Literature Review

Would you go to a local Death Cafe? It's a chance to eat cake and talk end-of-life issues Times Telegram, Utica, NY; by Amy Neff Roth; 8/12/25 Key Points:

State Medicaid coverage policies for community-based palliative care: Lessons from NASHP’s State Institute National Academy for State Health Policy; by Ella Taggart, Wendy Fox-Grage; 8/11/25 Six states recently participated in NASHP’s two-year State Policy Institute to Improve Care for People with Serious Illness (the Institute): Colorado, Maine, Maryland, Ohio, Texas, and Washington. ... Specifically, the six participating states received guidance on policy mechanisms to cover palliative care services in the community and completed cost analysis on palliative care services for Medicaid beneficiaries. While all the states balanced the same forces and demands, ... each state modeled a benefit that was responsive to its particular needs and circumstances. ... CBIZ Optumas and TFA Analytics then designed a cost calculator for each state to help with different scenarios. 

This test tells you more about your heart attack risk KFF Health News; by Paula Span; 8/1/25 A long list of Lynda Hollander’s paternal relatives had heart disease, and several had undergone major surgeries. ... A cardiologist told Hollander that based on factors like age, sex, cholesterol, and blood pressure, she faced a moderate risk of a major cardiac event, like a heart attack, within the next 10 years. ... Her doctor explained that a coronary artery calcium test, ... could provide a more precise estimate of her risk of atherosclerotic heart disease. “The test is used by more people every year,” said Michael Blaha, co-director of the preventive cardiology program at Johns Hopkins University. Calcium scans quadrupled from 2006 to 2017, his research team reported, and Google searches for related terms have risen even more sharply. Yet “it’s still being underused compared to its value,” he said. One reason is that although the test is comparatively inexpensive ...Editor's Note: Good news. This test predicts and protects heart health, potentially providing extra years of good (or at least better) quality of life. Bad news. It is "being underused compared to its value," partly because "the test is comparatively inexpensive"? Bad news. What does the low-cost factor say ethics, choices, and quality of life? Good news. Because of my family's cardiac history, my physician recently recommended I take this test. I did, and received great results! I move into the future with greater confidence, less fear, and more gratitude for the some 100,00 heartbeats we each experience, each day.

2 factors fueling disparities in home-based deaths Hospice News; by Holly Vossel; 8/11/25 Having a limited understanding about end-of-life care options can hinder patients’ ability to die in the home, recent research has found. This trend is fueling disparities in home-based hospice care. Access to respite care more than doubles the odds of patients having a home death, a recent study found, which was published in the BMC Palliative Care journal. ... Additional significant factors included timely access to community-based nursing services, home health and hospice, as well as the integration of a palliative care approach, the study found.

My wife of 52 years just died. My grief is so overwhelming, I can barely cope. HuffPost; by Ronald Paxton; 8/11/25 ... March 1, 2022, was the day our lives changed forever. ...  My spouse, my wife of 52 years, my high school sweetheart was going to die, and there was nothing I or anyone else could do about it. ... The house is quiet now. I’m trying to move forward, but it’s hard. I thought we would grow old together. We did, but not nearly old enough. Diane’s death has taught me that no matter how much we love someone, we all have our own lives to live. The best way for me to honor the life Diane and I had together is to live the rest of my life the best way I know how. It’s late. I should try to sleep, but I think I’ll turn on the television. I need something to cover the sound of crying.

Communication and end-of-life care in dementia: insights from a close family member working in healthcare British Journal of Community Nursing; by Jennifer M Hadley; 7/31/25 There is very little documented evidence on the experiences of healthcare professionals caring for their own family outside of their role. This article explores the differences in the care received as the author shares her perspectives of caring for her mother, who was diagnosed with dementia. The author reflects on the care received and the impact of communication, as well as the ethical limitations of caring for a member of her own family. Significant references to communication barriers already exist within the literature, relating to end-of-life conversations. The presence of a relative who has a healthcare background may further impact the communication approach of healthcare professionals.

Field notes from the end of life: My thoughts on living while dying Texarkana Gazette, Texarkana, TX; 7/26/25 As friends are quick to tell me, we are all living with dying. True enough. Especially because I'm 76, or, as my late husband, Alec, would say, "too old to die young." But it's still disturbing to get official notice of your imminent demise. ... In a series of stories, I'll be sharing my field notes as I make my way from here to there, in the hope that others might find it useful. ... When I start feeling grim about my situation, I'm finding it useful to take a "Would it help?" moment to consider whether my response can improve the situation or help me cope. 

Merging clinical and legal: How home health providers achieve medical appeals success Home Health Care News; by Joyce Famakinwa; 7/31/25 For home-based care providers, medical appeals can be extremely costly. When navigating the medical appeals process, home health clinical and legal teams must operate in lockstep in order to achieve successful results and avoid financial blowback, ... ROI should be the biggest determining factor when deciding to appeal, according to Bill Dombi, senior counsel for Arnall Golden Gregory law firm. He formerly served as the president of the National Alliance for Care at Home. ... Despite the hefty costs that medical appeals can potentially rack up, sometimes figuring out the ROI can go beyond dollars and cents. For example, if a provider is going through the Medicare Targeted Probe and Educate (TPE) audit process.

The state of pediatric concurrent hospice care in the United States American Academy of Pediatrics; by Meaghann S. Weaver, MD, PhD, MPH, HEC-CCorresponding Author; Steven M. Smith, MD; Christy Torkildson, PhD, RN, PHN; Deborah Fisher, PhD, RN, PPCNP; Betsy Hawley, MA; Alix Ware, JD, MPH; Holly Davis, MS, APRN; Conrad S. P. Williams, MD; Lisa C. Lindley, PhD, RN, FPCN, FAAN; 8/1/25 The Patient Protection and Affordable Care Act (ACA) required all state Medicaid programs to pay for both curative and hospice services for children and adolescents. The purpose of this Special Article report is to quantify and describe the use of concurrent care for children, including a depiction of the barriers and benefits according to community-based hospice organizations in the United States. A total of 295 hospice organizations from 50 states and Washington, DC responded to the National Alliance for Care at Home call for engagement.

Hear all sides and you will be enlightened. Hear one side, and you will be in the dark. Wei Zheng

‘You made my life’: VITAS caregiver scores NHL tickets for hospice patient through Wish Maker program McKnights Home Care; by Foster Stubbs; 8/8/25 When hospice nurse Natalie Villabrera-Williams came to visit her client and hockey lover, Alan Reddish, last year she noticed that he was growing a beard that would make Rip Van Winkle blush. When she asked him if he wanted to shave it off, he explained that his beard would remain unkempt as long as his beloved Florida Panthers remained in the 2025 NHL Playoffs. ... After that interaction, Villabrera-Williams, a nurse for VITAS Healthcare in Broward County, FL, saw an opportunity to bring Reddish, of Lauderhill, FL, closer to the action on the ice.  ...

Emerald Coast Hospice hosts Annual Back-to-School Drive-Thru Jackson County Times; by Shelia Mader; 8/4/25 Emerald Coast Hospice Care once again stepped up to support the community it serves, hosting its third annual back-to-school drive-thru supply event this past Friday morning. Though not held consecutively each year, the effort continues to grow in impact, reaching nearly 140 children this year with essential school supplies and a few extra treats. ... Through their ongoing efforts, Emerald Coast Hospice Care continues to be a vital presence not only in healthcare but also in the daily lives of families across the region. Editor's Note: How inspiring. Due to the philanthropic nature of our hospice work, giving to a hospice organization is an easy norm. This out-of-the-box example of a hospice supporting the community--and for children instead of senior adults--encourages us all to see needs, creatively respond. Make a difference. Thanks Emerald Coast Hospice!