Literature Review

Dementia treatments frequently conflict with residents’ care goals: study McKnights Long-Term Care News; by Jessica R. Towhey; 9/30/24 New research into nursing home care for residents with Alzheimer’s disease or related dementias found that they frequently experience costly and burdensome treatments that do not align with their own care goals. Overall, though, researchers found that residents who had comfort-focused orders in their treatment plans did receive goal-concordant care but said that improvements — especially in collecting data — are needed. The study examined the electronic health records for 4,285 long-stay nursing home residents who were diagnosed with moderate to advanced ADRD. The researchers analyzed care records and treatment plans to find comfort-focused orders and other indicators that treatments aligned with residents’ own goals as their health declined. Their results were published this month in the Journal of Post-Acute and Long-Term Care Medical Association.

Hospice provider to relocate HQ on Milwaukee’s far northwest side BizTimes - Milwaukee, WI; by Hunter Turpin; 9/26/24 Milwaukee-based Horizon Home Care & Hospice will move its headquarters to occupy about 31,500 square feet at Park Place Business Park on Milwaukee’s far northwest side.

New coalition launches to advance palliative cancer care Hospice News; by Jim Parker; 9/30/24 A new organization, Together for Supportive Cancer Care, launched Monday with a mission to expand access to palliative care among cancer patients. A charitable group, The Sheri and Les Biller Family Foundation, convened more than 40 member organizations, including health care providers, pharmaceutical companies, patient advocacy groups, public policy experts, employers and insurers, among others. “For decades, leaders around our country have worked to show the promise and impact of supportive care programs for people living with cancer, their caregivers and their loved ones,” said Audrey Haberman, the foundation’s CEO, in a statement. “The launch of Together for Supportive Cancer Care builds on this work and is an important step toward creating a health care system where early and ongoing access to supportive care is not a privilege, but a fundamental part of the cancer journey for everyone.” 

[Florida] 12,200 miles of roads cleared as thousands contribute to recovery efforts after Hurricane Helene CBS-10 Tampa Bay, FL; by Haley Williams; 9/28/24 As damage assessments continued after Hurricane Helene slammed the Florida coast, thousands of state officials and law enforcement officers quickly began working to clear roads and check in with storm victims in rural areas. More than 12,000 miles of roads have been cleared by more than 800 Florida Department of Transportation crews. ... The Agency for Health Care Administration reports more than a hundred healthcare facilities have been evacuated or are running solely on generator power. Saturday morning, 55 healthcare facilities reported evacuations, which included:

City of Hope’s horizon: City of Hope gets $20M for pancreatic disease breakthroughs The Clinical Trial Vanguard; by Ferry Darma; 9/26/24 City of Hope, a leading cancer research and treatment institution, has received a $20 million donation from philanthropists Norman and Melinda Payson. This significant gift will establish a dedicated pancreas center to accelerate groundbreaking research and treatments for pancreatic cancer and diabetes. Inspired by the personal impact of pancreatic cancer on his mother, Norman Payson, a noted healthcare executive and City of Hope board director, expressed confidence in the organization’s capabilities. “City of Hope possesses the unique expertise to drive innovative cures for pancreatic cancer and diabetes,” he stated. “We are committed to advancing this research and bringing hope to countless individuals.”  ... The Paysons’ gift follows a historic $150 million donation from A. Emmet Stephenson Jr. and Tessa Stephenson Brand to fund pancreatic cancer research.

Polk County home health aide accused of sleeping on the job arrested in man’s death: ‘He was old anyway' Fox 13, Winter Haven, FL; by Fox 13 News Staff; 9/30/24 A home health aide in Polk County is being held without bond after investigators say she fell asleep, and an 86-year-old man died in her care. ... The Polk County Sheriff’s Office says the victim’s family hired around the clock care from Assisting Hands, which consisted of two 12-hour shifts during the day and night. The victim had recently been hospitalized and was diagnosed with congestive heart failure. He was also receiving services from Good Shepherd Hospice. ... After the day shift nurse left, investigators say Taylor fell asleep on the couch in the living room, which is against company policy that states she should not have been sleeping. Deputies say Taylor woke up around 1 a.m. on August 16 and heard a thump coming from the victim’s bedroom. According to PCSO, Taylor went into the bedroom and saw the victim lying on his right side, on the floor, with his head wedged in between the nightstand and the bed. She told detectives that she tried to help him back into bed but that he told her not to touch him, so she left him on the floor and did not call anyone, including 911 or her employer, which is against company policy. ... According to the Medical Examiner, had Taylor called 911 when she first found the victim, as required by her own company’s policy, the victim would not have died. The Medical Examiner ruled the victim’s cause of death positional asphyxia with a contributory cause of pre-existing health issues.

10 vital skills to future-proof healthcare leaders Becker's Hospital Review; by Laura Dyrda; 9/30/24 The most successful healthcare leaders in the next two years will leave the traditional organizational structures and models in the past in favor of extreme nimbleness, stronger soft skills and optimization of digital technology. Becker's Healthcare connected with 77 leaders from hospitals and health systems across the U.S. who shared the qualities and skill sets that will become more important in the next few years. Here are 10 areas of focus:

[Hurricane/Storm Helene] Workforce emergency support National Hospice Foundation; website; retrieved 9/30/24 Mission of the Hospice Workforce Emergency Support fund is to support hospice workforce needs in the wake of an emergency event. Examples of support could include post-event funding for a hospice staff member’s childcare, shelter, groceries, etc., or assistance with purchasing of Personal Protective Equipment (PPE). WHO CAN APPLY?

Visible, active leadership is vital to change management, says Epic emeritus CIO advisor Healthcare IT News; by Bill Siwicki; 9/26/24 [Part 1 of 2] Lost amidst talk of all the amazing technologies used in healthcare today is a subject very important to Robert Slepin: change management. ... Clinical workforce shortages and burnout, increasing costs and decreasing reimbursement, and capacity to care for patients with behavioral health/addiction issues – these are among the top issues confronting U.S. hospitals, according to the American College of Healthcare Executives. ... While there is no magic wand to accelerate progress, in my experience you can significantly improve the outcomes in a healthcare transformation initiative with an intentional focus and disciplined approach to change management. Conversely, not being thoughtful and effective in leading change could hinder your efforts or adversely impact the outcomes, and even possibly spell disaster. ... Visible, active leadership is vital. ... A hands-off approach of issuing orders from the corner office and asking others to "let me know when it's done" won't cut it. ... Besides being visible and hands-on, the best leaders I have worked with demonstrate a positive style; for example, they are authentic, coaching, transformational, engaging and compassionate. They remove fear and build trust, and inspire, educate, coach and support people in moving together toward a common, stretch goal. ...

Awards and Recognitions: September 2024 We congratulate these honorees and celebrate their contributions to our collective hospice and palliative care mission, vision, and compassionate care throughout our world. Do you know any of these leaders? We encourage you to forward this to them or to find another way to celebrate their success. 

Inside palliative care at Contessa’s Health System joint ventures Hospice News; by Jim Parker; 9/27/24 Contessa, the innovation and high-acuity arm of Amedisys Inc. has made large investments in expanding access to palliative care, particularly through joint ventures with health systems. Amedisys acquired Contessa in 2021 for $250 million. The subsidiary’s specialty is high-acuity care in the home, including hospital-at-home and skilled nursing facility-at-home programs, but in recent years it has also leaned hard into growing its palliative care business. For now, Amedisys shows no signs of slowing down on palliative care. Expanding palliative care relationships and joint venture partnerships is a priority for 2024, the Louisiana-based home health and hospice provider indicated in a filing with the U.S. Securities and Exchange Commission (SEC) earlier this year. 

89-year-old SoCal hospice patient wished he could skydive again, so his care team made it happen ABC-7 Los Angeles, CA; by Leticia Juarez; 9/27/24 Gary Patmor has lived a life of adventure and at 89 years old, the retired aerospace engineer is showing age doesn't mean adventures have to end. So he chose to go skydiving. "Oh, it is just fun exciting," he said. While he is a man of few words, Patmor is a man with plenty of stories he could tell. He's logged more than 1,300 jumps out of civilian, military, antique and experimental aircrafts. ... He survived 38 malfunctioning parachutes and he even doubled for Steve McQueen on film.  ... His backstory has been an incredible journey he has shared with others. "He was actually also the first person to mount a Sony camera and jump out of a plane," said Jocelyn Brito, a social worker for Suncrest Hospice in Riverside where Patmor is now a patient. ... "One of the things that he wanted to do was he wanted to skydive again," said Jessica Fields with Suncrest Hospice. "So we had to make sure that we got the doctor clearance, of course, and then the skydiving company to be able to consent to that before we offered it." On Friday afternoon, Patmor boarded a plane at Sky Dive Elsinore, making him the  oldest skydiver of the day. At 13,000 feet, he took a leap, strapped to an instructor and made his descent to the ground where his wife and Suncrest Hospice staff members cheered him on.

Fighting ‘phantoms’: How fraud skews competition in the hospice market Hospice News; by Holly Vossel; 9/26/24 Fraudulent operators’ marketing strategies are morphing the competitive landscape, making it difficult for legitimate hospice providers to maintain visibility among patients and families. A mounting concern is that fraudsters stepping into the hospice industry have been implementing marketing and outreach practices that at times mirror strategies utilized by quality providers, according to Jeanne Chirico, president and CEO of the Hospice & Palliative Care Association of New York State (HPCANYS). This makes it difficult for referrals, patients and their families to discern the best end-of-life care option. Another significant concern is that the fraudulent actors may have deeper pockets compared to smaller or nonprofit hospices, allowing them to invest more heavily and saturate the market with their messaging.