Literature Review

Dying ‘Beautifully’ in the Rio Grande Valley: Rivera-Burciaga embeds end-of-life nursing into UTRGV curriculum: National Nurses Week is May 6-12 UTRGV, The University of Texas Rio Grande Valley - The Newsroom, Rio Grande Valley, TX; by Karen Villarreal; 5/9/25 Death, for the most part, makes people uncomfortable. But not UTRGV’s Dr. Andrya Rivera-Burciaga.  After a personal loss early in her nursing career drove her to seek advanced certification in hospice and palliative care, she has made it her life’s work to normalize conversations about death and dying.   ... While Rivera-Burciaga’s efforts successfully have woven palliative care into the UTRGV nursing curriculum, her Ph.D. research on the unique cultural perspective of death and dying among Mexican Americans aims to further tailor the care that nurses provide to end-of-life patients in South Texas.  ... Through clinical interviews, Rivera-Burciaga found that many individuals of the Mexican American culture are afraid to die – despite engaging in Día de los Muertos, a celebration of death every November. “We've built a compassionate community for the dying, yet we don't say it by name. Many Mexican Americans in the United States believe that to talk about death invites it. Or, that we don't have time to be depressed, or that even in mourning men don't cry,” she said.

Evaluation of required end-of-life (EOL) ethics content in the ten residency programs offering hospice and palliative medicine fellowshipAmerican Journal of Hospice and Palliative Care; by Sara W Youssef, Lauren E Berninger, Danielle J Doberman; 4/25Ethics training is essential to hospice and palliative medicine (HPM) training. Ten residencies can lead into HPM fellowship, but clinical ethics tested on board certification exams vary in content and weight across specialties. Our findings indicate that end-of-life ethics content tested on these board certification exams vary across specialties. Given this variance, standardizing end-of-life ethics training for HPM fellowship programs presents an opportunity for educational improvement.

Integration of palliative care into heart failure care: Consensus-based recommendations from the Heart Failure Society of AmericaJournal of Cardiac Failure; by Sarah Chuzi, Martha Abshire Saylor, Larry A Allen, Akshay S Desai, Shelli Feder, Nathan E Goldstein, Hunter Groninger, James N Kirkpatrick, James A Tulsky, Jill M Steiner, Natasha Lever, Eldrin Lewis, Joseph G Rogers, Haider J Warraich; 3/25Heart failure (HF) is characterized by significant symptoms, compromised quality of life, frequent hospital admissions, and high mortality rates; palliative care (PC) is, therefore, highly relevant for patients with HF and their clinicians. Multiple guidelines and consensus statements recommend the provision of PC alongside HF management. However, few resources exist to guide the integration of PC into HF care, for both primary PC (provided by HF clinicians in the course of HF care) and specialty PC (provided by PC specialists). Through this consensus statement, the Heart Failure Society of America aims to provide a contemporary, practical guide for clinicians and institutions about how PC should be operationalized in the context of comprehensive HF care.

Palliative and end-of-life care interventions with minoritized populations in the US with serious illness: A scoping reviewAmerican Journal of Hospice and Palliative Medicine; by Brandon M. Varilek, Katherine Doyon, Shelie Vacek, Mary J. Isaacson; 1/25Using an equity-informed research approach is vital to improve palliative and end-of-life care interventions for minoritized communities with serious illness. There is also a need for more robust publishing guidelines related to community-based participatory research methods to ensure publication consistency among research teams that employ this complex research method.

Improving outcomes for ICU family members: The role of spiritual careJournal of Palliative Medicine; by Alexia M Torke, Shelley Varner-Perez, Emily S Burke, Amber R Comer, Susan Conrad, LaVera Crawley, Deborah Ejem, Jennifer Gabbard, Patricia E Kelly, Buddy Marterre, Ariel Modrykamien, Patrick O Monahan, Sarah Nouri, Csaba Szilagyi, Douglas White, George Fitchett; 4/25Having a family member hospitalized in the intensive care unit (ICU) can be a stressful experience for family members, encompassing both psychological and spiritual distress. While research has delved into the impact of spiritual care for ICU family members, further investigation is still needed to determine the most effective approaches for delivering such care. This narrative review will describe a conceptual model aimed at guiding future research in this endeavor. The model proposes that chaplains provide emotional, spiritual, and information support to ICU family members. This affects both their ICU experience, decision making, and outcomes for the patient and family.

Does sedation affect patients’ spiritual experience at the end of life? An intersection between medicine and spiritualityJournal of Pain and Symptom Management; by Anne L. Dalle Ave, Daniel P. Sulmasy; 1/25Spirituality, consciousness, sedation, end-of-life, end-of-life care, spiritual experiences Key Message This article explores the role of sedation with respect to the patient’s spiritual experiences at the end of life. As healers, healthcare professionals offer compassionate care to body and soul. While drugs with sedative effects may be an answer to some bodily and psychological suffering, other forms of care, such as spiritual care or counseling, may better address other forms of suffering, particularly the fear of death.

End-of-life care and health care spending for Medicare beneficiaries with dementia in accountable care organizationsJAMA Network; Jessica J. Zhang, David B. Reuben, Anne M. Walling, David S. Zingmond, Cheryl L. Damberg, Neil S. Wenger, Haiyong Xu, Ryo Ikesu, Gillian S. Kaneshiro, Alexandra Klomhaus, Hiroshi Gotanda, Yusuke Tsugawa; 5/9/25This study of 162,034 Medicare fee-for-service beneficiaries who died from 2017 through 2020 found no evidence of differences in end-of-life care processes, outcomes, or spending between beneficiaries in ACO vs non-ACO. These findings suggest that alternative payment models to ACOs may be needed to coordinate high-quality care with lower health care spending for Medicare beneficiaries with dementia at the end of life.

Creating a workplace violence safety committee [webinar 5/22/25]CHAP webinar; 5/15/25The focus of this webinar is on the critical role of a multidisciplinary Safety Committee in proactively addressing workplace violence within home-based care... Participants will gain practical strategies for implementing proactive safety measures, including risk identification, technology integration, and fostering a culture of safety and accountability to empower staff and mitigate the risks inherent in the unique challenges of providing care in patients' homes.

Restructuring for risk: How home-based care providers build frameworks that boost profits Home Health Care News; by Joyce Famakinwa; 5/14/25 In the home-based care world, building a business that is equipped to take on risk-based reimbursement arrangements can be easier said than done. While no simple feat, taking on risk is an attractive option that allows home-based care providers to align incentives between their organizations, payer sources and patients. Providers that have found success with risk-based agreements have done so by addressing retention challenges, investing in data and more.

Exploring overlooked collaborative opportunities during end-of-life care Medical Xpress; by Institute of Science Tokyo; 5/14/25 [This study's researchers describe:] "Bereaved family members broadly recollected the mixed regretful actions and decisions that should have been taken during the end-of-life care process. Coordination and cooperation challenges that existed between health care professionals and family caregivers emerged as factors that impeded these actions at the time." [They identified three types of] unintended, percolated work (UPW). ...

The future of dying with Dr. Ira Byock | Pop 1205 Practice of the Practice; podcast by Joe Sanok with Dr. Ira Byock; 5/14/25 How can we embrace conversations about death and dying? What is the healing power of forgiveness and connection in end-of-life care? When we face morality, how can we transform fear into meaningful connections? In this podcast episode, Joe Sanok speaks about the future of dying with Dr. Ira Byock. .. In this podcast: 

Medicaid hospice payments for room-and-board to resume in California Hospice News; by Jim Parker; 5/15/25 After years of nonpayment, the California Department of Health Care Services (DHCS) has instructed Medicaid managed care plans to pay hospices for nursing home room and board. The issue pertains to patients who are dually eligible for Medicare and Medicaid. When caring for patients in nursing homes, hospices typically pay for their room and board with the expectation that they will be reimbursed by Medicaid for those expenses. However, due to confusion among managed care plans that oversee Medicaid in most states, those hospices have not been receiving those payments.