Literature Review

Mom, 26, dies days after choosing to enter hospice following 13 years of living with kidney failure (exclusive) People; by Zoey Lyttle; 12/18/24 Though she left behind a 4-year-old daughter, Sara Long told PEOPLE her feelings about death were "more certain" than they'd ever been when she started end-of-life care. “I think a lot of people spend a lot of time thinking about what it means to have a good life. And don't get me wrong, I did that too,” Sara Long, 26, told PEOPLE over the phone just shy of a week before she died at the hospice facility into which she had just recently moved. ... Long said she’s spent “the last two or three years” deliberating about her idea of a “good death.” She decided that it wasn’t just about how she would experience these last expected few weeks of her life in hospice. What Long really wanted was to be surrounded by her most precious loved ones — including her husband Justin, 32, and their 4-year-old daughter Riley Jean — but she didn't want them to watch her die while intubated and attached to hospital equipment as she was half of her life. “I just feel like if I pushed it any harder, then I was going to get to a place where it was going to be outside of my control,” said the mom of one. “I was going to wind up dying in a hospital alone, afraid, full of tubes, scared. My daughter wouldn't be able to be part of the process, and it would just be really lonely, and that's really not the goal.” Detached from the familiar yet foreign medical equipment, Long told PEOPLE she was freed from fear knowing she would only survive another couple of weeks in hospice. (She died with a week less than anticipated.) Editor's note: This another follow-up post to this profound young woman's story that we post on 

Torrie Fields on palliative care and serious illness innovations Teleios Collaborative Network (TCN); podcast hosted by Chris Comeaux; 12/18/24 In this episode of TCNtalks, host Chris Comeaux interviews Torrie Fields, Founder & Chief Executive Officer, TFA Analytics, about her journey in the field of palliative care.  Torrie shares her insights on the importance of palliative care, innovations in reimbursement models, and the lessons learned from implementing palliative care programs in California and Hawaii. The conversation highlights the urgency for hospice organizations to adapt to changing healthcare landscapes by innovating in the serious illness and palliative care space and the need for effective partnerships with payers. Torrie emphasizes the importance of articulating the unique value propositions of palliative care services and offers strategies for hospice leaders to thrive in the future.

Be yourself. Who else is better qualified? ~ Frank J. Giblin, Professor of Biomedical Sciences

Convicted trio jailed for elder abuse Inland News Today, Riverside, CA; 12/18/24 A 7-year prison sentence has been meted out for the neglect and abuse of six severely disabled residents at an unlicensed Riverside care facility. Ronnel Tiburcio was convicted of six counts of elder abuse likely to produce great bodily harm. Earlier, co-defendants Joel Ombao and registered nurse Nimfa Molina were handed jail sentences. Ombao owned several hospice companies, including the unlicensed Secure Hands board and care facility where the victims were housed. Ombao, his assistant Tiburcio, and registered nurse Molina, were responsible for operating the facility and caring for the residents. When investigators first checked out the care facility, residents were being housed in squalor. Many of them were emaciated and dehydrated.

Cherish Hospice celebrates new location in Springfield Springfield News-Sun; by Brooke Spurlock; 12/17/24 Cherish Hospice celebrated its new headquarters location at 1929 E. High St. in Springfield [OH] on Tuesday. Cherish officials said that since 2021, they have served hundreds of patients in Southwest Ohio, with a staff of more than 25 caregivers and a volunteer program. “This is a great symbol of us, how we’ve grown,” said Jason Casto, administrator for Cherish Hospice. “This is a ribbon cutting event to celebrate our growth and the fact that we plan to remain here in Springfield as a staple.”

December challenge: Gift ideas part two ActiveRain; by Kat Palmiotti; 12/17/24 ... My mother dealt with cancer the last four years of her life with an upbeat attitude, ...  So what did she do with the time she had left? The same as always. It was late November 2011 at this point. So what she decided to do was to make a point of purchasing us all our last Christmas present. ... So for me, she purchased me a coffee cup with a lid which is pictured in the feature photo. ... But my mom didn't stop there. She also wrote each of her family members a handwritten letter. Her letter to me talked about me being her first born, and about what I was like during my childhood, and how she felt about my life as an adult. It was a beautiful letter that makes me smile and cry every time I read it. I treasure it. ... So why am I sharing this? Because when I think back on all the gifts I've ever received, it's not jewelry or clothing or anything else that pops into my mind first. It's a $5 cup and a piece of paper with writing on it. And both of those were my mom giving me love. So, when giving gifts to those you care about, give them love. Perhaps grab a piece of paper and a pen and let them know how much you care about them. Or buy them a small carefully selected item that they might use on a daily basis, smiling because it's from you. Because really, it truly is the thought that counts. Let that thought be love.

Greater education needed to bring palliative care to cancer patients Hospice News; by Jim Parker; 12/18/24 Cancer patients generally need palliative care, but widespread misperceptions often stand in their way, both among the public and many clinicians themselves. This is according to Nadine Barrett, president of the Association of Cancer Care Centers (ACCC). The organization has been holding a series of webinars designed to better educate the oncology community about palliative care. The association is also in the process of studying racial and ethnic gaps in advance care planning, among other projects funded by its research arm, the ACCC Community Oncology Research Institute. Palliative Care News sat down with Barrett to discuss the barriers that cancer patients often experience when it comes to accessing palliative care. [Click on the title's link to read more.]

Holly Ball raises over $1,000,000 in its 50th year WJON News AM-1240 FM-95.3, St. Cloud, MN; by Paul Habstritt; 12/16/24 An annual fundraising event in St. Cloud was a huge success. CentraCare's 50th Annual Holly Ball raised over $1-million dollars to support CentraCare Hospice, Coborn Cancer Center, and Child Advocacy Center. CentraCare Foundation Vice President Holly Gulden says Holly Ball was an incredible success this year and they are so grateful to the guests, sponsors, volunteers, and donors' commitment to helping CentraCare support local health care. The theme for this year's event was "Seasons of Love." Over, 1,200 people attended Holly Ball on December 7th at the River's Edge Convention Center, and planning is already underway for 2025.

Bill would require prisons to notify families of inmate deaths Henry Herald, Washington, DC; by Staff; 12/18/24 U.S. Sen. Jon Ossoff, D-Georgia, recently announced the introduction of a bipartisan bill aimed at helping ensure family members are notified in a timely and compassionate manner in the event of the death or serious illness or injury of a loved one in custody. Ossoff and U.S. Sen. John Kennedy, R-La., recently introduced the bipartisan Family Notification of Death, Injury, or Illness in Custody Act. U.S. Rep. Sydney Kamlager-Dove, D-Calif., is leading the companion bill in the U.S. House of Representatives.

VITAS Healthcare unveils inpatient hospice unit at Lee Memorial Hospital South Florida Hospital News and Healthcare Report, fort Myers, FL; by cfelixcpa; 12/16/24 Residents of Lee County now have access to dedicated end-of-life care at the new VITAS Healthcare Inpatient Hospice Unit at Lee Memorial Hospital, offering expert, patient-centered hospice services in the comfort of a homelike setting. This inpatient unit (IPU) is the only hospital-based hospice facility in the county and is the first VITAS IPU in Lee County and second in Southwest Florida. It is expected to serve more than 400 patients annually. ... The VITAS hospice unit at Lee Memorial features eight private patient rooms with internet access, flatscreen TVs, private bathrooms and overnight accommodations for loved ones. A shared family room provides space for visiting guests, and children’s activities keep little ones occupied.

Veteran’s body sent across state lines without family’s knowledge USANews.net; by Michael Carter; 12/17/24 In a shocking turn of events, Karen Wandel received a distressing message last year that her father, Libero Marinelli Jr., had passed away over five months earlier in a South Carolina hospital. What came as an even greater shock was the revelation that his body had been sent to be used for medical research without the knowledge of his family. This troubling incident sheds light on the complex and often unregulated practices surrounding the use of unclaimed bodies in the healthcare industry. ... The treatment of Marinelli, a former Army service member entitled to burial in a veterans’ cemetery, underscores the ethical dilemmas surrounding the supply of unclaimed bodies for medical research. Despite widespread acknowledgment of the unethical nature of this practice, it continues to persist due to the healthcare industry’s demand for human specimens and local officials’ struggles with the rising number of unclaimed bodies without next of kin.Editor's note: This demonstrates yet another example of the shocking story that received extensive national network news (and that we posted 9/17/24), "As families searched, a Texas medical school cut up their loved ones." 

Hospice utilization rebounds to pre-pandemic levels, but fraud casts a shadow Hospice News; by Jim Parker; 12/17/24 The nation’s hospice utilization rate among Medicare decedents has once again surpassed 50%, for the first time since the pandemic. However, fraud issues in the space create questions around the quality of care patients are receiving. Hospice utilization reached 51.7% in 2023, up more than two percentage points from the prior year, according to recent data from the Medicare Payment Advisory Commission (MedPAC). This is the highest rate since 2019. MedPAC observed increases in utilization across the board, even when stratified into subgroups by age, sex, race and rural or urban location. ... Despite these positive trends, an influx of new hospices continued in states considered hotbeds for Medicare fraud, including Arizona, California, Nevada and Texas. Many of these new additions came in areas where additional hospices were likely not necessary based on the needs of the patient population. Georgia also saw a large spate of new providers emerge in 2023.