Literature Review

DOJ reportedly rejects Amedisys’ divestiture plan as part of UnitedHealth Group deal McKnights Home Care; by Adam Healy; 5/12/25 The Department of Justice reportedly has rejected Amedisys’ plan to divest more than 100 locations in its plan to be acquired by UnitedHealth Group subsidiary Optum, according to CTFN, which tracks mergers and acquisitions. The DOJ decision could spell trouble for the future of Amedisys’ deal with Optum. The Department of Justice reportedly has rejected Amedisys’ plan to divest more than 100 locations in its plan to be acquired by UnitedHealth Group subsidiary Optum, according to CTFN, which tracks mergers and acquisitions. The DOJ decision could spell trouble for the future of Amedisys’ deal with Optum.

End-of-life care behind bars: A periodic literature search - May 2025Personal communication; 5/8/25Regular reviews of articles and reports on key issues in prison hospice and palliative care.

A daughter’s cautionary elder care tale The Progressive Magazine - Book Review; by Bill Lueders; 5/12/25 The call that woke Judy Karofsky in the middle of the night on May 18, 2015, was from a hospice nurse, who got right to the point: “I’m calling to tell you that your mother has died.” Karofsky, deeply shaken by the unexpected news, managed to ask, “Did she struggle?” Karofsky’s important new book, DisElderly Conduct: The Flawed Business of Assisted Living and Hospice, does not mention the hospice nurse’s response to this question. But it does note that she called back a moment later to say: “I’m so sorry . . . . I called the wrong number. I’m at a different facility and I had the wrong file.” Karofsky’s mother, Lillian Deutsch, had not died at all. It was someone else’s mother. Apologies were made. This is just one of many stories Karofsky shares throughout the book about the final years of her mother’s life in Wisconsin. This particular anecdote strikes me as noteworthy not just as an example of the sort of awful things that can happen when facilities are understaffed and staff members are overworked, but also because Karofsky’s first reaction was to wonder whether she struggled.Editor's note: Though printed news typically lifts up the good, compassionate moments of hospice care, most all of us have experienced negative accounts--professionally and/or personally. While this book is sure to give significant insights, perhaps the most important lessons are waiting to be validated from your own family caregivers, employees, and volunteers. What stories are behind your lower-than-you-want CAHPS Hospice scores? Dig deeper. May we all listen, learn, and improve care.

Hospice of Midland opens new Community Center to expand local support Midland Reporter-Telegram, Midland, TX; by B. Kay Richter; 5/8/25 After years of envisioning a community center next door to Hospice of Midland headquarters, the day is finally here. The commercial building, located at 901 W. Texas Ave., will serve as a space for various community needs, including professional and student educational support, bereavement support, memorial services, volunteer gatherings and even collaborations with other nonprofit organizations.  Deborah Goodman, chief executive officer of Hospice Midland, said that the building was initially purchased by Midlander Ted Johnson and was renovated with community support. The one-story building offers 3,000 square feet of space and is equipped with a new commercial kitchen.

Donate Life Ceremony celebrates organ donors and their families Vanderbilt University Medical Center; by Matt Batcheldor; 5/6/25 In addition to honoring organ donors and their families, the ceremony salutes hospital staff who care for donors and transplant recipients. Seventy-one individuals donated their organs at Vanderbilt University Medical Center in 2024, and they and their families were saluted on April 30 at the annual Donate Life Ceremony. “Those 71 donors resulted in 235 lives that were saved,” said C. Wright Pinson, MBA, MD, Deputy Chief Executive Officer and Chief Health System Officer for VUMC. ...  In addition to that, there were another 191 individuals who made the remarkable gift of tissue donation … which restored sight to the blind, enhanced the lives of burn victims, and gave mobility to those with bone and joint injuries.” ... The ceremony, held in the lobby of Langford Auditorium, was part of a national effort to raise awareness about the need for organ and tissue donors.

Navian Hawaii receives $400K grant Pacific Business News - Health Care, O'ahu, HI; by Christina O'Connor; 5/8/25Hospice and palliative care services nonprofit Navian Hawaii, formerly known as Hospice Hawaii, recently received a $400,000 grant from the Zilber Family Foundation to expand its palliative care program. The Honolulu-based nonprofit said on Wednesday the program features personalized care plans focused on improving quality of life for individuals with serious illnesses. It addresses physical symptoms, as well as emotional distress and planning for next steps, and includes access to nurses, physicians and social workers. This donation follows a $4.3 million gift from the Weinman Foundation earlier this year. That funding is going toward growing residential care. [The full article is behind a payall.]

National Alliance for Care at Home unveils new website to enhance member experience The National Alliance for Care at Home, Washington, DC; Press Release; 5/5/25 The National Alliance for Care at Home (the Alliance), the leading advocate and educator for the care at home community, is proud to announce the launch of its newly redesigned website, AllianceForCareAtHome.org. The new site reflects the Alliance’s commitment to innovation, accessibility, and delivering enhanced value to member organizations and all care at home stakeholders. ... “We’re excited to introduce our new website as a digital reflection of who we are and where the Alliance is headed,” said CEO Dr. Steve Landers. ... Key features of the new website include:

It irritates me to be told how things have always been done. I defy the tyranny of precedent. I cannot afford the luxury of a close mind. ~ Clara Barton, nurse during the American Civil War, founder of the Red CrossEditor's note: Today completes 2025 National Nursing Week. Mark your calendars for 2026, always May 6-12.

[United Kingdom] Assisted dying bill: further protections for nurses proposed Nursing Times, London, UK; by Edd Church, source Roger Harris, House of Commons; 5/7/25 No nurse who declines to aid in assisted dying procedures will be at risk of “any detriment” to their careers under a new amendment to the Terminally Ill Adults (End of Life) Bill, the MP behind the draft legislation has claimed. Kim Leadbeater, MP for Spen Valley, announced earlier this week that she would be proposing to extend the “opt-out” provisions in her bill for healthcare workers who work in settings where assisted dying may take place. Ms. Leadbeater said, in a statement released this week, that she understood that “not all people working in and around” healthcare would want to participate in the provision of assisted dying. "Nobody will be at risk of any detriment to their careers if, for any reason at all, they chose not to take part." The bill currently already states that healthcare professionals can conscientiously object to taking part and that employers “must not” subject employees to detriment for exercising this right.

Dying ‘Beautifully’ in the Rio Grande Valley: Rivera-Burciaga embeds end-of-life nursing into UTRGV curriculum: National Nurses Week is May 6-12 UTRGV, The University of Texas Rio Grande Valley - The Newsroom, Rio Grande Valley, TX; by Karen Villarreal; 5/9/25 Death, for the most part, makes people uncomfortable. But not UTRGV’s Dr. Andrya Rivera-Burciaga.  After a personal loss early in her nursing career drove her to seek advanced certification in hospice and palliative care, she has made it her life’s work to normalize conversations about death and dying.   ... While Rivera-Burciaga’s efforts successfully have woven palliative care into the UTRGV nursing curriculum, her Ph.D. research on the unique cultural perspective of death and dying among Mexican Americans aims to further tailor the care that nurses provide to end-of-life patients in South Texas.  ... Through clinical interviews, Rivera-Burciaga found that many individuals of the Mexican American culture are afraid to die – despite engaging in Día de los Muertos, a celebration of death every November. “We've built a compassionate community for the dying, yet we don't say it by name. Many Mexican Americans in the United States believe that to talk about death invites it. Or, that we don't have time to be depressed, or that even in mourning men don't cry,” she said.

'Patients just get violent' | Louisville healthcare workers describe attacks on the job, calling it a crisis ABC WHAS-11, Louisville, KY; by Shay McAlister, Joseph Garcia, Phillip Murrell, and MIchelle Zelli Right now Louisville’s nursing community is facing a crisis, saying they are under attack while on the job.  Since March, police have been called to three different Louisville hospitals after a nurse was assaulted. But those are only the attacks that are reported, several nurses told WHAS11 they face dangerous situations daily without the necessary support. ... The three incidents of violence against nurses sit on a map of hundreds of crimes reported at or near Louisville hospitals and nearby parking garages over the last year. According to LMPD’s crime data portal, 17 assaults were reported at Norton Hospital, 10 at Jewish Hospital, and 28 at the UofL Hospital parking garage over the last 12 months. ... “Many healthcare professionals that are harmed don't report it, and they don't report it because they don't think anybody will listen. And then there are others who think that it's part of the job. It is not part of the job,” CEO of the Kentucky Nurses Association Delanor Manson said. In 2023, Manson worked with lawmakers to formalize language requiring healthcare facilities to track incidents of violence and implement violence prevention strategies. It's a crisis for the career field. 

Haven Hospice's [FL] E.T. York Hospice Care Center implements "Christmas Room"Haven Hospice press release; by Hailey Reidy; 4/3/25Haven Hospice's E.T. York Hospice Care Center in Gainesville has created a Christmas Room to allow their pediatric patients to celebrate with their families. The room came to be at the wish of these patients wanting to celebrate Christmas one last time which their care team and other member of Haven's team supported. The Haven Women of Philanthropy group also supported the room, covering the cost and gathering supplies.Article posted in Florida Hospice & Palliative Care Association's newsletter The Hospice Professional.

The Big Bend Hospice linen drive brings comfort to patients in rural communities: Addressing a critical need in underserved areas ABC WTXL-TV 27, Tallahassee/Monticello, FL; by Lentheus Chaney; 4/30/25 In Jefferson County, kindness sometimes comes in the form of cotton. Big Bend Hospice is collecting linens here to help patients face their final days with dignity. Big Bend Hospice just launched a linen drive. It's asking neighbors to donate new Twin XL-sized bed sheets. They'll be used for patients across Jefferson, Madison, and Taylor counties. The drive's goal is to ensure no one spends their final days without the comfort of clean sheets—something most of us take for granted. The  need is especially great in rural areas. According to state data, hospice use in parts of North Florida lags behind the statewide average—just 57%. That's compared to nearly 66% across Florida. That gap means fewer resources in the places that need them most.Editor's note: Typically, we don't post donor-related articles until after completion. However, this unique community outreach by Big Bend Hospice raises our awareness of practical, simple, meaningful outreach in underserved rural areas. What practical, affordable, meaningful outreach does this spark for your hospice's rural--or other underserved--patients?