Literature Review

Groundbreaking ceremony for new hospice house in Derby CBS WCAX-3, Burlington/Derby, VT; by Hailey Morgan; 5/31/25 ... Marion Dehnke lost her husband Clint Stevens to cancer back in 2013. She says during that time, she was his caregiver, and he had to stay in a nursing home in a tiny room, with one other person. She said it made things very disruptive, and she didn’t get to spend the time she wanted with him, and she doesn’t want that for someone else. ... Community leaders, and members with the Newport Church of God invested in a solution called the Living Waters Hospice House. It is a two bedroom home dedicated to those in need in their final days. The project is worth a million dollars, and is funded entirely by donations. ... Construction for the home, started this past week, the groundbreaking ceremony was held on the church lawn Saturday.

[United Kingdom] Hospice cuts 19 jobs to save £1.7m amid ‘worst financial crisis’ in its history LSE - The London School of Economics and Political Science; by Emily Moss; 5/29/25 A Yorkshire-based hospice charity has cut 19 jobs in the hope of reducing its annual costs by £1.7m as it faces what it has previously described as “the worst financial crisis” in its almost 40-year history. The Kirkwood, which provides palliative and end-of-life care for people living in and around Kirklees, West Yorkshire, said that an additional nine employees had agreed to reduce their hours or adjust their roles to enable the hospice to save money. The hospice opened its redundancy consultation in February. The initial plans placed 33 roles at risk of redundancy. At the time, the Kirkwood said it was facing the “worst financial crisis” in its history, citing a “perfect storm” of an increasing demand for hospice services versus rises in the prices of essential equipment, energy and food.Editor's note: This represents just one of many ongoing reports of financial crises, extreme fund-raising, closures and staff layoffs throughout the UK's hospices. Themes and patterns pair with trends we're seeing throughout the US.

OP-ED: How hospice care falls short for people living with dementia Being Patient - Alzheimer's News, Advice, Stories & Support; by Maria J. Silveira; 5/30/25Only 12 percent of Americans with dementia ever enroll in hospice. This may be due to how hospice is structured and paid for in the U.S., explains University of Michigan associate professor of internal medicine Maria J Silveira. ... In contrast to the former president [Jimmy Carter's extended hospice care], his wife, who had dementia, lived only nine days under hospice care. Palliative care physicians like myself who treat both conditions are not surprised at all by this disparity. ... Strikingly, only 12 percent of Americans with dementia ever enroll in hospice. Among those who do, one-third are near death. This is in stark contrast to the cancer population: Patients over 60 with cancer enroll in hospice 70 percent of the time.

Hospitalists should champion hospice as ‘life with dignity’ Medscape; by Julie Peck; 5/29/25 If anyone can put a positive spin on the end of life, it’s Charles Vialotti, MD, director of Hospice Care at Holy Name Medical Center’s Villa Marie Claire in Bergen County, New Jersey. Violotti, who at the age of 80 lives at the 20-bed Villa Marie Claire to serve its residents full-time, says the hospice industry needs hospitalists’ help with sort of a rebrand, one that will almost certainly have a positive effect on patient and family satisfaction. “Providers used to stress offering people death with dignity. And if you think about that, who is ever going to choose anything that offers death? Death in any form is still death,” Vialotti said. “So, we really like to focus on offering people life with dignity, giving people back choice, giving them the option to structure their final days, weeks, or months the way they would most like to see it happen."

WHO unveils new guideline to improve global access to controlled medicines World Health Organization; by Departmental update; 5/26/25 The World Health Organization (WHO) has released a rapid communication outlining its comprehensive new guideline on balanced national policies for controlled medicines. The guideline’s recommendations were officially presented during a high-level side event at the Seventy-eighth World Health Assembly on Friday 23 May 2025. It is designed to support countries in ensuring safe, equitable and affordable access to essential controlled medicines which are critical for treating acute and chronic pain, mental health conditions, substance use disorders and other serious health issues.

National Alliance for Care at Home publishes CONNECT to Care Report National Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 5/27/25 The National Alliance for Care at Home (the Alliance) published the results of new research conducted by Transcend Strategy Group exploring perceptions of hospice care among underserved communities. This research compiles findings from a series of surveys of 2,000 people and explores perceptions of hospice care among Black, Hispanic, Asian American, LGBTQ+, and rural communities. Using the CONNECT acronym – Communication, Outcomes, Network, Nurture, Engagement, Collaboration, and Transparency – the report aims to help providers support equitable, inclusive, and comprehensive access to care and is part of the Alliance’s ongoing commitment to increasing access to hospice and home care through knowledge sharing, data collection, and collaborative discussion.  Along with key research findings, CONNECT to Care offers recommendations for hospice providers to help increase understanding of hospice care and help overcome barriers to access.  

When patients die: A myeloma specialist grieves Medscape; by Manni Mohyuddin, MD; 5/28/25 ... We form such beautiful bonds with patients as we guide them through the highs and lows of treatment. And that is why I struggled so profoundly with the abrupt separation created by a transition of a patient to hospice. How can it be okay for me to be seeing a patient weekly (and sometimes more often) for such a long time and then suddenly never see them again after they transition to hospice? How can we just disappear from their lives at such a critical juncture? I understand that I may not have more chemotherapy to offer, but I at least can offer emotional support, validation, and my friendship. ...Editor's note: Continue reading this powerful commentary. Taking this further, do you have HIPAA compliant systems in place to notify the patient's oncologist or pre-hospice primary physician of the death? 

Mom takes first picture with new baby, not knowing in weeks he'll be gone Newsweek; by Daniella  Gray; 5/24/25 A grieving mom has shared the first picture of herself with her newborn baby, not knowing she'd lose him just weeks later. Wunmi Babalola from the West Midlands in the UK, shared photos on TikTok looking at her baby in his hospital crib. In the same carousel on TikTok, Babalola also included the last photo the two of them would have together, just six and a half weeks later. ...  

Iowa legislature passes "Mason's Law," with assistance from Children's Respite Homes of America, paving way for 1st Pediatric Palliative Care Center License in the nation Cision PRWeb; by Children's Respite Homes of America; 5/16/25 Iowa has made history. With final approval from both chambers of the Iowa Legislature, "Mason's Law" (House File HF 933) has officially passed, making Iowa the first state poised to authorize a specialized Pediatric Palliative Care Center license. This landmark legislation now awaits the Governor's signature—anticipated before the end of June—and is set to transform how children with life-limiting conditions receive care in Iowa and beyond. Named in memory of Mason Sieck, a young child who passed away in 2021, Mason's Law represents the tireless advocacy of Mason's parents, Shanna and Curtis Sieck. 

A proposal to remove hospice providers from a state review poses a threat to patient care The Boston Globe, Boston, MA; by Diana Franchitto; 5/16/25 The General Assembly should maintain rigorous standards and oppose rolling back Rhode Island’s Certificate of Need process, writes HopeHealth president and CEO. ... As the president and CEO of HopeHealth Hospice & Palliative Care, I am proud that Rhode Island offers some of the highest-quality hospice care in the nation. But right now, legislation before the General Assembly could put that quality at risk.A proposal in Governor Dan McKee‘s fiscal 2026 budget would eliminate the requirement that hospice providers be scrutinized by Rhode Island’s Certificate of Need (CON) process. Some may position this as an effort to streamline government, but those of us who work in hospice care know better. The CON process isn’t one of the flashier, public-facing functions of state government, but it has a direct impact on the quality of health and hospice care that Rhode Islanders receive throughout their lives. ... Exempting hospice from meeting the rigorous standards that a CON requires poses an immediate threat to the quality of patient care. ...

New palliative care unit at Mercy Medical Center in Springfield WWLP Springfield, MA; by Kayleigh Thomas; 5/15/25 Mercy Medical Center in Springfield has just opened its new Palliative Care Unit, the first in western Massachusetts. This unit is named after the late Andy Yee, a well-known local restaurant owner. It serves as a tribute to his legacy and dedication to the community. ... To honor his memory, Mercy Medical Center held a ribbon-cutting ceremony for the new palliative care unit named after him. “My dad is extraordinary. He always took care of others. He always showed up when it mattered most. And this space here, this unit embodies that spirit,” said Andy Yee’s daughter, Bella Yee. 

Dying at home becomes more common for patients with history of ischemic stroke NeurologyToday; by Susan Fitzgerald; 5/15/25 In contrast to earlier studies showing a decline in stroke prevalence and mortality, a new study found that the rates are going up and more people, particularly Black Americans, are either dying at home or arriving to the hospital dead on arrival. Experts speculate that the trend may be driven by the lack of access to hospice services and care, in general.

Palliative and end-of-life care during critical cardiovascular illness: A scientific statement from the American Heart Association American Heart Association; by Erin A. Bohula, MD, DPhil, Michael J. Landzberg, MD, Venu Menon, MD, FAHA, Carlos L. Alviar, MD, Gregory W. Barsness, MD, FAHA, Daniela R. Crousillat, MD, Nelia Jain, MD, MA, Robert Page II, PharmD, MSPH, FAHA, Rachel Wells, PhD, MSN, and Abdulla A. Damluji, MD, PhD, MBA, FAHA on behalf of the American Heart Association Acute Cardiac Care and General Cardiology Committee of the Council on Clinical Cardiology; and Council on Cardiovascular and Stroke Nursing; 5/15/25 Abstract: Cardiac intensive care units are witnessing a demographic shift, characterized by patients with increasingly complex or end-stage cardiovascular disease with a greater burden of concomitant comorbid noncardiovascular disease. Despite technical advances in care that may be offered, many critically ill cardiovascular patients will nevertheless experience significant morbidity and mortality during the acute decompensation, including physical and psychological suffering. Palliative care, with its specialized focus on alleviating suffering, aligns treatments with patient and caregiver values and improves overall care planning. Integrating palliative care into cardiovascular disease management extends the therapeutic approach beyond life-sustaining measures to encompass life-enhancing goals, addressing the physical, emotional, psychosocial, and spiritual needs of critically ill patients. This American Heart Association scientific statement aims to explore the definitions and conceptual framework of palliative care and to suggest strategies to integrate palliative care principles into the management of patients with critical cardiovascular illness.