Literature Review

Executive producer Bradley Cooper's film Caregiving to premiere on PBS for nationwide broadcast June 24, streaming begins May 27ABC WHTM-27, Harrisburg, PA; 3/20/25 PBS and WETA Washington, DC, today announced that Caregiving, the documentary created with executive producer Bradley Cooper highlighting the challenges and triumphs of caregiving in America, will premiere Tuesday, June 24, 2025 at 9 p.m. ET on PBS (check local listings), and on the PBS YouTube Channel. Caregiving will be available to stream on PBS.org and the PBS App beginning Tuesday, May 27, 2025. Award-winning actress Uzo Aduba (The Residence, Painkiller, Orange is the New Black) was also announced as the film's narrator, bringing her own experience as a caregiver for her mother to the project. The two-hour documentary is centered on the personal experiences of caregivers providing for loved ones, and the challenges and triumph they face each day. These stories are interwoven with the broader context of the cultural and economic conditions in the U.S., leading to a care system tipping into crisis. [Continue reading ... including "Bradley Cooper Invites the Public to Share Their Caregiving Story]

Carolyn Hax: Does sibling love justify traveling to abusive mom’s deathbed?The Washington Post, Washington, DC; 3/24/25 Sister asks the letter writer to join her at their dying mom’s bedside — despite their PTSD-inducing childhoods. [The rest of this article may require a subscription to The Washington Post.]Editor's note: Even if you're not able to access the full article, what does this question stir in you? Be aware that many family caregivers (or simply family members) face complex, conflicted relationships with the persons they are tending--or in this case, even considering visiting or not. Be attuned to these common, everyday occurrences that your direct care interdisciplinary team members regularly navigate. What family systems' education and support do you provide for them?

Hospice House plans to add a new home near Covington Nola.com, New Orleans, LA; by Jessica Saggio; 3/24/25 Mardi Gras may be over, but the Hospice Foundation of the South is rolling. The organization, known for its compassionate end-of-life care, has acquired a piece of land near Convington for a second Hospice House. Plans to fund its construction are underway with a new capital campaign. The effort, once stalled because of a difficult housing market, is back in action after a lot on Lee Road north of Covington was purchased with the help of an anonymous donor. ... Currently, there is one Hospice House in the parish, located near Slidell. The home, which is an oasis for those in their final days of life, provides care to patients free of charge. The only issue is the supply is not nearly big enough for the demand. 

'They mourn just like you and me': Local nonprofit cares for animals of terminally ill owners The Gazette, Colorado Springs, CO; by Kelly Hayes; 3/22/25 The car ride back to the home of Randy and Linda Gearhart was near silent that February day. The husband and wife from Colorado Springs had just picked up 12-year-old Kimi, a tan, medium-sized dog, and 11-year-old Sage, a slightly larger kelpie mix. ... Sitting in the trunk of the car was all the pups had known: several cushions, their bowls, plenty of toys and a heap of blankets. But there was something — or rather, someone — missing. Their owner, who died recently. “I didn’t wash these until last week,” Linda said, pointing to their cushions. “I think having the smells, having their same beds, that familiarity, was good for them.” For nearly three decades, Safe Place for Pets has served as a new home for animals of terminally ill owners in Colorado Springs. With the help of about 50 volunteers, two part-time employees and a handful of fosters such as the Gearharts, the nonprofit shoulders a heavy responsibility: caring for beloved pets after their person dies. [Continue reading this heart-warming story ...]

Bringing palliative care to every patient with cancer: A conversation with Janet L. Abrahm, MD, FACP, FAAHPM, FASCO The ASCO Post, in partnership with the American Society of Clinical Oncology; by Jo Cavallo; 3/25/25 Janet L. Abrahm, MD, FACP, FAAHPM, FASCO, ... has become a widely recognized leader in the field of supportive care and palliative medicine, serving for nearly a decade on the leadership team of the American Academy of Hospice and Palliative Medicine and helping to craft the first Hospice and Palliative Medicine certifying examination offered by the American Board of Internal Medicine. ... In a wide-ranging interview with The ASCO Post, Dr. Abrahm discussed the importance of providing every patient with cancer access to palliative medicine throughout survivorship, how oncologists can become more effective communicators, and strategies to alleviate patients’ suffering at the end of life.

From risk to resilience: Leveraging blockchain to safeguard patient data and drive interoperability Healthcare Business Today; by Krista Bowman; 3/21/25 The numbers tell a startling story. Over 42% of the U.S. population is estimated to have had their healthcare records compromised in 2024 alone, exposing critical vulnerabilities within systems meant to protect patient privacy. A staggering 146 million records were impacted in 13 high-profile data breaches, including the largest healthcare breach in history at Change Healthcare, which affected an estimated 100 million individuals. ... In the U.S., a few healthcare companies are exploring blockchain applications. Humana, MultiPlan, Optum, Quest Diagnostics, and UnitedHealthcare have formed the Synaptic Health Alliance to explore the use of blockchain technology to modernize provider data management.

Mt. Hood Hospice to present third Grief Made Visible art exhibit in April Sandy Post, West Linn, OR; by Brit Allen; 3/23/25 Aside from in-home hospice services, Mt. Hood Hospice offers numerous other resources to the community, regardless of income or if they have any other ties to the organization. Among them are grief support groups that utilize art as a tool of healing. As a result of these groups, 16 artists will have the art that they created in these groups on display at AntFarm Café & Bakery, 39140 Proctor Blvd., throughout the month of April, from April 3-30, while the cafe is open. ... “This art show creates a space that normalizes talking about mental health and grief,” said Mt. Hood Hospice Bereavement Services Director Laura Lirette. “In a culture where grief is often experienced alone and behind closed doors, our hope is that this exhibit will invite conversations about grief and supporting grievers.”

National Alliance’s Scott Levy: Hospices need ‘regulatory relief’ to protect ‘sacred benefit’ Hospice News; by Holly Vossel; 3/21/25 The hospice industry is undergoing a transformative period of rising demand and regulatory changes. Providers of all sizes and types are facing mounting operational challenges and financial strains with limited recourse to voice their collective concerns to legislators. This is according to Scott Levy, chief government affairs officer at National Alliance for Care at Home (the Alliance). Levy stepped into the role earlier this year after holding a similar position at Amedisys. He has been involved in government relations, public policy, advocacy and law for more than 20 years. Levy recently sat down with Hospice News to discuss the array of regulatory and legislative evolutions on the horizon in hospice care delivery.  .[Continue reading ...]

How a Lewiston health care nonprofit diversified to sustain services Mainebiz; by Laurie Schreiber; 3/20/25 Ken Albert leads Lewiston-based Andwell Health Partners, an independent, nonprofit home- and community-based health care organization. The former Androscoggin Home Healthcare and Hospice, founded in 1966, focused on home health care and hospice in Androscoggin, Oxford and Franklin counties. Rebranded in 2024 to reflect its expansion in recent years, Andwell now has locations throughout Maine, with additional service lines including in-home hospice care, Maine’s first inpatient hospice facility, the Maine Center for Palliative Medicine, community and behavioral health, mobile wound care, in-home care giving, private-duty nursing, therapy care, ad maternal and child health. This week, it opened Andwell Audiology in Lewiston. 

Hospice Medical Review Top Denial Reason Codes: Q4 2024 [Palmetto GBA]Palmetto GBA press release; 3/17/25We encourage all providers to review this information when filing claims to prevent denials and to ensure their claims are processed timely. The following information affects providers billing 81X bill types.  1 5CF36 Not Hospice Appropriate  2 56900 Auto Denial — Requested Records not Submitted  3 5CNER The Notice of Election Is Invalid Because It Doesn't Meet Statutory/Regulatory RequirementsSee the article for Top Ten.

Community health workers and technology interventions' impact on palliative support globally Journal of Palliative Medicine; by Alekhya Gunturi, Margarita Pertierra, Irma Elizabeth Huayanay Espinoza, Maya Kavita Ramachandran, Mpho Ratshikana Moloko, Karl A Lorenz; 3/20/25Background: Palliative care has the potential to relieve burdened global health systems but is in short supply in many low-resource settings. Community health workers (CHWs) and digital health tools/telephonic support have the potential to scale scarce palliative care resources and improve outcomes for seriously ill adults in home/community settings.  Conclusions: CHWs and digital health/telephony can improve quality of life, health care use, and caregiver support. Most research focuses on physical and psychological aspects of care instead of cultural aspects of care. Future research is needed to explore culturally tailored interventions in minority populations and low- and middle-income countries, as well as investigate emerging remote technologies to allow for scaling palliative care into home/community settings.Editor's note: Pair this with Hospice community responds to proposed DEA telehealth prescribing rule, posted 3/21/25.

HPNA mourns loss of founding member Hospice & Palliative Nurses Association; Press Release; 3/21/25 The Hospice and Palliative Nurses Association (HPNA) mourns the loss of founding member Madalon O’Rawe Amenta, RN, MN, PhD. Dr. Amenta was inspired to join the hospice movement in the 1970s after having read Elisabeth Kübler-Ross’ On Death and Dying. “Dr. Amenta’s unwavering dedication to hospice and palliative care inspired generations of nurses,” said HPNA President Masako Mayahara, PhD, RN, FAAN, CHPN®, FPCN®. “We are grateful for her leadership, which allowed us to grow our community to nearly 8,000 hospice and palliative care professionals. Her legacy will be honored through our mission to advance nursing expertise in hospice and palliative care through education, advocacy, leadership, and research.” [Continue reading ...]