Literature Review

Governor Hochul signs Medical Aid in Dying Act into New York state law New York State - Governor Kathy Hochul, Albany, NY; Press Release; 2/6/26 Governor Hochul today signed legislation S.138/A.136 that will allow medical aid in dying to be available to terminally ill New Yorkers with less than six months to live. This historic bill signing comes after careful reflection and deliberation with the sponsors of the bill, advocacy organizations, and everyday New Yorkers ... The bill, as passed by the Legislature originally included a number of protections in order to ensure that no patient was coerced into choosing medical aid in dying and that no health care professional or religiously affiliated health facility would be forced to offer medical aid in dying. The Governor worked with the Legislature to include additional guardrails that will make sure people won’t be taken advantage of, while still ensuring terminally ill New Yorkers have the choice to die comfortably and on their own terms, including: [continue reading] ...

[Austria] Hospice nurses' views about the necessity for palliative sedation in existential sufferingPain Management Nursing; Dana Hagmann, Susanne Fleckinger, Piret Paal; 1/26Disagreements between nurses and doctors regarding the assessment and management of existential suffering in terminally ill patients represent a critical challenge in palliative care, particularly in the context of inpatient adult hospices. The study highlights the limited involvement of nurses in decision-making processes regarding palliative sedation despite their critical insights into patients' existential suffering. The findings emphasize the need for interdisciplinary collaboration and the integration of nurses' perspectives to achieve more holistic and ethically sound care in inpatient hospices.

Many patients with advanced blood cancers delay hospice to keep access to blood transfusionManaged Healthcare Executive; by Briana Contreras; 2/4/26Key Takeaways:

Honoring Black History Month: Advancing equity in hospice and end-of-life care Gilchrist; by Gilchrist Staff; 2/3/26 Black History Month is a time to honor the resilience, contributions, and leadership of Black Americans, past and present, while also reflecting on the work that remains to ensure equity across all areas of society, including healthcare. In hospice and palliative care, Black leaders, clinicians, advocates, and community members have played a vital role in expanding access, shaping compassionate care models, and addressing long-standing disparities at the end of life. At Gilchrist, Black History Month is not only about reflection, but also about action. 

National policy framework for Pediatric Palliative Care Homes National Center for Pediatric Palliative Care Homes; email and webpage; 2/3/26The NCPPCH recently formally released its National Policy Framework for Pediatric Palliative Care Homes, and has begun early engagement with key national partners. This framework is intended to help policymakers at the state and federal level better understand the structural, licensing, and reimbursement pathways needed to support Pediatric Palliative Care Centers nationwide. Review the Policy Framework and Executive Summary here: https://www.ncppch.org/national-policy-framework.

[Worldwide] End-of-life care statistics by care, conditions and illness (2026) Market.us Media; by Samruddhi Yardi; 2/2/26 Each year, an estimated 56.8 million people, including 25.7 million in the last year of life, are in need of palliative care. Worldwide, only about 14% of people who need palliative care currently receive it. ... As society continues to grapple with evolving views on life and death, the commitment to compassionate, personalized, and respectful end-of-life care remains paramount. Embracing this philosophy ensures that every individual is allowed a dignified and meaningful conclusion to their life’s journey.

CMS announces $50 billion Rural Health Transformation Program: What providers and states need to know JD Supra; by Margia Corner, Alexandria Foster, Kendall Kohlmeyer; 2/2/26On December 29, 2025, the Centers for Medicare & Medicaid Services (“CMS”) announced that it will distribute award amounts to all 50 states under the first year of the Rural Health Transformation Program (the “Program”). ... The Program’s $50 billion in funds will be allocated over five years, with $10 billion available each year beginning in 2026. ... Under Public Law 119-21, funding must be distributed to states as follows: ...

Protecting patients at the end of life why CON still matters - part 2 Teleios Collaborative Network (TCN); podcast hosted by Chris Comeaux with Paul A. Ledford and Tim Rogers;  1/30/26 In Part Two of Protecting Patients at the End of Life: Why CON Still Matters, host Chris Comeaux continues the conversation with two of the nation’s most respected hospice policy leaders—Paul A. Ledford, President & CEO of the Florida Hospice & Palliative Care Association, and Tim Rogers, President & CEO of the Association for Home & Hospice Care of North Carolina. This episode moves beyond regulatory theory and into the real-world patient and family experience—especially in states without hospice Certificate of Need (CON) laws. Drawing on decades of leadership, personal stories of loved ones in hospice, and data-informed insights, Paul and Tim explore what families actually face when hospice markets are oversaturated, fragmented, or poorly regulated.

Drivers of disease-specific end-of-life disparities Hospice News; by Holly Vossel; 1/30/26 ... Racial and ethnic disparities persist among underserved patient populations with dementia, who have a stronger likelihood of dying without awareness or access to hospice, recent research has found. Clinicians may play a vital role in moving the needle forward. Nearly 260, 000 Black, Hispanic and white Medicare decedents with dementia-related conditions were recently examined in a new study, which was published in the Journal of the American Medical Association (JAMA) Health Forum.  Editor's Note: We posted this study in our Saturday Research newsletter, 12/27/25, End-of-life care for older adults with dementia by race and ethnicity and physicians’ role. This article gives more practical descriptions and applications for its results.

Patients with terminal blood cancer stress need for transfusion access in hospice care, survey findsHematology Advisor; by Joantahn Goodman, MPhil; 1/28/26  Patients with blood cancer eligible for hospice care emphasize the importance of access to transfusion over other services, according to research published in JAMA Network Open. The survey-based study confirms that, among patients with an estimated life expectancy of 6 months or less, routine hospice services are perceived of less value than transfusion access — suggesting that palliative transfusion availability should be incorporated into hospice care universally, the authors noted in their report.

Hospice telehealth once again endangered as federal shutdown looms  Hospice News; by Jim Parker; 1/28/26 The prospect of another government shutdown could result in the expiration of COVID-era telehealth flexibilities. The government experienced a lengthy shutdown in November 2025, which ended with the passing of the Continuing Appropriations Act of 2026. That bill not only funded the government through Jan. 30, but it also extended the telehealth flexibilities to that date. Now, a further extension sits in limbo as congressional lawmakers spar along partisan lines. If a new shutdown occurs, it would likely be partial, according to Logan Hoover, vice president of policy and government relations for the National Alliance for Care at Home.

Protecting patients at the end of life: Why CON still matters / part one, with Tim Rogers and Paul A. Ledford Teleios Collaborative Network (TCN); podcast/video hosted by Chris Comeaux with Time Rogers and Paul A. Ledford; 1/28/26 Certificate of Need (CON) laws remain one of the most debated—and misunderstood—regulatory frameworks in healthcare.  In this in-depth conversation, Chris Comeaux is joined by two of the nation’s most respected Hospice association leaders: Paul A. Ledford, President & CEO of the Florida Hospice & Palliative Care Association, and Tim Rogers, President & CEO of the Association for Home & Hospice Care of North Carolina.

What home-based care consumers really want Hospice News; by Jim Parker; 1/27/26In interviews conducted by Cozy Home Community with patients and family members who received home-based care, six key themes emerged as factors that influence their perceptions of care —  education, navigation, community and fit, families serving as health care “quarterbacks” and the importance of emotional intelligence and empathy.