Literature Review



Assessing and Listening to Individual Goals and Needs (ALIGN) versus enhanced usual care for hospitalized older patients with cancer discharged to skilled nursing facilities: Protocol for a pilot randomized controlled trial

05/09/26 at 03:05 AM

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[Canada] Palliative care in multiple sclerosis

05/09/26 at 03:05 AM

[Canada] Palliative care in multiple sclerosisContinuum; by Penelope Smyth, Janis M. Miyasaki; 4/26This article reviews palliative care concepts valuable to neurologists caring for people with multiple sclerosis (MS), describes the three stages of palliative principles in care delivery, and suggests triggers to refer for specialized palliative care interventions. Advances in disease-modifying therapies have extended life expectancy and reduced disability progression in patients with multiple sclerosis. However, palliative care remains underutilized in addressing persistent symptoms, care partner burden, and psychosocial challenges. Palliative care strategies in MS can be divided into three stages: early-stage palliative care needs and screening after diagnosis; midstage palliative care needs, including symptom management and quality-of-life optimization; and late-stage palliative care needs, including managing severe MS and end-of-life care. Additional foci of specialist palliative care may include end-of-life care, advance care planning, care partner support, and patient consideration of medically assisted death. 

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Nursing home ratings and characteristics predict hospice use among decedents with serious illnesses

05/09/26 at 03:00 AM

Nursing home ratings and characteristics predict hospice use among decedents with serious illnessesJournal of the American Medical Directors Association; by Ellis C Dillon, Chae Man Lee, Wenqi Gan, Doreek Charles, Germine Soliman, Julie Robison; 4/26Approximately one-third of older Americans experience a nursing home (NH) stay within 3 months of death, but it is unclear how NH characteristics influence end-of-life care.  Short-term (vs long-term) NH stays were associated with increased odds of hospice use and short hospice use. Individuals with long-term stays had lower odds of hospice use with stays at NHs with the highest (vs lowest) CMS ratings for quality measures and staffing ... Those with short-term stays had lower odds of hospice use with stays at NHs with the highest CMS Health Inspection ratings. People with long-term stays at NHs that were part of a chain, had Alzheimer's care units, or had more beds had increased odds of hospice care. Conclusions and implications: Among Connecticut Medicaid-insured decedents with NH stays, people with long-term stays and stays in NHs with better CMS ratings had lower odds of hospice use. Assistant Editor's note: This summary article highlights an important issue and an excellent opportunity for future analysis in a broader context. Intuitively, we'd like to see highly rated NHs have higher hospice utilization. 

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Saturday newsletters

05/09/26 at 03:00 AM

Saturday newsletters focus on headlines and research - enjoy!

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[Japan] Exploring the underlying structural mechanisms and whole-person perspectives on the desire for hastened death in patients with terminal cancer: A qualitative study

05/09/26 at 03:00 AM

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Life is either...

05/09/26 at 03:00 AM

Life is either a daring adventure or nothing at all. ~ Helen Keller

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You were born an original. Don't die ...

05/08/26 at 03:00 AM

You were born an original. Don't die a copy. ~ John Mason

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The best leaders embrace the role of supporting character

05/08/26 at 03:00 AM

The best leaders embrace the role of supporting character HBR | Harvard Business Review; by Jamil Zaki; 5/5/26 The rise of “founder mode” and “main-character energy” as approaches to leadership has pushed many executives toward self-centered, top-down styles that research shows are deeply counterproductive—eroding trust, stifling performance, and ultimately leaving leaders themselves less engaged and fulfilled. The antidote is what might be called “supporting-character energy”: a humble, curious leadership style focused on understanding and advancing other people’s stories rather than one’s own. 

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Why artificial intelligence displacement threatens medical specialties

05/08/26 at 03:00 AM

Why artificial intelligence displacement threatens medical specialties MedPageToday's KevinMD.com; by H. Michael Boulton, MD; 5/3/26 Diagnostic radiology, as a physician-staffed specialty, will not exist in its current form within 20 years. Neither will diagnostic pathology. Neither, in all likelihood, will the outpatient model of endocrinology or general internal medicine as we currently understand it. These are not fringe predictions from technologists who have never set foot in a hospital; they are the logical endpoint of capability curves that are already clearly in motion, ... I know that will make a lot of my colleagues uncomfortable. I get it. But I would argue the real problem is not the prediction; it is that we keep avoiding the conversation.

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There is no such thing as a perfect parent. So just be ...

05/08/26 at 03:00 AM

There is no such thing as a perfect parent. So just be a real one. ~ Sue Atkins Happy Mother's Day Weekend! 

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A guide to visiting a nursing home: tips for meaningful connection

05/08/26 at 03:00 AM

A guide to visiting a nursing home: tips for meaningful connection U.S. News & World Report | Health; by Claire Wolters and Rachael Hood; 5/6/26 If you have a loved one in a nursing home, frequent visits can help them feel loved and fight loneliness. Here's how to make the most of your visit. ...

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Revisiting stories about mothers

05/08/26 at 03:00 AM

Revisiting stories about mothersHospice & Palliative Care Today; compilation by Joy Berger, Editor in Chief; 5/6/26As we move into this Mother's Day weekend, we revisit memorable stories from our newsletter about mothers. Relationships can be unconditional love, broken, and every nuance in between. May these be a catalyst inspirations for your own relationships with the women in your lives - mothers, grandmothers, wives, daughters, aunts, grands, sisters, in-laws, "steps," and more. 

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The power of a visiting nurse: from Marian Watts to Nona’s visiting nurse to Katina Zaninovich

05/08/26 at 03:00 AM

The power of a visiting nurse: from Marian Watts to Nona’s visiting nurse to Katina Zaninovich Noozhawk, Santa Barbara, CA; by VNA Health; 5/5/26 “My experience caring for my Nona at home and watching the visiting nurse greatly impacted my decision for home care,” shares Katina Zaninovich, RN. ... The history of visiting nurses dates back to the 19th century, when rapid urbanization and widespread poverty created a need for healthcare services beyond hospitals. In 1908, a visiting nurse, Marian Watts, founded the Visiting Nurses Association of Santa Barbara, California’s third oldest VNA. In that first month, one visiting nurse made 140 visits. Today, ...

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My mother left me a garage full of mysterious ingredients—and so much more

05/08/26 at 03:00 AM

My mother left me a garage full of mysterious ingredients—and so much more Vogue; by John Mok; 5/6/26 Late in the summer of 2024, my mother was moved into hospice after a brief hospitalization. ... I promptly returned home to Los Angeles from New York and steeled myself for her passing. The trip lasted five months. ... Over the years, I had tried to meet her in the kitchen, to learn through her homestyle dishes, to unlock some part of her Chinese heritage, even with her American adaptations. But there was never enough time. During those five months we did get a little more time—one more round of holidays and one more memorable moment, when she passed peacefully passed. ... What my mother left behind was an invitation. Our garage remains an apothecary of TCM, dried herbs, and dried seafood—all stored in repurposed mayonnaise jars and Costco biscotti containers, their labels scribbled over with her Chinese script. ...

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Where do unhoused people go to die?

05/08/26 at 03:00 AM

Where do unhoused people go to die? The Denver Clarion, Denver, CO; by Hawke Baldwin; 5/4/26 ... On April 29th 9News presented its documentary “Refuge” in DU’s Anderson Academic Commons, giving viewers a glimpse into the reality of death. “Refuge” is a sad yet inspiring story that delves into end-of-life care for those both terminally ill and unhoused in Denver. ... A person featured in the film is James Patrick Hall, a Gregorian Frier and former engineer who founded Rocky Mountain Refuge, a haven for those in need of end-of-life care. The refuge is a hospice center providing home-style care for free. ... The documentary follows four unhoused and terminally ill individuals: Jennifer, Renne, James and Jose. All of whom were unable to find appropriate care anywhere else, so they turned to Rocky Mountain Refuge.

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Closing the gender gap in medicine: 5 ways to support women physicians

05/08/26 at 03:00 AM

Closing the gender gap in medicine: 5 ways to support women physicians CAPC | Center to Advance Palliative Care; by  Laurel Kilpatrick, MD, FAAHPM and Sonia Malhotra, MD, MS, FAAP; 4/27/26 From allyship to advocating for systemic change, learn how you can you champion women physicians so they can lead and thrive. Having more women physicians in medicine isn’t just a matter of equity—it’s important for patient outcomes. ... The strategies outlined at the end of the blog apply to all female health care professionals, not just physicians. 

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Executive Personnel Changes - 5/8/26

05/08/26 at 03:00 AM

Executive Personnel Changes - 5/8/26

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Hospice workers stop by to thank Lila Kozel, founder of hospice care in Bismarck

05/08/26 at 03:00 AM

Hospice workers stop by to thank Lila Kozel, founder of hospice care in Bismarck KXNET News CBS, Bismarck, ND; by Joel Porter; 5/1/26 Health care workers in North Dakota made a house call on Friday to a special woman’s house. Workers from CHI Health at Home stopped by Lila Kozel’s home to greet her and thank her. Kozel is credited with starting hospice services in Bismarck in the 1980s. Health workers say Kozel started the program after losing a son, which made her want to give comfort to others as her family handled their grief. Now, Lila is living on hospice care, and the workers say if not for Lila, they’re not sure the program would be what it is.

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NPHI concludes record-setting 2026 Summit “Quality in Action” in Chicago

05/08/26 at 02:00 AM

NPHI concludes record-setting 2026 Summit “Quality in Action” in Chicago National Partnership for Healthcare and Hospice Innovation (NPHI), Chicago, IL; Press Release; 5/2/26 The National Partnership for Healthcare and Hospice Innovation (NPHI), the national voice for nonprofit hospice and advanced illness care, has concluded its 2026 Summit, Quality in Action, at the Chicago Marriott Marquis — marking the largest gathering in the organization’s history. Over three days, nonprofit hospice and advanced illness care leaders from across the country came together around a shared commitment to Quality in Action. The Summit created space for candid discussion and practical exchange, with a clear focus on how nonprofit hospice and advanced illness providers will continue to lead in delivering high-quality, community-based care for patients and their families.

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98-year-old Korean War veteran honored in Redding through hospice recognition program

05/07/26 at 03:00 AM

98-year-old Korean War veteran honored in Redding through hospice recognition program KRCR-7 ABC News, Redding, CA; by Mike Mangas and Maxwell Valva; 5/5/26 Staff with Bristol Hospice, a provider of end-of-life care services, honored a Korean War veteran, 98, Tuesday, May 5 in Redding as part of a nationwide recognition program. The ceremony took place at Sundial Assisted Living, where John Schaefer was recognized for his military service. Schaefer served in the U.S. Army and was wounded during the war, earning a Purple Heart.

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How do physicians perceive and manage the influence of their personal end-of-life preferences on clinical practice and end-of-life decision-making with patients? An international qualitative study

05/07/26 at 03:00 AM

How do physicians perceive and manage the influence of their personal end-of-life preferences on clinical practice and end-of-life decision-making with patients? An international qualitative study  Health and Medicine Daily | Palliative Care and Social Practice; research portion by Sarah Mroz, Frederick Daenen, and Kenneth Chambaere; 5/5/26 ... Physicians acknowledge the impact of their personal end-of-life preferences on their clinical practice and emphasize the importance of maintaining objectivity and centering decision-making on patient preferences. Physicians adopt strategies to mitigate potential biases. There is a divergence of opinion about whether it is appropriate to share when asked what they would do in the position of their patients. Most believe focusing on patients' values and priorities is essential and others feel sharing is crucial to maintain trust. Physicians struggle with ethical tensions and moral discomfort, particularly when patients' requests conflict with their beliefs. ...

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Final arrangements | What happens if I can’t afford a funeral?

05/07/26 at 03:00 AM

Final arrangements | What happens if I can’t afford a funeral? Fox Carolina, Anderson County, SC; by Amanda Shaw; 5/5/26 ... Two hundred and twelve names are on a memorial wall at the Anderson County cemetery. Each one represents a person who died with no one, or no money, to bury them. This year, Anderson County is on track to add more names than ever before. “Every one of these people on this wall gave something here,” McCown said. “They gave something to our society. They gave something to somebody else.” At the center of the wall is a plaque for the names no one will ever know. McCown said the life stories of those memorialized would surprise people. ... On average, Anderson County handles between 28 and 35 indigent burials a year. This year, they are on track to shatter that record, with 26 indigent cremations already reported.

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Ohio’s Hospice CEO: prepare for value-based care

05/07/26 at 03:00 AM

Ohio’s Hospice CEO: prepare for value-based care Hospice News; by Jim Parker; 5/6/26 In time, value-based care will come to hospices, and they must be ready, according to Kent Anderson, CEO of Ohio’s Hospice. In this environment, scale will be key, as will a need to better understand the needs and objectives of referral partners, Anderson told Hospice News. He also leads Metta Health, a revenue cycle management consulting firm. Ohio’s Hospice is a statewide alliance of nonprofit providers established in 2013. The network leverages its member organizations’ collective size in negotiations with vendors, payers and referral sources, collaborates on back-office functions and shares some expenses and infrastructure.

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New tech lets home carers and hospice providers communicate better, more safely

05/07/26 at 03:00 AM

New tech lets home carers and hospice providers communicate better, more safely Columbia Basin Herald Local News, Wenatchee, WA; by Joel Martin; 5/6/26 Anyone who’s ever had to deal with communication between medical providers, home caregivers and Medicare or insurance knows the frustration of trying to get everybody on the same page. A new system debuted by Confluence Health is expected to make those connections easier and safer. “Suppose a patient fell and (injured themselves) and they go in for (treatment),” said Adam MacDonald, corporate communications program manager for Confluence Health. “This is going to make it so their home health and hospice nurses are looking at the exact same record.”

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CVHHH receives $10,000 grant from Vermont Mutual Charitable Fund

05/07/26 at 03:00 AM

CVHHH receives $10,000 grant from Vermont Mutual Charitable Fund VB | VermontBiz; by Tim and Central Vermont Home Health & Hospice; 5/6/26 Vermont Business Magazine Central Vermont Home Health & Hospice (CVHHH) has been awarded a $10,000 grant from the Vermont Mutual Charitable Giving Fund. The funds will support CVHHH’s Adult Home Health Care program, which provides intermittent, short-term medical care, education, and support to Central Vermonters recovering from a hospital stay, injury, or surgery, and those who need assistance managing their chronic disease. 

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