Literature Review

Social Media Watch 10/3/25

Grieving someone who’s still here Psychology Today; by Bob Uslander, MD; 10/2/25 Grief does not always begin after death. For many families facing dementia, terminal illness, or a slow decline, it arrives before the final goodbye—quietly, persistently, and often without recognition. This is known as anticipatory grief: the emotional process of mourning a loved one who is still alive. As a palliative care physician, I see this every day. Spouses tell me they feel like they have already lost their partner. Adult children struggle with the reversal of roles, becoming the caregiver to the parent who once cared for them. Caregivers often oscillate between love, exhaustion, guilt, and detachment. None of this means they are doing it wrong. It means they are grieving.

CMS issues memo with contingency plans for state survey & certification activities in the event of federal government shutdown CMS - Center for Clinical Standards and Quality; by CMS Directors, Quality, Safety & Oversight Group (QSOG) and Survey & Operations Group (SOG); 10/1/25 On October 1, 2025, CMS issued QSO-26-01-ALL identifying State Survey and Certification functions that (a) are not affected by a Federal shutdown, (b) excepted functions that are to be continued in the event of a shutdown (also referred to as “essential functions”), and (c) other activities that are directly affected and therefore should not be operational during a Federal shutdown. CMS also clarified that Hospice Surveys funded through the Consolidated Appropriations Act (CAA) of 2021are considered mandatory and are not impacted by the Federal Government shutdown. Work funded under these sources should continue.

Doyel: I didn't know how strong and kind my special Mom was. Not until she started dying. Indianapolis Star, Indianapolis, IN; by Greg Doyle; 10/1/25 The last time we talked, I told my mom the truth: I’d missed just how wonderful she was. Make no mistake, I knew she was wonderful. Kind, considerate, strong – she checked all the best boxes. And generous? Mom’s the most generous person I’ve ever known, and I’ve known it for years. But I didn’t know just how generous she was. Not until she started dying. Didn’t know how strong she was, either. Not until she was so weak she couldn’t stand on her own two feet. That’s when I finally saw it. ...

Human judgment: The magic ingredient for making AI work across aging services disciplines McKnights Senior Living; by Kimberly Marselas; 9/29/25 From tackling a scabies outbreak in a long-term care facility to scheduling shifts and helping write plans of correction that satisfy regulators, a range of aging services providers are eagerly already putting artificial intelligence to work. But what is it not doing for them? Taking the place of human staff members, their workplace knowledge or their clinical judgment. That was a resounding takeaway of a recent McKnight’s Tech Summit webinar exploring how AI technologies are supporting care teams role by role. 

Nevada hospital wins half-billion fraud verdict against Universal Health Services Reno Gazette Journal; by Jason Hidalgo; 9/29/25, updated 9/30/25 Saint Mary’s Health Network earned a big win in court after a jury awarded it half a billion dollars in its case against Universal Health Services. A jury in Washoe County awarded the Prime Healthcare affiliate $510 million after it found Universal Health Services liable for fraud against Saint Mary’s during the COVID-19 pandemic. The verdict included punitive damages. "This verdict affirms that the weaponization of corporate power, betrayal of physician trust, theft of proprietary information, and reckless endangerment of patients will not be tolerated,” said Saint Mary’s Health Network CEO Derrick Glum in a statement. “The verdict restores justice and allows our hospital’s mission to serve our community with compassion and dignity to endure.”

Ethics of disclosure in pediatric end-of-life care American Nurse; by Adrianna Watson, PhD, RN, CCRN, TCRN, and Rachel Clement, BSN, RN; 9/30/25 An ethical case study analysis Takeaways:

Report sounds alarm about private equity’s growing involvement in PACE McKnights Home Care; by Adam Healy; 9/24/25 The Program of All-inclusive Care for the Elderly (PACE), a program funded by Medicare and Medicaid, is an increasingly attractive target for private equity investors. This may be a cause for concern, according to a new report by the Private Equity Stakeholder Project. “Private equity sees PACE as a guaranteed revenue stream, not a care model,” Michael Fenne, report author and PESP’s senior healthcare research coordinator, told McKnight’s Home Care Daily Pulse Wednesday in an email. “The result is that PACE, once a nonprofit-driven model focused on keeping seniors healthy at home, is increasingly being treated as a financial opportunity for investors.”

Hospice: A vital safety net for sepsis survivors South Florida Hospital News and Healthcare Report; by Lauren Loftis, MD, VITAS regional medical director; 10/1/25Sepsis remains one of the most complex and deadly medical conditions treated in hospitals today. ... For patients with advanced illness or multiple comorbidities, the post-sepsis period is often marked by functional decline, emotional distress, and a high risk of rehospitalization or death. ...For sepsis survivors with advanced illness, hospice offers a bridge between high-intensity hospital care and the realities of life at home. It provides interdisciplinary support—including a physician, nurse, hospice aide, social worker, chaplain, volunteer, and bereavement specialist—tailored to the patient’s evolving needs.

Danbury hospice gets $2 million to expand care for children with life-limiting illnesses Shelton Herald, Bridgeport, CT; by Cris Villalonga-Vivoni; 9/30/25 A Danbury-based nonprofit hospice center is receiving $2 million in state funding to expand its pediatric care services and help more families access specialized end-of-life care. Founded in 1983, Regional Hospice and Home Care of Western Connecticut is the only nonprofit hospice in the state providing hospice care to children under 21 with life-threatening conditions. However, its capacity remains limited amid rising demand. In 2020, there were an estimated 7,800 children in Connecticut with complex medical conditions that limit their life expectancy and could benefit from palliative and hospice care, according to the National Survey of Children’s Health.

Instilling hope: A comprehensive model of cancer care for younger adults Targeted Oncology; by Andrea Eleazar, MHS and Shane Dormady, MD, PhD; 9/29/25 In the past decade, the incidence of numerous cancer types has increased, particularly among younger adults under age 50. For younger adults, many of whom are primary breadwinners of their households or in the height of their educational or professional careers, a cancer diagnosis at this life stage can be unexpected and jarring. ... In an interview with Targeted Oncology, Shane Dormady, MD, PhD, medical director of El Camino Health Cancer Center, describes the unique needs and challenges of younger adults, outlines El Camino Health’s comprehensive care strategy, and offers insights and considerations for treating and interacting with this patient population.