Literature Review
How to prepare children for hardships and tragedies
02/09/25 at 03:30 AMHow to prepare children for hardships and tragedies The Citizen; by Dr. Victor Garlock; 2/4/25 All of us must face hardships and tragedies. How well we are able to get through difficult times is a major factor affecting the overall quality of our lives. Sometimes these challenges arrive individually, as in a sudden serious illness, an accident, or the death of a loved one. Sometimes — as in last fall’s devastating floods in North Carolina or the recent wildfires in Southern California — entire communities must find a way to move forward. ... Resilience is the capacity to recover from challenges and adversity. Tragic optimism is the determination to remain optimistic and find meaning and purpose in the face of tragedy. [With children:]
Michigan Center for Rural Health working to expand rural palliative care
02/09/25 at 03:25 AMMichigan Center for Rural Health working to expand rural palliative care Hospice News; by Jim Parker; 1/29/25Recent studies have established a dire need for palliative care in rural areas, and the state of Michigan is no stranger to this situation. To respond to the need, the Michigan Center for Rural Health (MCRH) is partnering with Stratis Health, a nonprofit consulting firm that specializes in assisting rural communities with providing palliative care services. The two organizations, which have partnered on projects related to critical care hospitals and Medicare beneficiaries, will choose five rural communities in the state with the goal of increasing their capacity to provide palliative care. In the current phase of the project, Stratis will be training MCRH staff to apply their framework for implementing palliative care programs in the target areas.
Owners of McHenry Village restaurant have partnered with nonprofit [hospice] to open Modesto cafe
02/09/25 at 03:20 AMOwners of McHenry Village restaurant have partnered with nonprofit [hospice] to open Modesto cafe The Modesto Bee, Modesto, CA; by Dominique Williams; 2/3/25 ... Cafe Verona opened to the public Monday inside Community Hospice & Health Services, a Modesto nonprofit. It is operated by executive chef Jaime Alderete and his wife, Edwarda, owners of Verona Cucina Italiana in McHenry Village and Verona18 in Copperopolis. ... The cafe is open for breakfast and lunch. Its business hours are weekdays from 7:30 a.m. to 2 p.m.Editor's note: Click here and scroll down to view Community Hospice & Health Services' use of this partnership to host "Coffee & Conversations With Community Hospice & Health Services." Consider the ease and effective cost-management of providing hospice employees and volunteers with this accessible food service.
‘Small but significant’ keys to amplifying hospice grief support
02/09/25 at 03:15 AM‘Small but significant’ keys to amplifying hospice grief support Hospice News; by Holly Vossel; 1/29/25 Grief support service lines can be an important pathway for hospices to reach communities outside of their patient populations. ... Grieving processes are multifaceted and unique to each individual, and hospices’ bereavement models need to be conceptualized around this notion, according to Keely Rhiannon, lead grief counselor at Michigan-based Angela Hospice. ... A key to developing sustainable grief referral relationships is understanding what each organization has to offer and adapting services to fill gaps of unmet need, according to Dr. Micki Burns, CEO of Judi’s House and the Judith Ann Griese (JAG) Institute, and Lauren Ross, its director of clinical programs. Editor's note: The CMS Hospice Conditions of Participation (CoPs) require each hospice to provide bereavement/grief support to patients' families, both before the death and after. The CMS Hospice CoPs identify "bereavement" and/or "grief" 155 times. For the significance of bereavement services, visit the article we posted 1/30/25, "The iatrogenic consequences of medicalising grief: Resetting the research agenda." For grief resources designed for hospice services' serious illness-hospice-bereavement needs and branded to your hospice, visit our sponsor Composing Life Out of Loss.
Grief and bereavement books for kids and teens
02/09/25 at 03:10 AMGrief and bereavement books for kids and teens Evermore; list developed in collaboration with Dr. Donna Gaffney; 2/1/25... How can a young person grasp the enormity, meaning, and consequences of an occurrence that brought death, injury, or harm into their life? ... Because books can be such a powerful balm during a time of grief, here’s our list of favorite books for kids and teens that explore the difficult experiences of death, grief, loss, and bereavement. [Click here for the full article with book descriptions, photos, and links.]
Former NAHC Leader Dombi joins Arnall Golden Gregory LLP
02/09/25 at 03:05 AMFormer NAHC Leader Dombi joins Arnall Golden Gregory LLP Home Health Care News; by Joyce Famakinwa; 2/4/25 Bill Dombi, former president and CEO of the National Association for Home Care & Hospice, has joined law firm Arnall Golden Gregory LLP. Dombi will serve as senior counsel in the firm’s Washington, D.C. office. He has over four decades of experience spearheading major litigation and policy matters for the home health and hospice industry. ... Dombi first stepped into the role of NAHC’s vice president for law in 1987. He became NAHC’s interim president in 2017, and was named the association’s permanent president the following year. Throughout his time at NAHC, Dombi was a key player in the advancement of the home health and hospice industries. He officially retired from his role at NAHC at the end of 2024. The association also merged with the National Hospice and Palliative Care Organization, and is now known as the National Alliance for Care at Home.
Sunday newsletters
02/09/25 at 03:00 AMSunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!
Follow-up: Helene and hospice care in the western North Carolina mountains
02/09/25 at 03:00 AMFollow-up: Helene and hospice care in the western North Carolina mountains Hospice & Palliative Care Today; summary from a meeting between Vern Grindstaff (CEO, Compassionate Care Western North Carolina), Chris Comeaux and Tina Gentry (Teleios Collaborative Network), Cordt Kassner and Joy Berger (this newsletter); 1/28/25 Hospice recovery efforts from Hurricane Helene in North Carolina's mountains have been massive, with extensive long-term needs ahead. Vern Grindstaff, CEO of Compassionate Care Western North Carolina described the "new normal" they are experiencing. Photos of this hospice and its service area vividly portrayed this hospice before, soon after Helene, and in its current recovery. Key topics included unthinkable patient care challenges with creative problem-solving, financial implications amounting to a $350,000 deficit for repairs, and the trauma experienced by staff—both professionally and personally. Discussions highlighted the importance of long-term recovery strategies, including the involvement of larger trusts for sustained funding, while also recognizing community support efforts by organizations like the Cajun Navy and Samaritan's Purse. Additionally, Chris Comeaux is presenting to hospice organizations about Emergency Disaster Management, equipping leaders to learn from this tragedy. Editor's note: Click here for a map of Compassionate Care Western North Carolina's service area (CCWNC). Click here to donate to their ongoing recovery. We thank our readers for your previous support to this and other hospices affected by emergency disasters. Additional resources:
Today's Encouragement
02/09/25 at 03:00 AMYou can be mature and respectful – and still have a dirty sense of humor.You can curse a lot – and still be highly intelligent with a robust vocabulary.You can be quiet and reserved – and still be witty and even outgoing in certain circles.You can be intelligent and sharp-minded – and still forget what month it is. ~Higher Perspective
Today's Encouragement
02/08/25 at 03:55 AMMay the Force be with you. ~Star Wars (many characters)
Care for patients with a history of immigration
02/08/25 at 03:45 AMCare for patients with a history of immigrationJAMA; Margaret Wheeler, MS, MD; Juan Raul Gutierrez, MD; Alicia Fernandez, MD; 1/25Home to 20% of the world’s immigrants, the US is the leading destination for people leaving their birth countries, and the US Census estimates that almost 14% of the US population in 2022 was born outside the US. ... The 2023 US Preventive Services Task Force Guideline on screening for latent tuberculosis recommends screening for tuberculosis in patients from Latin America, the Caribbean, Africa, Asia, Eastern Europe, and Russia because in 2020, 71% of cases of active tuberculosis in the US occurred among individuals from these areas. Assessment of clinically relevant premigration factors involves consideration of the epidemiology of disease, health care practices, and sociopolitical and environmental exposures in an immigrant’s country of origin. These factors can alter risk assessment in differential diagnoses; for example, neurocysticercosis should be considered in the differential diagnosis of seizures in a patient from Central America.
Medically recommended vs nonmedical cannabis use among US adults
02/08/25 at 03:40 AMMedically recommended vs nonmedical cannabis use among US adultsJAMA Psychiatry; Beth Han, MD, PhD, MPH; Wilson M. Compton, MD, MPE; Emily B. Einstein, PhD; Nora D. Volkow, MD; 1/25With increases in cannabis use for medical purposes and its perceived benefits, patients and clinicians need to be aware of its potential risks. Results showed that adults aged 18 to 49 years reporting medical-only or medical-nonmedical cannabis use vs nonmedical-only use had higher prevalence of CUD [cannabis use disorder] at all severity levels and reported more frequent cannabis use. These findings suggest that medically recommended cannabis is not associated with reduced addiction risk compared with nonmedical use. Clinicians should consider addiction risk before recommending medical cannabis and, if they do, should monitor for CUD emergence.
The National Donor Family Council: History, activities, achievements, and legacies
02/08/25 at 03:35 AMThe National Donor Family Council: History, activities, achievements, and legaciesOmega-Journal of Death and Dying; Margaret B Coolican, Charles A Corr; 1/25The National Donor Family Council (NDFC) functioned under the sponsorship of the National Kidney Foundation from 1992-2014. Giving voice to the needs and views of donor families, the NDFC had an important impact on the support for those families. This article records significant points in the advocacy of donor families, summarizes the history of the NDFC, highlights the various activities and achievements of the NDFC, and offers some impressions of its legacies.
Assessment of organ donation knowledge and attitudes among patients visiting the nephrology outpatient clinic at a tertiary healthcare facility
02/08/25 at 03:30 AMAssessment of organ donation knowledge and attitudes among patients visiting the nephrology outpatient clinic at a tertiary healthcare facilityOmega-Journal of Death and Dying; Ezgi Yarasir, Mehtap Gomleksiz, Muhammet Ridvan Gomleksiz, Ayhan Dogukan; 1/25This study aims to assess the knowledge levels, attitudes, and influencing factors related to organ donation among patients who visited the Nephrology outpatient clinic. A total of 37.5% of the participants stated that they were considering organ donation. Participants with a high school education or higher, those who believed they had sufficient knowledge about organ donation, and those who had a family member awaiting organ transplantation demonstrated a positive attitude toward organ donation ... Understanding societal knowledge and attitudes about organ donation is crucial for assessing individual awareness of this issue.
Flaws in the Medicare Advantage Star Ratings
02/08/25 at 03:25 AMFlaws in the Medicare Advantage Star RatingsJAMA Health Forum; David J. Meyers, PhD, MPH; Amal N. Trivedi, MD; Andrew M. Ryan, PhD; 1/25The objective of the star ratings is to help beneficiaries select better plans, and to reward plans that deliver high-quality care. In June 2024, a US district court judge ruled that the Centers for Medicare and Medicaid Services (CMS) inappropriately calculated Medicare Advantage (MA) Star ratings due to not implementing a previously announced statistical adjustment. First, it is not clear if the star ratings are actually capturing a higher quality, as several measures in the star rating are reported by the plans themselves and plans often overstate their performance. Second, over 80% of contracts by enrollment are rated 4 stars or higher, which is the threshold needed to earn bonus payments, and a single star rating is assigned to each contract even when contracts may cover many different states and regions. Third, while bonus payments for star ratings are costly, plans eligible for enhanced bonuses have not shown greater improvement in measures related to clinical quality or administrative effectiveness. Taken together, the current star ratings are neither useful for all beneficiaries to make their plan decisions, nor do they appear to be capturing quality or catalyzing improvement.
What matters to older Native Hawaiians?: A qualitative study of care preferences
02/08/25 at 03:20 AMWhat matters to older Native Hawaiians?: A qualitative study of care preferencesJournal of Palliative Medicine; by Miquela Ibrao, Rachel Burrage, Shelley Muneoka, Keilyn L Kawakami, Tarin T Tanji, Leslie Tanoue, Kathryn L Braun; 12/24Formal assessment of What Matters in end-of-life care is often done in medical settings through legal forms. Past research indicates that Native Hawaiians are less likely to complete these forms than Whites. The purpose of this study was to explore health care preferences among Native Hawaiian elders and to identify cultural themes that may impact quality care at end of life. Themes suggest the criticality of: (1) incorporating cultural traditions into health care routines; (2) involving family in health and end-of-life decisions; (3) supporting home-based care at the end of life; and (4) building strong patient-provider relationships. Although findings parallel preferences expressed in other populations, the data provide additional insights into the preferences of Native Hawaiian elders anticipating end-of-life care. Recommendations for culturally competent care include: (1) develop relationships with Native Hawaiian patients well before end-of-life care is needed to facilitate discussions of care preferences; (2) work collaboratively with the patient and the patient's defined family; (3) ask about cultural practices and engage traditional healers as directed by the patient; and (4) provide services in patients' homes and communities.
Suzetrigine: First-in-class nonopioid pain therapy is approved by FDA
02/08/25 at 03:15 AMSuzetrigine: First-in-class nonopioid pain therapy is approved by FDAAmerican Journal of Managed Care; Giuliana Grossi; 1/25Suzetrigine (Journavx; Vertex Pharmaceuticals) received approval from the FDA for the treatment of adults with moderate-to-severe acute pain, according to an announcement from Vertex. The therapy is a novel oral, non-opioid, highly selective NaV1.8 pain signal inhibitor ... offering a non-opioid alternative amid the opioid crisis. Clinical trials demonstrated significant efficacy in postsurgical pain relief, though results varied across different conditions. Despite this, suzetrigine offers the potential to energize the nonopioid pain market, which includes other companies like Tris Pharma, Latigo Biotherapeutics, and SiteOne Therapeutics—all actively developing alternatives to opioids. Key findings from the Institute for Clinical and Economic Review analysis of the phase 3 trials include potential lifetime cost savings of $200 per patient when comparing suzetrigine with opioids, assuming a 1-week course priced at $420.
What is renal cell carcinoma?
02/08/25 at 03:10 AMWhat is renal cell carcinoma?JAMA; Rebecca Voelker, MSJ; 1/25Renal cell carcinoma is a common cancer that forms in the kidneys. In 2023, an estimated 81,800 people were diagnosed with renal cell carcinoma in the US, making it the sixth most common cancer among males and the ninth among females. Renal cell carcinoma is most often diagnosed in people aged 60 to 70 years. Although the diagnosis has increased slightly in the US in recent years, deaths from renal cell carcinoma have declined. Although the survival rate of stage IV renal cell carcinoma varies among individuals, the average 5-year survival is 28%.
Palliative care initiated in the Emergency Department-A cluster randomized clinical trial
02/08/25 at 03:05 AMPalliative care initiated in the Emergency Department-A cluster randomized clinical trialJAMA; Corita R. Grudzen, MD, MSHS; Nina Siman, MA, MSEd; Allison M. Cuthel, MPH; Oluwaseun Adeyemi, MBBS, PhD; Rebecca Liddicoat Yamarik, MD; Keith S. Goldfeld, DrPH, MS, MPA; PRIM-ER Investigators; 1/25Question-What is the effect of a multicomponent intervention to initiate palliative care in the emergency department on hospital admission in older adults with serious, life-limiting illness? In this cluster randomized clinical trial, which was conducted at 29 US emergency departments and included 98,922 initial visits, there was no difference in the rate of hospital admission in older adults with serious, life-limiting illness receiving care before (64.4%) vs after (61.3%) emergency department clinical staff receipt of a multicomponent primary palliative care intervention. Relevance-This multicomponent intervention to initiate palliative care in the ED did not have an effect on hospital admission, subsequent health care use, or short-term mortality in older adults with serious, life-limiting illness.
Saturday newsletters
02/08/25 at 03:00 AMSaturday newsletters focus on headlines and research - enjoy!
Palliative care program for community-dwelling individuals with dementia and caregivers: The IN-PEACE randomized clinical trial
02/08/25 at 03:00 AMPalliative care program for community-dwelling individuals with dementia and caregivers: The IN-PEACE randomized clinical trialJAMA Network; by Greg A. Sachs, Nina M. Johnson, Sujuan Gao, Alexia M. Torke, Susan E. Hickman, Amy Pemberton, Andrea Vrobel, Minmin Pan, Jennifer West, Kurt Kroenke; 1/25Among community-dwelling individuals with moderate to severe dementia, does a dementia care management program with integrated palliative care reduce patients’ neuropsychiatric symptoms? In this randomized clinical trial, a dementia care management program with integrated palliative care did not significantly improve patients’ neuropsychiatric symptoms.
Carlos T. Graveran to Lead Bridginglife as Assistant Vice President of Hospice and Palliative Care Services
02/07/25 at 03:00 AMCarlos T. Graveran to Lead Bridginglife as Assistant Vice President of Hospice and Palliative Care ServicesNewswise press release; by LifeBridge Health; 2/3/25[Maryland] BridgingLife, a non-profit organization dedicated to providing high-quality palliative and hospice services, today announced that Carlos T. Graveran will join the organization as assistant vice president of Hospice and Palliative Care Services, effective February 10. Previously known as Carroll Hospice, BridgingLife is a nationally recognized hospice program that has been providing end-of-life and palliative care services for nearly 40 years.
CareFirstNY announces the loss of beloved CEO, Tali Sutton
02/07/25 at 03:00 AMCareFirstNY announces the loss of beloved CEO, Tali Sutton CareFirstNY, Painted Post, NY; 2/5/26 It is with tremendous sadness that we announce that Tali Sutton, CEO of CareFirstNY, experienced a sudden and unexpected medical emergency on Monday, February 3. True to her giving spirit, she is an organ donor and will pass along her final gift of life to others in need. Tali’s belief in CareFirstNY, her authenticity, and her friendship created a bright light that united many people across our region. As a leader, Tali instilled a passionate culture of understanding, positivity, and trust that will be deeply missed. ... CareFirstNY’s patient care services will remain uninterrupted at this time; we will share additional information as available and appropriate. For those who would like to make a contribution to Tali’s memory, please visit our Donation Page for more information.
New report details financial, emotional toll of Parkinson’s on family caregivers
02/07/25 at 03:00 AMNew report details financial, emotional toll of Parkinson’s on family caregivers McKnights Home Care; by Foster Stubbs; 2/4/25 A new report sheds a light on the unique challenges faced by family caregivers who care for loved ones with Parkinson’s disease (PD). The report, Parkinson’s Disease Caregiving in the US, features insights from secondary analysis and supplementary interviews with 10 PD caregivers. These caregivers average 31 hours of unpaid care per week; half of interviewed caregivers exceed 100 hours each week, according to the report. The National Alliance for Caregiving (NAC), with support from The Michael J. Fox Foundation for Parkinson’s Research (MJFF) and Arcadia University, released the report.
Family caregivers who support older relatives are on the rise due to aging-in-place preferences
02/07/25 at 03:00 AMFamily caregivers who support older relatives are on the rise due to aging-in-place preferences HousingWire; by Chris Clow; 2/5/25 The number of family caregivers who support older relatives in either home-based or residential care settings increased by 32% between 2011 and 2022 ... Researchers also say this could be partially tied to rising preferences for aging in place. This is according to a joint study from the Johns Hopkins Bloomberg School of Public Health and the University of Michigan’s Institute for Social Research. Additional support came from the National Institute on Aging, a division of the National Institutes of Health (NIH). The raw number increase went from 18.2 million in 2011 to 24.1 million in 2022. The study also found that the number of care hours provided by family and other unpaid caregivers increased by 50% during that time. The average number of weekly hours for such care stood at 21.4 in 2011, but it jumped to 31 in 2022, nine hours short of what is widely considered a full-time weekly work schedule.