family caregivers, and facilitating needed follow-up services. Participants indicated that the EMPOWER-D materials addressed common pain concerns that were both family-centered and relevant to clinical dementia care. 

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Providing clarity: Communicating the benefits of palliative care beyond end-of-life support

08/03/24 at 03:30 AM

Providing clarity: communicating the benefits of palliative care beyond end-of-life supportPalliative Care and Social Practice; by Julie L Masters, Patrick W Josh, Amanda J Kirkpatrick, Mariya A Kovaleva, Harlan R Sayles; 6/24Palliative care affords numerous benefits, including improvements in symptom management, mental health, and quality of life, financial savings, and decreased mortality. Yet palliative care is poorly understood and often erroneously viewed as end-of-life care and hospice. Barriers for better education of the public about palliative care and its benefits include shortage of healthcare providers specializing in palliative care and generalist clinicians' lack of knowledge and confidence to discuss this topic and time constraints in busy clinical settings. This study offers insight into the knowledge and attitudes about palliative care among community-dwelling adults, 19 years and older living in Nebraska. More effort is needed to communicate what palliative care is, who can receive help from it, and why it is not only for people at end of life.

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Nursing strategies to mitigate separation between hospitalized acute and critical care patients and families: A scoping review

08/03/24 at 03:25 AM

Nursing strategies to mitigate separation between hospitalized acute and critical care patients and families: A scoping review Intensive Critical Care Nurse; Sonja Meiers, Véronique de Goumoëns, Lorraine Thirsk, Kristen Abbott-Anderson, Petra Brysiewicz, Sandra Eggenberger, Mary Heitschmidt, Blanche Kiszio, Natalie S Mcandrew, Aspen Morman, Sandra Richardson; 7/26/24 Implications for clinical practice: Permanent policy changes are needed across acute and critical care settings to provide support for nurses in mitigating patient and family separation. We recommend that family members be considered as caregivers and care receivers, not visitors in patient and family-centered care in acute and critical care settings. 

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