Literature Review

'Shouldn't be something that's feared': She helps people face the end of life with dignity News Chief, part of the USA TODAY Network, Lakeland, FL; by Thomas R. Oldt; 3/2/25 Allow me to introduce a perfectly lovely person you may not wish to meet. She’s fostered rescue dogs, advocated for domestic violence victims, volunteered for foreign medical missions and worked emergency rooms throughout Central Florida. She is exceptionally empathetic, intensely focused and candid to a fault. She is also highly conversant in a subject most of us prefer to avoid. For the past seven years, Dr. Danielle Christiano has been staff physician at Good Shepherd Hospice in Auburndale where – in contrast to most other places – death is not a verboten subject. ... [Question:] What do you say or do to alleviate fears that accompany the end of life? [Answer:] It depends on your definition of hope. And it depends on what you want out of this. My general prescription is very different from most doctors because I embrace joy. I want people to seek out the things that bring them joy, ...

19-year-old says home hospice is a gift, not doom and gloom Keloland Media Group, Sioux Fall, SD; by Tom Hanson; 2/27/25 ... Cheyenne may be 19, but she is wise beyond her years, especially when it comes to something doctors discovered when she was 11. “I have stage 4 Metastatic Osteosarcoma, which is bone cancer in my lungs and It hasn’t responded very well to treatment, so that’s so I’m on hospice, but not because, I’m not on hospice because its the end right now, I’m on hospice because just so I have that extra support,” she said. Cheyenne knows people often misunderstand what hospice is all about. “It’s like doom and gloom and it’s like the end, there’s nothing they can do and that’s just not the case, she said. She was able to go on her road trip because Sanford’s Home Hospice team, including Becky Jibben, helped plan the trip and organize support teams along the way if Cheyenne needed help.

Suspect armed with rifle shoots at hospice nurse, points weapon at deputies The Orange Leader, Orange County, CA; by Staff Reports; 2/28/25 A person was taken into custody after allegedly shooting at a fleeing hospice nurse and pointing a rifle at law enforcement Thursday. Orange County Sheriff’s Deputies responded to the 5600 block of Rebel Road after a hospice nurse reported to 911 that while attempting to provide care to one of her patients she was confronted by an occupant of the home. The occupant followed the nurse out of the home with a rifle, and shot at her as she fled the property.  A single bullet struck the nurse’s vehicle, according to information from OCSO. Upon arrival, Orange County Deputies established communication with the suspect who remained inside the residence with the rifle.  The suspect reportedly pointed the rifle toward the deputies while he remained in close proximity to the hospice patient.  

VITAS’ 'powerhouse’ growth in hospice hitting ‘all-time highs’ Hospice News; by Holly Vossel; 2/27/25 Florida-based VITAS Healthcare is anticipating fruitful hospice growth on its horizon. The Chemed Corp. (NYSE: CHE) subsidiary has seen record-highs in patient census volumes and is ramping up strategic plans to expand its geographic footprint across its home state. Acquisitions and de novos will make up an important mix of VITAS’ expansion, Chairman and CEO Nick Westfall said in Thursday’s earnings call. The company is optimistic about future opportunities in the Southeast, executives indicated. [Click on the title's link to continue reading.]

The Alliance commends introduction of legislation to extend hospice telehealth flexibilities  National Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 2/28/25 The National Alliance for Care at Home (the Alliance) is pleased to support the reintroduction of the Hospice Recertification Flexibility Act in the House of Representatives. This bipartisan legislation, H.R.1720, would extend telehealth flexibilities for hospice face-to-face (F2F) recertification. The F2F encounter is performed by a physician or nurse practitioner to evaluate the patient and collect clinical information used in determining continued eligibility for hospice. Introduced by Representatives Carol Miller (R-WV) and Jared Golden (D-ME), the bill would extend the F2F recertification flexibility for providers until December 31, 2027. Beginning January 1, 2026, the legislation also includes important guardrails to ensure appropriate use and requires the Centers for Medicare & Medicaid Services (CMS) to create a modifier to collect data on when the F2F encounter is conducted via telehealth. The Alliance, then through its legacy organizations, worked with lawmakers to ensure continued care transformation and access to care for high-quality providers. [Click on the title's link to continue reading.]

World Hospice and Palliative Care Day Theme 2025 ehospice; by the Worldwide Hospice and Palliative Care Alliance (WHPCA) team; 2/18/25 Every year the second Saturday of October marks World Hospice and Palliative Care Day (WHPCD). This year WHPCD will be on Saturday 11 October 2025. Each year the WHPCD campaign has a theme that is carefully thought through and selected by the Worldwide Hospice and Palliative Care Alliance (WHPCA) team.  The theme for 2025 is Achieving the Promise: Universal Access to Palliative Care.... More than 60 million people both adults and children need palliative care services every year with over 80% living in low-middle-income countries (LMIC’s) countries. WHPCA has estimated that over half of the need for palliative care is being met in high-income countries while only 4% of the bigger need is met in LMICs, a continuing and shocking disparity.Editor's note: What can you do to help "Achieve the Promise" in your corner of our world? Click here for more information from ehospice/WHPCA.

Writing book, getting tatoos Cowboy State Daily, Casper, WY; by Dale Killingbeck; 3/1/25 One of many tattoos on her left forearm is a dandelion in seed stage ready to blow in the wind. Deanna Cotten calls it “the wish flower” because in Texas where she was born that is its name. And like a seed ready to fly, Cotten finds herself in her last days on Earth and understands existence here is temporal. She considers each dawn a blessing. ALS, also known as Lou Gehrig’s disease, has already claimed a lot of ability from the 43-year-old Glenrock, Wyoming, wife and mother of four. ... With the help of a friend, she is completing a book she started writing for her business clients that has morphed into a book for people in similar circumstances who are facing some sort of crisis and end. ... In November, she entered hospice treatment at home where a team ... from Central Wyoming Hospice & Transitions cared for her and offered assistance to her family at their Glenrock home. 

Hospice of the Piedmont offers discount book, conversation starters for family and friends Augusta Free Press, Waynesboro, VA; by Crystal Graham; 2/26/25 Hospice of the Piedmont has your ticket to discounts at restaurants, theaters, wineries and breweries as well as advice for starting a meaningful conversation with loved ones. ... The printed coupon book offers buy-one-get-one-free entrees, free theater tickets and half price wine tastings. It also includes thoughtful conversation starters designed to spark meaningful discussions with family and friends about life and its final journey. “So much of life happens around the dinner table, at a winery with friends or on a night out at the theater,” said Jenn Downs, chief marketing and development officer at HOP. “We wanted to give people a way to enjoy those experiences while encouraging people to have the kinds of conversations that truly matter.” Editor's note: Applause to Hospice of the Piedmont for this creative, engaging integration of community partnerships (with restaurants, theaters, etc.), hospice fund-raising, and catalyst for meaningful, potentially life-changing dialogues.

Interdisciplinary strategies for establishing a trusting relation as a pre-requisite for existential conversations in palliative care: a grounded theory study BMC Palliative Care - Part of Springer Nature, Open Acces; by Annica Lagerin, Christina Melin-Johansson, Bodil Holmberg, Tove Godskesen, Elin Hjorth, Lena Junehag, Carina Lundh Hagelin, Anneli Ozanne, Johan Sundelöf & Camilla Udo; 2/19/25... This study aimed to gain an in-depth understanding of healthcare professionals’ (HCPs) experiences of existential conversations with patients with PC needs and their next-of-kin by generating a theoretical model. ... To emphasize the importance of ethical competence for quality patient care, particularly in PC, a combination of care ethics, clinical proficiency, relational skills and effective communication is essential. ... The potential obstacles we identified that require attention include the need for managers ... to support HCPs by allowing time for reflection, developing new routines, and providing education focused on existential conversations in PC. However, the main contribution of this study is the description of the interdisciplinary strategies HCPs used to establish meaningful, existential conversations by maintaining presence, as this paved the way for trusting conversations with patients and next-of-kin. Editor's note: Pair this with today's article, "Why being trustworthy is a leadership hack that drives success."

Research priorities in neuropalliative care-A consensus statement from the International Neuropalliative Care SocietyJAMA Neurology; Winnie K. Lau, MD; Corey R. Fehnel, MD, MPH; Zachary A. Macchi, MD; Ambereen K. Mehta, MD, MPH; Manon Auffret, PharmD, PhD; Jori F. Bogetz, MD; Jori E. Fleisher, MD, MSCE; Jerome J. Graber, MD, MPH; Heather E. Leeper, MD, MS; Heena R. Manglani-Terranova, PhD; Susanne Muehlschlegel, MD, MPH; Emily L. Mroz, PhD; Elizabeth J. Pedowitz, MD; Usha Ramanathan, MSc, MD; Max Sarmet, SLP, MSc; Nathan A. Shlobin, BA; Leonard Sokol, MD; Susan Allyson Weeks, MA; Jiayun Xu, PhD, RN; Helen Bundy Medsger; Claire J. Creutzfeldt, MD; Ana-Maria Vranceanu, PhD; Darin B. Zahuranec, MD, MS; David Y. Hwang, MD; 2/25The International Neuropalliative Care Society Research Committee convened an interdisciplinary panel of experts, including clinicians, scientists, people with neurologic disease, and care partners, to identify priority research areas for the advancement of neuropalliative care as a field. Three priority areas highlighted in this review include (1) patient- and care partner–centered symptoms and outcomes specific to neurologic illness and tools for their assessment, (2) development of effective neuropalliative care interventions and delivery models, and (3) methods to support the ability to foster, deliver, and measure goal-concordant care over time.

Executive Personnel Changes - 2/21/25

Forget perks—leadership starts with asking employees what they need Forbes; by Benjamin Laker; 2/25/25 Employee well-being isn’t just a perk—it’s a business imperative. As organizations struggle with high turnover, burnout, and shifting workforce expectations, leaders must rethink how they engage and support employees. Research consistently shows that investing in well-being leads to measurable gains in productivity, retention, and performance. A recent study published by BMJ Leader examined how a structured, data-driven approach to improving workplace culture can yield transformative results—using the well-being initiative at Royal Free Hospital as a case study. ... The program, which was the focus of the BMJ Leader study, incorporated systematic conversations based on the Joy in Work Framework, identifying key challenges and implementing targeted solutions. Following implementation, workplace satisfaction surged by 76%, highlighting the significant impact of addressing staff concerns directly. Employees became more engaged in organizational initiatives, fostering a culture of active participation rather than passive compliance.