Literature Review

New IL law requires annual report on prison hospice care WAND News, Springfield, IL; by Mike Miletich; 1/15/26 A new law requires Illinois to report data on hospice care available for prisoners. Supporters say the law will bring dignity, transparency and compassion to people dying within the state's correctional facilities. More than 1,000 prisoners are 65 or older, and a growing number of those people need end-of-life care and support services. The Illinois Department of Corrections does not have a formal hospice program, as end-of-life care is provided on a prison-by-prison basis. 

Neuropalliative care in movement disordersContinuum: Lifelong Learning in Neurology; by Benzi M Kluger; 12/25Over the past decade, significant progress has been made to advance palliative care approaches for patients with Parkinson disease and other movement disorders. This population has significant palliative care needs that are poorly met under traditional models of care, including nonmotor symptom management, advance care planning, psychosocial support, spiritual and existential support, care partner support, and timely referrals for specialist and end-of-life palliative care (hospice). Clinical trials demonstrate that specialist palliative care can improve many patient and family outcomes. Neurologists can use the five-pillars framework (nonmotor symptoms, advance care planning, psychosocial and spiritual support, care partner support, and timely involvement of specialist palliative care) to systematically address common sources of suffering that are poorly recognized in traditional models of care. This framework can be integrated into previsit screening forms and note templates to improve the detection of palliative issues.

Finding solutions: Augusta nurse opens new end-of-life care facility WRDW/WAGT News Stations, Augusta, GA; by Zayna Haliburton; 1/12/26 A hospice nurse is opening Augusta’s first inpatient hospice home, giving families a new option for end-of-life care. Stacia Sirull, a hospice nurse, is opening the Augusta Inpatient Hospice Home. The facility will feature hummingbird decorations throughout. “My sister passed away a couple of years ago. She died in a hospice house in Kentucky and loved humming birds. When I decided to do this I was like we are just going to put humming birds everywhere,” Sirull said. ... The Augusta Inpatient Hospice Home will have six rooms added to the existing building. Sirull said there will always be one bed available for someone who doesn’t have the finances or insurance to cover the stay.

Suncrest Hospice announces Dallas office now serving north Texas families PRUnderground - Norfolk & Wrentham, TX; Press Release; 1/13/26 Suncrest Hospice ... announced today that its Dallas office is now serving families across Arlington, Fort Worth, Tarrant County, and surrounding areas. The new location brings high-quality, compassionate end-of-life care to North Texas communities. ... The Dallas office marks Suncrest’s third location in Texas, joining established teams in Austin and San Antonio. This expansion extends the company’s reach to 53 locations across 25 states, strengthening its commitment to providing accessible hospice services nationwide.

[Spain] Why primary care is central to better end-of-life care Medscape; by Eva Farina; 1/9/26 Primary care professionals should play a proactive role in caring for patients at the end of life, according to family medicine specialists at the National Congress of the Spanish Society of Family and Community Medicine (semFYC) held in Madrid, Spain. ... According to the SUPPORT study, dying in a hospital is often associated with avoidable suffering, excessive use of technology, limited communication, and insufficient care planning. 

What to expect in US healthcare in 2026 and beyond McKinsey & Company; by Neha Patel and Shubham Singhal with Ankit Jain; 1/12/26The healthcare industry faces successive waves of challenging trends, with glimmers of opportunity in select segments. US healthcare system continues to face considerable financial strain, although there are pockets of opportunity. ... Payers and providers have borne the brunt of the decline to date and will continue to feel financial pressure in the immediate future. ... Meanwhile, providers could experience an increase in uncompensated care and loss of reimbursement. ... Post-acute care is positioned for stronger performance over the next several years, with continued growth in home health and hospice but stagnation in skilled nursing facilities. ...

[United Kingdom] One in five hospice beds closed, report warns in end of life care crisis Express - Health and Social Affairs; by Lucy Johnston; 1/10/26 Almost one in five hospice beds in England is now closed or standing empty, despite growing demand for end-of-life care, a study by Oxford University researchers has found. The analysis exposes a deepening funding crisis in the hospice sector - which its authors have described as “a national scandal.” ... [Oxford University professors describe that] ... increasing numbers of frail and elderly patients are dying “in pain, alone, often hungry and dehydrated,” while others are being admitted to hospital in emergency situations, adding pressure to already stretched NHS services.

West Michigan nonprofit celebrates 30 years of service, debuts new grief program MLive, Byron Center, MI; by Skyla Jewell-Hammie; 1/8/26 Faith Hospice, one of West Michigan’s largest nonprofit hospices, celebrated three decades of service with the launch of a new grief support program. The new program, “Real Grief,” is designed to address the needs of those experiencing unexpected, unexplained loss and unrelenting grief. "It’s a starting point for those struggling to process their loss,” said Janet Jaymin, M.A., LPC, director of integrative support services. “We’ve created a community where people can connect with others who understand what they’re going through.”

“Can We Talk?” A community-based training to improve serious illness communication Home Healthcare Now; by Ashley Kaminski Petkis, DNP, APRN, AGACNP-BC and Eric Hackenson, DPT; Jan/Feb 2026 Serious illness conversations (SICs) are often delayed or avoided in community-based healthcare due to clinician discomfort and lack of training. Given that many patients wish to die at home, yet often do not, there is a need for structured communication training in home care and hospice settings to ensure the care we provide aligns with patient and family preferences. ...  By embedding SIC training within a community-based organization, this work demonstrated how modest interventions can catalyze a change in practice, reinforcing the idea that SICs are a standard of quality care rather than an optional enhancement.

Kobacker program moves to Ohio’s Hospice in landmark partnership preserving future of quality nonprofit end-of-life care US National Times, Columbus, OH; Press Release; 1/7/26 The Kobacker family today announced that Kobacker House, central Ohio’s pioneering inpatient hospice facility founded in 1989, will move and continue its mission under Ohio’s Hospice, the state’s largest nonprofit hospice provider. As part of the announcement, the family published a guiding charter, The Kobacker Way, which details fundamental principles for quality nonprofit hospice care. The full document is available at www.TheKobackerWay.org. 

Dying with dignity - personal perspective: The sacred ending we don’t talk about enough. Psychology Today; by Cynthia Chen-Joea DO, MPH, FAAFP, DABOM; 12/24/25 In the U.S., we spend enormous amounts of energy keeping people alive, curing, fixing, and prolonging life at all costs. What we rarely talk about is how people die. And more importantly, how poorly our system supports them when the end is clearly approaching. ... [Background story about her dad's Parkinson's and eventual death] ... Then came our request for hospice. After an evaluation, we were told he didn’t “qualify” because he had gained some weight and his albumin levels were “too high.” An arbitrary checklist, based on labs values, prevented him from getting into hospice. [Keep reading] So we tried for palliative care instead. I made call after call, only to be bounced between departments, many unclear on the difference between hospice and palliative care, ... Even as a physician, I was stunned by how many barriers we encountered simply trying to do the most humane thing: to advocate for dignity, comfort, and respect at the end of my father’s life.