Literature Review
[Utilization] Hospice care for those with dementia falls far short of meeting people’s needs at the end of life
04/07/24 at 03:15 AM[Utilization] Hospice care for those with dementia falls far short of meeting people’s needs at the end of life The Conversation, Maria J Silveira, University of Michigan; 4/1/24... Strikingly, only 12% of Americans with dementia ever enroll in hospice. Among those who do, one-third are near death. This is in stark contrast to the cancer population: Patients over 60 with cancer enroll in hospice 70% of the time. In my experience caring for dementia patients, the underuse of hospice by dementia patients has more to do with how hospice is structured and paid for in the U.S. than it does patient preference or differences between cancer and dementia.
Fostering respect and appreciation seen as keys to retaining direct care workers
04/07/24 at 03:05 AMFostering respect and appreciation seen as keys to retaining direct care workersMcKnights Online Forum, by Kimberly Bonvissuto; 3/27/24 Expressions of appreciation and respect can go a long way in addressing senior living’s direct care workforce crisis, according to a panel of direct workers and employers who addressed what makes employees want to stay — or go. ... Nate Hamme, president and executive director of the Ceca Foundation, ... said that the most important part of employee recognition is listening to people. ... He added that there is a science to recognition backed by research into what motivates people and implementing programs around that. ... Recognition programs, Hamme added, should focus on IMPACT: inclusive, mission-aligned, public, authentic, consistent and timely.
Today's Encouragement
04/07/24 at 03:00 AMYou can’t go back and change the beginning, but you can start where you are and change the ending. ~CS Lewis
Mortality, hospice use rates differ in assisted living communities depending on whether memory care is offered
04/07/24 at 03:00 AMMortality, hospice use rates differ in assisted living communities depending on whether memory care is offeredMcKnights Senior Living, by Kimberly Bonvissuto; 4/4/24Assisted living communities that provide memory care services may attract residents closer to the end of life or promote hospice use at the end of life compared with assisted living communities without such services, according to the findings of a new study. ... Researchers from the Brown University School of Public Health, the University of Melbourne and the Johns Hopkins University School of Nursing examined whether end-of-life outcomes — mortality and hospice use — differed between assisted living facilities with and without memory care services among 15,152 residents who moved into larger communities between 2016 and 2018.Editor's Note: Click here for the source article, "Do end-of-life outcomes differ by assisted living memory-care designation?"
Sunday newsletters
04/07/24 at 03:00 AMSunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!
Neuropsychiatric effects associated with opioid-based management for palliative care patients
04/06/24 at 03:00 AMNeuropsychiatric effects associated with opioid-based management for palliative care patientsCurrent Pain and Headache Reports, by Alan D Kaye, Kylie Dufrene, Jada Cooley, Madeline Walker, Shivam Shah, Alex Hollander, Sahar Shekoohi, Christopher L Robinson; 4/24The abundance of opioids administered in the palliative care setting that was once considered a standard of care is at present necessitating that providers evaluate patients for unintentional and deleterious symptomology related to aberrant opioid use and addiction. ... By having an increased understanding and awareness of potential opioid neuropsychiatric effects, patient quality of life can be improved, healthcare system costs can be decreased, and patient outcomes can be met and exceeded.
Do end-of-life outcomes differ by assisted living memory-care designation?
04/06/24 at 03:00 AMDo end-of-life outcomes differ by assisted living memory-care designation?Journal of the American Geriatric Society, by Xiao Joyce Wang, Portia Y Cornell, Emmanuelle Belanger, Kali S Thomas; 4/24Residential care/assisted living (RC/AL) is an increasingly common place of end-of-life care for persons with Alzheimer's disease and related dementia (ADRD), who have unique care needs as their health declines. Approximately 22% of RC/ALs provide specialized memory care (memory-care RC/AL). Understanding how end-of-life outcomes differ by memory care among residents with ADRD could facilitate aging/dying in place for this population. The objective of this paper is to examine if end-of-life outcomes (i.e., mortality, hospice use, and number of days receiving hospice in the last month of life) differ between residents with ADRD who moved to memory-care RC/AL, compared with residents with ADRD who moved to RC/AL without memory care (general RC/AL).
Wide variation in differences in resource use seen across conditions between Medicare Advantage, Traditional Medicare
04/06/24 at 03:00 AMWide variation in differences in resource use seen across conditions between Medicare Advantage, Traditional MedicareHealth Affairs, by Jeah Jung, Caroline S. Carlin, Roger Feldman, Ge Song; 9/23Medicare Advantage (MA) is a rapidly growing source of coverage for Medicare beneficiaries. Examining how MA performs compared with traditional Medicare is an important policy issue. We analyzed national MA encounter data and found that the adjusted differences in resource use between MA and traditional Medicare varied widely across medical conditions in 2019.
When dying does not go well: a qualitative study
04/06/24 at 03:00 AMWhen dying does not go well: a qualitative studyBMC Palliative Care, by Christof Breitsameter; 3/24Several studies deal with the question of what constitutes a "satisfactory death". A smaller number of studies deal with unsatisfactory dying processes. And only a few shed light on unsatisfactory deaths that take place in hospices and palliative care units, which see themselves as places conducive to a "good" death. What also remains largely undiscussed are the ethical aspects that accompany the observation of an unsatisfactory course of death.
“Trying to find North”: Fathers voice the nature of their bereavement
04/06/24 at 03:00 AM“Trying to find North”: Fathers voice the nature of their bereavementOMEGA - Journal of Death and Dying, by Christine Denhup; 3/24Fathers' lived experience of bereavement is not well understood. ... Findings amplify fathers' voice so nurses gain a deeper understanding of their experience.
Too soon or too late: Rethinking the significance of six months when dementia is a primary diagnosis
04/06/24 at 03:00 AMToo soon or too late: Rethinking the significance of six months when dementia is a primary diagnosisThe Hastings Center Report, by Cindy L. Cain, Timothy E. Quill; 1/24In the case of people living with advanced dementia, six months is both too early in the trajectory to facilitate conversations and too late in the trajectory to ensure decision-making capacity. This essay encourages scholars and policy-makers to consider how cultural narratives may limit what they think is possible in care for people living with dementia.
Association of frailty and cardiopulmonary resuscitation outcomes in older U.S. Veterans
04/06/24 at 03:00 AMAssociation of frailty and cardiopulmonary resuscitation outcomes in older U.S. VeteransAmerican Journal of Hospice and Palliative Medicine, by Dominique M Tosi, MD; Marlena C Fernandez, MD; Shivaan Oomrigar, MD; Lorena P Burton, MD; Iriana S Hammel, MD; Andrew Quartin, MD; Jorge G Ruiz, MD; 4/24CPR outcomes were not different depending on frailty status in our Veteran population. With these results, we cannot use frailty - as measured by the VA-FI - as a prognosticator of CPR outcomes in Veterans.
Today's Encouragement
04/06/24 at 03:00 AMIt’s the truth I’m after, and the truth never harmed anyone. What harms us is to persist in self-deceit and ignorance. ~Marcus Aurelius
Saturday newsletters
04/06/24 at 03:00 AMSaturday newsletters focus on headlines and research - enjoy!
Where you begin is not necessarily where you end: the mental and physical health trajectories of cancer caregivers over time
04/06/24 at 03:00 AMWhere you begin is not necessarily where you end: the mental and physical health trajectories of cancer caregivers over timeSupportive Care in Cancer, by Maureen Wilson Genderson, Maria D. Thomson, Laura A. Siminoff; 10/23Cancer caregiving, a critical component in the cancer-care model, has deleterious effects on the caregiver’s physical and mental health. The degree to which these negative effects are uniformly experienced by caregivers is unclear; effects may be exacerbated at the end of life when caregiving is intensified. Not all caregivers have the support of an additional involved support person (secondary caregiver). The impact of the secondary caregiver’s absence on the primary caregiver’s well-being is understudied.
HPNA and HPNF President's message : My path to leadership
04/06/24 at 03:00 AMHPNA and HPNF President's message : My path to leadershipJournal of Hospice & Palliative Nursing, by Lynn Reinke; 4/24Reflecting on my professional life, I recall several seminal experiences that made me believe I possessed basic leadership skills and that encouraged me to develop them. I advanced my skills in 3 ways:
World's Strongest Firefighter from Toledo lifts spirits of woman at hospice care facility
04/05/24 at 03:30 AMWorld's Strongest Firefighter from Toledo lifts spirits of woman at hospice care facility CBS TV WTOL 11; 4/3/24 Marcus Waugh from TFRD went bak to a nursing home to visit a woman after she recognized him as the "World's Strongest Firefighter" during a lift assist last month.
Community Hospice & Palliative Care recognizes National Volunteer Month
04/05/24 at 03:15 AMCommunity Hospice & Palliative Care recognizes National Volunteer MonthJAX Chamber, Press Release; 4/3/24 As April marks National Volunteer Month, Community Hospice & Palliative Care reaffirms its dedication to promoting and celebrating the invaluable contributions of volunteers. Volunteers are the heart and soul of our organization, providing companionship and a compassionate presence to patients and their families during challenging times. Throughout the month, Community Hospice & Palliative Care will spotlight individual volunteers and their inspiring stories through various social media platforms. These narratives will highlight the profound impact that volunteers have on the lives of those they serve and showcase the diverse ways in which they enrich our community. Editor's Note: Use this spark your own planning and recognition for your all-important hospice and palliative care volunteers!
Today's Encouragement: ... teamwork is a lot like being part of a family ...
04/05/24 at 03:00 AMTo me, teamwork is a lot like being part of a family. It comes with obligations, entanglements, headaches, and quarrels. But the rewards are worth the cost. - Pat Summit
FDA approves AI Tool that can detect sepsis
04/05/24 at 03:00 AMFDA approves AI Tool that can detect sepsis Forbes, by Cailey Gleeson; 4/3/24 The U.S. Food and Drug Administration approved an AI tool that can diagnose sepsis, Prenosis, the company behind the software, announced Wednesday, the latest in a series of agency approvals for AI diagnostic tools. ... At least 350,000. That’s how many adults who develop sepsis die from the condition or are discharged to hospice annually, according to the U.S. Centers for Disease Control and Prevention.
Ohio’s Hospice celebrates Spring Spectacular Treasures of Time: Raises over $36k
04/05/24 at 03:00 AMOhio’s Hospice celebrates Spring Spectacular Treasures of Time: Raises over $36kCarroll County Messenger, by Thomas Clapper; 4/2/24Ohio’s Hospice celebrated its Spring Spectacular Treasures of Time March 16 with food, entertainment, silent and live auctions and as always, celebrity servers. Celebrity servers have become the mainstays of the annual event which raised funds for local hospice care. 2024 celebrity servers, who raised a total of $36,671, included Gary and Nicole Chaddock, Brad Eick, Rick and Holly Morgan, Matt Kishman, Kate Offenberger, Janet Smith, Katie DeLane, Allan Furbee, Tom James, Grant Bake and Cedar One, Mark Scott, John Weyand and Bill and Barb Newell.
American Airlines: Make-A-Wish® and Disney host Wish Flight in support of 28 children battling critical illnesses
04/05/24 at 03:00 AMAmerican Airlines : Make-A-Wish® and Disney host Wish Flight in support of 28 children battling critical illnesses MarketScreener; 4/3/24American Airlines, Make-A-Wish and Disney will grant the wishes of children battling critical illnesses in celebration of World Wish Month. On April 17, 28 wish families will board the Wish Flight and fly on a one-of-a-kind, chartered plane from Dallas-Fort Worth to Orlando, Florida, to fulfill their wishes to go to Walt Disney World Resort®.
Hospice update: March goes out like a lion
04/05/24 at 03:00 AMHospice update: March goes out like a lion Morgan Lewis - Health Law Scan, by Howard J. Young; 4/2/24 The old adage—March comes in like a lion and goes out like a lamb—didn’t quite hold true for the hospice sector, which experienced a late-month flurry of activity. The government gave the hospice sector a lot to consider, from MedPAC’s suggested freeze on hospice rates to CMS’s 2025 Proposed Hospice Rule (public comments due May 28, 2024) that, if finalized as is, would include a 2.6% payment bump. CMS’s Proposed Hospice Rule lays the groundwork for the long-anticipated Hospice Outcomes and Patient Evaluation (HOPE) quality measures data collection instrument, which will be used to collect data at various points during the hospice stay, not just at admission and discharge.
Central Dauphin football building connections with residents at Grane Hospice
04/05/24 at 03:00 AMCentral Dauphin football building connections with residents at Grane Hospice ABC TV 27 WHTM, Harrisburg, PA; by Amber Charnoff; 4/2/24 Volunteering is a cornerstone of the Central Dauphin football team and over the past 15 years the team has donated their time to Grane Hospice. ... Central Dauphin seniors Kannyon Miller and Elijah McDonald have enjoyed interacting with the residents at Grane. ... Coach McNamee enjoys stepping back and watching these relationships develop. ... “It’s so much fun watching them in action and seeing that room with the interactions between the players and the residents,” McNamee said. “There’s no doubt it’s a win-win. The residents are really enjoying it and our players are really enjoying it.”
Dana-Farber’s new push to integrate palliative, behavioral services in cancer care
04/05/24 at 03:00 AMDana-Farber’s new push to integrate palliative, behavioral services in cancer careHospice News, by Audrie Martin; 4/2/24Boston-based Dana-Farber Cancer Institute has launched the Neuro-Inclusive Oncology Care and Empowerment Program, a psychosocial oncology initiative focused on adults with intellectual and/or developmental disabilities (IDD). ... Patients with disabilities are largely underserved, but they represent a growing need as well as an untapped market for providers. More palliative care and hospice companies are developing programs to meet the specific concerns of these patients to improve access to care.