Literature Review

Strengths and opportunities: Clinicians' perspectives on palliative care for Amyotrophic Lateral Sclerosis (ALS) in the United StatesMuscle & Nerve; Kara E Bischoff, Gayle Kojimoto, David L O'Riordan, Yaowaree L Leavell, Samuel Maiser, Astrid Grouls, Alexander K Smith, Steven Z Pantilat, Benzi M Kluger, Ambereen K Mehta; 6/25Half of ALS clinicians [surveyed] reported they are able to manage patients' pain (55%) and mood symptoms (52%) "very well." Fewer reported managing care partner needs (43%) and spiritual/existential distress (29%) "very well." Fifty-eight percent of pALS [people with ALS] are referred to outpatient PC and 69% to hospice at some point in the illness. ALS clinicians generally felt satisfied with PC teams' care, but PC clinicians were less confident managing motor symptoms (51% confident) and helping care partners understand how to provide care (51%) and use equipment (25%). Most clinicians felt the quality of PC provided by ALS (77%) and PC (90%) teams is good/excellent. However, qualitative comments highlighted that both ALS and PC clinicians have knowledge gaps, and collaboration between ALS and PC clinicians should increase.

Hospice: Relatable language, cultural humility key to grow rural utilizationHome Health Line; by MaryKent Wolff; 6/18/25 Agencies in rural communities that make information about their care more accessible to community members who may be isolated or lack trust in health care services could see both increased hospice utilization and patient engagement. [Subscription required for full access.]

[England] Developing a palliative care service for the homeless community Nursing Times; by Mark Pedder; 6/18/25 To help address inequalities in the provision of palliative care, a hospice set up a service focusing on the unique care needs of Luton’s homeless community. The outreach initiative addresses the logistical and emotional barriers that often prevent homeless individuals from seeking care. Initially conceptualised as a weekly outreach clinic, the service evolved into a more flexible model that adapts to the unpredictable nature of the community it serves. By reframing the conversation and addressing the stigma surrounding homelessness, the service aims to improve health outcomes and extend life expectancies for this vulnerable population, while avoiding unnecessary hospital attendances and improving end-of-life conversations.

Hospice service to vulnerable people awarded The Chronicle-Journal, Thunderbay, Ontario; by Doug Diaczuk; 6/13/25 An organization that provides palliative care is being recognized for its work at ensuring everyone, including those who may not have a home to call their own, receive the services they need at the end of life. Hospice Northwest [Mount Vernon, WA, USA] is the first recipient of the new Equity in Action Award created earlier this year by Mount Pleasant Group and Hospice Palliative Care Ontario [Canada]. The award is meant to highlight work being done to promote better access to palliative care in communities across the province.

Nursing home is pressuring my mother-in-law to enter hospiceAging Care - Caregiver Forum - End of Life - Questions; question posed by "concerned8"; 6/12/25 I am her Health Care Surrogate but as they won't declare her incompetent it has not come into effect. I believe the home's intent is to prevent me from making the decision regarding hospice and instead to pressure her to enter it in various ways. ... I am not anti-hospice and expect her to enter it in the near future, but want that to be my decision, not the home's (even if it's portrayed as hers).  ... [An answer from another reader" Our family has only had bad experiences with three different hospice companies. Contrary to what most people believe, many patients are placed on hospice for free equipment and free services. I was told this by more than one hospice worker.Editor's Note: This post raises numerous troubling perceptions, with descriptions of poor hospice experiences. 

[Canada] The discourse of medical assistance in dying and its relationship with hospice palliative care in Canada: An integrative literature reviewJournal of Advanced Nursing; Jennifer D Dorman, D Shelley Raffin Bouchal, Eric Wasylenko, Shane Sinclair; 5/25Three themes identified from the data were the relationship between MAiD [medical assistance in dying] and HPC [hospice pallaitive care], suffering in the context of MAiD, and moral distress and moral uncertainty in providing or not providing MAiD. The discourse around the relationship between MAiD and HPC is complex and contextual. Personal and professional understandings of end-of-life care differ and influence perspectives on how and whether MAiD and hospice palliative care can be reconciled. Findings consider how the concepts of end of life, MAiD, HPC, suffering, and moral distress influence and are influenced by the discourse of dying. 

Quality of life while dying: Cutting edge hospice center opening in Colorado Springs NBC KOAA-5, Colorado Springs, CO; by Bill Folsom; 6/10/25 A major improvement to hospice care is coming to Colorado Springs. “This facility really does meet a need that is not met any other way,” said Pikes Peak Hospice and Palliative Care, President Dawn Darvalics. Over the next couple of weeks the non-profit Pikes Peak Hospice is opening the only dedicated hospice inpatient care center in Colorado Springs. ... “Early in 2017 my wife Sarah was diagnosed with multiple myeloma, ...” said Pikes Peak Hospice Foundation, Board of Trustees Chair, Michael Healy. ... He says his family would have benefited from this new cutting-edge facility. It goes beyond medicine. It includes things like gardens, homey gathering spaces, an area dedicated to veteran support, a chapel, a place for kids, and a family style kitchen. ... Plaques around the building show the many donors helping raise the $8.5 million goal the Pikes Peak Hospice Foundation is still working to complete.

Revolutionizing health in South Florida: The benefits of IV therapy and inclusive hospice care South Florida Reporter; by southfloridareporter.com; 6/8/25 ... South Florida is known for its multicultural population, making the expansion of hospice care to diverse groups particularly significant. Traditionally, certain cultural or community groups may have had hesitations or lacked access to hospice care due to language barriers, cultural misunderstandings, or lack of awareness. Increasingly, hospice organizations are focusing on outreach and education within these communities, breaking down barriers and encouraging patients and families to consider hospice as a valuable option for quality end-of-life care. 

Sacramento hospice for terminally ill homeless people to open after decade-long effort Sacramento Business Journal; by Chris Campbell; 6/9/25 A new hospice facility in Sacramento will open its doors to terminally ill homeless people on June 18. Joshua's House Hospice ... will provide end-of-life care for up to 15 residents. The project, a decade in the making, was funded by more than $3.5 million in contributions from individual donors, local foundations, the city of Sacramento and Sacramento County. "This project began with simple but profound conversations I had with people living on the streets," said Marlene Von Fredericks-Fitzwater, founder and CEO of Joshua's House. "They weren't afraid of dying, they were afraid of dying alone." The facility consists of six residential units, each approximately 670 square feet ...

Palliative care advocacy at the World Health Assembly 2025 ehospice; by Stephen Connor, Executive Director WHPCA; 6/5/25 Once again, palliative care advocates ensured that the voice of palliative care was heard at the premier event for global health, the World Health Assembly (WHA). The WHA is the governing body of the WHO where resolutions are passed that direct the Global Programme of Work for WHO. ... This year there were resolutions and actions involving non-communicable disease, cervical cancer, lung health, the pandemic response, mental health and social connection, the healthcare workforce, women’s health, universal health coverage, health emergencies, and so forth. WHO’s funding has been significantly reduced due to withdrawal of the US from WHO and global health funding generally. However, during the meeting other countries are stepping up to support WHO. 

Understanding hospice care: Eligibility, cost and purpose Emmanuel Hospice; 6/5/25 How do you want to live? It may be surprising to learn that’s the first question Emmanuel Hospice asks every new patient. Isn’t hospice about dying? While hospice is often associated with death, Melissa Wedberg will tell you it’s more about living, especially at Emmanuel Hospice, where she serves as vice president of community relations. With more than a decade in the hospice industry, Wedberg has spent years dispelling this and many other myths. Despite having roots in the U.S. dating back to the 70s, there remains a lot of mystery about hospice. Common questions Wedberg hears include: What is hospice and who’s eligible? How does hospice work? How is hospice paid for? Editor's note: This simple question jumps to the core of person-centered care, "How do you want to live?"

Death literacy is fostering positive conversations about the end Counterpunch; by Caren Martineau; 5/30/25 “[D]eath literacy is defined as the knowledge and skills that make it possible to understand and act upon the end-of-life and death care options,” according to a 2024 article in the journal Palliative Care and Social Practice, and its four foundational pillars: knowledge, skills, experiential learning, and social action. ... The U.S. Census named 2024 as the start of “Peak 65,” a period that will last through 2027. Around 4.1 million Americans are expected to turn 65 each year from 2024 to 2027 (approximately 11,000 a day). By 2030, all baby boomers will be 65 or older. Implications of “Peak 65” include:

New inmate comfort care program launched for terminally ill patients ABC WTXL 27, Tallahassee, FL; by Tier Wootson; 6/6/25 The Leon County Sheriff's Office and Big Bend Hospice are teaming up for a new Inmate Comfort Care Program for Terminally Ill Patients. In the press release, LCSO says that due to this new partnership, there will now be an inpatient hospice room within the Leon County Detention Facility. They say this has been developed over the last year with collaboration between LCSO leadership, healthcare leaders from YesCare, and representatives from Big Bend Hospice. ... The program is for inmates who have less than one week to live. While in hospice care, family members will be able to visit loved ones in a "peaceful and private environment."