Literature Review

Make it a September to remember. ~ Unknown

Alliance submits comments in response to CY 2026 Home Health Proposed Rule National Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 8/29/25 As the federal comment period draws to a close, the National Alliance for Care at Home (the Alliance) has joined an unprecedented number of providers and patients in submitting formal feedback to the Centers for Medicare & Medicaid Services (CMS) on the agency’s proposed 9% cut to the home health payment rate for 2026. The unusually high volume of responses collected throughout the comment window underscores broad concern that the $1 billion payment reduction will limit access to care at home, compromise patient safety, and burden the wider healthcare system.  

Awards and Recognitions: August 2025

COUNTDOWN: 29 Days Until HOPE Tool Starts, October 1, 2025

Labor Day stands for America's greatest resource--not its minerals, its timber or its farmland, but its people. ~ Gerald Ford

Whatever you want to do, if you want to be great at it, you have to be able to make sacrifices for it. ~ Maya Angelou

The miracle is not that we do this work, but that we are happy to do it. ~ Mother Teresa

The more I want to get something done, the less I call it work. ~ Richard Bach

You can’t do a good job if your job is all you do. ~ Katie Thurmes

Never get so busy making a living that you forget to make a life. ~ Dolly Parton

Letter: A strategic path forward for hospice and palliative care must focus on equity: A response to ByockPalliative Medicine Reports; by Karen Bullock, Ramona L. Rhodes, Marisette Hansan, Kimberly S. Johnson; 8/21/25In a letter to the editor critiquing Ira Byock’s recent white paper, the authors say: “one of the most urgent uncomfortable truths is briefly and incompletely acknowledged in the article. That is, not only do historically marginalized communities face unequal access to the benefits and progress of our field; they endure a disproportionate share of practices that lead to poor quality care, including many of the challenges that Byock highlights.” While applauding the article’s call to action, they caution that:

Hospice was meant to offer dignity in death - but it fails the most marginalized. We need hospice programs that go to the streets, into shelters, behind barsSTAT; by Christopher M. Smith; 8/26/25I’ve spent more than a decade in hospice care, sitting at the bedsides of people facing the final days of their lives. I’ve held hands in hospital rooms, in tents, in prison cells, and in homes that barely qualify as such. And over time, I’ve come to see that dying in America is not just a medical event - it’s a mirror. It reflects everything we’ve failed to do for the living. Hospice was created to bring dignity to the dying - to manage pain, provide emotional and spiritual support, and ease the final passage for people with terminal illness. But the systems surrounding hospice care are riddled with inequity. The very people most in need of compassion - the unhoused, the incarcerated, people of color, LGBTQ+ individuals, and people with disabilities - are systematically excluded, underserved, or erased. Access to a good death is too often reserved for the privileged, while everyone else is left to navigate a system that wasn’t built for them - or worse, actively works against them... The truth is, hospice care cannot achieve its mission unless it actively addresses the inequities built into the structures around it. We need hospice programs that go to the streets, into shelters, behind bars. We need training rooted in cultural humility, in antiracism, in trauma-informed care. We need to reimagine what it means to offer dignity to someone whose life has been defined by abandonment. That work won’t come from quarterly board meetings or compliance audits. It will come from listening - really listening - to those most affected. It will come from rethinking how we define “home,” “caregiver,” and “worthy.” It will come from a shift in focus: from profits to people, from efficiency to empathy, from “standard of care” to standard of justice... Because dying is universal. But justice, even at the end of life, is still not.Publisher's note: STAT also references Dr. Ira Byock's article "The hospice industry needs major reforms. It should start with apologies, 8/22/23".