Literature Review

Dr. Joan Teno exposes the hidden problems with hospice ratings and quality scores | part two Teleios Collaborative Network (TCN); podcast hosted by Chris Comeaux with Dr. Joan Teno; 6/3/26 Hospice quality ratings play a critical role in helping patients and families make informed care decisions—but are they telling the whole story? In Part Two of this compelling conversation, Dr. Joan Teno continues her deep dive into the challenges surrounding hospice quality measurement, transparency, and consumer choice.  Building on the foundation established in Part One, she explores how healthcare leaders can better leverage existing data to help patients and families identify high-quality hospice providers while avoiding misleading or incomplete information.  Dr. Teno also shares her vision for a future where technology, data analytics, and artificial intelligence empower consumers to make more informed decisions during some of life’s most difficult moments.

When the storm hits: how hospice providers help protect Florida’s most vulnerable patients South Florida Hospital News and Healthcare Report; by Kathleen Coronado; 6/1/26 In South Florida, hurricane preparedness is a part of life. Hospitals activate emergency operations centers, nursing homes review evacuation plans, and families rush to gather supplies before a storm makes landfall. For hospice providers, preparedness carries an additional layer of responsibility. Patients receiving end-of-life care are among the most medically vulnerable members of our communities. Many rely on oxygen, medications, specialized equipment or around-the-clock support that cannot simply pause when severe weather arrives. At VITAS Healthcare, hurricane preparedness is not a seasonal checklist. It is a year-round operational priority designed to ensure continuity of compassionate care before, during and after a disaster.

Los Angeles County Fraud Hotline LACounty.gov | Department of Auditor-Controller, Office of County Investigations; 6/8/26 You may remain anonymous, but having the ability to contact the informant is often critical to the success of an investigation. If you choose to provide your name and contact information, the County will hold your identity in confidence to the extent allowed by law. You can read more about this here.

The ASCENT Consortium to Publish Two Requests for ApplicationsASCENT Consortium press release; 6/4/26The ASCENT Consortium is pleased to announce plans to publish a Request for Applications (RFA) for the ASCENT Research Scholar and Pilot and Exploratory Studies Awards Programs.

1776-1786: 250 Years - A History of CareHospice & Palliative Care Today; by Joy Berger; for 6/10/26Continental Congress, Declaration of Independence, July 4, 1776

P4s are either unhelpful or unnecessary. Proposing a better AI-powered solution to predict patients' preferencesBioethics; by Beatrice Marchegiani; 5/26The Personalized Patient Preference Predictor (P4) has been proposed as an AI tool to aid surrogate decision-making when incapacitated patients lack advance directives. This paper argues that P4s face a fundamental dilemma: they are either unnecessary or unhelpful. To address  ... [its] limitations, I propose a better AI-powered alternative: the Patient Preference Retriever (PPR). Rather than generating new text, the PPR uses vector search techniques to retrieve relevant statements from a patient's digital footprint, presenting them verbatim alongside metadata such as date, context, and source. This approach offers greater transparency, respects autonomy more reliably, and supports surrogate decision-makers in weighing authentic evidence. I conclude that while advance directives remain the gold standard, retrieval-based approaches like the PPR provide a more reliable and ethically defensible use of AI in surrogate decision-making than generative approaches like P4s.

Stakeholder perspectives on integrating ADEPT into end-of-life care for nursing home residents with dementia: A qualitative descriptive studyInternational Journal of Older People Nursing; by Susanny J Beltran, Latarsha Chisholm, Emily Jaijairam; 5/26Nursing homes care for a significant proportion of individuals with advanced dementia, yet timely hospice referrals remain a challenge. The Advanced Dementia Prognostic Tool (ADEPT) is a mortality risk score instrument that holds promise for improving care planning by providing a standardised, accessible method for identifying residents at risk of death within 6 months. Current processes for identifying hospice-eligible residents rely on regular assessments and interdisciplinary collaboration but reveal significant gaps, including delays in referrals and inconsistent practices. Participants viewed ADEPT as a promising tool to complement goals-of-care conversations and enhance care planning, rather than exclusively triggering hospice initiation. Implementation barriers included the need for electronic system integration, regulatory compliance and staff education, while facilitators encompassed strong leadership support, interdisciplinary coordination and alignment with existing workflows.

The clinical relevance of sleep disturbance ("insomnia") in patients with advanced cancer receiving palliative care: A scoping reviewSupportive Care in Cancer; by Shauna Munir, Eva Jones, Faith Precious Omeokwe, Andrew Neil Davies; 5/26Sleep disturbance ("insomnia") is common in patients with advanced cancer receiving specialist palliative care. The studies highlight that sleep disturbance is associated with a range of physical symptoms (e.g. fatigue, drowsiness), a variety of psychological problems (e.g. anxiety, depression), impaired quality of life, and reduced overall survival. Sleep disturbance is an "orphan" symptom, and the results of this scoping review suggest that it deserves much greater attention. Indeed, healthcare professionals should screen all palliative care patients for the problem and, when identified, perform a thorough assessment and initiate an appropriate treatment.

There is no normal life that is free of pain. It's the very wrestling with our problems that can be the impetus for our growth. ~Fred Rogers

Hospice care provider and compassion fatigue research projectPersonal communication; by Michelle Jackson; 6/10/26Researchers at Missouri State University are conducting a research survey regarding compassion fatigue, resilience, and participation in meaningful activities for hospice care providers. Participation deadline 7/12/26. For additional information and to participate, click here.

1776-1786: 250 Years - A History of CareHospice & Palliative Care Today; by Joy Berger; for 6/10/26Continental Congress, Declaration of Independence, July 4, 1776

How Mayo Clinic adopted an innovative AI tool for palliative care utilization HealthLeaders; by Christopher Cheney; 6/10/26 The AI tool not only identifies hospitalized patients with serious illnesses who could benefit from palliative care services but also targets these patients faster than the health system could in the past. ... To address underutilization of palliative care services, Mayo Clinic and Bayesian Health developed an AI tool to boost palliative care in the hospital setting.