Literature Review

Hospice ‘license flipping’ still plagues sector, though regulations help Hospice News; by Jim Parker; 10/3/24  “Shady” brokers allegedly continue to facilitate “license flipping” among fraudulent hospices, though new regulations have started bearing down on the practice. Soon after obtaining them, or before regulators can act on alleged malfeasance, according to several industry sources who spoke with Hospice News. The practice appears to stem from a rash of newly licensed hospices that have emerged in California, Nevada, Texas and Arizona – states identified by federal watchdogs as hotspots for hospice fraud. Many of these sales involve certain brokers who move the licenses between owners. “There’s a lot of shady people out there, and they put a high value on their agencies. Right now they’re selling like hot tamales from anywhere between $300,000 to $500,000 per license,” one former hospice leader told Hospice News on condition of anonymity. “They’re all done through the same brokers and the same people.”  

Empath Health established Hurricane Helene Assistance Fund to support colleagues South Florida Hospital and Heaclthcare Report; by Victoria Tanner; 10/6/24 At Empath Health, we believe that caring for our colleagues is just as essential as caring for our patients and families. In response to the recent devastation caused by Hurricane Helene, we have established a special Hurricane Helene Assistance Fund within our Colleague Assistance Fund (CAF) to offer immediate financial relief to colleagues who have been impacted by the storm. This fund is designed to help those facing unexpected expenses, such as temporary housing, home repairs, and other essential needs that have arisen in the wake of the hurricane. By creating this targeted fund, we aim to ensure that our team members can access the resources they need to recover and rebuild during this difficult time. “Our colleagues are the heart of our mission, and in times of crisis, we stand by them just as they stand by our patients,” said Jonathan Fleece, President and CEO of Empath Health. “This fund allows us to help those who give so much to others, ensuring they have the support they need when it matters most.” ... Hurricane Helene, which impacted West Central Florida on [September 26], stands as the most severe storm to hit the region in over a century. Empath Health, with over 3,000 colleagues, serves communities across 20 counties, stretching from Collier County in the south to Marion County in the north. Editor's note: We understand that contributions are made by Empath's colleagues. For other, hospice contributions (especially links where the general public can contribute to hospice staff and/or hospice needs, please contact us via these links, Editor and/or Publisher. Thank you.

Food with love: A Lafayette kitchen provides meals and 'walks that final walk with families' Nola.com; by Catherine S. Comeaux; 10/6/24 Approaching retirement, Kent Zerangue had the idea of running a small catering business in his backyard kitchen. A bowl of gumbo changed those plans. Now, from that kitchen, he and a team of volunteers operate Food With Love — a ministry that brings food, love and guidance to hospice families. ... In 2016, as his own father was in hospice care, a neighbor brought over a shrimp and okra gumbo. It not only comforted and fed the family, but it also set Zerangue to think, “Why not just cook for people and give it away? By 2017, he and his wife Susie began doing just that — first for a friend whose son had a stroke, then another whose husband was terminally ill. Word-of-mouth spread and by the end of that year, they were feeding 10 families. They also began leaving food for families in the freezers at Hospice of Acadiana. Knowing the hospice nurses’ workload didn’t always allow time for food delivery, a hospice volunteer coordinator asked Zerangue if he would like to deliver the meals to families. His initially declined since he was content with just cooking. That is, until he realized that the frozen meals weren’t moving as frequently as he was cooking them. ....Editor's note: What a meaningful ministry that surely makes a difference. This can be easy to adapt for you own hospice. Assess needs. Brainstorm ideas. Find partners and sponsors. As this article's title voices, "walk that final walk with families."

Amazon Wish List for 3 hospices impacted by Hurricane HeleneWe have gathered a list of items needed by each of our member organizations that were significantly impacted by Hurricane Helene.  If you are interested in donating items, please click on the links below to make a purchase.  The items will be shipped directly to the member organization(s).  Wish lists from member organizations:

Key national organizations for community crisis preparation, relief, and recoveryList compiled for end-of-life care organizations and the public by Composing Life Out of Loss; 2022.American Red Cross Disaster and Emergency Preparedness and ReliefAmerican Trauma SocietyFEMA – Federal Emergency Management AgencyInternational Critical Incident Stress FoundationNational Association of State EMS OfficialsNational Emergency Management AssociationNational Voluntary Organizations Active in DisasterU.S. Department of Health & Human Services – The Medical Reserves CorpsU.S. Department of Health & Human Services – Trauma and Critical Care TeamsU.S. Department of Justice – Office for Victims of CrimeWorld Central KitchenWorld Health OrganizationEditor's note: Disclosure, Composing Life Out of Loss is a newsletter sponsor.

BREAKING NEWS 10/1/2024, 12:30pm - Medicare Program; FY 2025 Hospice Wage Index and Payment Rate Update, Hospice Conditions of Participation Updates, and Hospice Quality Reporting Program Requirements; Correction Federal Register - The Daily Journal of the United States Government; Centers for Medicare & Medicaid Services  (CMS), Department of Health and Human Services (HHS); 10/1/24 This document corrects technical and typographical errors in the final rule that appeared in the August 6, 2024 Federal Register titled “Medicare Program; FY 2025 Hospice Wage Index and Payment Rate Update, Hospice Conditions of Participation Updates, and Hospice Quality Reporting Program Requirements”.I. Background: In FR Doc. 2024-16910 of August 6, 2024 (89 FR 64202), there were a number of technical and typographical errors that are identified and corrected in this correcting document. The provisions in this correction document are effective as if they had been included in the final rule that appeared in the August 6, 2024 Federal Register . Accordingly, the corrections are effective October 1, 2024.II. Summary of Errors: ...Given these errors, we are republishing the FY 2025 Hospice Wage Index file accordingly on the CMS website at: https://www.cms.gov/​medicare/​payment/​fee-for-service-providers/​hospice/​hospice-wage-index effective October 1, 2024.

Alzheimer dementia among individuals with down syndromeJAMA Network Open; Eric Rubenstein, PhD; Salina Tewolde, ScM; Amy Michals, MPH; Jennifer Weuve, ScD; Juan Fortea, MD; Matthew P. Fox, ScD; Marcia Pescador Jimenez, PhD; Ashley Scott, MPH; Yorghos Tripodis, PhD; Brian G. Skotko, MD; 9/24In this cohort study of  ... adults with Down syndrome enrolled in Medicaid or Medicare between 2011 to 2019, 23.3% of adults had Alzheimer dementia diagnoses, and the mean age of death was 59.2 years. These findings suggest that Alzheimer dementia ... occurs at high rates ... among people with Down syndrome, and administrative claims data may offer valuable insights into improving care for this diverse population.

The death toll rises as rescue crews respond to Hurricane Helene's devastation NPR Network; by Emma Bowman; 9/29/24, 4:35pm As rescue teams continued to respond in the wake of Hurricane Helene’s destruction in the Southeast U.S. and southern Appalachia on Sunday, the death toll continued to climb. Hundreds remained missing across the region. At least 64 people were killed across Florida, Georgia, North Carolina, South Carolina and Virginia, The Associated Press reported. Many people drowned after not heeding evacuation orders; others were killed in their homes and cars by falling trees and road signs. At least two Georgians were killed when a tornado picked up their car. Large portions of the region remained in darkness with power still knocked out to more than 2 million customers in five states on Sunday evening, nearly three days after Helene made landfall in Florida’s Big Bend region.An important note from our Publisher and Editor: Click here for a real-time map of multi-state power outages spread across FL, GA, SC, NC, and VA, linked from the Asheville (NC) Citizen Times. We are looking for (and asking for) stories about how the storm impacted hospices--staff and patients--and opportunities to assist. 

New coalition launches to advance palliative cancer care Hospice News; by Jim Parker; 9/30/24 A new organization, Together for Supportive Cancer Care, launched Monday with a mission to expand access to palliative care among cancer patients. A charitable group, The Sheri and Les Biller Family Foundation, convened more than 40 member organizations, including health care providers, pharmaceutical companies, patient advocacy groups, public policy experts, employers and insurers, among others. “For decades, leaders around our country have worked to show the promise and impact of supportive care programs for people living with cancer, their caregivers and their loved ones,” said Audrey Haberman, the foundation’s CEO, in a statement. “The launch of Together for Supportive Cancer Care builds on this work and is an important step toward creating a health care system where early and ongoing access to supportive care is not a privilege, but a fundamental part of the cancer journey for everyone.” 

No matter how you feel, get up, dress up, show up, and never give up. ~Regina Brett

Sunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!

[The Netherlands] The focus on life-prolonging anticancer treatment hampers shared decision-making in people with advanced cancer: A qualitative embedded multiple-case studyPalliative Medicine; Daisy Jm Ermers, Maartje J van Geel, Yvonne Engels, Demi Kellenaers, Anouk Sj Schuurmans, Floortje K Ploos van Amstel, Carla Ml van Herpen, Yvonne Schoon, Henk J Schers, Kris Cp Vissers, Evelien Jm Kuip, Marieke Perry; 9/24Implementing shared decision-making in oncology practice is often limited, particularly integrating the patient's context into decision-making. Four themes were identified [in this study]: shared decision-making is a dynamic and continuous process (1), in which the medical oncologist's treatment recommendation is central (2), fuelled by the patients' experience of not having a choice (3), and integrating the patient's context into shared decision-making was considered important but hampered (4), for example, by the association with the terminal phase. The prevailing tendency among medical oncologists and persons with advanced cancer to prioritize life-prolonging anticancer treatments restricts the potential for shared decision-making.