Literature Review
Systemic strategies to prevent nonbeneficial treatments near the end of life
08/03/25 at 03:25 AMSystemic strategies to prevent nonbeneficial treatments near the end of lifeJAMA Network Open; by Sofia Weiss Goitiandia, Amy Z. Sun, Amy Rosenwohl-Mack, Catthi Ly, Katherine E. Sleeman, Daniel Dohan, Elizabeth Dzeng; 7/25There exists a default toward high-intensity treatments near the end of life in the United States, including for people living with advanced dementia (PLWD). Clinical momentum, a cascade of increasingly intensive treatments facilitated by systemic factors, contributes to this default. The intensity of treatments provided to PLWD near the end of life is lower in Great Britain. Using Great Britain as a counterexample to the United States, this study examines factors that may contribute to lower-intensity treatment patterns.
System wide goals of care implementation: A podcast with Ira Byock, Chris Dale, and Matt Gonzales
08/03/25 at 03:20 AMSystem wide goals of care implementation: A podcast with Ira Byock, Chris Dale, and Matt GonzalesGeriPal podcast; by Eric Widera, Alex Smith, Ira Byock, Chris Dale, Matt Gonzales; 7/24/25Most health care providers understand the importance of goals-of-care conversations in aligning treatment plans with patients’ goals, especially for those with serious medical problems. And yet, these discussions often either don’t happen or at least don’t get documented. How can we do better? In today’s podcast, we sit down with Ira Byock, Chris Dale, and Matthew Gonzales to discuss a multi-year healthcare system-wide goals of care implementation project within the Providence Health Care System. Spanning 51 hospitals, this initiative [found] an increase from 7% to 85% in goals of care conversation documentation for patients who were in an ICU for 5 or more days. How did they achieve this? Our guests will share insights into the project’s inception and the strategies that drove its success, including:
When grief involves trauma − a social worker explains how to support survivors of the recent floods and other devastating losses
08/03/25 at 03:10 AMWhen grief involves trauma − a social worker explains how to support survivors of the recent floods and other devastating losses The Conversation; podcast by Gemma Ware with Dr. Liza Lane; 7/17/25 The July 4, 2025, floods in Kerr County, Texas, swept away children and entire families, leaving horror in their wake. Days later, flash floods struck Ruidoso, New Mexico, killing three people, including two young children. ... When death is sudden, violent, or when a body is never recovered, grief gets tangled up with trauma. In these situations, people don’t only grieve the death. They struggle with the terror of how it happened, the unanswered questions and the shock etched into their bodies. I’m a social work professor, grief researcher and the founder of The Young Widowhood Project, a research initiative aimed at expanding scholarship and public understanding of premature spousal loss. Both my personal loss and professional work have shown me how trauma changes the grieving process and what kind of support actually helps. To understand how trauma can complicate grief, it’s important to first understand how people typically respond to loss.
Today's Encouragement 8/3/25
08/03/25 at 03:00 AMMy doctor asked if anyone in my family suffers from mental illness. I said, "No, we all seem to enjoy it!"
Sunday newsletters
08/03/25 at 03:00 AMSunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!
National Alliance for Care at Home hosts inaugural Financial Summit
08/03/25 at 03:00 AMNational Alliance for Care at Home hosts inaugural Financial Summit National Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 7/30/25 The National Alliance for Care at Home (the Alliance) successfully hosted its inaugural event, the 2025 Alliance Financial Summit, July 27-29 in Chicago, IL. The Summit brought together financial leaders from across the care at home community, with expert-led sessions, peer collaboration, and insights into market shifts and emerging technologies. More than 700 attendees and exhibitors participated in the comprehensive program, which featured keynote presentations, concurrent educational sessions, networking opportunities, awards, and celebration. ... “This first Alliance event exceeded our expectations, bringing together care at home leaders from across the nation to connect, learn, and recommit to our shared vision of an America where everyone has access to the highest quality, person-centered healthcare wherever they call home,” said Alliance CEO Dr. Steve Landers.
[Sweden] Ethical reflection: The palliative care ethos and patients who refuse information
08/02/25 at 03:55 AM[Sweden] Ethical reflection: The palliative care ethos and patients who refuse informationPalliative Care & Social Practice; Joar Björk; 7/25Situations wherein a patient refuses potentially important information present tricky ethical challenges for palliative care staff. Taken as a whole, the palliative care ethos seems to recommend a strategy of using communication skills and time to try to get information across to the patient without forcing things. The recommendation is nuanced and highly contextualised, which increases its validity for clinical practice. Some meta-ethical questions are discussed regarding the use of the palliative care ethos as a source of guidance in ethically challenging clinical situations.
Today's Encouragement
08/02/25 at 03:55 AMI don’t think any one person has got the ability to change the world. But I think that if a bunch of people do a little bit, it gets a little bit better. ~Jelly Roll
The treatment of chemotherapy-induced peripheral neuropathy: A review of current management options and a potential role for scrambler therapy
08/02/25 at 03:45 AMThe treatment of chemotherapy-induced peripheral neuropathy: A review of current management options and a potential role for scrambler therapyFrontiers in Pain Research; by Hassan Aboumerhi, Henry Vucetic, Andrew Gruenzel, Bahar Moftakhar, Mona Gupta, Santosh K Rao, Michael D Staudt; 7/25Chemotherapy-induced peripheral neuropathy (CIPN) presents a growing medical and financial burden on patients and the healthcare system alike. This has been treated with conservative and interventional care limited by efficacy, side effects, and lack of coverage. As such, there is an unmet treatment need for effective non-invasive or minimally invasive therapies for the treatment of CIPN. Scrambler therapy (ST) is a peripheral, non-invasive neuromodulation technique, which uses transcutaneous electrical stimulation to modulate pain signals. ST has shown mixed results in clinical trials; while some patients report symptom relief, more robust evidence is required before it can be widely recommended.
Pitfalls of large language models in medical ethics reasoning
08/02/25 at 03:35 AMPitfalls of large language models in medical ethics reasoningnpj Digital Medicine; by Shelly Soffer, Vera Sorin, Girish N. Nadkarni, Eyal Klang; 7/25 Large language models (LLMs), such as ChatGPT-o1, display subtle blind spots in complex reasoning tasks. We illustrate these pitfalls with lateral thinking puzzles and medical ethics scenarios. Our observations indicate that patterns in training data may contribute to cognitive biases, limiting the models’ ability to navigate nuanced ethical situations. Recognizing these tendencies is crucial for responsible AI deployment in clinical contexts.
Expanding the conceptualization of bereavement in the perinatal period
08/02/25 at 03:35 AMExpanding the conceptualization of bereavement in the perinatal periodThe Journal of Obstetric, Gynecologic & Neonatal Nursing; by Rana Limbo, Natasha Nurse-Clarke; 7/25Contemporary definitions of perinatal loss encompass a range of involuntary and unintended pregnancy outcomes, including miscarriage (loss of pregnancy before 20 weeks gestation; Mayo Clinic, 2023), ectopic pregnancy (fertilized egg implanted outside the uterus), stillbirth (the birth of a fetus who shows no signs of life at or after 20 weeks gestation; Gregory et al., 2022), and neonatal death (the death of a live-born fetus within the first 28 days of life; National Center for Health Statistics, 2024). The loss of a pregnancy or fetus or the death of a newborn is an event, and perinatal bereavement is the emotional response to that event. The need for perinatal palliative care, which refers to care provided to families who receive a life-limiting fetal diagnosis, has also emerged as a critical component in supporting families through these losses (Limbo & Wool, 2016).
Challenges in effective communication for end-of-life decision making in clinical practice
08/02/25 at 03:25 AMChallenges in effective communication for end-of-life decision making in clinical practiceHospital Practice; by Anish Bhardwaj; 7/25Decisions on end-of-life (EOL) care are a complex process that involves multiple stakeholders including patients, their families, and healthcare providers. Myriad factors play a role in making these decisions, such as desires of the patient and surrogates, advance directives, the patient's health condition, expectations about the disease course and prognosis, metaphysical beliefs about life and death, spiritual and socio-cultural backgrounds and views, quality of life considerations, legal connotations, costs of care, and nuances surrounding organ donation and procurement. This treatise utilizes three real-life examples to highlight the complexity and debate surrounding these decisions, especially in terms of interface of medicine and legal process, especially when a patient is in coma or a vegetative state and decisions transfer to surrogates.
Evaluating the role of palliative care in emergency department opioid use among advanced cancer patients
08/02/25 at 03:20 AMEvaluating the role of palliative care in emergency department opioid use among advanced cancer patientsSupportive Care in Cancer; by Joel Nortey, Shiyun Zhu, Andrew Lynch, Hannah Whitehead, Nirmala Ramalingam, Raymond Liu; 7/25 Patients with advanced cancer often experience severe symptoms that significantly impact their quality of life, leading to frequent emergency department [ED] visits for pain management. These visits not only diminish patient quality of life, but also impose substantial costs on the healthcare system. Our study highlights the significant role that PC can play in reducing ED utilization for pain management needs among advanced cancer patients, improving quality of life and alleviating healthcare burdens.
Finding the communication sweet spot: Strategies promoting personhood in conversations between individuals with dementia and their family members
08/02/25 at 03:20 AMFinding the communication sweet spot: Strategies promoting personhood in conversations between individuals with dementia and their family membersJournal of Family Communication; by R. Amanda Cooper, Chizobam Nweke, Hannah Brocksmith; 7/25... this study explored the various ways through which family members promote the personhood of their loved ones with dementia. Personhood was promoted by reminding the people with dementia of their identities, encouraging them to share their thoughts, assessing and adjusting to their conversational needs, and cultivating relational connections with them. Some behaviors were inconsistent with the tenets of person-centered communication and involved underaccommodation or overaccommodation. The findings reveal potential strategies and pitfalls of promoting personhood within the family caregiving context.
Effect of a multi-component palliative care intervention on goals of care discussions for critical patients in the emergency department
08/02/25 at 03:10 AMEffect of a multi-component palliative care intervention on goals of care discussions for critical patients in the emergency departmentInternal & Emergency Medicine; by Julia Murray, Zacharia Grami, Katherine Benson, Christopher Hritz, Samantha Lawson, Corita Reilley Grudzen, Allison Cuthel, Lauren Talanda-Fath Southerland; 7/25Goals of care (GOC) discussions are vital to understanding patients' values and preferences during serious illness, but they occur infrequently during Emergency Department (ED) care. We report a single site sub-study of a stepped wedge pragmatic trial of a multi-component intervention of primary palliative care in the ED (PRIM-ER), focused on GOC conversations. The intervention did not change the proportion of patients receiving a GOC conversation in the ED ... [however patients] presenting with a cancer-related complaint ... or a respiratory emergency ... were associated with increased odds of a GOC conversation occurring. Of the 60 GOC conversations that occurred, 76.7% ... resulted in a change in code status, patient care plans, hospice, or updated advance care planning documents. While the intervention did not increase this secondary outcome of GOC conversations, the discussions that did occur frequently impacted ED care.Assistant Editor's note: This study concluded that the intervention employed in the ED did not increase the proportion of patients receiving GOC conversations. Yet the study also concluded that almost 77% of the patients who DID receive the conversation had a change in code status, care plan, hospice or advance care planning documents. This study clearly reminds us that GOC conversations, employed even in the ED, can help patients embrace a palliative approach to care when faced with serious illness.
The effects of private equity ownership in U.S. nursing homes quality and financial performance: A systematic review
08/02/25 at 03:00 AMThe effects of private equity ownership in U.S. nursing homes quality and financial performance: A systematic reviewHealth Policy; by Gregory N. Orewa, Aizhan Karabukayeva, Rohit Pradhan, Itopa Jimoh, Robert Weech-Maldonado; 7/25Private equity (PE) investment in U.S. nursing homes has increased significantly over the past two decades. The emergence of this novel ownership model has prompted concerns regarding its effects on nursing home performance, especially quality... Across studies, PE ownership was linked to higher number of deficiencies, increased hospitalization rates, and higher mortality, although some improvements in care processes were noted. Financial outcomes showed initial financial gains but long-term challenges, primarily due to high debt loads... Findings suggest that PE strategies may prioritize short-term profitability, which may compromise quality of care in some instances. These findings highlight the need for financial transparency, and reimbursement models that incentivize long-term quality.
Saturday newsletters
08/02/25 at 03:00 AMSaturday newsletters focus on headlines and research - enjoy!
Telemedicine special registrations for controlled substances
08/02/25 at 03:00 AMTelemedicine special registrations for controlled substancesJAMA Health Forum; by Jacob T. Kannarkat, John Torous, Joseph T. Kannarkat; 7/25Since the COVID-19 pandemic, the requirement for in-person evaluation of patients prior to the prescribing of controlled substances via telehealth, as established by the Ryan Haight Online Pharmacy Consumer Protection Act (Ryan Haight Act), has remained provisionally held. The Drug Enforcement Agency (DEA) previously proposed rulemaking to reintroduce the in-person patient evaluation requirement, as some unscrupulous clinicians and companies took advantage of this deregulated environment to overprescribe controlled substances. However, these flexibilities were extended through December 31, 2025, after the public voiced concerns over possible care disruptions in a landscape increasingly dependent on telehealth. Now, the DEA aims to compromise on prescribing flexibility with more practical enforcement measures.
[India] Challenges and ethical considerations of palliative care in Indian prisons
08/02/25 at 03:00 AM[India] Challenges and ethical considerations of palliative care in Indian prisonsJournal of Pain and Symptom Management; by Swapnil Kumar Barasker, Pankaj Singhai, Maya Nair, Deepali Kumar; 8/25The landscape of palliative care (PC) in India is still nascent, and when applied to the prison setting, it becomes a terrain fraught with unique challenges. There is a dearth of region-specific perspectives on end-of-life care (EOLC) and PC in Indian prisons. In Indian prisons, EOLC is complicated by issues such as overcrowding, inadequate medical facilities, and the societal neglect of incarcerated individuals, yet the need for it remains largely unrecognized... Prison deaths are frequently associated with brutality or neglect, but statistics reveal that most deaths occur due to natural causes such as ischemic heart disease, pneumonia, cancer, and liver and kidney disorders. Despite many prisoners having chronic illnesses, they often lack regular follow-ups and access to appropriate care due to insufficient medical staff and infrastructure.
Financial performance of rural and urban nursing homes: A comparative analysis
08/02/25 at 03:00 AMFinancial performance of rural and urban nursing homes: A comparative analysisThe Journal of Rural Health; by Gregory N. Orewa, Rohit Pradhan, Akbar Ghiasi, Shivani Gupta, Robert Weech-Maldonado; 7/25The financial sustainability of nursing homes is increasingly critical as the aging US population continues to grow. Rural facilities often encounter more significant economic challenges than urban counterparts. This study investigates the disparities in financial performance between rural and urban nursing homes in the United States, emphasizing the influence of organizational and environmental factors. A comprehensive understanding of these differences is necessary for the implementation of effective policy and management interventions... Rural nursing homes had lower operating margins than urban facilities in unadjusted models. However, after adjusting for organizational factors such as size, occupancy, and payer mix, the rural–urban difference was no longer significant. Environmental factors, including population demographics and income levels, contributed to financial disparities. COVID-19 exacerbated financial challenges, disproportionately affecting rural facilities... Financial disparities between rural and urban nursing homes are not solely due to geographical location, but also stem from structural challenges. These insights have significant policy implications suggesting that addressing reimbursement rates, operational efficiency, and resource allocation is crucial to ensure the financial sustainability and quality care for aging populations.
CMS FY 2026 Hospice Wage Index FINAL Rule posted in Federal Register
08/02/25 at 03:00 AMCMS FY 2026 Hospice Wage Index FINAL Rule posted in Federal Register