Literature Review



‘Those who have made death their life’ Part 2: Family

01/20/25 at 03:00 AM

‘Those who have made death their life’ Part 2: Family The Daily Yonder - Keep It Rural; by Hannah Clark; 1/16/25 Hannah Clark spent six months riding along with the nurses and certified nursing assistants (CNAs) of Hearth Hospice who provide in-home care to those living in Northwest Georgia and Southeast Tennessee. These hospice workers often drive up to a hundred miles a day to visit a handful of patients scattered across the Appalachian landscape in both rural towns and urban centers. What will follow this introductory essay is her photo reportage in three parts, documenting what she has witnessed accompanying these caregivers. The intimate portraits and vignettes show tender moments at different stages towards the end of one’s life. Their beauty lies in the companionship Clark captured in moments of need and vulnerability. Editor's note: Click here for Part 1, which we posted 1/16/25. 

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Partnership for Quality Home Healthcare to merge with National Alliance for Care at Home

01/20/25 at 02:00 AM

Partnership for Quality Home Healthcare to merge with National Alliance for Care at Home Home Health Care News; by Audrie Martin; 1/17/25 The Partnership for Quality Home Healthcare (PQHH) will shut down effective March 1. The PQHH board of directors will join efforts with the National Alliance for Care at Home (the Alliance) to create a stronger and unified voice for the industry. By collaborating with the Alliance, the PQHH board aims to enhance advocacy on public policy and regulatory issues impacting the home health community. Their goal is to promote a health care system that acknowledges home health’s vital role in providing compassionate, value-driven care. ... Since its founding in 2010, PQHH has represented community — and hospital-based home health care agencies, working in partnership with government officials to ensure access to high-quality home health care. This mission was at the forefront of their decision to close.

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Building a smarter long-term care system in New York

01/19/25 at 03:55 AM

Building a smarter long-term care system in New York The National Law Review; by Adam Herbst of Sheppard, Mullin, Richter & Hampton LLP - Healthcare Law Blog; 1/10/25 New York State has a long-standing commitment to supporting its most vulnerable populations through Medicaid-funded services for older adults and those requiring long-term care. However, rising costs and an increasingly complex healthcare landscape have created challenges that demand innovative solutions.  ... The Program of All-Inclusive Care for the Elderly (PACE) offers a clear path forward. This model has consistently demonstrated its ability to reduce healthcare costs while enhancing patient outcomes by integrating medical, social, and behavioral health services under one umbrella. ... Despite these clear benefits, New York has not approved a new PACE program since 2011, leaving this proven model underutilized in the state.

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Hospice of the Chesapeake expands inpatient care with high-flow oxygen therapy

01/19/25 at 03:50 AM

Hospice of the Chesapeake expands inpatient care with high-flow oxygen therapy Southern Maryland News Net; by Hospice of the Chesapeake; 1/13/25 Hospice of the Chesapeake is proud to announce the addition of high-flow oxygen therapy to its inpatient care centers, enhancing the quality of care for patients with complex respiratory needs. ... High-flow oxygen therapy is designed to deliver precise oxygen levels, improving breathing efficiency and overall comfort for patients. ... “Adding high-flow oxygen therapy to our inpatient care centers represents our commitment to providing comprehensive, patient-centered care,” said Dr. Sonja Richmond, Vice President of Medical Affairs & Hospice Medical Director. “This advancement enables us to better meet the needs of our patients and their families during a challenging time.”

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NPHI welcomes Robin Shultz as Vice President for Member Programs and Engagement

01/19/25 at 03:45 AM

NPHI welcomes Robin Shultz as Vice President for Member Programs and Engagement National Partnership for Healthcare and Hospice Innovation (NPHI), Washington, DC; Press Release; 1/8/25The National Partnership for Healthcare and Hospice Innovation (NPHI) is proud to welcome Robin Shultz, LCSW, ACC, ACHP-SW, to the team as Vice President for Member Programs and Engagement. With her proven track record of leadership and a passion for innovation, Robin’s expertise is set to deepen connections among our members and drive meaningful engagement at all levels. Robin brings significant experience in hospice and palliative care to NPHI. ... In her new role with NPHI, Robin will focus on strengthening member engagement, ensuring active participation across forums, and fostering deeper inclusion for member staff at all levels. Her efforts will build on NPHI’s mission to advance the work of nonprofit hospice providers, empowering them to deliver exceptional care and services to their communities.

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Increasing Medicaid rates: A critical step to support home-based care

01/19/25 at 03:40 AM

Increasing Medicaid rates: A critical step to support home-based care Association Press, North Salt Lake, UT; by Business Wire; 1/14/25To address the growing challenges facing the healthcare system, the Homecare and Hospice Association of Utah (HHAU) calls for an urgent increase in Medicaid reimbursement rates for Home and Community-Based Services (HCBS) waivers, Private Duty Nursing (PDN), and Home Health. These critical services form the backbone of home-based care, enabling individuals to receive the medical attention and support they need in their homes, while saving tax dollars and alleviating strain on hospitals and long-term care facilities.

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Guidelines for evaluating, diagnosing, and disclosing dementia published by Alzheimer’s Association

01/19/25 at 03:35 AM

Guidelines for evaluating, diagnosing, and disclosing dementia published by Alzheimer’s Association Practical Neurology; 1/14/25 The Diagnostic Evaluation, Testing, Counseling, and Disclosure Clinical Practice Guideline (DETeCD-ADRD CPG) Workgroup, convened and funded by the Alzheimer’s Association, has developed new recommendations for clinicians to use when evaluating patients with possible Alzheimer disease (AD) or AD and related dementias (ADRD). An executive summary of the recommendations for use in primary care and other practice settings was published in Alzheimer’s & Dementia, along with a companion article summarizing specific guidance for specialists. The Workgroup included representatives from  primary, specialty, subspecialty, long-term, and palliative care disciplines as well as the fields of health economics and bioethics.  Editor's note: Click for open access to the Alzheimer's Association clinical practice guidelines ..., executive summary of recommendations for primary care. 

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Physician engagement in addressing health-related social needs and burnout

01/19/25 at 03:30 AM

Physician engagement in addressing health-related social needs and burnoutJAMA Network Open; Masami Tabata-Kelly, MBA, MA; Xiaochu Hu, PhD; Michael J. Dill, MA; Philip M. Alberti, PhD; Karen Bullock, PhD, LICSW, APHSW-C; William Crown, PhD; Malika Fair, MD, MPH; Peter May, PhD; Pilar Ortega, MD; Jennifer Perloff, PhD; 12/24In this cross-sectional study of 5,447 nationally representative physicians in the US, 34.3% regularly dedicated time to addressing HRSNs [health-related social needs]. The study identified variability in physicians’ engagement in addressing HRSNs and found that higher engagement was associated with a greater likelihood of burnout. The findings suggest the need for thorough assessment of the potential unintended consequences of physicians’ engagement in addressing HRSNs on their well-being.

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Cancer prevention, screening averted several million more deaths than treatment over 45 years

01/19/25 at 03:25 AM

Cancer prevention, screening averted several million more deaths than treatment over 45 yearsJAMA; Samantha Anderer; 1/25In the US, cancer prevention and screening have saved more lives from 5 types of cancer combined than treatment advances over the past 45 years, according to a modeling study published in JAMA Oncology. An estimated 5.9 million breast, cervical, colorectal, lung, and prostate cancer deaths were avoided from 1975 to 2020 due to prevention, screening, and treatment efforts, but prevention and screening alone were responsible for averting about 4.8 million—4 out of 5—of those deaths. Still, the authors acknowledged that in all cancer types studied, less than half of total cancer deaths were averted, and they recommended increased investment in prevention and screening strategies.

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Introduction: ‘Those who have made death their life’

01/19/25 at 03:20 AM

Introduction: ‘Those who have made death their life’The Daily Yonder - Keep It Rural; by Hannah Clark; 1/15/25 Hannah Clark spent six months riding along with the nurses and certified nursing assistants (CNAs) of Hearth Hospice who provide in-home care to those living in Northwest Georgia and Southeast Tennessee. These hospice workers often drive up to a hundred miles a day to visit a handful of patients scattered across the Appalachian landscape in both rural towns and urban centers. What will follow this introductory essay is her photo reportage in three parts, documenting what she has witnessed accompanying these caregivers. The intimate portraits and vignettes show tender moments at different stages towards the end of one’s life. Their beauty lies in the companionship Clark captured in moments of need and vulnerability. Editor's note: Crucial protocols used for this photographer are worth highlighting. "Before I began working with nurses, I went through a background check, drug screening, and volunteer training. Written permission was given by each household. When patients could not consent due to certain conditions such as Alzheimer’s or Dementia, or patients were non-responsive or actively passing, permission was granted by their power of attorney."

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California wildfires and healthcare: Compiled articles

01/19/25 at 03:15 AM

California wildfires and healthcare: Compiled articlesCompiled from various news sources; 1/9/25Click on links below to go to the source articles.

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Special Bulletin – CA Wildfires Public Health Emergency

01/19/25 at 03:10 AM

Special Bulletin – CA Wildfires Public Health EmergencyCommunity Health Accreditation Partner (CHAP); Special Bulletin; 1/14/2025 HHS Declares Public Health Emergency for California to Aid Health Care Response to Wildfires. The declaration follows President Biden’s major disaster declaration and gives the Centers for Medicare & Medicaid Services’ (CMS) health care providers and suppliers greater flexibility in meeting the emergency health needs of Medicare and Medicaid beneficiaries. HHS has waived sanctions and penalties for violations of certain provisions of the Health Insurance Portability and Accountability Act of 1996 (HIPAA) Privacy Rule against hospitals in the emergency area. [Click on the title's link to continue reading]

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Researchers compared hospital early warning scores for clinical deterioration—Here’s what they learned

01/19/25 at 03:05 AM

Researchers compared hospital early warning scores for clinical deterioration—Here’s what they learnedJAMA Network; Roy Perlis, MD, MSc; Jennifer Abbasi; 1/24This conversation is part of a series of interviews in which JAMA Network editors and expert guests explore issues surrounding the rapidly evolving intersection of artificial intelligence (AI) and medicine. Arecent head-to-head study at Yale New Haven Health System compared 6 different early warning scores designed to recognize clinical deterioration in hospitalized patients, including 3 proprietary AI tools. Among the best was the National Early Warning Score (NEWS), a publicly available non-AI tool, while the Epic Deterioration Index “was one of the worst” of the batch, the authors reported in October in JAMA Network Open.

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How to help people impacted by the California fires

01/19/25 at 03:00 AM

How to help people impacted by the California firesNBC News - Today Show; by Becca Wood; 1/8/24, updated 1/12/24... As homes burn to the ground and people seek shelter, various charities and organizations are working to provide help on the ground. For those looking for ways to help, NBC News has reviewed and vetted organizations that are aiding in relief efforts. Here is a list of verified charities. Click on the names of each for more information how to help.

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Today's Encouragement

01/19/25 at 03:00 AM

Do It Anyway by Mother Teresa / Kent M. KeithPeople are often unreasonable, illogical, and self-centered; forgive them anyway.If you do good, people may accuse you of selfish, ulterior motives; do good anyway...

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Sunday newsletters

01/19/25 at 03:00 AM

Sunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!

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Today's Encouragement - You've gotta dance...

01/18/25 at 03:55 AM

You've gotta dance like there's nobody watching, Love like you'll never be hurt, Sing like there's nobody listening, And live like it's heaven on earth. ~ William W. Purkey

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Current use and evaluation of artificial intelligence and predictive models in US hospitals

01/18/25 at 03:50 AM

Current use and evaluation of artificial intelligence and predictive models in US hospitalsHealth Affairs; by Paige Nong, Julia Adler-Milstein, Nate C. Apathy, A. Jay Holmgren, Jordan Everson; 1/25Effective evaluation and governance of predictive models used in health care, particularly those driven by artificial intelligence (AI) and machine learning, are needed to ensure that models are fair, appropriate, valid, effective, and safe, or FAVES. We analyzed data from the 2023 American Hospital Association Annual Survey Information Technology Supplement to identify how AI and predictive models are used and evaluated for accuracy and bias in hospitals. Hospitals use AI and predictive models to predict health trajectories or risks for inpatients, identify high-risk outpatients to inform follow-up care, monitor health, recommend treatments, simplify or automate billing procedures, and facilitate scheduling. We found that 65 percent of US hospitals used predictive models, and 79 percent of those used models from their electronic health record developer.Publisher's note: It would be interesting if hospices collected and reported similar information.

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Whom should we regard as responsible for health record inaccuracies that hinder population-based fact finding?

01/18/25 at 03:45 AM

Whom should we regard as responsible for health record inaccuracies that hinder population-based fact finding?AMA Journal of Ethics; Kathleen M. Akgün, MD, MS; Shelli L. Feder, PhD, APRN; 1/25EHR [electronic health record] use has revolutionized health information collection and analysis. This growth has led to opportunities to generate important reports about the health of hundreds of millions of people practically in real time. Steadfast commitment to high-quality data collection and reporting is necessary for all parties along the pathway of data generation: from EHR developers, programmers, and vendors to patients, clinicians, and epidemiologists. Pulling back the curtain on how each of these groups generate and interact with EHR data is imperative to assure measurement of accurate population-level health outcomes.

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Development and outcomes of a provider-driven, online continuing education program on integrative palliative care: Randomized controlled trial

01/18/25 at 03:40 AM

Development and outcomes of a provider-driven, online continuing education program on integrative palliative care: Randomized controlled trialGlobal Advances in Integrative Medicine and Health; William Collinge, PhD, MPH; Leila Kozak, PhD; Scott Mist, PhD, MAcOM; Robert Soltysik, MS; 1/25While conventional medicine excels in emergency and acute care, complementary therapies are increasingly being integrated into efforts for symptom management and quality of life (QoL) in hospital, hospice and nursing home environments. The term “complementary” denotes a cooperative or collaborative relationship between conventional and unconventional modalities, and when such integration takes place, the terms “complementary” and “integrative” are commonly used interchangeably. Hospices have been early adaptors of such therapies with surveys in various states showing between 60-90% of hospices offering these modalities. This provider-driven CE/CME program led to significant positive changes in practitioners’ self-efficacy and implementation of integrative care practices in PC settings. The results indicate that CE/CME can have measurable impacts that benefit providers and may potentially impact patients, families and the culture of care.

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Empowering Patient Choice: The Essential Need for a Voluntary Advance Directive Framework in Healthcare

01/18/25 at 03:35 AM

Public healthAlzheimer's and Dementia; Stephanie Frilling; 12/24A Medicare Voluntary Advance Directive Framework (Framework) would enable the creation, storage, and sharing of advance directive documents, ensuring end-of-life care appropriately honors the individual and their care wishes, while supporting healthcare teams and family members in making care decisions for their patients and loved ones. With Medicare enrollment reaching over 65 million beneficiaries in 2023, and Alzheimer's becoming one of the most expensive conditions - CMS policy makers have a growing responsibility to improve care quality at end-of-life. 

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Preferred and actual location of death in adolescents and young adults with cancer

01/18/25 at 03:30 AM

Preferred and actual location of death in adolescents and young adults with cancerJAMA Network Open; by Oreofe O. Odejide, Colin Cernik, Lauren Fisher, Lanfang Xu, Cecile A. Laurent, Nancy Cannizzaro, Julie Munneke, Robert M. Cooper, Joshua R. Lakin, Corey M. Schwartz, Mallory Casperson, Andrea Altschuler, Lori Wiener, Lawrence Kushi, Chun R. Chao, Jennifer W. Mack; 1/14/25In this cohort study of 1929 adolescent and young adult (AYA) decedents, 1226 (63.6%) had a documented discussion about their preferred location of death, with home being most frequently desired. Among these, 224 of 317 (70.7%) who wanted to die at home were able to do so, as were 164 of 172 (95.3%) who preferred a hospital death. The fact that over a quarter of AYA patients with cancer who preferred to die at home were unable to do so suggests a need for effective interventions to improve goal-concordant end-of-life care for AYA patients with cancer.

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Advance care planning among diverse U.S. older adults with varied cognition levels

01/18/25 at 03:25 AM

Advance care planning among diverse U.S. older adults with varied cognition levelsAlzheimer's & Dementia; by Zahra Rahemi, Swann Arp Adams; 1/25Older adults from minority groups often experience elevated rates of chronic diseases and cognitive impairment, coupled with lower rates of engagement in advance care planning (ACP) and comfort care as they approach end of life... Our study revealed that individuals facing cognitive impairments exhibited lower rates of engagement in ACP. Notably, among the variables examined, race, ethnicity, rural residence, education, and age emerged as significant predictors of ACP in a national sample of older adults in the U.S. These findings underscore the importance of incorporating these sociodemographic factors into the design of interventional studies aimed at enhancing ACP and mitigating disparities.

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Sociodemographic disparities in the use of hospice by U.S. nursing home residents: A systematic review

01/18/25 at 03:20 AM

Sociodemographic disparities in the use of hospice by U.S. nursing home residents: A systematic reviewAmerican Journal of Hospice and Palliative Medicine; Christine E. DeForge, PhD, RN, CCRN; Hsin S. Ma, MPP, MA; Andrew W. Dick, PhD; Patricia W. Stone, PhD, RN, FAAN, CIC; Gregory N. Orewa, PhD; Lara Dhingra, PhD; Russell Portenoy, MD; Denise D. Quigley, PhD, MA; 1/25 Hospice can improve end-of-life (EOL) outcomes in U.S. nursing homes (NHs). However, only one-third of eligible residents enroll, and substantial variation exists within and across NHs related to resident-, NH-, or community-level factors. Studies adjusting for resident-, NH-, and community-level factors found lower hospice use among male residents, Black/Non-White residents, and residents of rural NHs, with mixed results by payor and ownership. Results were mixed for hospice referral and length-of-stay. These findings suggest complex influences on NH hospice use.

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Medicare to Veterans Affairs cost shifting—A challenging conundrum

01/18/25 at 03:15 AM

Medicare to Veterans Affairs cost shifting—A challenging conundrumJAMA Health Forum; Kenneth W. Kizer, MD, MPH, DCM; Said Ibrahim, MD, MPH, MBA; 12/24In this issue, Burke et al highlight how costs previously paid by Medicare for VA-Medicare dual eligible enrollees are now being paid by the VA under the VCCP [Veterans Community Care Program]. Today, there is reason to be concerned whether VA health care will be adequately funded because of the rapidly rising VCCP expenditures (driven in part by Medicare to VA cost shifting) and the impact of caring for an additional 740,000 enrollees who have entered the system in the past 2 years. This has created a $12 billion medical care budget shortfall for FY 2024. The substantial budgetary tumult that has resulted from these dynamics is adversely impacting the front lines of care delivery at individual VA facilities, leading to delays in hiring caregivers and impeding access to VA care and timely care delivery, as well as greatly straining the traditional roles of VA staff and clinicians trying to manage the challenging cross-system referral processes. The intertwined issues of Medicare to VA cost shifting and the rising costs of the VCCP present a challenging policy and programmatic conundrum.

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