Literature Review

Always Politically Correct: Supporting Seriously Ill Older Populations and Their FamiliesJournal of Social Work in End-of-Life & Palliative Care; M. Courtney Hughes, Erin Vernon; 8/24We have been researching outcomes related to seriously ill individuals for over a decade, critically examining countless research articles from around the world, and extensively interviewing various stakeholders in this space, including hospital leaders, hospice leaders, lobbyists, nurses, social workers, and informal caregivers... In a world with so many dividing issues, increasing support for these vulnerable groups needing more attention should stand above the fray and become something that all leaders of any political party should support.Publisher's note: Thank you Courtney and Erin, well said.

Saturday newsletters focus on headlines and research - enjoy!

Blue Ridge Hospice eyes N. Va. expansion, breaks into preventative care Washington Business Journal; by Sara Gilgor; 11/27/24 Winchester nonprofit Blue Ridge Hospice is heading into 2025 with plans to accelerate its regional expansion - by broadening its services, beefing up its headcount, teaming up with other local health systems and employers, and penetrating new pockets within Northern Virginia. The organization has provided hospice and palliative care in Virginia for patients with terminal illnesses from cancer to dementia for 43 years, only recently breaking into Greater Washington via Loudoun County. But now, increasing demand in the market and challenges within the larger health care landscape have led the business to rethink both its own structure and how it delivers care to the elderly patients it serves, often not until the ends of their lives. That's why the parent organization is rebranding as Blue Ridge Care. Its patients often regret not seeking its help earlier, President and CEO Jason Parsons told me in an interview, so it's repositioning itself to care for patients well before they would ever need hospice. ... Blue Ridge, now with nearly 400 employees, is looking to add another 50 to 60 people - including doctors and nurses - to its headcount in 2025, Parsons told me. And it plans to invest between $3 million and $5 million into next year's expansion, after putting in $10 million over the last two years, he said.

Liberty Hospice provides Thanksgiving for 7 families Lake Gaston Gazette-Observer, Gaston, NC; by Mark Mathews; 11/27/24 Liberty Hospice volunteers recently traveled to the Pleasant Hill Christian Church kitchen in Gasburg to prepare Thanksgiving meals for seven families. “The families were selected as those who would benefit the most by our wonderful Liberty Hospice Health Care team,” Liberty Hospice Regional Volunteer Coordinator Esther Harris said. “As it turned out, two of the families preferred to have us bring all the fixings to them and they were going to the cooking themselves for Thanksgiving.” ...  Harris approached DrugCo Discount Pharmacy Chief Financial Officer Neal White about helping her group with the Thanksgiving meals. She received a better-than-expected response. “I was looking for help to buy some turkey and maybe some ham,” Harris said. “Mr. White asked me how much I thought it would cost to do the entire meal for each of the seven families. I gave him a number and they donated the entire amount. So we thank DrugCo who is just a wonderful community partner.”

Nurse diagnosed with blood cancer fulfills dying wish to see new ‘Wicked’ movie Fox 13 Tampa Bay, FL: by Jennifer Kveglis; 11/26/24 A Tampa Bay area nurse who was diagnosed with blood cancer had one dying wish – to see the new movie "Wicked" in theaters. With the help of friends and family, that wish was fulfilled on Monday. Misty Steffen is a wife and mother, and she was also HCA Florida South Shore's chief of nursing. "I've loved every day of my life being a nurse," she said. "Twenty-six years that I got to be one and serve and love and decrease anxiety and increase trust and explain." ... [Description of her serious illness trajectory ...] "It's not what I thought would be the end of my story, but I'm at peace knowing whether I live or whether I die," she said. Steffen said she, her daughter and her husband always sang songs from "Wicked" in the car. Together, they've seen the musical on Broadway twice. Her last wish was to see the new movie in theaters. "The next thing I know he's [her husband] rented out the whole room in the theater," she said. HCA Florida Brandon paramedics, where Steffen worked too, as the assistant chief of nursing, transported her in their ambulance at no charge. "He's like we've got people who are going to come take you in an ambulance to ‘Wicked,’" she said. "I just started balling and I go...'what? Why am I so deserving of that?'" Steffen will spend the coming days surrounded by loved ones, many of whom flew in from all over the country. Editor's note: While this story appears to be focused on the movie "Wicked," it's more about relationships, meaning-making, quality of life, and ... her husband rented out the "whole room in the theater"! If you--like I--enjoy this movie weekend, Misty Steffen's story gives a new meaning to giving thanks, creating new memories from old for now and ahead. From Part 2 of Wicked, "... because I knew you, I have been changed for good."

TCN Podcast: Industry Trends Teleios Collaborative Network (TCN); podcast hosted by Chris Comeaux, with Maria Warren; 11/27/24Join us for an insightful conversation with Maria Warren, Vice President of McBee, part of NetSmart, as she demystifies the challenges of hospice care audits. Maria shares her journey from entry-level consultant to a leader in compliance, highlighting how audits, designed to combat fraud, can unintentionally burden resources and detract from patient care. Her thoughtful perspective sheds light on balancing regulatory demands with compassionate care. We also dive into the transformative role of technology in hospice care with insights from Betsy Hansen. Discover how electronic medical records (EMRs) go beyond digital documentation to improve patient outcomes and streamline operations. Learn about the potential of EMRs to enhance compliance and care quality while tackling the challenges of implementing innovative, user-friendly systems. This segment emphasizes the importance of creativity and high standards in overcoming staffing hurdles and fostering a supportive care environment.

Hospice staff packs Thanksgiving meals for families Coosa Valley News, Rome, GA; by Staff; 11/27/24 It was a labor of love on Wednesday morning as teammates, volunteers and family members gathered again to provide Thanksgiving meals for families served by Atrium Health Floyd Medical Center Heyman Hospice Care. The meals, made or donated by Hospice teammates, volunteers and family members, included turkey, ham, dressing, mashed potatoes, macaroni and cheese, green beans, sweet potatoes, potato salad and corn. A variety of pies and cakes were baked for dessert. Nearly 150 meals were packed up and delivered personally to the families. Melissa Washington, a social worker with Hospice, once again served as the onsite director as the food boxes were assembled and sent out. She and others were also there late Tuesday night getting things ready. “We can do this!” exclaimed Washington as she encouraged the workers lined up behind tables as the assembly line began its work. Casey Blankenship, program director for Heyman Hospice Care, said the annual event started in the 1990s. 

From grief to giving: Volunteer Jules Sebek finds her way to Hospice of the Western Reserve The News-Herald, Ohio; by Jean Bonchak; 11/28/24 After retiring from a lengthy and successful career at a local company, Jules Sebek was inspired by her past positive experiences with Hospice of the Western Reserve to pursue a volunteer position with the agency. ... “I truly get more than I give,” she said. Sebek’s introduction to hospice came about when the agency supported her parents during their end-of-life journeys and also provided care for her husband, who died eight years ago. ... A year after his death, Sebek joined hospice volunteers as a receptionist and found the experience helpful in terms of becoming familiar with the staff and other aspects of the agency. Throughout the years, she has supported a wide range of situations and finds working with married couples particularly relatable because of her own experiences. ... “I can say ‘I know what you’re going through. I’ve been there,’” she said. “If there’s a wedding picture I’ll look at the spouse and ask them to tell me their love story. Their eyes light up.” ... “I’m constantly inspired,” she said. ... Over time she has come to realize that her work with hospice holds significant importance in her life. “I can’t not do it. It’s a calling,” she said.

Aged care nursing in the digital future Atlassian Jira, Australia; by Flinders University; 11/27/24 The results call for nurses to be included when digital innovations are in development, so they can actively shape their implementation and ensure high-quality, compassionate care for residents in their final stages of life. "In Australia and around the world, we have seen a significant increase in digital technologies in the health care sector," says study lead author Dr. Priyanka Vandersman, a Senior Research Fellow at Flinders University's Research Center for Palliative Care, Death and Dying (RePaDD).  "In aged care, these digital approaches can include helping with care planning and assisting with managing medication, but we need to ensure that nurses are equipped with the digital skills needed to use these tools effectively, while continuing to provide high quality, person-centered care."

No One Dies Alone: new Parker hospital program offers companionship to those at the end of life Parker Chronicle; by Haley Lena; 11/27/24 Katherine Wiley, a volunteer at AdventHealth Parker, was in the hospital’s emergency department when she saw first-hand how being alongside a stranger during their final moments of life can have a profound impact on those around them. Wiley sat with an elderly woman who was dying with no one around. The patient’s sons were trying to get to the hospital from Colorado Springs but didn’t make it in time. “When they got there, I told them that I had been with their mom so she was not alone and they were very grateful,” said Wiley. Wiley shared this story with the CEO of the hospital, Michael Goebel, at the annual volunteer luncheon last year, and the following week, the No One Dies Alone program was being set up. “We can provide companionship to patients in the dying process who are truly alone,” said Wiley. “In doing so, (it) provides a gift of respect and dignity to another human being at the end of life.” The volunteers of the program are called “compassionate companions.” They do not provide medical care, but they assist with comfort care measures – they sit beside the patient, hold their hands, play soothing music or read to the patients. For as many circumstances there are that lead a person to be hospitalized, there are also as many reasons why a patient is alone. The patient could have outlived other family members and friends, said Wiley, or are estranged from their family. It could be because the patients themselves don’t want to have their family see them die, but don’t want to be alone. Or they could be a John/Jane Doe who was in an accident. “We want to be there for them, whatever those reasons are,” said Wiley. “This sort of thing feeds my soul.”

How beautifully leaves grow old. How full of light and color are their last days. ~ John Burroughs

You treat a disease, you win, you lose. You treat a person, I guarantee you, you'll win, no matter what the outcome. ~ Patch Adams