Literature Review
Trends in Pediatric Palliative Care Research (TPPCR) 2025; Issue #2
03/11/25 at 03:00 AMTrends in Pediatric Palliative Care Research (TPPCR) 2025; Issue #2 Siden Research Team; Commentary by Kim Mooney-Doyle, MD; 3/6/25Kim Mooney-Doyle – University of Maryland School of Nursing, MD, USA: I am a nurse scientist dedicated to advancing family health in serious pediatric illness. I have studied parent-sibling relationships and the social ecological factors that impact it for the past decade. ... Siblings are special and, too often, invisible in the care of seriously ill children, adolescents, and young adults. Two articles in this month’s collection bring the needs and experiences of siblings into focus using a family lens. A key take-away from this important work is that while siblings want to communicate with their parents about their brother’s or sister’s illness, it can be hard to initiate such conversations. As clinicians and researchers, we can work with families to devise strategies that foster these conversations, such as providing prompts or a scripted conversation guide to help a parent engage the sibling.
‘The weekend effect’: If you’re planning surgery, doctors say you should think twice about Fridays
03/11/25 at 03:00 AM‘The weekend effect’: If you’re planning surgery, doctors say you should think twice about Fridays DailyDot.com; by Ilana Gordon; 3/7/25 Everybody’s working for the weekend, which, according to a new study, is incidentally the worst time of the week to undergo surgery. A paper published in the JAMA Network on March 4, 2025, concludes that patients experience worse outcomes during the weekends, as compared to weekdays. This phenomenon is known as the “weekend effect” and the study, which examined 429,691 patients in Ontario, Canada, determined that people whose surgeries began directly before the weekend “experienced a statistically significant increase in the composite outcome of death, complications, and readmissions at 30 days, 90 days, and 1 year.”
Assessing pain, anxiety and other symptoms of nursing home residents unable to speak for themselves
03/11/25 at 03:00 AMAssessing pain, anxiety and other symptoms of nursing home residents unable to speak for themselves Regenstrief Institute, Indianapolis, IN; by Kathleen T. Unroe, MD, MHA; 3/10/25 Revamped tool reliably addresses physical and emotional distress, well-being and end-of-life symptoms. As many as half of nursing home residents are cognitively impaired and may be unable to communicate symptoms such as pain or anxiety to the staff and clinicians caring for them. Therefore, information needed for the evaluation of symptoms and subsequent treatment decisions typically does not reliably exist in nursing home electronic health records (EHRs). A new paper reports on the novel adaptation of a commonly used symptom assessment instrument to more comprehensively acquire this difficult-to-obtain data with the ultimate goal of enabling knowledge-based expansion of palliative care services in nursing homes to address residents’ symptoms.
Poised for growth, Missouri’s largest aging services nonprofit changes name: Lutheran Senior Services is now EverTrue
03/11/25 at 03:00 AMPoised for growth, Missouri’s largest aging services nonprofit changes name: Lutheran Senior Services is now EverTrue St. Louis Business Journal; by Jackie Hamilton, VP of Advancement, EverTrue; 3/7/25 One of the oldest nonprofit agencies in the St. Louis region is changing its name to reflect a dynamic change and growth in desired services and offerings for those 60 plus. Beginning this week, the 165-year-old Lutheran Senior Services (LSS) organization, which also is the 11th largest nonprofit senior living provider in the country, will be known as EverTrue. “It’s a transformative moment for the organization,” said Adam Marles, president and CEO of EverTrue. “From right here in St. Louis, we’re leading the country in aging services. In this next chapter, we needed a name and a brand that positioned us for future growth and opportunities, while still being true to our mission.”
The staging of 'The Story of My Life' at Asbury Memorial filled with serendipitous moments
03/11/25 at 03:00 AMThe staging of 'The Story of My Life' at Asbury Memorial filled with serendipitous moments Savannah Morning News, Savannah, GA; by Amy Paige Condon; 3/6/25 ... [Ray] Ellis, a retired music and drama teacher who works now as a caregiver, and fellow church member Dottie Kluttz, a retired hospice nurse, were hanging decorations in Asbury Memorial’s Social Hall. Ellis shared how his dream of producing “The Story of My Life” was back on his mind … A former hospice nurse, Kluttz founded Savannah Hospice’s Story Keeping program in 2001 as a way for people near the end of their lives to share the story of their lives. … [Click on the title’s link to read the serendipitous, synergistic encounters that unfolded, resulting in shows March 28, 29, 30.] [Upon underwriting for production costs,] Ellis proposed that ticket sales for the musical could serve as a fundraiser for Savannah Hospice’s Story Keeping program and the Michael J. Fox Foundation for Parkinson’s Research—a nonprofit near and dear to Ellis, who was diagnosed about three years ago with the progressive brain disease that causes tremors, stiffness and balance problems. … Stage and film actor Mark Rand, who was diagnosed with Parkinson’s around the same time as Ellis, agreed to portray Thomas to Ellis’s Alvin—even after Rand thought he would never perform again. …
Here’s to Laura Ptucha-Skoog, hospice nurse
03/11/25 at 03:00 AMHere’s to Laura Ptucha-Skoog, hospice nurse YubaNet.com; by Timothy May; 3/10/25 “I’m not sure I’d say much at all, not at first. I would just try to listen.” This in response to the question of how a hospice nurse should respond if patients or family members make demands that seem unreasonable, unwise, or downright impossible. ... Laura Ptucha-Skoog should know; she has been an R.N. for decades and a nurse at Hospice of the Foothills for the last nine years. She loves her job, including the challenge of facilitating communication. Her ability to talk frankly with terminally ill hospital patients and families drew her to a career in hospice. “Often,” Laura explains, “the human elements are as challenging as the medical ones. Things like asking the right questions and listening to responses; making sure your patient and their caregivers understand what you are doing and why; verifying that everyone understands where you are in the process; listening to their responses with patience and empathy.” ...
Hallucinogens may elevate death risk by more than twofold
03/11/25 at 03:00 AMHallucinogens may elevate death risk by more than twofold Medscape; by Liz Scherer; 3/5/25 Hallucinogens are associated with a 2.6-fold increased risk for premature death in some individuals seeking emergency care, according to a recent study. The risks are especially substantial in vulnerable patients who are suicidal, who are susceptible to severe mental illness, or have comorbid conditions such as respiratory disease or cancer. The findings come at a time of renewed interest in the therapeutic potential of substances like psilocybin, lysergic acid diethylamide, methylenedioxymethamphetamine (MDMA), and ketamine for mood and substance use disorders. In 2023, the Canadian Institutes of Health Research allocated roughly $3 million to three clinical trials examining psilocybin-assisted psychotherapy in the treatment of alcohol use disorder, treatment-resistant depression, and end-of-life psychological distress in patients with advanced cancer.
East End Hospice building saved in Long Island fires: 'Angels watching over us'
03/11/25 at 03:00 AMEast End Hospice building Saved in LI fires: 'Angels watching over us' Patch, Westhampton-Hampton Bays, NY; by Lisa Finn; 3/10/25 From the ashes of the raging brush fires in the Westhampton area this weekend, a miracle emerged: Despite just being located feet from the spot where charred trees bear testament to the blaze, a structure still stands — the East End Hospice building survived the fire. "Here is our headquarters," East End Hospice President and CEO Mary Crosby wrote on social media. "... inside this building we coordinate the care of hundreds of patients each day. We answer more than 1,000 phone calls a week from families, hospitals, physicians and field staff. Without the dedicated people who work here, there would be no East End Hospice." On Sunday [3/9], she wrote: "Just 24 hours ago, flames roared around this building, damaging our storage structure and spilling into the parking lot. People have said it’s a miracle the building didn’t burn. We know the truth. It was the dedication and skill of our local fire departments that kept our headquarters standing. In the early hours of the fire. We received very little information until a text came through from a firefighter on the ground: 'We saved Hospice.'"
How to start the hospice conversation: Judy Bartel
03/11/25 at 03:00 AMHow to start the hospice conversation: Judy Bartel Cleveland.com, Cleveland, OH; by Guest columnist Judy Bartel, chief clinical officer for Hospice of the Western Reserve; 3/9/25 Discussing hospice care with a loved one is one of life’s most delicate and emotional conversations. For many, the word “hospice” evokes fear -- fear of finality, of giving up, of losing hope. But the truth is, hospice isn’t about giving up; it’s about focusing on what matters most -- comfort, dignity and quality of life. ...
NPHI CEO Tom Koutsoumpas: Modernize hospice benefit for value-based future
03/11/25 at 02:00 AMNPHI CEO Tom Koutsoumpas: Modernize hospice benefit for value-based future Hospice News; by Jim Parker; 3/10/25 The health care realm is changing, and hospices must change with it. This is the central thesis that underlies the National Partnership for Healthcare and Hospice Innovation, which is currently celebrating the 10th anniversary of its founding. NPHI seeks to put nonprofit hospice organizations at the forefront of innovation, the development of new care and payment models and collective action to expand access and prepare for a value-based future. The organization currently has more than 120 members, all nonprofits, who collectively care for more than 580,000 patients.The health care realm is changing, and hospices must change with it. This is the central thesis that underlies the National Partnership for Healthcare and Hospice Innovation, which is currently celebrating the 10th anniversary of its founding. ... [Click on the title's link to continue reading.]
The Medical Minute: Measles cases rising in the US, what you can do
03/10/25 at 03:00 AMThe Medical Minute: Measles cases rising in the US, what you can do PennState, Hershey, PA; 3/6/25 A case of measles in a child was confirmed in Montgomery County on March 2 ─ the first reported case in the state in 2025. Nationwide, the Centers for Disease Control and Prevention (CDC) has reported 164 measles cases in nine states. Texas alone has seen at least 140 cases since late January, including one unvaccinated child who died. Measles is a preventable, highly contagious, airborne virus that can cause serious health complications, including death, especially in children under 5, said Dr. George McSherry, division chief of pediatric infectious diseases at Penn State Health Children’s Hospital. “Measles is a very serious illness. It’s one of the most infectious of the infectious diseases,” McSherry said. “If you put a person with measles in a room with 100 unimmunized people, 90 will get it.” Click on the title's link for more important information.
Norton KDH ending home health, hospice services March 31
03/10/25 at 03:00 AMNorton KDH ending home health, hospice services March 31MadisonCourier.com, Madison, IN; by Bob Demaree; 3/6/25 Norton King’s Daughters’ Health has announced it will end its home health and hospice services effective March 31, providing a statement but not offering an explanation for the decision. “Helping local patients and families access important health services remains paramount to the mission and purpose of Norton King’s Daughters’ Health,” the state said. “While we will no longer be directly offering home health and hospice services, we worked with a variety of qualified regional providers to ensure that patients continue to receive appropriate care within their home setting. It has been a privilege for Norton King’s Daughters’ Health to support home health and hospice services for more than three decades. ..."
At the end of life, doctors’ actions and patients’ wishes may be misaligned, according to a Rutgers Health study
03/10/25 at 03:00 AMAt the end of life, doctors’ actions and patients’ wishes may be misaligned, according to a Rutgers Health study Rutgers; by Greg Bruno; 2/28/25 For terminally ill cancer patients, the final days of life are immensely personal, having the choice to continue cancer treatments, or to stop treatments and prioritize a more comfortable passing. What a patient wants, however, isn’t always what they receive, according to a Rutgers Health study published in the journal Cancer. “A patient's end of life is often not a reflection of what they want, but rather, who their oncologist happens to be,” said Login S. George, a health services researcher at the Rutgers Institute for Health, Health Care Policy and Aging Research, and lead author of the national study. “The data doesn’t indicate patient-centered treatment decisions, but rather, more habitual or default ways of treating patients,” says George, who is also a member of the Cancer Prevention and Control Program at Rutgers Cancer Institute, the state’s only National Cancer Institute-designated Comprehensive Cancer Center. ... [Click on the title's link for more statistics, insights, and recommendations.]
Lending a helping harp: Music therapist Sarah Ohr uses the power of music in hospice care
03/10/25 at 03:00 AMLending a helping harp: Music therapist Sarah Ohr uses the power of music in hospice care VolumeOne - Theme Issue "Death & Taxes"; by Barbara Arnold; 3/6/25... Dubbed the "hospice harpist," Sarah is a harpist and more. Music has been part of her life since a child growing up in Green Bay, where her parents adopted Sarah and her adopted brother Steve separately from South Korea. ... “Harp and piano are my musical loves,” Sarah noted in an interview. ... Two events, which both occurred in early April 2018, served as life-changing catalysts for Sarah: her brother, Steve, was murdered in Chicago, and Sarah received a cancer diagnosis that would require major surgery. ... [Click on the title's link to read Sarah's career journey as a performer and into music therapy.] ... [Now, Sarah serves St. Croix Hospice in Eau Claire, WI as a board certified music therapist.] According to Sarah, there is a perception that a patient can request her to entertain them. In reality, in order for Sarah to offer support to a patient, medical necessity must be present. “First, I need to be called in as part of the care team, ... Next, I meet with the patient or the patient’s family to conduct an assessment. In super simple terms: is there social isolation, depression, anxiety, pain management, or a neurological reason, by which music can fulfill a need?"Editor's note: Find professional music therapists at the Certification Board for Music Therapists.
Today's Encouragement: In loving memory of the hour we lost ...
03/10/25 at 03:00 AMIn loving memory of the hour we lost ... I'll drink 2 cups of coffee at the same time. ~ UnknownHappy (?) Daylight Saving Time
Enloe Health to transition Palliative Care Program to new cancer center
03/10/25 at 03:00 AMEnloe Health to transition Palliative Care Program to new cancer center Action News Now, Chico, CA; by Matt Wreden; 3/7/25 Enloe Health is transitioning its Palliative Care Program to function under its soon-to-open cancer center. This shift means that Enloe Health will be phasing out its in-home palliative care services, a decision that has raised concerns within the local community. ... Enloe Health explained that this move is in line with the upcoming Symptom Management Clinic set to open as part of the new Cancer Center. Editor's note: Does this limit their palliative care services to only those with cancer? What about palliative care needs for persons with advanced heart disease? Strokes? Neurological diseases like ALS or Parkinson's? Advanced dementia?
"The hospice heart": Hospice industry battles misconceptions, staffing shortages as expectations grow
03/10/25 at 03:00 AM"The hospice heart": Hospice industry battles misconceptions, staffing shortages as expectations grow Pharos-Tribune, Logansport, IN; by Josh Flynn Pharos; 3/9/25 ... There are a lot of misconceptions about hospice care and one of the largest is that entering hospice care is equal to giving up. ...Hospice care is one of the fastest growing industries as the Baby Boomer generation continues to age. The hospice care industry was valued at $34.5 billion in 2022 and is expected to grow in value to $67.7 billion by 2030. But misconceptions about hospice care and nursing shortages could threaten that future success. ... Maria Rogers is the public relations liaison at Guardian Angel Hospice in Logansport and she has devoted herself to tackling the misconceptions that surround hospice care. ... “You don’t have to be actively passing away to receive our services,” Rogers said. ... Jennifer Edwards, executive director of Heart to Heart in Mishawaka and Logansport, said many families don’t understand the role of medicine in hospice care. While something like chemotherapy would be discontinued, a hospice staff would never discontinue medications or fail to treat new problems that came up. ...
13th Annual Healthcare Fraud & Abuse Review - 2024
03/10/25 at 03:00 AM13th Annual Healthcare Fraud & Abuse Review - 2024 JD Supra; by Bass, Berry & Sims PLC; 3/7/25 Bass, Berry & Sims is pleased to announce the release of the 13th annual Healthcare Fraud & Abuse Review examining important healthcare fraud developments in 2024. Compiled by the firm's Healthcare Fraud & Abuse Task Force, the Review provides a comprehensive analysis of enforcement developments affecting the healthcare industry, significant court decisions involving the False Claims Act, and an overview of settlements involving healthcare fraud and abuse issues.We began the Review over a decade ago with the intention of providing comprehensive coverage of the most significant civil and criminal enforcement issues facing healthcare providers each year. Over that time, the challenges facing the healthcare industry have been significant. ...
Mahogany CEO: Hospice on cusp of ‘tremendous revolution’
03/10/25 at 03:00 AMMahogany CEO: Hospice on cusp of ‘tremendous revolution’Hospice News; by Holly Vossel; 3/7/25 Mahogany Home Health and Hospice recently launched services in southwestern Ohio. The new hospice startup is the first Black-owned hospice and home health organization statewide with a drive to improve utilization among underserved populations. This is according to Victor Couzens, owner, founder and CEO of Mahogany Home Health and Hospice. The organization recently received a green light from state licensing agencies to begin serving Cincinnati and Dayton, Ohio and surrounding communities. ... Couzens recently told Hospice News, ... "As a hospice chaplain, I was often confronted with the pressure of trying to fit a square peg into a round hole when it comes to how underserved communities are actually reached and cared for. It’s about offering insights, or even evidence-based approaches, to meeting the needs of Black and brown people, the needs of the LGBTQ+ community, the needs of immigrants and just any other groups who do not make up the majority of the patient population. ..."
VA in IM marks 75th anniversary as a mainstay for veterans’ care
03/10/25 at 03:00 AMVA in IM marks 75th anniversary as a mainstay for veterans’ care The Daily News, Iron Mountain, MI; by Betsy Bloom; 3/6/25 A winter storm didn’t stop the Oscar G. Johnson VA Medical Center from celebrating its 75th anniversary with an open house Wednesday. The facility opened on March 5, 1950 — it then was the largest construction project done in the Upper Peninsula — as strictly an inpatient hospital with 264 beds, primarily for treating World War II veterans ... [and much has] changed in 75 years. The medical center now serves about 22,000 veterans in the U.P.’s 15 counties, along with nine Wisconsin counties — more than 26,000 square miles, giving it the most rural patient base in the VA system. ... Its hospice area now has a semi-private patio that allows even a full bed to be taken outside so those in end-of-life care can still enjoy some fresh air, said Mary Oman, [a] tour guide.Editor's note: Congratulations and thank you to the Oscar G. Johnson VA Medical Center for your history of innovating care for veterans--especially your rural care system and hospice care.
Report finds those with Parkinson’s have unmet hospice needs
03/10/25 at 02:10 AMReport finds those with Parkinson’s have unmet hospice needsMcKnights Long-Term Care News; by Kristen Fischer; 3/6/25 Hospice use varies depending on whether a person has Parkinson’s disease, Lewy body dementia or Alzheimer’s disease and those with Parkinson’s may have more unmet needs, a new study finds. Researchers evaluated data on 11,327,324 Medicare beneficiaries enrolled in hospice between 2010 and 2020 as part of their study, which was published Tuesday in JAMA Network Open. ... Hospice enrollees who had Parkinson’s disease and dementia with Lewy bodies were less likely to be disenrolled from hospice due to extended prognosis compared to those with Alzheimer’s disease. People who had Parkinson’s disease but not dementia with Lewy bodies were more apt to have longer stays over 180 days and turn hospice away compared to those with Alzheimer’s disease. (Short stays were defined as those less than seven days.)
Social Media Toolkit for Social Work Month 2025
03/10/25 at 02:00 AMSocial Media Toolkit for Social Work Month 2025 NASW National Association of Social Workers; by NASW; for March 2025 Celebrate Social Work Month 2025! People enter the social work profession because they genuinely care about other people. However, social workers have the education, training, and expertise to empower people so they can live to their full potential. That is why this year’s theme is Social Work: Compassion + Action. Here are our suggestions to help you share information about the positive work social workers do during Social Work Month 2025 and beyond.
Helios Care honors hospice social workers
03/10/25 at 02:00 AMHelios Care honors hospice social workers Allotsego,Oneonta NY; by Dan Ayres, President and Chief Executive Officer of Helios Care; 3/6/25March is National Social Work Month, a time to recognize and honor the invaluable contributions of social workers across the country. The theme for National Social Work Month this year is “Compassion and Action,” which 100 percent sums up our team of social workers at Helios Care, the hospice for Otsego, Delaware and Schoharie counties. All social workers are indeed special, but hospice social work is very unique. ... Hospice social workers at Helios Care are trained to provide a holistic approach to end-of-life care, helping patients and their families navigate emotional, psychological, and practical challenges. Community education, bereavement counseling, bearing witness to those at end of life, practical assistance in the home and advanced care planning are just some of the duties of a hospice social worker. Thank a social worker this month—their work is truly remarkable.
748 hospitals at risk of closure, state by state
03/10/25 at 02:00 AM748 hospitals at risk of closure, state by state Becker's Hospital CFO Report; by Molly Gamble; 3/6/25 Nearly 750 rural U.S. hospitals are at risk of closure due to financial problems, with nearly half of those hospitals at immediate risk of closure. The count of 748 at-risk rural hospitals comes from the latest analysis from the Center for Healthcare Quality and Payment Reform, which is based on CMS' most recent hospital financial information. The center's analysis reveals two distinct levels of vulnerability among rural healthcare facilities: risk of closure and immediate risk of closure. In the first category, nearly every state has hospitals at risk of closure, measured by financial reserves that can cover losses on patient services for only six to seven years. In over half the states, 25% or more of rural hospitals face this risk, with 11 states having a majority of their rural hospitals in jeopardy. [Click on the title's link for the list.]Editor's note: On July 5, 2024, we posted from the same source (Becker's Hospital CFO Report) that "Since January 2005, 192 rural hospitals have closed or converted ... Of those hospitals, 105 have completely closed, and 87 have converted, meaning the facilities no longer provide inpatient services, but continue to provide some services, such as primary care, skilled nursing care or long-term care. Since 2020, 36 hospitals have closed or converted. Find the list here. This jump in number is both dramatic and traumatic for our rural communities.
Understanding a patient’s AI medical journey
03/10/25 at 02:00 AMUnderstanding a patient’s AI medical journey The Hastings Center; by Ian Stevens, Erin William, Jean-Christophe Bélisle-Pion, and Vardit Ravitsky; 3/5/25As artificial intelligence becomes increasingly integrated into U.S. health care, patients should know the ways in which AI is being used in their care, concludes a new paper, “Bring a ‘Patient’s Medical AI Journey’ to the Hill.” Transparency is crucial for interactions between health care providers and individual patients, as well as for systemic level uses of AI, including: