Literature Review

Helene and Hospice: "We're seeing such personal sacrifices ... It's heartwarming and heartbreaking ..."Hospice & Palliative Care Today; Zoom meeting with Teleios Collaborative Network (TCN), Chris Comeaux and Tina Gentry; 10/2/24[These excerpts are from a Zoom meeting between TCN's leaders Chris Comeaux (Hendersonville, NC just outside of Asheville, NC) and Tina Gentry (Fort Mill, SC) and this newsletter's leaders Cordt Kassner and Joy Berger. Click here for the longer transcription. Continue reading for ways you can help.] Chris Comeaux: There's great tragedy, great devastation, and there are beautiful miracles occurring at the same time. … I know I'm going to keep using words like historic, unprecedented, devastating. There are not even words to describe what we’re seeing. ... Tina Gentry: It's just heart wrenching. You want to be able to go and fix things and you just can't do it, right? You don't feel like you can do enough. And knowing that there are certain limitations and that we have to rely on other resources to help support our teams. We have to do what we can and then trust that others will do what they can to help.  ...Chris Comeaux: All of our all staff is accounted for. Some are still without water, electricity. [Some] staff compared at Four Seasons [Hospice], CCWNC [Community Care of Western North Carolina], Amorem staff … have completely lost their homes. They’re gone. We have a wonderful partner that serves many of our hospices. Yesterday, they found the body of their dear neighbor. They can't even get to their house. It would be a 10-mile hike through things that today--in modern days--you would go, “How is that possible?” … I've always heard the word, “aftermath.” I now understand what people mean by “aftermath.” ...Tina Gentry: … We’re seeing such personal sacrifices from those team members on the ground. It’s really heartwarming and heartbreaking all at the same time. ...Chris Comeaux: … What I've seen is, sometimes you have friendly rivalries in the hospice and palliative care world. That's gone. We're all family right now and that--I just, whew--that moves me to tears. That's the type of stuff that's like, you know what? Ok, that gives me hope that we are going to get beyond this. ... [See this in Today's Encouragement.]Key Themes:

Bringing Penelope home The Chronicle of The Horse; by Sarah K. Susa; 10/1/2024 Angie was 35 when she, her husband, and son moved into their first home. It was red brick with a big picture window and a pasture out front where their horses could graze. It was almost a dream come true. Almost, because Angie was dying. The lump she’d found just two years earlier had metastasized, multiple times. In the beginning doctors cut off both breasts, hoping to take the cancer with them. But the disease was stealthy, hiding somewhere inside, then popping up here and there: liver, lymph nodes, spine, brain. She was pumped full of chemo. Blasted with radiation. Time and again, surgeons opened her up, removing any fragments of the disease that they could. Then they’d stitch her back together, hoping to buy her more time. But eventually, Angie was told, there was nothing more to do. Hospice was called. A hospital bed in Angie’s new living room allowed her to watch the horses graze from the picture window, her favorite feature of the house. Her son, just 5, would perch on the window’s deep sill, quietly building Legos and trying to process what was happening around him. And it was all happening so fast. 

EEOC sues AccentCare Home Health Care company for pay discrimination and retaliation U.S. Equal Employment Opportunity Commission; Press Release; 9/27/24 AccentCare, a nationwide home health care service company headquartered in Dallas, Texas, violated federal civil rights laws by paying female employees less than a male colleague because of their sex and retaliating against a female employee who repeatedly complained, the U.S. Equal Employment Opportunity Commission (EEOC) charged in a lawsuit filed today. According to the EEOC’s lawsuit, female Licensed Practical Nurses (LPNs) working out of AccentCare’s Pottsville, Pennsylvania, location were paid less than their male colleague for performing equal work, despite their superior qualifications. After a female LPN repeatedly complained about the gender-based pay disparity and requested a raise, AccentCare retaliated against her, and ultimately fired her. Such alleged conduct violates Title VII of the Civil Rights Act of 1964 and the Equal Pay Act of 1963, which prohibits pay discrimination based on sex and retaliation for opposing sex discrimination.

‘Much-needed hospice … vital to our community:’ Mayor Elizabeth Roy salutes Whitby Hospice breaking ground after 8-year effort, millions raised and tireless efforts by volunteers DurhamRegion.com, Durham, NC: by Tim Kelly; 9/29/24 After many years of hard work and fundraising by dedicated volunteers, Hospice Whitby — Roger Anderson House is about to break ground. For the chief organizers on the committee Hospice Whitby committee, it was time to really enjoy the moment and they made a video to celebrate it. With the building of Whitby’s hospice, the region will have gone from no hospice beds at all to 29 in under five years. 

Vitas Healthcare introduces premier hospice care in Bakersfield and Fresno GlobeNewswire; by Vitas Healthcare; 10/1/24 To meet the growing need for quality end-of-life care in California’s Central Valley, Vitas Healthcare hospice services are now available for residents of Bakersfield and Fresno. With local interdisciplinary teams based in each city, Vitas now offers expert clinical, emotional and spiritual care for seriously ill patients in their homes, nursing homes, assisted living communities and inpatient care settings. 

The Natural Funeral launches TerraCare Partner Program (TM) to expand terramation services nationwide AccessWire, Boulder, CO; by The Natural Funeral, Inc.; 10/1/24 The Natural Funeral, a leader in sustainable funeral practices, proudly announces the launch of its TerraCare Partner Program™. This innovative initiative empowers funeral homes and crematory operators across the United States to offer terramation, also known as Natural Organic Reduction (NOR), to their communities. The program provides partners with a comprehensive turnkey solution, featuring the firm's advanced, fourth-generation Chrysalis™ vessels. These systems are meticulously designed for precision, efficiency, elegance, and rapid deployment to transform human remains into Regenerative Living Soil™ within just two to four months. "By introducing the TerraCare Partner Program™, we are not only expanding the reach of terramation services but also enhancing the capacity of funeral service providers to meet a critical and growing demand for sustainable end-of-life options," said Mike Reagan, CEO of The Natural Funeral. ... The Natural Funeral has served over 500 families with eco-conscious funeral options, many of whom chose terramation, its most rapidly growing disposition service. 

SNF, home health [and hospice] CEOs could be jailed over cybersecurity issues under new billMcKnight's Senior Living; by Kathleen Steele Gaivin; 9/30/24New legislation aimed at improving cybersecurity in healthcare could see leaders at skilled nursing facilities, home health agencies and hospices jailed if they lie about their cybersecurity precautions, according to one of its sponsors. Senate Finance Committee Chair Ron Wyden (D-OR) and Sen. Mark Warner (D-VA) announced the Health Infrastructure Security and Accountability Act on Thursday. The bill also covers other types of healthcare businesses. “The healthcare industry has some of the worst cybersecurity practices in the nation despite its critical importance to Americans’ well-being and privacy,” Wyden said. “These commonsense reforms, which include jail time for CEOs that lie to the government about their cybersecurity, will set a course to beef up cybersecurity among healthcare companies across the nation and stem the tide of cyberattacks that threaten to cripple the American healthcare system.”

One Senior Place: What legal steps should be taken after dementia diagnosis? Florida Today; by Brenda Lyle; 10/1/24 After a dementia diagnosis, preparing key legal documents early helps families focus on the quality of life for their loved one. ... Dementia is a term for many progressive neurodegenerative disorders that affect memory, thinking, and behavior. Alzheimer accounts for about 60% of all dementias. As the disease advances, individuals may lose the ability to make informed decisions about their health care, finances and other important aspects of life. Legal planning is absolutely crucial for ensuring that the wishes of the person with dementia are honored and that their affairs are managed appropriately. This planning also helps reduce stress for family members and caregivers. [Click on the title's link to continue reading for basics about Durable power of attorney, Heath care surrogate, Living will, Last will and testament, and Guardianship.]

Mercy House of the Southern Tier breaks grounds for $2 million expansion to enhance end of life care WNBF News Radio; by Traci Taylor; 10/1/24Mercy House of the Southern Tier recently celebrated the groundbreaking of its highly-anticipated $2 million expansion project, marking a significant milestone in its mission to provide compassionate care for terminally ill patients and their families during life's most challenging moments. ... Linda Cerra, the Executive Director of Mercy House of the Southern Tier, expressed gratitude towards their hospice partner, Guthrie Hospice of Vestal, along with the Guthrie and UHS Palliative Care teams, Broome Oncology, BGH PCU, and Endwell Family Physicians. Their unwavering support ensures that residents receive the utmost compassionate end-of-life care, embodying the core values of Mercy House.

Palliative care in kidney cancer more than just relieving symptoms Cure; by Ashley Chan; 9/26/24 Patients with kidney cancer who want more support during treatment can consider palliative care, whether it’s for symptoms or discussing goals and values. ... For patients with kidney cancer, understanding how palliative care can help is essential throughout the treatment process. Palliative care, according to the Mayo Clinic, is medical care that specializes in relieving pain and symptoms associated with an illness. This type of care can also help patients cope with treatment-related side effects. However, there’s more to palliative care than just relieving symptoms. It also “aims to help patients and families in one of three major categories,” Dr. Pallavi Kumar explained during an interview with CURE®. Kumar is the director of Oncology Palliative Care and assistant professor of Clinical Medicine in the hematology-oncology division at the University of Pennsylvania. She noted that the three categories of palliative care include:

October is a beautiful reminder that change can be stunning and wonderful.

[Florida] 12,200 miles of roads cleared as thousands contribute to recovery efforts after Hurricane Helene CBS-10 Tampa Bay, FL; by Haley Williams; 9/28/24 As damage assessments continued after Hurricane Helene slammed the Florida coast, thousands of state officials and law enforcement officers quickly began working to clear roads and check in with storm victims in rural areas. More than 12,000 miles of roads have been cleared by more than 800 Florida Department of Transportation crews. ... The Agency for Health Care Administration reports more than a hundred healthcare facilities have been evacuated or are running solely on generator power. Saturday morning, 55 healthcare facilities reported evacuations, which included:

How 300 terminally ill couples had their ‘perfect’ weddings thanks to this nonprofit (Exclusive) People Magazine; by Johnny Dodd; 9/28/24 "We're in the business of hope," says Wish Upon a Wedding's executive director, Lacey Wicksall. On any given day, Lacey Wicksall can be found fielding phone calls from couples across the nation who are deeply in love but are running out of time. And that’s exactly why Wicksall is talking to them. As the executive director with the Chicago-based nonprofit Wish Upon a Wedding, the 43-year-old mother of two helps provide free weddings and vow renewals to couples who are facing a terminal illness or a life-altering health circumstance. “I just got off the phone with a couple a few hours ago and I still have tears in my eyes,” says Wicksall of a recent phone call, vetting a couple who were in the process of applying for one of the nonprofit’s weddings. “We were all in tears. It’s hard.” ... Since 2009, the organization has provided nearly 300 ceremonies by working with wedding industry professionals who donate everything from catered food and wedding attire to a venue, videographers and DJs. ... Before being selected for an interview by Wicksall and “wish coordinator” Megan Biehl, they verify the applicant’s health status through their physician or hospice worker, then go to work learning more about the couple and what they envision for their special day. ...