Literature Review

Hospice care in the era of AI: hospices' views on data-driven tools to support live discharge decisionsJournal of the American Geriatrics Society; by Elizabeth A. Luth, Caitlin Brennan, Susan Hurley, Kira G. Sheldon, Yongkang Zhang; 8/3/26 Live discharge occurs for 20% of hospice enrollees, resulting in loss of support and disruptive care transitions, with higher risk for patients with Alzheimer's disease and related dementias (ADRD). Little is understood about how data-driven clinical decision support tools (e.g., predictive algorithms) might support decision making regarding live discharge. ... This paper advances our understanding of multilevel factors hospices face in supporting patients discharged alive. It establishes hospices' interest in adopting data-driven tools to support live discharge and outlines criteria for successful development and implementation of these tools.

Karen Cassidy’s seed of compassion continues to grow at Hildegard House Voice Tribune, Louisville, KY; by Alisha Proffitt; 8/3/26The idea that became Hildegard House began with a gap in care that Karen Cassidy encountered every day as a palliative care nurse practitioner. ... She cared for patients approaching the end of life who qualified for hospice but had nowhere to receive it. Some were homeless. Others lived alone without family or caregivers. Without a home and support, hospice was often out of reach. ... That vision is now Hildegard House, Kentucky's first and only comfort care home, where people without housing or loved ones to care for them can receive hospice services in a home setting. The organization partners with Hosparus Health while relying entirely on donations, grants, volunteers, and community support to provide care at no cost to residents. Today, more than 150 Compassionate Companion volunteers serve alongside nurses, physicians, staff, board members, gardeners, meal providers, and countless donors. All of which has grown from a seed of compassion Cassidy planted in this community. As she hands leadership to Becki Romans, Cassidy speaks of her gratitude. "I had a vision and a dream. But no one can do it alone." As she prepares her next steps forward into retirement, she leaves behind her a legacy of genuine love and care.Editor's Note: I'm honored to have known Karen through the years, and to currently serve on the Hildegard House's Board of Directors. Its mission, volunteer caregivers, community support, and leadership inspire me at each and every interaction. Read more about its "Hildegard" name. We celebrate Karen's visionary leadership, her new retirement, and Becki's leadership into new chapters ahead.

Quality domains in home-based pediatric hospice and palliative care: Adolescent and young adult perspectivesBMC Palliative Care; by Daniel H Grossoehme, Claire A Crawford, Jhansi Chandra Ellakula, Toluwalase Ajayi, Justin N Baker, Sarah Friebert, Lisa Humphrey, JillAnn Jarrell, Rachel Thienprayoon, Pamela S Hinds; 7/26Previous research with pediatric providers and caregivers concluded that pediatric hospice and palliative care have unique attributes. Not known is how adolescent hospice and palliative care patients understand quality palliative care. Methods: Semi-structured interviews with 10-26 year-olds who received home-based hospice and/or palliative care visits in the prior three years at six diverse sites in the United States. The results address an important gap by including adolescent/young adult patients' voices regarding delivery of home-based hospice and palliative care. Clinical implications include prioritizing and making time to build trusting relationships directly with the AYA, empowering them to participate in their care to the extent appropriate and prepare for transition to adult care when needed, providing support for family members, and training for all providers in generalist spiritual care.

Trella Health releases 2026 Post-Acute Market Intelligence Report -- now fully interactive -- highlighting flattening Medicare Advantage growth and stabilizing FFS volumesPR Newsletter, Atlanta, GA; Press Release; 7/30/26Trella Health today released its Post-Acute Market Intelligence Report: 2026 Edition. ... The report examines the trends reshaping care delivery, referral patterns, and growth opportunities across the post-acute care market. ... The findings point to a post-acute market at a pivotal moment ... fee-for-service hospice admissions grew at their fastest rate in five years, while skilled nursing admissions recorded their first annual increase since 2022. ... [Additionally ...] 

Public Policy Agenda & Toolkit National Coalition for Hospice and Palliative Care; Press Release; 5/4/26 The National Coalition for Hospice and Palliative Care’s Public Policy Agenda outlines a unified, consensus-driven set of priorities to strengthen palliative care and hospice for patients, families, and caregivers across the lifespan. Developed through collaboration among national member organizations, the agenda provides a coordinated framework to guide policy and advocacy efforts at both the national and state levels. It reflects shared priorities to improve access, advance quality and equity, support the workforce, and promote sustainable, value-based care.

Poverty level affects end-of-life care in adolescent and young adult cancer patients  Cancer Therapy Advisor; by Liam Andrew DAvenport, MA; 7/24/26 Adolescent and young adult (AYA) cancer patients from high-poverty neighborhoods face disparities in end-of-life (EoL) care, according to research published in the Journal of the National Comprehensive Cancer Network. AYA patients from high-poverty neighborhoods have more emergency department visits and hospitalizations, and less hospice use, than their low-poverty counterparts, study researchers reported. ... Eligible patients had been diagnosed with cancer and died between 12 and 39 years of age, and were enrolled in one of the participant health systems for more than 90 days prior to their death. 

How would hospice use differ if every Medicare beneficiary were in Medicare Advantage?Journal of Palliative Medicine; by Claire K Ankuda, Karen McKendrick, Melissa Aldridge; 6/26Hospice use is higher in the growing Medicare Advantage (MA) program compared to Traditional Medicare (TM). It is uncertain if this is due to different hospice referral patterns. Among 5153 decedents, 35.3% were in MA at death. Compared to TM decedents, MA decedents were younger, more likely to be Hispanic, less likely to reside in a facility, and less likely to report serious illnesses (dementia, cancer, stroke, heart disease, and lung disease). We estimated that if TM decedents had been enrolled in MA, hospice use would have been 6.1% higher ... This difference was pronounced among those with higher education and serious illnesses in TM: for example, 10.1% higher for those with dementia ... versus without dementia ...

Blue Ridge Care expands in Fauquier County Hospice News; by Jim Parker; 7/22/26 Blue Ridge Care is expanding its hospice and palliative care services in Fauquier County in its home state of Virginia. The expansion is designed to improve access to care among rural and underserved communities in northern Virginia. It includes enhanced clinical visibility, increased care coordination and strengthened referral partnerships with area hospitals, assisted living and skiled nursing facilities and community organizations. “Fauquier County is a community with deep roots, strong values and a growing need for accessible, quality-trusted care,” said Jason Parsons, president and CEO of Blue Ridge Care.

700 rural hospitals at risk of closing, by state Becker's Hospital Review; by Madeline Scheetz; 7/22/26 Seven hundred rural hospitals across the U.S., or about one-third of all rural facilities in the country, are at risk of closing due to severe financial challenges, according to a July 21 Center for Healthcare Quality and Payment Reform analysis. The analysis comprises 264 hospitals that are at immediate risk of closure, according to the report. In almost every state, rural hospitals are at risk of closure. In most states, more than 25% of rural hospitals are at risk and in 11 states, 50% or more are at risk. ... More than 100 rural U.S. hospitals have closed in the past decade, with 110 closing since 2015, according to the report. Fifty-three hospitals have ended inpatient services since the beginning of 2023 to qualify for federal grants only available to rural emergency hospitals.

Hospice enrollments from the emergency department feature short admissions and high-acuity hospice care Health Affairs; by Helen P. Knight, Kourosh Ravvaz, Alexander Fiksdal, Lin Shen, Isaac S. Chua, Claire K. Ankuda, Haiden A. Huskamp, Hojjat Salmasian, Joan M. Teno, and David W. Bates; 6/1/26 ... In this sample, 4.3 percent of initial enrollments in hospice originated from the ED. ED-to-hospice admissions featured short lengths-of-stay (21.7 percent were two days or less) and high rates of general inpatient level of care at the time of enrollment (23.6 percent). The 10 percent of hospice agencies with the highest proportion of ED-to-hospice enrollments were less often for-profit than agencies ranked below the fiftieth percentile in respect to proportion of ED-to-hospice enrollments. Further research is needed to increase understanding of how much patients benefit from ED-to-hospice transfers when their hospice stays before death are very short, and what drivers lead to these ED-to-hospice transfers.

Mercy Hospice House renamed Garden B; some criticize lack of transparency The Durango Herald, Durango, CO; by Jessica Bowman; 7/20/26 Mercy Hospice House was renamed Garden B after the for-profit arm of CommonSpirit Health Network, Health at Home, assumed responsibility for outpatient hospice services. The name change was required by state regulations, according to Wendy Hockett, the Health at Home representative who spoke with local hospice volunteers during a meeting Wednesday at the hospice offices in Three Springs. Because Mercy Hospital no longer holds Colorado's hospice license, the building can no longer legally be called a "hospice house," she said. The hospice license is now held by CommonSpirit Health at Home. The hospice team will continues to care for patients who are in one of the eight Garden B beds, but Mercy Hospital nurses, trained in both hospice and non-hospice care, will also provide bedside care, she said.

Highest Medicare Hospice Utilization Rates Posted in CY 2025!1520ai / Hospice Analytics press release; by Cordt T. Kassner; 7/20/26Medicare hospice utilization reached a record high of 51.9% in calendar year (CY) 2025, according to preliminary analysis by Cordt T. Kassner, PhD. Utilization measures the share of Medicare deaths that occurred under hospice care – a consistent, conservative metric used in annual reporting... States leading the nation in hospice utilization (all >60%) include: Utah (67.7%), Rhode Island (62.1%), Florida (60.2%), and Wisconsin (60.0%)... As previously published , hospice utilization serves as a key indicator of both access and quality in end-of-life care... Data-driven insights like these remain essential for improving care for patients and families nationwide. [Download the entire article, including two detailed graphs, here.]

The women running death salons for people of color to process grief: ‘It allows for freedom’ The Guardian; by Melissa Hellman; 7/19/26 In a small cream-colored room at a cemetery in Philadelphia, Pennsylvania, Nefertiti Moor sat at the head of a semicircle. Dressed in black with her long hair in locs, she delivered instructions for the evening discussion. "It's not death counseling or a debate," said Moor. She invited the two women in attendance to talk freely about their cultural associations with dying and grief. Tasha Johnson, who worked in behavioral health, said that she felt desensitized after the recent deaths of several people she knew. She was grappling with "the reality that it can be anyone at any point". The free-flowing conversation about mortality, otherwise known as a death salon or death cafe, was unique in that it was designed for people of color. Death salons for marginalized communities are becoming more common around the country, with practitioners addressing the unique end-of-life concerns of queer, trans, or Black and brown people.