Literature Review
Ridgewood author's book explores the mishaps and inspiration in caring for Mom full-time
05/13/24 at 03:00 AMRidgewood author's book explores the mishaps and inspiration in caring for Mom full-time Daily Record; by Marsha A. Stoltz; 5/10/24 How do you cope when the mother and child roles get reversed? In his book, "A Cup of Tea on the Commode," Ridgewood native Mark Porro recounts his 3½ years of caring for his 89-year-old mother, Genevieve, ... Porro was the least likely of Genevieve's six children to assume charge of her care ... "[A] sense of humor is necessary, no matter how dark," he said. Hence the book's title, a reference to serving his mother a cup of tea "to make Mom's adventures on the commode a tad more pleasant." ...
Event raises $47,000 for Tillery Compassionate Care
05/13/24 at 03:00 AMEvent raises $47,000 for Tillery Compassionate Care
Planning ahead: How Medicare services at home differ from at-home Medicaid
05/13/24 at 03:00 AMPlanning ahead: How Medicare services at home differ from at-home Medicaid The Mercury; by Janet Colliton; 5/10/24 When asked how they would like to receive long-term care services many consumers, probably most, indicate they would like to receive them at home. Expectations for extensive help at home with government support often exceed what is available and this, considering shortages in available health care workers and limited funding is likely to continue. However, knowing the differences between what is offered under Medicare versus Medicaid is extremely helpful. ... [Click on the title's link for practical, user-friendly descriptions of Medicare versus Medicaid at home, for short term rehab, hospice, and more.]
WSNA files unfair labor practice charge against PeaceHealth Southwest after 14 bargaining sessions
05/13/24 at 03:00 AMWSNA files unfair labor practice charge against PeaceHealth Southwest after 14 bargaining sessions WSNA - Washington State Nurses Association; 5/9/24 After 14 negotiation sessions for a new contract, WSNA filed unfair labor practice charges against PeaceHealth Southwest Medical Center on behalf of the 1,465 nurses the association represents at the facility. Nearly four months after bargaining began, the parties remain far apart on core contract issues like wages, sick leave benefits, and workplace violence prevention. Their previous contract expired on Feb. 28, 2024. ... One of the key issues over which PeaceHealth Southwest has refused to compromise is pay equity for home health and hospice nurses in the bargaining unit. ... PeaceHealth’s proposal would put home health and hospice nurses up to 5% behind their coworkers working at the hospital.
Can virtual reality help ease the end of life?
05/13/24 at 03:00 AMCan virtual reality help ease the end of life? MDLinx; Originally published on Université de Montréal News; 5/10/24 A sunny beach under an azure sky in Mexico, a bustling market in Reykjavik, a sparkling lake in Quebec’s Laurentians, a string quartet playing Bach… What if we could offer individuals in palliative care a whole range of peaceful, familiar or exhilarating experiences that they could enjoy from the comfort of their chair? What if such experiences could not only allow them to travel, discover, explore and relax, but also decrease their anxiety and physical pain? Neuropsychologist Jhon Alexander Moreno, a professor in Université de Montréal’s Department of Psychology and a researcher at the Montreal University Institute of Geriatrics Research Centre, decided to take up the challenge.
At age 99, Jimmy Carter is still exercising his right to vote
05/13/24 at 03:00 AMAt age 99, Jimmy Carter is still exercising his right to vote Story by CNN and Atlanta News First; 5/10/24 Former President Jimmy Carter, age 99, is still exercising his right to vote. Carter’s grandson, Jason Carter, said the nation’s 39th president cast a mail-in ballot this week for the May 21 Georgia primary, emphasizing his grandfather is not going to miss an election. The former president entered hospice care more than a year ago in his hometown of Plains, Georgia. Since then he celebrated his 99th birthday last October and attended the annual Peanut Festival, which celebrates the region’s cash crop. He also mourned the loss of his wife, Rosalynn Carter, who died in November at the age of 96. To date, that has been Jimmy Carter’s last public appearance.
Impact of implementing serious illness conversations across a comprehensive cancer center using an interdisciplinary approach
05/13/24 at 03:00 AMImpact of implementing serious illness conversations across a comprehensive cancer center using an interdisciplinary approach The American Journal of Hospice & Palliative Care; by Karen Guo, Garrett Wasp, Maxwell Vergo, Matthew Wilson, Megan M Holthoff, Madge E Buus-Frank, James J Perry, Amelia M Cullinan; 5/10/24Objectives: (1) Increase Serious Illness Conversation (SIC) use across oncology teams via an interdisciplinary quality improvement (QI) approach and (2) assess patient reported shared decision making (SDM) experiences with clinicians engaged in SIC implementation.Results: Oncology teams screened a total of 538 patients, identified 278 eligible patients, and completed 144 SIC conversations. The teams improved the proportion of documented SIC among eligible patients from near 0% to a collective frequency of 52%.
Racial disparities in hospitalization outcomes among women with metastatic breast cancer in the United States by palliative care utilization
05/13/24 at 03:00 AM60 racial disparities in hospitalization outcomes among women With metastatic breast cancer in the United States by palliative care utilizationCancer Network; by Debu Tripathy, MD; 5/10/24 Background: While studies have reported that members of racial and minority populations hospitalized with metastatic breast cancer (MBC) have lower palliative care use than non-Hispanic White women, disparities in hospital-associated outcomes among inpatients have not been explored in this population. We examined the racial disparities in hospitalization outcomes among adult women with a diagnosis of MBC, stratified by receipt of palliative care. Conclusions: Despite the improvement in palliative care use over the years, members of racial minority populations continue to have poorer outcomes. However, patients who are Black with MBC who received palliative care had similar in-hospital mortality and were less likely to be discharged to a facility when compared with their White counterparts.
Utah man angry: "Why am I still alive?"
05/13/24 at 02:45 AMUtah man angry: "Why am I still alive?" Cat Country 107.3/94.9; by Andy Griffin; 5/10/24 George Ball (not his real name) is angry. He's dying soon, he knows that. But what he's really mad about is that he's still alive. "I signed the paper. I made the request," he said. "So, why am I still alive?" ... The 72-year-old Utahn recently had a heart attack (cardiac arrest), and was essentially dead for a few minutes before being resuscitated at a Utah hospital. Life-saving measures were taken, including shooting adrenaline into his heart. He was gone, but they brought him back. Happy ending, right? The only problem was, Ball had signed and certified a DNR -- a do not resuscitate order -- so that if he, well, died, heroic measures would not be taken to bring him back to life. ...
Volunteering in hospice helps Macalester students contemplate death's mysteries up close
05/13/24 at 02:30 AMVolunteering in hospice helps Macalester students contemplate death's mysteries up close MSN - Minneapolis Star Tribune; by Katy Read; 5/10/24 "You think it will never happen to you, that it cannot happen to you, that you are the only person in the world to whom none of these things will ever happen," author Paul Auster wrote about humans' difficulty confronting our own mortality. ... Auster himself died last month at age 77. ... How can humans fully grasp the inevitability of our own death? It's a tough question to answer, maybe close to impossible. Three Macalester College students who just finished a course called the Anthropology of Death and Dying don't have the answer. Their professor, who has spent much of his career studying death as an anthropologist and a former hospice nurse, doesn't have an answer. A hospice nurse doesn't have the answer. And a hospice patient with lung cancer doesn't have the answer, even knowing he soon will confront its reality firsthand.
LifeBio announces partnership with New York State Office for the Aging to capture the legacies of hospice patients
05/13/24 at 02:00 AMLifeBio announces partnership with New York State Office for the Aging to capture the legacies of hospice patientsKFOL/KJUN HTV10; 5/9/24 LifeBio has launched a partnership the New York State Office for the Aging (NYSOFA) and the Association on Aging in NYS (AANYS) to rollout an innovative life story project to people in hospice care. This is the first initiative of its kind in the U.S. to be supported with funding from a state-level unit on aging. Using the LifeBio Memory app to record the voices of New Yorkers, each participating hospice patient will receive back a Life Story Book containing stories, memories and favorite photos to share with loved ones. Audio files will be saved privately and securely. LifeBio will also offer the option of journals for handwriting the stories.
A Mother’s Story: Grieving a child on Mother’s Day
05/13/24 at 02:00 AMA Mother’s Story: Grieving a child on Mother’s Day KEYT3, Santa Barbara, CA; by Patricia Martellotti; 5/10/24For many, Mother’s Day can be a bittersweet reminder for mothers who have lost a child. Rosy Bucio lost her daughter, Nina, age five from a rare childhood cancer. ... Bucio offers ideas to help those who are grieving cope on Mother’s Day. Find out how Hospice of Santa Barbara also helped Bucio through the grieving process on News Channel 3.
What nurses really need is better staffing: The common strategies to raise nurse morale need an update
05/13/24 at 02:00 AMWhat nurses really need is better staffing: The common strategies to raise nurse morale need an updatePenn LDI - Leonard Davis Institute of Health Economics; by Karen Lasater, PhD, RN, and Jane Muir, PhD, APRN; 5/10/24Pizza. Coloring books. Goody bags. They could be activities at a 5-year-old’s birthday party. But they’re not: These are many employers’ attempts to lift the morale of nurses on the frontlines of chronically understaffed organizations. What nurses really want are better working conditions so they can deliver the best care possible to their patients. As researchers at the University of Pennsylvania School of Nursing, we asked thousands of nurses why they are leaving their profession. Their answers are straightforward — short staffing is so rampant that the public’s health care is at risk. The playbook of corporate health care asks nurses to do much with little, but nurses aren’t willing to skimp on quality and safety. There isn’t a nursing shortage — it’s nurses’ refusal to be part of a system that puts profits before safety.
He thinks his wife died in an understaffed hospital. Now he’s trying to change the industry.
05/12/24 at 03:50 AMHe thinks his wife died in an understaffed hospital. Now he’s trying to change the industry.Fortune; by KFF Health News and Kate Wells; 4/19/24For the past year, police Detective Tim Lillard has spent most of his waking hours unofficially investigating his wife’s death. The question has never been exactly how Ann Picha-Lillard died on Nov. 19, 2022: She succumbed to respiratory failure after an infection put too much strain on her weakened lungs. She was 65. For Tim Lillard, the question has been why.Publisher's Note: We often discuss workforce shortages in terms of staff stress. This interesting and heartbreaking story explores workforce shortages in terms of patient harm.
Chutes and Ladders
05/12/24 at 03:45 AMChutes and Ladders Fierce Healthcare; by Noah Tong; 5/3/24 Welcome to this week's Chutes & Ladders, our roundup of hirings, firings and retirings throughout the industry. [Click on the title's link for this extensive list.]
Chesapeake Life Center offers monthly LGBTQIA+ drop-in grief support group
05/12/24 at 03:40 AMChesapeake Life Center offers monthly LGBTQIA+ drop-in grief support group Southern Maryland News Net; 5/6/24 Chesapeake Life Center will host a monthly drop-in grief support group for members of the LGBTQIA+ community. ... Grief is a hard and vulnerable time, and it is important to have safe spaces to process what we are going through. This group is intended for adult members of the LGBTQIA+ community who are grieving a past or approaching death. The group will be facilitated by a licensed queer therapist but will be loosely structured to offer an opportunity for participants to share their feelings and grieve with community.Editor's Note: Hospice & Palliative Care Today does not post upcoming, local hospice events, grief support groups, volunteer trainings, etc. However, we're posting this LGBTQIA+ grief support ("past or approaching death") due to its profound need and support, with opportunities for replication by other hospices. Pair this support with the article we posted on 4/21/24: LGBTQ+ individuals have higher rates of cancer because of disparities in modifiable risk factors, ACS says.
Shocked at end-of-life: An educational video for hospice workers about Implantable Cardioverter-Defibrillators
05/12/24 at 03:35 AMShocked at end-of-life: An educational video for hospice workers about Implantable Cardioverter-Defibrillators Journal of Pain and Symptom Management; by Sarah Godfrey, MD, MPH; Christine L. Chen, MD; Melanie S. Sulistio, MD; Sharika Kumar, MD; and Kelley Newcomer, MD; 2/24 Introduction: Hundreds of thousands of patients with implantable cardioverter-defibrillators (ICDs) die yearly. Though ICD shocks can be lifesaving, they can also be severely painful. One third of ICD patients are shocked in the last day of life irrespective of DNR status. Over 97% of hospice programs admit patients with ICDs, yet only 10% have deactivation policies and less than 50% of hospice patients have their ICD deactivated. ... Conclusion: Hospice personnel have limited knowledge about ICDs, prohibiting best care of patients with these devices at EOL. A short educational video increased knowledge and may serve as a helpful tool. Improving ICD knowledge amongst hospice personnel is essential to ensuring the unique needs of hospice patients with ICDs are met.
Patients, caregivers more willing to spend extra for home-based care, study finds
05/12/24 at 03:30 AMPatients, caregivers more willing to spend extra for home-based care, study finds McKnights Home Care; by Adam Healy; 4/30/24 [According to a new study published in JAMA Network Open:] ... On average, respondents were willing to spend an extra $51.81 for care that takes place in the home, compared to facility-based care such such as that in a skilled nursing facility. They were also more willing to pay more for care that can reduce their recovery time or reduce caregivers’ burden. Caregivers, meanwhile, also prioritized higher-quality care, even if it came with a heftier price tag.
The power of art in palliative care
05/12/24 at 03:25 AMThe power of art in palliative care InSight+, Melbourne, Australia; by Caitlin Wright; 5/6/24 ... Melbourne artist Jeffrey Kelson is known for his thought-provoking portraits, several of which have been exhibited at the Melbourne Holocaust Museum. He believes a portrait is a window into a subject’s heart and mind. However, after being diagnosed with late-stage pancreatic cancer, it wasn’t this style of art that Mr. Kelson was drawn to. As soon as he felt well enough to return to his studio, he started work on a series of colourful collages. “At one point, my wife came into the room and commented on how bright they were and how full of life force. She was surprised that I could create pieces that were so energetic when I felt so ill. I hadn’t really thought about it. I just needed to work,” he told InSight+. ... Palliative care specialist Dr Eric Fairbank was one of Mr Kelson’s art students for several years before Mr. Kelson’s diagnosis. He said Mr Kelson’s approach to his diagnosis has confirmed his belief that the best outcomes of cancer treatment are achieved when they’re complemented by the patient’s own resources of mind, will and spirit. [Click on the title's link to view several of his paintings.]
Updated guidance on workplace harassment covers misgendering pronouns, bias over bathroom use, more
05/12/24 at 03:20 AMUpdated guidance on workplace harassment covers misgendering pronouns, bias over bathroom use, more McKnights Senior Living; by Kathleen Steele Gaivin; 5/2/24 Final guidance published last week by the Equal Opportunity Employment Commission aims to clarify for employers, employees and others their obligations related to harassment in the workplace. ... This is the first update to the guidance in 25 years, aimed at enforcing more recent changes in federal law. EEOC clarified that harassment by any person — including employers, coworkers, customers and clients — can violate federal law. ... According to the EEOC, the new guidance “updates, consolidates and replaces the agency’s five guidance documents issued between 1987 and 1999 and serves as a single, unified agency resource on EEOC-enforced workplace harassment law.” Among other guidance, the EEOC calls out asking intrusive questions about a person’s sexual orientation, gender identity, gender transition or intimate body parts as forms of harassment.
Elara Caring, cited in death of visiting nurse Joyce Grayson, vows to contest violation
05/12/24 at 03:15 AMElara Caring, cited in death of visiting nurse Joyce Grayson, vows to contest violation McKnights Home Care; by Adam Healy; 5/3/24 The Department of Labor’s Occupational Safety and Health Administration (OSHA) has cited home health, hospice and personal care provider Elara Caring for failing to provide adequate safeguards to protect visiting nurse Joyce Grayson from workplace violence. Grayson, a licensed practical nurse, was killed last Oct. 28 while providing a home health visit for a client living in a halfway house in Willimantic, CT. The DOL disclosed this week that its OSHA division cited New England Home Care, where Grayson worked, and Jordan Health Care Inc., which both do business as Elara Caring, with a “Willful-Serious” citation. Elara Caring faces up to $163,627 in penalties resulting from the citation. ...
[Australia] Palliative patients can die peacefully at home with paramedic support, claims proposed framework
05/12/24 at 03:10 AM[Australia] Palliative patients can die peacefully at home with paramedic support, claims proposed frameworkRiotack - Australia; by James Day; 5/6/24A proposed national framework suggests paramedics could help ease pressure on emergency departments by supporting palliative care patients who wish to die at home. Published in the leading international peer reviewed journal Palliative Medicine, the framework seeks to embed palliative care into paramedics’ core business and reduce needless transports to hospital. ... Lead author and trained paramedic Dr. Madeleine Juhrmann developed the framework in consultation with paramedics, palliative care doctors, GPs, carers with lived experience and others. The expert group – representing six countries and all the states of Australia – agreed on the framework’s 32 service changes to standardise best practice for paramedics delivering palliative care in community-based settings.Editor's Note: Pair this solution with related articles in today's newsletter, "Stranded in the ER, seniors await hospital care and suffer avoidable harm" and "How Mass General Brigham provides emergency care at home" (both are in our "Post-Acute" section).
Maddy Baloy had only 1 year to live after cancer diagnosis — and chose joy: 'Didn’t let anything defy her’
05/12/24 at 03:05 AMMaddy Baloy had only 1 year to live after cancer diagnosis — and chose joy: 'Didn’t let anything defy her’ People; by Lizzie Hyman; 5/8/24 Even surrounded by loved ones in hospice care at her Florida home, Maddy Baloy craved adventure. “She kept saying, ‘I want to go outside and go swimming,’ ” her fiancé Louis Risher tells PEOPLE in this week’s issue. It was how Baloy had approached each day from the time she was diagnosed with terminal cancer in February 2023, to the end of her life on May 2, 2024. In just over one year, the 26 year old gained the admiration and support of millions who followed her journey on TikTok as she worked her way through a 19-item bucket list of skills to learn, people to meet and places to go. “Maddy did not let anything defy her,” Risher, 27, says. “She was always just about love.”
TCN News Stories of the Month, April 2024
05/12/24 at 03:00 AMTCN News Stories of the Month, April 2024TCN Talks; by Chris Comeaux and Mark Cohen; 5/1/24In this podcast Chris and Mark discuss our newsletter's top news stories for the month of April as reported in Hospice and Palliative Care Today. You can subscribe for free here: https://www.hospicepalliativecaretoday.com/registration.