Literature Review
Racial disparities in non-stigmatized supportive care medication use in pancreatic cancer
04/19/26 at 03:25 AMRacial disparities in non-stigmatized supportive care medication use in pancreatic cancerJournal of Pain & Symptom Management; by Olga Monika Trejos Kweyete, Chardaé Whitner, David L. Deremer, Yi Guo, Jiang Bian, Lisa Scarton, Sherise C. Rogers, Diana J. Wilkie, Xiwei Lou, John M. Allen; 3/26Pancreatic cancer (PC) is associated with a high symptom burden that contributes to reduced health-related quality of life (HRQoL) and adverse clinical outcomes. This study examined racial and ethnic differences in the use of non-stigmatized SCMs [supportive care medications] during end-of-life care among patients with PC. SCM use was defined as at least one outpatient prescription claim for antiemetics, appetite stimulants, cognitive aids, headache aids, or sleep aids. Racial and ethnic disparities persist in the use of non-stigmatized SCMs among patients with PC at the end of life. These findings extend prior evidence on inequities in cancer symptom management and underscore the need for interventions that promote equitable access to supportive care medications across diverse populations.
Avow expands hospice services into Glades, Hendry and Lee counties
04/19/26 at 03:20 AMAvow expands hospice services into Glades, Hendry and Lee countiesLake Okeechobee News, Naples, FL; 4/13/26On Monday, April 13 , Avow, a leading nonprofit health care provider based in Southwest Florida, announced its expansion into Glades, Hendry and Lee counties. This expansion extends Avow’s high-quality hospice and comprehensive bereavement support, increasing access and impact for families across the region. ... Over the past year, Avow has expanded its reach and deepened its impact, caring for more than 2,900 hospice patients annually and providing more than 4,000 palliative care visits through its Naples clinic and satellite locations.
State associations urge CMS to forgo potential national hospice enrollment moratorium
04/19/26 at 03:15 AMState associations urge CMS to forgo potential national hospice enrollment moratorium Hospice News; by Holly Vossel; 4/10/26 A group of state hospice associations have expressed mounting concerns that a rumored national moratorium prohibiting new provider enrollments could adversely affect access. A letter to the U.S. Centers for Medicare & Medicaid Services (CMS) was recently penned by the Florida Hospice & Palliative Care Association (FHPCA), the Association for Home & Hospice Care of North Carolina (AHHC of NC) and the South Carolina Home Care & Hospice Association (SCHCHA). A national moratorium, if enacted, would impact the ability for legitimate hospices to provide quality care during a time of rising demand, said FHPCA President and CEO Paul Ledford and Tim Rogers, president and CEO of SCHCHA and AHHC of NC.
New measure likely to relax antipsychotic prescribing for certain hospice patients
04/19/26 at 03:10 AMNew measure likely to relax antipsychotic prescribing for certain hospice patients McKnights Home Care; by John Roszkowski; 4/8/26 Appropriate prescribing of antipsychotic medications to hospice patients no longer will negatively affect skilled nursing facilities’ quality ratings under a new federal rule change, potentially opening the door for SNFs to accept more hospice patients. The Centers for Medicare and Medicaid Services recently revised its Long-Stay Antipsychotic Quality measure to exclude residents receiving hospice services from the measure denominator for quality reporting. As a result, antipsychotic use for hospice residents will not influence a SNF’s Five-Star Quality Measure score.
What to do when a dying friend refuses contact
04/19/26 at 03:05 AMWhat to do when a dying friend refuses contact Times.News; by Sofia Alvarez; 4/13/26 The experience of facing a terminal illness is often framed as a time for reconciliation and the strengthening of bonds. However, for some patients, the reality is a profound retreat from the world. When a dying friend refuses contact from friends, it creates a complex emotional vacuum for those left behind, who must balance their desire to provide support with the need to respect a patient’s autonomy. This tension often manifests as a “silent goodbye,” where the dying individual chooses isolation over the emotional labor of maintaining relationships.
I Googled my symptoms and turns out...
04/19/26 at 03:00 AMI Googled my symptoms and turns out I just need to sit by a fire in the middle of the mountains... ~Unknown
Sunday newsletters
04/19/26 at 03:00 AMSunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!
Oregon governor signs Ryan’s Law, requiring care facilities to allow medical marijuana
04/19/26 at 03:00 AMOregon governor signs Ryan’s Law, requiring care facilities to allow medical marijuana The Marijuana Herald; by Anthony Martinelli; 4/10/26 Oregon’s governor has signed House Bill 4142, known as Ryan’s Law, establishing new requirements for certain care facilities to allow qualified patients to use medical marijuana while also setting statewide standards for safety, storage and staff training. The measure was approved by the House in a 39 to 3 vote and by the Senate 20 to 8 before being sent to the governor. With the governor’s signature, the legislation now moves toward implementation, with most provisions taking effect in 2027.
Today's Encouragement
04/18/26 at 03:55 AMYou only live once, but if you do it right, once is enough. ~Mae West
AI-powered health chatbots and digital healthcare transformation in the United States
04/18/26 at 03:40 AMKeeping health equity at the forefront of the artificial intelligence revolution in medicine and health
04/18/26 at 03:35 AMEngaging bereaved parent educators in pediatric end-of-life workshops: A trauma-informed onboarding
04/18/26 at 03:30 AMEngaging bereaved parent educators in pediatric end-of-life workshops: A trauma-informed onboardingJournal of Pain & Symptom Management; by Kayla Solstad, Dannell Shu, Kelly McManimon, Stacy Remke, Susan O'Conner-Von, Anne Woll, Joseph M Miller, Miriam C Shapiro, Johannah M Scheurer; 3/26Recognizing that pediatric end-of-life (EOL) scenarios occur infrequently and are distressing for trainees and other healthcare team members, our group created pediatric end-of-life care skills (PECS) simulation-based workshops to improve trainee competence for these skills. We ... provide interprofessional workshops, including trainees from the pediatric residency program, graduate school of nursing, and graduate school of social work. Since creation of the workshops, the group and curricula have benefited immensely from including the expertise of bereaved parent educators (BPEs), who have experienced the death of their own infant or child and have been integral team members ... from workshop creation through facilitation. Research shows that families who have experienced the death of a child appreciate an interdisciplinary approach to their care and communication at the EOL. When parents of pediatric patients were asked about priorities in EOL care, they highlighted the importance of communication, emotional expression and support by staff, and ready access to multi-disciplinary staff.
Development of a novel psychosocial intervention to improve symptom management for adolescents and young adults with advanced or recurrent cancer
04/18/26 at 03:25 AMFamily caregivers of Black older adults living with dementia in advance care planning research
04/18/26 at 03:20 AMEnd-of-life loneliness, social isolation, and symptom burden: A nationally-representative study
04/18/26 at 03:15 AMIntroducing palliative care: Family caregivers’ knowledge, exposure, and preferred messaging
04/18/26 at 03:10 AMIntroducing palliative care: Family caregivers’ knowledge, exposure, and preferred messagingAmerican Journal of Hospice & Palliative Medicine; by Elaine Wittenberg, Joy V. Goldsmith, Sierra Forrest, Hanna G. Lee, Eva YN Yuen; 3/26Most family caregivers have never heard of palliative care, making it challenging for clinicians to introduce the subspecialty. Semi-structured phone interviews with family caregivers of patients eligible to receive palliative care were conducted. Knowledge of palliative care was significantly associated with having heard about and being offered palliative care. Caregiver exposure to palliative care was associated with age and race, with older, White caregivers significantly more likely to have heard about palliative care compared to Hispanic caregivers. Caregivers positively endorsed all message strategies designed for introducing palliative care.
[China] Effectiveness of animal-assisted therapy for dementia patients: An evidence mapping of randomized controlled trials, systematic reviews, and meta-analyses
04/18/26 at 03:05 AMValued Living intervention to increase advance care planning and well-being in depressed and anxious adults with advanced cancer: Randomized trial in community oncology clinics
04/18/26 at 03:00 AMExecutive Personnel Changes - 4/17/26
04/17/26 at 03:00 AMExecutive Personnel Changes - 4/17/26
Family perceptions of palliative care consultations for nursing home residents
04/17/26 at 03:00 AMFamily perceptions of palliative care consultations for nursing home residents BMC Palliative Care; by Alfred Boakye, John Cagle, Gretchen Tucker, Mary Ersek, Alexander C. Floyd, Hanley Elftmann, Peiyuan Zhang & Kathleen T. Unroe; 4/16/26 Results: ... Four interaction themes emerged regarding palliative care consultations interactions: they (1) promoted physical comfort, (2) supported family members, (3) attended to residents’ social needs, and (4) provided next steps/care planning. Four themes on perceived benefits of consultation visits were identified. Visits (1) improved residents’ quality of life, (2) provided recommendations/referrals, (3) kept family members informed, and (4) supported family members.
Giving back gives purpose to local woman
04/17/26 at 03:00 AMGiving back gives purpose to local woman The Hinsdalean; by Ken Knutson; 4/15/26 Those nearing the end of life and their loved ones may not know Bonnie Walk. But her longstanding, dedicated behind-the-scenes volunteer service for St. Thomas Hospice has helped deliver resources and comfort to untold families during difficult seasons. ... "I work anywhere from one hour to six hours a week," she said. "It just depends on what needs to be done." ... How long will she stick with it? "Until I can't, I suppose," said Walk, not keen on passive entertainment. "You've got to do something. I'd rather help than not."
Sovereign Hospice: addressing late-stage renal condition care gaps in Fort Worth
04/17/26 at 03:00 AMSovereign Hospice: addressing late-stage renal condition care gaps in Fort Worth MyCarrollCountyNews.com, Dallas, TX; by Sovereign Hospice; 4/16/26 End-stage kidney disease affects hundreds of thousands of Americans each year. When kidneys can no longer sustain life without dialysis or a transplant, families are left to make decisions that few feel prepared for. Sovereign Hospice ... is drawing attention to a gap many families face: not knowing that hospice care services exist as a legitimate, fully supported option at this stage of illness. ... For patients with end-stage kidney disease, the shift away from aggressive treatment means that symptom management becomes the priority. Common symptoms at this stage include fatigue, pain, restlessness, and fluid retention. The interdisciplinary team is trained to address all of these through individualized care plans.
St. Croix Hospice CCO: transparency, compliance fosters growth
04/17/26 at 03:00 AMSt. Croix Hospice CCO: transparency, compliance fosters growthHospice News; by Jim Parker; 4/15/26Tami Johnson-White is the newly appointed chief compliance officer for St. Croix Hospice. Johnson-White brings 30 years of health care leadership experience to St. Croix Hospice. St. Croix Hospice operates more than 85 locations across Illinois, Indiana, Iowa, Kansas, Michigan, Minnesota, Missouri, Nebraska, South Dakota and Wisconsin. Hospice News sat down with Johnson-White to talk about her priorities as she comes into her new role, the top compliance issues facing hospices today and how they can prepare for audits.
