Literature Review



CMS proposed rule locks in lower prices and fosters innovation for the Medicare Drug Price Negotiation Program

06/28/26 at 03:40 AM

CMS proposed rule locks in lower prices and fosters innovation for the Medicare Drug Price Negotiation Program CMS.gov; Press Release; 6/12/26 A new proposal from the Centers for Medicare & Medicaid Services (CMS) would establish a permanent framework for the Medicare Drug Price Negotiation Program (“Negotiation Program”), creating a more transparent and sustainable process for lowering drug costs for millions of Medicare beneficiaries. The proposed rule would also create greater long-term certainty for drug manufacturers that participate in negotiations. It includes policies for negotiating and renegotiating high-cost, single-source drugs beginning with initial price applicability year 2029, while continuing to support innovation and strengthen the program.

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Five takeaways: Star investigation into alleged Southern Arizona 'cult'

06/28/26 at 03:35 AM

Five takeaways: Star investigation into alleged Southern Arizona 'cult' Tuscon.com, Tuscon, AZ; by Tim Stellar; 6/18/26 An Arizona Daily Star investigation found that a Southern Arizona religious group is making millions per year from its hospice in Tucson and Tubac, while former members complain the group forces members to work for free, including at that hospice. Former members interviewed described the Global Community Communications Alliance as a "cult," and court filings call it a high-control religious group with a closed campus. Here are five takeaways from the investigation:

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Caregiving stressors and sleep outcomes: Examining group differences among caregivers of persons living with dementia

06/28/26 at 03:30 AM

Caregiving stressors and sleep outcomes: Examining group differences among caregivers of persons living with dementia The Journals of Gerontology; by Fei Wang, Seungjong Cho, Anne Conway, Yejin Heo, Christine Lau, Karyne Machry; 5/26Caring for persons living with dementia often involves high levels of physical demands and emotional burden, which may undermine caregivers’ sleep quality. Few studies have examined sleep health among Black caregivers of persons living with dementia, despite the fact that they are underrepresented in dementia research and experience poorer sleep outcomes compared to non-Hispanic White caregivers. Subjective caregiving stressor (i.e., role overload) was positively associated with sleep disturbance. A significant interaction showed that the association between role overload and sleep disturbance was stronger among Black caregivers than in non-Hispanic White caregivers. Findings also suggest that Black caregivers of persons living with dementia may experience greater vulnerability to the adverse role of role overload in relation to sleep.

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Haven Hospice Attic Resale Store celebrates grand opening in Chiefland

06/28/26 at 03:25 AM

Haven Hospice Attic Resale Store celebrates grand opening in Chiefland Levy Citizen, Chiefland, FL; by Antoinette Meyer; 6/22/26 The new Haven Hospice Attic Resale Store in Chiefland welcomed hundreds of visitors during its grand opening celebration June 19 and 20, marking the beginning of a new community-focused retail location that supports Haven Hospice programs and services. The two-day event kicked off Friday with a ribbon-cutting ceremony held in partnership with the Chiefland Area Chamber of Commerce ... Saturday’s grand opening celebration continued with local retail and food vendors ... According to Haven Hospice Director of Retail Operations Clay Dzioba, the event drew strong support from across the tri-county area.

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Somerset hospice opening delayed by Medicare move

06/28/26 at 03:20 AM

Somerset hospice opening delayed by Medicare move The Tribune-Democrat, Somerset, PA; by Kelly Urban; 6/20/26 Following a ribbon-cutting in May for the reopening of the Somerset inpatient hospice facility, Windber Hospice at Chan Soon-Shiong Medical Center at Windber has provided an update regarding the facility’s opening timeline. While the facility remains on track to reopen, the opening has been delayed by a recently announced nationwide Medicare enrollment moratorium affecting new hospice enrollments and hospice locations. ... “We know many families have been eagerly anticipating the return of inpatient hospice care in Somerset County, and we share their disappointment in this unexpected delay,” said Richard Sukenik, CEO of Chan Soon-Shiong Medical Center at Windber. “We are actively working with local, state and federal legislators to seek assistance and ensure they understand the importance of bringing this service back to Somerset County. We will continue pursuing every available avenue to move this project forward while preparing to welcome patients as soon as approval is granted.” [Access to the full article may be limited by a paywall.]

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Announcement 1927-1936

06/28/26 at 03:15 AM

Announcement 1927-1936

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Towards quality indicators in palliative care education: An umbrella review

06/28/26 at 03:10 AM

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Honoring Juneteenth

06/28/26 at 03:05 AM

Honoring Juneteenth: Make a career of humanity. Commit yourself to the noble struggle for equal rights. You will make a greater nation of your country, and a finer world to live in. ~ Martin Luther King, Jr.

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Announcement 1957-1966

06/28/26 at 03:00 AM

Sunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!

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Medicare could have saved $255.1 Million related to hospice services for certain new hospice enrollees

06/28/26 at 03:00 AM

Medicare could have saved $255.1 Million related to hospice services for certain new hospice enrollees United States Government HHS-Office of the Inspector General (OIG), Report number: A-06-22-09003; issued on 6/18/2026, posted on 6/23/26 

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Don't be afraid to spend money on traveling...

06/28/26 at 03:00 AM

Don't be afraid to spend money on traveling. Be afraid of growing old and realizing the only place you traveled was work.

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1957-1966: 250 Years - A History of Care

06/28/26 at 12:00 AM

1776-1786: 250 Years - A History of CareHospice & Palliative Care Today; by Joy Berger; for 6/10/26Continental Congress, Declaration of Independence, July 4, 1776

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Clinical Artificial Intelligence as a novice nurse: Leadership responsibilities for safe implementation

06/27/26 at 03:40 AM

Clinical Artificial Intelligence as a novice nurse: Leadership responsibilities for safe implementationNurse Leader; by Asiah Ruffin; 5/26Clinical artificial intelligence (AI) technologies are increasingly integrated into health care environments, influencing clinical workflows, documentation, decision-making, and patient communication. While AI is often introduced as a technical innovation, its implementation presents significant leadership responsibilities related to safety, workforce readiness, and organizational oversight. This commentary proposes an analogy that conceptualizes clinical AI systems as novice nurses—entities that require structured orientation, supervision, feedback, and ongoing development rather than autonomous trust. Using this analogy, the article examines risks associated with premature reliance on AI, including workflow disruption, performance variability over time, and limited user understanding of system capabilities and limitations. The commentary also outlines practical leadership considerations, including investing in workforce education, collaborating with human factors experts, establishing governance processes, and engaging in policy advocacy.

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Epidural and intrathecal catheter use at the end of life for cancer pain

06/27/26 at 03:35 AM

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Palliative care or hospice? Flipping the classroom for 1st year pre-clinical medical students with interactive online content

06/27/26 at 03:30 AM

Palliative care or hospice? Flipping the classroom for 1st year pre-clinical medical students with interactive online contentAmerican Journal of Hospice & Palliative Care; by Maxwell Vergo, Charles Wang, Lawrence Myers; 5/26Although palliative care competencies appear on USMLE [United States Medical Licensing Examination] examinations, pre-clinical curricula devote minimal time to end-of-life education. We created a 30-minute interactive online module in Articulate 360™ for first year students covering palliative care definitions, eligibility criteria, and care settings. In-class time was restructured to small group case discussions distinguishing primary palliative care, specialty palliative care, and hospice. Correct responses on a palliative care examination question improved from 57% (2020-2021, virtual lecture) to 66%, 67%, and 80% in subsequent years with the flipped intervention. The pre-work engaged students in learning (79-89% agreement), enabled focus on advanced topics during class (73-77% agreement), and was described as interactive and helpful in teacher evaluations.

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Palliative care involvement for pediatric hematopoietic cell transplant patients can enhance comfort-focused care at end of life without shortening survival duration

06/27/26 at 03:25 AM

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Pediatric home-based hospice and palliative care: A scoping review

06/27/26 at 03:20 AM

Pediatric home-based hospice and palliative care: A scoping reviewBMC Palliative Care; by Ellen Davis, Daniel H Grossoehme, Toluwalase Ajayi, Justin N Baker, Pamela S Hinds, Lisa Humphrey, Jill Ann Jarrell, Rachel Thienprayoon, Sarah Friebert; 5/26Pediatric palliative and/or hospice care is provided across a broad spectrum of settings, ranging from inpatient to outpatient to a child's home. Pediatric home-based hospice and/or palliative care teams offer a specialized, interdisciplinary approach to care, allowing children to stay in the home while offering comprehensive support. Common themes emerged [in this review] including studies analyzing models of care, characterizing the population, end-of-life decision making, clinical outcomes of home-based hospice and/or palliative care, costs and economic impact, family experiences, quality domains, specific treatment modalities, and the use of telehealth. Overall, the available literature supported home-based hospice and/or palliative care as an effective model of care, reducing the burden on families, improving quality of life, and allowing families to stay in their preferred setting for care without sacrificing clinical outcomes.

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Difficulties in honoring patient requests for hospice when relying on surrogate decision-makers: A case study

06/27/26 at 03:15 AM

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Comparison of end-of-life care utilization among patients with and without documented goals of care

06/27/26 at 03:10 AM

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“Nobody told us”: Inequities in end-of-life dementia care

06/27/26 at 03:05 AM

“Nobody told us”: Inequities in end-of-life dementia careJournal of Pain & Symptom Management; by Krista L. Harrison, Lingsheng Li, Jasmine Santoyo-Olsson, Niousha Moini, Lauren J. Hunt, Rebecca L. Sudore, Alex Smith; 6/26In the United States, one in three older adults dies with or from dementia. Despite increasing hospice enrollment, minoritized racial, ethnic, and LGBTQ communities face persistent inequities in access to timely, high-quality end-of-life care. We recruited bereaved caregivers of decedents with dementia from communities that experience health disparities. Just over half of the participants rated end-of-life care middling-to-bad. Reasons cited for receiving poorer care than others were age (40%), race, ethnicity, or nationality (36%), disability (20%), and weight (8%). End-of-life communication challenges reported by participants were often based in systemic racism and structural oppression, including: problems accessing language-concordant education and clinicians, missed opportunities for anticipatory guidance due to cultural biases or lack of access to healthcare, difficulty finding clinicians skilled in sensitive and tailored communication, inconsistent hospice admission criteria, and understaffed hospices.

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[Singapore] “Triggering the palliative intent”?: A qualitative implementation evaluation of a prognostication model for advanced dementia (PRO-MADE) in a geriatric tertiary care setting for the integration of early palliative care

06/27/26 at 03:00 AM

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Be the change...

06/27/26 at 03:00 AM

Be the change that you wish to see in the world.  ~Mahatma Gandhi

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Nurse perceptions of end-of-life care quality across long-term care, home, and social model hospice home settings: A qualitative descriptive study

06/27/26 at 03:00 AM

Nurse perceptions of end-of-life care quality across long-term care, home, and social model hospice home settings: A qualitative descriptive studyAmerican Journal of Hospice & Palliative Care; by Helen Mavis Farrar, Kelley Easterling Scott; 5/26This qualitative descriptive study explored nursing perspectives on end-of-life care quality across 3 distinct community settings: long-term care facilities, patients' homes, and social model hospice homes. Nurses provide most of the direct end-of-life care in these settings, yet their perspectives remain understudied. Semi-structured interviews were conducted with 11 licensed nurses who had provided end-of-life care across all 3 settings. Analysis revealed 4 major themes: (1) setting-based care disparities, (2) nurses as educators and translators, (3) mediation of caregiver burden across settings, and (4) relationship-based care as foundational for peaceful deaths. Care setting profoundly influenced these nurses' ability to deliver quality end-of-life care. 

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Hospice care provider and compassion fatigue research project

06/27/26 at 02:00 AM

Hospice care provider and compassion fatigue research projectPersonal communication; by Michelle Jackson; 6/10/26Researchers at Missouri State University are conducting a research survey regarding compassion fatigue, resilience, and participation in meaningful activities for hospice care providers. Participation deadline 7/12/26. For additional information and to participate, click here.

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1947-1956: 250 Years - A History of Care

06/27/26 at 12:00 AM

1776-1786: 250 Years - A History of CareHospice & Palliative Care Today; by Joy Berger; for 6/10/26Continental Congress, Declaration of Independence, July 4, 1776

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