Literature Review

What would make AI voice in health care ethical and trustworthy? The Hastings Center; 7/25/24 Voice as a health biomarker using artificial intelligence is gaining momentum in research, but it’s a challenge to develop diverse AI-ready voice datasets that are free from bias. A first-of-its kind study, published in Digital Health and co-authored by Hastings Center President Vardit Ravitsky, aims to better understand the perspectives of voice AI experts, clinicians, patients, and other stakeholders regarding ethical and trustworthy voice AI. The results will support technological innovation informed by ethical inquiry.

Empath Health, Trustbridge leaders are setting home health sights high after integration Home Health Care News; by Joyce Famakinwa; 7/26/24 Empath Health is a company in transition. In the spring, it completed an affiliation process with Trustbridge, which formed the largest nonprofit post-acute provider organization in the state of Florida. ... Since completion of the affiliation process, the company has focused on integration, synergistic opportunities and determining how best to deliver care to the communities it serves. One of the people at the helm of this transition is Tarrah Lowry, Empath Health’s chief operating officer and Trustbridge’s interim president. [Click on the title's link to read the recent interview by Home Health Care News' with Tarrah Lowry.]

HIMSSCast: Improving patient safety and employee retention with best incident reporting practicesHealthcare IT News; by Andrea Fox; 7/26/24 By modernizing systems and improving leadership and culture to embrace reporting, healthcare organizations can better address the top 10 patient safety concerns for 2024, says Heidi Raines, founder and CEO of Performance Health Partners. Ultimately improving the quality of care healthcare systems deliver and preventing harm requires a degree of self-reflection. Along with digital transformation, putting an easy-to-use incident reporting system in place can help healthcare organizations address today's chief patient safety concerns, including medication errors, care delays, workplace violence and preventing patient falls, said Raines.

Hospices strategize sustainable growth for Veteran Programs Hospice News; by Holly Vossel; 7/26/24 Hospices combat both operational and financial challenges as they seek to grow and evolve their veteran programs around the diverse and complex needs of patients and their families. Some of the largest expenses associated with offering veteran services include staffing and training costs ... In addition to staff training, this includes having ways to honor veterans for their service, assess the social determinant of health resources they may need and identify gaps of caregiver support. ...Editor's Note: Notable mentions include Carlos Graveran, executive director at Maryland-based Frederick Health Hospice; Sherri Bickley, vice president of patient support services at Oklahoma-based Crossroads Hospice & Palliative Care; and Carla Creegan, PACE director of clinical services and director of adult day swervices at Empath Health.

How well does Medicare cover end-of-life care? It depends on what type Medical Xpress; by Mark Harden, CU Anschutz Medical Campus; 7/19/24 Not all versions of Medicare are created equal—and when it comes to end-of-life care, some versions may serve a patient's needs better than others. That's the focus of newly published research by Lauren Hersch Nicholas, Ph.D., MPP, a University of Colorado Department of Medicine and CU Cancer Center health economist, and her colleagues. The researchers analyzed the experiences of more than a million people receiving Medicare-funded services in the last six months of their lives. ... Their paper was published July 19 in JAMA Health Forum. What Nicholas and her colleagues found is that the kind of Medicare a patient is enrolled in can make a difference in whether that patient gets certain treatments, and whether the patient dies in a hospital or in hospice care.

Top Projects of 2023: Our Lady of Peace Finance & Commerce, Minnesota Business; by Kate Leibsle; 7/19/24 Jamey Flannery and her team at Flannery Construction took seriously their obligation not just to their client, Our Lady of Peace, but to the patients, their families, and staff to make the construction project at the hospice center as smooth and transparent as possible. Limiting disruptions when you are renovating or adding on to an existing, occupied building is always important, but when the facility you are working on is a hospice center, it becomes paramount. ... The project turned the facility’s 21 double-occupancy rooms into private suites. Each room now is big enough for family and friends to gather in a living area, have a TV and offer more privacy, Flannery said.

Ethical challenges in the treatment of patients with severe anorexia nervosa Psychiatry Online; by Patricia Westmoreland, MD; Jole Yager, MD; Jonathan Treem, MD; and Philip S. Mehler, MD; 7/15/24 Ethical principles assist us in determining the best course of action with regard to patients with [anorexia nervosa] AN. The vast majority of patients with AN should be offered high-quality, restorative-informed care. But for a minority of patients (e.g., those with SE-AN) other treatment options need to be considered. Clinicians are obliged to realistically assess each patient’s potential for recovery or ability to engage in harm reduction and palliative care approaches, and be cognizant of the wishes of the patient, family, and treatment team. In addition, the burden on caregivers and stewardship in the expenditure of health care resources should also be considered when deciding whether involuntary treatment, harm reduction, palliative care, or end-of-life care be recommended for a particular patient.

Why home health providers should expect to see a ‘less draconian’ final payment rule Home Health Care News; by Joyce Famakinwa; 7/22/24 As home health providers continue to digest the proposed payment rule for 2025, National Association for Home Care & Hospice (NAHC) President William A. Dombi believes that the industry will ultimately see a comparatively toned down final rule. “We believe we will not end up with this proposed rule as a final rule,” he said during the opening presentation at NAHC’s Financial Management Conference in Las Vegas on Sunday. “We will end up with something less draconian. The cuts will be reduced because, No. 1, that’s what they’ve done for the last several years, and, No. 2, it’s an election year.” Even with a prediction of a “less draconian” final payment rule, NAHC is still gearing up to fight against home health cuts and the Centers for Medicare & Medicaid Services’ (CMS) payment-setting methodologies.

Sasha McAllum Pilkington on grace and storytelling at the end of life Psychotherapy.net; by Lawrence Rubin; 7/22/24 Narrative Clinician, Sasha McAllum Pilkington [of New Zealand],  shares poignant stories she co-created with hospice clients which honor and celebrate their lives. [This interview includes: ...

Sunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!

End-of-life care is a profound and essential aspect of medical practice Market.US Media, New York; by Samruddhi Yardi; 7/19/24 According to End-of-Life Care Statistics, End-of-life care, also known as palliative care, refers to the comprehensive medical, emotional, and psychological support provided to individuals who are nearing the end of their lives, often due to terminal illnesses or conditions. [This article includes data on the following:]

The Uniform Determination of Death Act is not changing. Will physicians continue to misdiagnose brain death?The American Journal of  Bioethics; Michael Nair-Collins; 7/24Efforts to revise the Uniform Determination of Death Act [UDDA] in order to align law with medical practice have failed. It has long been common practice to declare some patients dead by neurologic criteria even though they do not meet the legal standard for death. Thus, legally living people will continue to be declared dead, not because of a mistake, but because of a choice. The decision to continue misdiagnosing death according to the law will create routine violations of civil rights, will continue to violate the DDR [dead donor rule] that allegedly is such an important red line for organ transplantation, and will contribute to a well-deserved mistrust in the determination of death.

Longitudinal analysis of cancer family caregiver perception of sleep difficulty during home hospice American Journal of Hospice & Palliative Care; William Hull, Gary Donaldson, Kristin G Cloyes, Lee Ellington, Kathryn Lee, Kathleen Mooney; 7/22/24 Our findings indicate that family caregivers who cohabitate exhibit increased perception of sleep difficulty over the course of hospice. Future studies and interventions for hospice family caregivers' sleep should consider cohabitation between the patient and the caregiver as a significant predictor of sleep difficulty to observe and potentially mediate the negative outcomes associated with caregiver sleep difficulty. Further, determining the underlying reasons for sleep difficulty in cohabitation (e.g., patient symptoms or treatments) should be explored.